TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Seizures and daily (24/7) headache Mood swings, depression, anxiety, paranoia, suicidal thoughts and attempt, angry for no reason, withdrawn, not myself, argumentive, stomach pain, lower back pain, abdominal pain and bloating, painful urination, decreased appetite. Shortly after starting Topamax, I starting experiencing all the symptom I listed. Getting worse as time goes on. Nearly gave my mother a nervous breakdown, because I was normally a happy, trustworthy person. I became the total opposite. I wasn't even sure who I was. I've started weaning myself off. The drug only reduced the severity of my head pain, but has not taken it away. I'll put up with the daily head pain and occassional seizures. The personality changes are not worth the little benefit I received from the drug. F 16 2 months
7/18/2007
 1  seizures tingling of fingers and feet, soda and certain foods tasted horrible, nausea, sinus infection that would not go away, joint aches, chills, hair loss, dandruff, skin appearance and itching, depression, anxiety and inability to stay asleep for more than 2 hours. Topamax worked wonders for my seizures. Did not have one during the two months I was on them. Although I have been off of Topamax for about a month now, my tongue is still tingling and I am not sure if it will ever go away. F 35 2 months
3/22/2005
 1  seisures It slowed my cognitve function as compared to dilantin and it made me very sleepy. Also, it made me feel hot and sweaty all the time so that I was always thirsty or struggling to go to sleep at night. It makes you dumb and sleepy; don't use it; use dilantin instead. 2 months
6/2/2005
 1  bipolar Crying, irritablity, memory loss, vision blurry, suicidal thoughts, weightloss, irratic driving, and food tasted bad I tried this med twice in two years. It was horrible! There is a good reason that doctors nicknamed it F 34 2 months
7/22/2005
 1  Physical pain WHERE TO BEGIN?! Severe memory loss... wait, what was I writing about? Oh, yes, the beloved Dopamax. Speech problems (slurring, word recall issues), loss of libido, loss of appetite, feeling completely emotionally dissociated from my life and world, depression, procrastination, insomnia, lethargy, mood swings -- all over the spectrum... I CANNOT believe my doctor prescribed this drug for me. It is a DISASTER. Getting off the drug is even worse -- if you do it too fast, you'll get SEIZURES. STAY AWAY from this drug. It's like taking every sensation you have and deadening it to the max, and yes, that includes brain sensations. But if you like living like a vegetable, then by all means, partake! F 32 2 months
10/16/2008
 1  Epilepsy Depression, near suicidal. Tingling in hands and feet. Anger. Rage. Unable to concentrate. Didn't stop the seizures. F 47 2 months
10/19/2004
 1  intenese moods and irritability red face, weight gain. sudden triggered anger and agression, soda tasting flat, EXTREME headaches, sleepiness, inablitlty to focus and think as clearly as before F 17 2 months
2/14/2006
 1  migranes MAJOR bone sensitivity. Couldn't even move in the morning. Had to have assistance taking a shower and getting dressed in the morning. I did, however, have a much needed break from the migranes that plague me about once a week. But I decided it wasn't worth the pain I was going through with the severe arthritis I was experiencing. I'll take the migranes, thank you. At least there is Excedrine Migrane. I don't recommend this medication to anyone with arthritic bones, or unusual side effects to certain medications. For those of you it works for, without severe side effects. I'm happy for you. ROCK ON!!!! F 23 2 months
9/28/2006
 1  migraines Now at a loss for words when before I was witty, forgeting where I parked the car, spacing out mid-sentence in front of intelligent collegues, angry at work about past wrongs,aggressive thoughts, loved to run daily, but lost the urge, feeling tired when I did, taking demanding classes this summer, but need brain back within three weeks, felt suicidal yesterday, so I go off this crap today. This drug is no answer for a single teaching mom.Children pay the price with my mid-sentence stumbles, my lost humor, and my (literally) vanishing self.I forget everything and am mad about wrongs that occurred ages ago.I had more migraines with Topamax than before.Relpax is still in my purse.I look forward to long runs and to getting my quick wit back even if it means four migraines a week. F 43 2 months
5/29/2006
 1  Migraines There is a reason they call Topamax Dopeamax! I could not think or talk properly. I could not remeber my address and I have lived there for over 10 years! The needles and pins in my legs never went away and it was painful. Did not help with my migraines. F 51 2 months
25mg-100mg 1X day
8/14/2012
 1  Bi polar I couldn't think stright, I could not finnish my sentances or think of words I wanted to say, I almost failed my classes in school. My hair fell out and I felt sick to my stomach all day long Don't take it!! F 28 2 months
1X day
4/2/2012
Email
 1  Seizures and Mood Stabilizer Severe acne, severe suicidal ideation, deep depression, did not experience the weight loss I hoped for since seroquel ruined me. This drug was not for me apparently. I even lowered the dose to 25mg and still felt suicidal... Never felt any improvement on this medication. F 42 2 months
150 2X day
3/11/2012
Email
