TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
5 | for migrainea few | Get cold easier, tingling, weight loss and the dreaded hair loss and damage | F | 47 | 4 years 200mg | 7/25/2013 | 5 | migraine prevention | bad taste with carbonated drinks; inability to recall things such as names of close friends, even when I am talking to them; tingling in hands; weight loss; low libido | I have either gotten use to the taste of carbonated drinks or the bad taste has gone away! The recall factor has gotten better, or I am just finding ways to get around it. I will say I have tried to wean myself off of Topamax a few times, with some not so great results! I gained lots of weight in a short amount of time, and suffered constipation. I even stayed off for 3-4 months and the problems did not go away. I am having some headaches, but not sure if they are related to spinal problems or my migraines. I feel this drug has been well worth the side effects, even though all are not that pleasant. I also still have hormonal headaches, but once a month is better than every day! | F | 41 | 4 years | 11/19/2005 | 5 | I'm taking topamax for seizures | This medicine works great for me, my only problem is the side effects. It interferes with my speech, my memory and my nerves. Therefore it intereferes with my job. It's to the point where I feel like I can't work anymore. When I'm at work or in public I feel like everyone is watching me I'm always nervous. | F | 29 | 4 years 500mg | 4/27/2014 | 4 | Migraines & seizures | Weight loss, diaherra, metallic taste, tingling in hands & feet | I lost 35 lbs on this drug. Had a migraine every other month keep my seizures under control. then I switched from generic to brand and gained 15 lbs back | F | 31 | 4 years 100 | 12/31/2014 | 4 | bipolar 1 disorder -mood stabilizer | Poor concentration, brain fog, hair thinning, thirst, some fatigue | Topamax was a life saver for me. I didn't have much success with newer stabilizers. It does have it's flaws though. I went from being very sharp to unable to concentrate on anything that requires me to really focus. Word recall is better than it was initially. The tingling I noticed went away after a few weeks. I am unable to drink carbonated beverages because the drug changes the taste. I was prone to migraines and now I don't have them anymore. My hair has thinned considerably. Used to have very thick hair. | F | 34 | 4 years 200 mg | 6/30/2015 | 4 | migraines | Tingling/loss of sensation in all extremities including toes and nose. Inability to recall words. Weight loss (10 pounds at one point) | Topamax was wonderful for my migraines, but the side effects went from amusing to irritating to downright annoying over the course of 4 years. I'm taking a beta-blocker now but I may need to return to Topomax or something similar. | F | 29 | 4 years | 2/21/2008 | 4 | Migraines | Lethargy, fall asleep in the mid afternoon, have to take a nap. Tingling in extremities and taste changes early in course of treatment, went away after a time. Used to have to force myself to eat. Still have a distaste for sweets & sodas, although I never liked them much to begin with... The tingling and loss of appetite do pop back up if my dose is increased.I'm on 200mg a day now (100 in morning, 100 at bedtime), couldn't stay awake on the 300mg that was recommended. | It did help a to decrease the severity and frequency of my migraines, but I still get them, on schedule, every month with my period. They used to last 7 - 13 days at a severity level of 7 to 10 out of 10, now they last 2 - 4 days, with a severity of 3 - 5. Not perfect, but better. | F | 46 | 4 years | 8/6/2008 | 4 | Tremors abd migraines | I've been on topamax since I was 17. I had some side effects a higher dosages but found that 75 works well for me. I even lost about 1( pounds back when I started but I gained it back after a while | F | 4 years 75 mg | 8/22/2012 | 4 | Migraines | Weight Loss, Hair Loss, Tingling of Hands/Feet that went away, Throat tightness that lasted for two months initially has redeveloped after I was switched from one generic manufactured company's tablet to another company's, carpal tunnel symptoms that lasted for a month in both hands and wrists once I had hit the current dosage | Not all generic topiramate tablets are the same. I'm having different side effects after I started taking a different manufacturer's generic tablets after taking the same TEVA brand tablets for four years. | F | 38 | 4 years 50 MG 2X day | 7/24/2013 | 4 | Migraine preventative | Constipation, memory loss, insomnia | The Topamax I take for migraine preventative has helped tremendously. I have much fewer migraines. When I do feel one coming on, I simply take my regular migraine medication, which is Zomig. I have tried a higher dose and get the tingling in my feet and legs. I have never had any weight loss with it, which I have seen in others, but I also have a thyroid problem. Overall, Topamax has helped change my life in a positive manner. I do have a prolonged QT interval on EKG, which I did not have prior, but I am on so much medication, it would be difficult to pin down which one is actually causing it. I rated Topamax a 4 because it is short acting, as if I miss a dose, I will already get a headache. | F | 40 | 4 years 100 MG 1X day | 4/24/2012 | 4 | migraines!!!! | not much weight loss and bad memory. | I was takiing topamax for four years and receently went off (2 yeasr) on my own thinking I didn't need it anymore. I was WRONG!!! Migraines are back 3 times a week and as bad as before. Im wondering if i go back will it have the same effect on my migraines???? | F | 36 | 4 years 150 mg 1X day | 8/22/2011 | 4 | Migraines | Initially: tingling in hands and feet. Continue to have memory issues and kidney stones | VERY IMPORTANT: If you take this drug long term, you MUST take Potassium Citrate (ask your doc for a prescription). I had 5 kidney stones this last year after being on Topamax long term. But as long as you take this supplement, it will prevent the kidney stones. Also, I have found that Ginko Bilobia helps with the cognitive issues. The tingling in