TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Migraines Blurry vision, headache, aura of flashing lights when eyes were closed. Acute Angle Closure Glaucoma!!! A sneeze caused blurry vision and spent 7 hours at the Ophthalmology's office trying to reduce pressure in my eyes - right eye 52/left eye 50 (should be in the 20's). Was given med's and drops. Sent to E.R. for I.V of Mannitol (pressure got down to right 32/left 28). Still blurry vision but still hopful that vision will return to normal once Topamax is out of my system. Still on med's and drops for pressure. F 43 3 weeks
6/20/2007
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 1  2 types of migraines-1 daily AWFUL!! Horrendous nightmares. Freezing cold, tingling, personality change, couldn't complete sentences, tearfully emotional. Like I was inside my body but a different person was controlling it. Didn't get bad until I reached 75 mg. daily. Would never recommed this to anyone-ever. The weight loss was great because food tasted awful, especially soda, but not worth the rest. Guess that is why they quit prescribing it for weight loss. Changed to Depakote ER and having no problems plus it is relieving the migraines where the Topamax didn't. Topamax is a very scarey drug. F 54 3 weeks
4/11/2007
 1  migraine prevention extreme anxiety, slowed mental functioning, aphasia. I could have lost my job because of my inability to think. It was like I had a stroke or was developing Alzheimer's symptoms. I normally have anxiety which I treat with an SSRI. However, when I started taking Topamax, my fears escalated significantly even though I was still taking my normal dose of the SSRI. I also felt very paranoid which I have never experienced before. I can only imagine what this drug does to your brain to make all of these horrible things happen. It was a creepy experience. F 39 3 weeks
1/9/2005
 1  Migraine prevention MY BIGGEST WARNING IS BE CAREFUL DRIVING AT NIGHT UNTIL YOU KNOW HOW THIS DRUG WILL AFFECT YOU! I experienced very weird visual disturbances at night, not being able to re-focus after looking directly at a bright light. It was like a laser show. Would have been cool, had I not been behind the wheel! Focusing your attention farther down the road & straight ahead helps. Everyone is right that many foods taste differently. Sodas are awful. I also experienced the tingling in my hands, feet & mouth. There was so much more, though. I drank a gallon of water a day, but my mouth always felt like fuzz and I was still constipated. I experienced debilitating weakness & fatigue, yet couldn't sleep at all. I developed a wracking cough, shortness of breath, and back pain reminiscient of the time I had pneumonia, but my lungs were totally clear. My doctor was so determined to keep me on this medicine to help my migraines that she prescribed me 3 other medications to treat the symptoms caused by the Topamax! Ironically, the Topamax also gave me low-grade headaches similar to the kind you would get with a cold, so I didn't avoid the headaches altogether. My dosage was very low, only 50 mg. I have asked my doctor to reduce my dosage to 25 mg. & have been on that for a week. My side effects have lessened, but not gone. I'm not sure I will continue past another week. I think I have reached my limit. F 36 3 weeks
5/16/2005
 3  migraine prevention loose stools; signifcant loss of appetite; itchy body; tingling hands and feet, sometimes face; drowsiness. I started off with 25mg...my reguarl dosage will be 100mg..I'm now at 50mg and I must say the side effects are of some concern to me, but I much rather have them for now than to endure the pain of migraines...I cringe at the thought of what happens at 75 and 100 mg though!! F 34 2.9 weeks
4/23/2005
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 5  FMS/autoimmune related chronic pain Like others have said, carbonated beverages taste very strange to me, and I have stopped drinking them. I felt a little spacy the first couple of days, but that has passed. All other side effects have been positive. My mood has been fantastic, very cheerful and mellow--my stress level is way down. My appetite is down too, and I have lost 3 pounds since I started taking the drug a little over 2 weeks ago. I love this drug. Aside from the carbonated beverage thing, all my side effects have been postive, and the burning, tingly, electrical-feeling pain has been cut at least in half for me, which is a huge relief. I still have achy joints, and feel very stiff in cold weather, but those feel much more manageable now that the nerve pain is under control. Because my mood has been so good (I suffer from chronic depression, and take medication for that as well, but Topamax has added to the effectiveness of my Wellbutrin) and my anxiety level has been so low, my thinking has actually been clearer and more creative, which is apparently not the case for everyone (some people get foggy-headed on this drug). For me, it feels like since my energy is not so tied up in feeling lousy and being stressed-out and blue, I have more energy for other things, both physical and mental (writing, reading, etc.), and my motivation to follow through on ideas is much improved. Granted, I have been taking Topamax less than a month, so my experience may change with time--if it does, I will come back here and post an update. F 27 2.5 weeks
1/10/2005