 1  migraines Terrifying drug that will someday be seen as medievally primitive. Suicidal insanity crept up on me gradually. My doc said most people take this with no ill effects. I was not clinically depressed before taking it to prevent migraines. Yet still I became so unlike myself, suicidal thoughts and full of rage, I realized I COULD NOT GET OFF IT QUICKLY ENOUGH! IF THIS IS YOU, JUST QUIT THIS DRUG NOW--DON'T WAIT--THIS IS *NOT* THE REAL YOU--YOU WILL GET TOTALLY BETTER!! I tapered off in 2 nights--down to 5Omg on night 1, 25 on night 2, then no more Topamax. I had no seizure, but I was willing to risk it--so I just stayed home for a few days. Withdrawal is harsh--2 to 3 weeks--but trust in a sacred life force, and trust my word, you will get through. Plus, withdrawal is still a better mental zone than "on Tope." On day 2 it felt like a glass jar popped off my head--ahhh! Good! But then I had near-total insomnia for 6 days, trembling, and diarrhea (a nuisance). Suddenly then I slept for almost 3 days straight. My mood gradually returned to normal and I felt like "me" after 2 weeks, though very shaken and upset by what had happened; I felt normal and controlled at 3 weeks. Every bad moment of withdrawal, remind yourself "This is *not* the real me, I have been poisoned and am now detoxing." Have faith, love yourself :) F 43 2 months
100mg 1X day
5/27/2010
 1  migraines Made me loopy, slow and incoherent had to get off the stuff, slowed me down at work cause I felt like I could not concientrate. It also made me rearend someone, felt like I was going in slow motion. F 40 2 months
N/A 1X day
8/26/2011
Email
 1  Migraines Very forgetful. Got lost driving through the town I had lived in for 6 years going to a familiar place. Angry and irritable. Frustrated. Missed my period entirely. Felt tired and weak. F 28 2 months
50mg
11/30/2011
 1  Frontal Lobe Seizure(Brain) Dumbness, tingles in fingers, constant seizures, (no physical signs, all internal) serious deppression, B/P is up and down all over the place. start crying all the time, memoty is "shot", total loss of words, have to think a while before I speak, and get lost in my own conversation. Very bad thoughts come and go. Anxiety, being more housebound than ever. The worst medication I think ever manufactured. My P.C. exploded when she found out that the Neuro Doctor put me on this medication. Then when she heard she "Up'ed" the dose she jumped out of her chair and started yelling. My husband said, "You sent her to this idiot"! Now, she, my P.C. is changing me to a new Neuro Dr. and wants me weaned of this stuff immediately. That is the big issue taking a chance stopping suddenly will kill you. You have to be weaned off while the new Dr. gives me something to take its place. Very scary and dangerous medication. Do NOT use it if you are seeing Phychaitrist, (spelled wrong) Phych Dr. must know about your beinging given Topomax before you even think about taking it, please get the correct advice. It is so bad I am not even typing this my husband is I am telling him what to type. The kick in the butt is I am a Dentist, a Doctor, recently disabled from an accident. Being a Doctor and cannot trust the judgement of a specialist is a scary thing! F 52 2 months
50 3X day
6/7/2011
Email
 1  Migraine prevention cognitive impairment, short-term memory loss, word-fishing, losing train of thought in mid-sentence, insomnia, amenorrhoea (stopped menstruating), no difference in frequency of migraines or headaches I had high hopes for Topamax, but it had side-effects similar to Lamictal with the short-term memory and cognitive problems. The word fishing got really annoying, and I felt like a total idiot talking to anyone, because it was so difficult to remember words. F 27 2 months
100 mg 2X day
3/24/2011
Email
 5  Bipolar Tingling in heels, feet, hands, and am now wondering if this is why school (college) is so hard for me this semester! Just started taking this about 1.5 months ago, and it is like a miracle! I feel like a new person! I get aggravated on occasion when I have to climb into the shower with both heels asleep, but it is worth it! I'm dropping my chemistry class this week as I have no clue what is going on in there, and I thought I was just stupid (have run off to the bathroom and hidden in a stall crying like a baby, and I'm 35 years old!) because all the other people understand it and I have no clue!!! I think after reading all this it might be due to the medication? But hey, I'm okay with that if I have to give that up to feel better!!! :-) And I'm starting to loose some weight, too! I will never ever go back to the way I was before Topamax by choice! My daughter is also bipolar and we are trying to get the doctor to try Topamax for her, too! FEEL FREE TO EMAIL ME AND CHAT!!! OR ADD ME AS A MYSPACE FRIEND!!! www.myspace.com/teachertobe F 35 1.5 months
9/25/2006
Email
 4  Migraine Tingling in extremities (but, had that problem before, but worsened) can get HOT (again, had that problem before, but worsened a LOT) gained weight (did NOT need that) metallic taste in mouth (again had that problem before, but has worsened a LOT) and I call these my Has helped on migraines, but am only on 25 2x a day, so I will probably talk to Dr to increase dosage soon. But, thankfully, when I do get them, over the counter stuff now pretty well cuts them, or at least makes me livable (poor family) where as Zomig was beginning to not do the trick anymore (my body gets used to pain meds and I have to switch them around to F 28 1.5 months
5/22/2005
 5  mood stabilizer/binge-purge insomnia, horrible floating sideways while sitting occasionally (this makes me dizzy), sinus problems similar to mild allergy symptoms), slowed mental process (learning how to slow myself down, however frustrated when cannot remember events or facts - it is getting better), strange also on bupropion 150 mg daily. was on depakote, gained 35 pounds rather quickly, went off, went on lithium 600 mg daily for 6 months then decided wanted to try drug in category that could possibly help with weight (if appetite controlled, less chance to binge, also combined with therapy). started on 100 mg topamax, sideways feeling too much for me, cut dose in half. so far so good. I'm getting use to the side effects. Have lost 5 pounds. Have not binged/purged since I have been on it (mainly b/c I don't have much of an appetite to binge on). Mood is good, though I am tired - which can bring me down. this one is worth sticking with, mainly because the b/p is most dangerous to health and after 5 years it's the first thing to help F 26 1 months
2/16/2005

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