my hands and feet went away after a year or so. This drug has REALLY helped with my migraines and is worth the side effects since I learned how to combat them! | F | 35 | 4 years 200 1X day | 2/10/2012 | 4 | Epilepsy | Dry mouth, Short term memory failure, loss of concentration/words through mid sentence, feeling Dumb, insomnia, lower back pain, cold feet, loss of appetite, serious nasal congestion,and acne issues. | After being on this medication for many years now, it has controlled my seizures for all those years, but it came with a price and that is the side effects. But after all the seizures I had to deal with before, it was worth it. | M | 48 | 4 years 300mg 2X day | 4/25/2014 Patient History | 4 | Fibromyalgia | Word finding problems, which are part of the "Fibro Fog" caused by Fibromyalgia already, were greatly increased. Difficulty in concentrating and focusing. Initially had weight loss, which leveled off after first year on the drug. | Topamax has taken away all of the flare-ups with my fibromyalgia. I have had only one major flare-up in the past 4 years, and that was after a medical procedure. To not have the weeks-long and months-long flare-ups in my pain levels has greatly improved my quality of life. Unfortunately, the cognitive deficits have gotten so bad that I need to stop the drug because I can no longer think straight or remember things. | F | 56 | 4 years 200 mg. 2X day | 6/16/2010 | 4 | Epilepsy | Numbness &/or tingling in hands, feet, & face. All things taste differently. Confusion. I can forget words, people, directions, even where I currently am. Little girl lost. Weight loss (60 pounds since 2003). Decreased migraine. Increased thirst, decreased restroom breaks. Overheat easily. | Topamax has been a lifesaver for me. It has a number of side effects that I've learned to deal with. They are by far better than have the number of seizures and migraines I was having on a daily and weekly basis. Now I have seizures about once a year, it almost seems seasonal. I currently take 300mg, 200 in the am and 100 in the pm, with several other medications for other things. If people are finding other things are not working out for them then it is a medication I would suggest they talk with their dr about, but I'd let them know the side effects you first go through aren't a picnic and take an adjustment. | F | 27 | 4 years | 9/14/2007 | 4 | depression | Tingling in hands for about a month off and on. ALWAYS tired. I can sleep 14 hour nights every night easy. Communication is sometimes diffult. Slight loss of apetite. | This medication has been very helpful. I get very frustrated when I can't remember words or when I'm in the middle of a story and my brain goes blank. I preach at a bible college and this medication has made me a lot more reliant on using notes and keeping my thoughts clear because I'm probably going to forget what I'm talking about. | F | 23 | 4 years | 3/11/2007 | 4 | Seizures | Total loss of words, stumbling speech, fatigue, blurry vision (inability to focus), off balance | I love Topamax in the sense that my seizures have calmed. I haven't had a grand mal in 3 years, and the amount of partial and petite is less than 1/2 of what it used to be. As a runner, my run time has gone way down. My feet kick when I run. I feel completely like an idiot at work (my boss and I have talked, but not comforting still). Just out of body experiences alot. Weight loss didn't effect me too much (Type 1 diabetic), but overall things are better. | F | 27 | 4 years | 4/17/2007 | 3 | Epilepsy | Tingling in the hands, feet and face. Soda is no longer a part of my diet. Hair loss, my hair texture has also changed (which wasn't exactly bad, it went from frizzy to smooth, haha). I also get a really bad antsy feeling in my legs at night making it hard to sleep. Moodiness, weightloss, loss of memory and often have a feeling of dizzyness and I also have frequent problems with depth perception. | To me, this drug isnt really worth it considering my stage of epilepsy. I only have seizures once every couple of years and it only became a problem in 7th grade (My last known seizure) when my mom decided we had to start looking at options. Considering here in Minnesota you have to be seizure free for a year before you can get your license back after an episode, I'd basically only have my license every other year or so, so thats why I was put on the drug, and it was the only one that really didn't effect weight negatively, me being less than the perfect body weight already. I'm happy it's effected you all so positively though, good luck! | F | 17 | 4 years | 6/17/2005 | 3 | seizures | Numbness in right leg, trouble speaking, body odor, weigtloss, diaharea. Constant tingling in hands and legs (this went away after my dosage was upped, but the Numbness in my leg grew worse.) | I don't mind the weight loss that much, but I value my speech, I only had a seizure once or twice a year anyway, after going on it, it descreased the chance of having them but I still have them once every about two years. | M | 17 | 4 years | 10/26/2005 | 3 | Migraines | Extreme exhaustion, difficulty with short term memory, recall, loss of vocabulary, lost train of thought, focus, concentration, inability to follow conversation, general dulling of wits, constant fog in the brain! | Severe migraine sufferer, 3-4 migraines weekly. Incapacitating & blinding, where bedridden for 2-3 days straight, sick and virtually unable to walk or stand when migraine occurs. Extreme sensitivity to estrogen, food triggers, and other drugs. The first two years I took Topomax I felt almost no side effects--just the sudden absence of migraines! It was wonderful. Initial tiredness for about 2 weeks as I ramped up the dosage to adequate level. However, for last 2 years *severe* brain fog and exhaustion has set in. Perhaps critical buildup has occurred & my body cannot process the drug; I am operating at the mental level of an 80 yr old. VERY hard to follow conversations. Miss my wits, but do not know of an alternative medication, and must continue to function/work! | F | 36 | 4 years 100 mg 1X day | 7/15/2010 |