 4  Migraines (Topiramate) drop in blood sugar is adjusting back to normal levels as I’m getting used to the medication, but was really bad the first couple weeks; word loss; easily distracted to the point of getting lost in my head; more aggressive but in a good way since I’m usually very mellow; occasional foot and finger tingling; moody/sensitive, this is getting better as I’m adjusting; lack of interest in food, this would be great except I have to watch my blood sugar; trouble focusing especially if it’s outside of a regular routine and forget about learning anything I’m not interesting in – I can control this to some degree by getting enough sleep and watching my blood sugar; I’m quiet and happily introverted, I joke that this might make me sociable, but I think it might not be such a joke. I might actually become a social butterfly on this stuff. The first two weeks were hell, but I upped my second dose a couple days too early – don’t do this! It takes time to adjust to this med, even just 25mg makes a huge difference, and a couple extra days to adjust. We also didn’t realize till week 2 that it was making my blood sugar drop. Now, at day 17, I’m starting to feel back to my pre-med self. My blood sugar is mostly back to normal, I have energy, I’m smiling, I can think. I sleep like a baby, but I don’t need to sleep more than 7-8 hours. I still have brain fog and I have trouble processing anything quickly, but I’m seeing my moments of clarity grow as I adjust to the meds. Each person is different and I’ll have to give it time to see how I react and decide whether or not I can live with the side affects. Some, like the 1 second dizzy spells, are a little fun. I can do with out looking like a ditz because I forgot what I was talking about mid-sentence. F 41 2.5 weeks
75-100mg 1X day
2/25/2011
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 3  migraine headache tingling in the arms, feet, and face especially upper lip area. So far the only thing that bothers me is the tingling all the time. It's annoying. I really like the curbing of the appetite. It's been about 2.5 weeks since I am on topamax and I am sleeping better at night. F 46 2.5 weeks
6/10/2009
 5  Migraine prevention occasional tingling in feet, carbonation tastes horrible, decreased appetite. I have only been on Topamax for 2 weeks now, & am only up to 75mg, but I love it. I went from having a migraine almost every day to just having occasional headaches. The change was immediate too. The few side effects I've had have been worth not having migraines. F 17 2 weeks
3/3/2009
 5  mood disorder migraine slowed thinking, tingling, thirsty, weight loss. I was on Topamax for a year and a half before. I lost almost 40 pounds and was able to be myself. I was not bogged down by the misery of my mood disorder. I have gotten back on Topamax after alomst a year of not being on it, and it's amazing to me to see the differenc it makes in my life. I am willing to live with the few annoyances so that I can enjoy a fulfilling life. F 28 2 weeks
1/28/2008
 5  Fibromyalgia, neurological pain Tingling in my fingers; you have to get the dosage EXACTLY RIGHT or you feel numb and it's difficult to manage. Make sure your doc works to get the lowest dose you need or you'll feel drugged out. This drug is going to decrease your hunger so make sure you are eating correctly when you are on it. This drug is great. A lifesaver. I had such intense fibromygalgia pain I wanted to die; it did not stop night and day. I couldn't stand up, lie down, sleep without intense pain. I'd tried neurontin, lyrica, nothing helped but this. Thank god for this. F 31 2 weeks
25mg 4X day
3/24/2011
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 5  Severe Migraines crazy dreams, severe insomnia, severe numbness/tingling in face, numbness in extremeties, cramps, not being able to find the right words... This medication is working great on my migraines. I just started taking it two weeks ago after jumping thru so many hoops with other medications that just didnt cut it. Im diagnosed with severe mental health problems and have not yet had any side effects of that sort. Im hoping none come along but I would totally reccomend that someone else at least give this medication a shot before turning it down. Im still at a low level but who knows what will happen next! F 23 2 weeks
25mg-50mg 1X day
7/25/2010
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 5  Migraines Pop tastes horrible, almost spicy! Tingling in hands and feet, heartburn, irritability, sleepiness, unable to find words, basically what everyone else is saying! I would rather take Topamax and feel these minor things, and lose weight, than get migraines 3-4 times a week. It totally took away my headaches! I'm very happy with this medication! F 20 2 weeks
10/7/2005
 5  migraines loss of appetite, feeling goofy, feeling really silly and laughing and the most not funny things (anyone else have this happen??) and soda tastes GROSS I love this stuff... no more headaches.. and laughing alot is kind of funny too! F 26 2 weeks
11/13/2006
 5  alcoholism some tingling, insomnia even though I feel a bit fatigued, slight forgetfullness I am only on 50 mg and haven't had a drink (or wanted one) in two weeks which is amazing for me. I haven't had any appetite suppression which I am dissappointed about but so glad to finally be broken free of my addiction. I honestly never thought I would quit drinking. This is a miracle drug for me. I do have to take it in the am or I can't sleep at night but other then that no real bothersome side effects. Nothing that compares to what I was doing to myself with alcohol. F 36 2 weeks
9/13/2007
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 5  migraines tingling in feet, brief periods of confusion, dry mouth I have been on topamax for 2 weeks now and I have not had a migraine since. I know some of the side effects were awful to start but some of them did get better. The first three days I felt totally high but I fell fine now. Every once in a while I will get a brief moment of confusion but that is all. I love this med. I was getting migraines 3 or 4 times a week. Now I am not getting any at all. F 25 2 weeks
8/2/2007
 5  Bipolar I Short term memory loss, appetite loss, weight loss, bye bye binge eating, anxiety (went away with low dose Abilify)... This drug saved me from a terrible hypomanic episode that was rapidly turning into mania and sent me to the ER yesterday. My doctor tried it as a last resort because I have a history of an eating disorder and I refuse to take meds that will make me gain weight. It really slowed me down, but to a point where I could FINALLY function. Granted, I did have short term memory loss, but I was already experiencing that from the Abilify she put me on a few weeks before. I couldn't read the page of a book, which sadly, was one of my favorite activities. Once she added Topamax, however, I could zone right in. I was reading Dostoyevsky's "The Brother's Karamazov" within days of switching over. Now, that's not going to happen with everyone, but it did with me; I was out of control. I adjusted quickly though. My doctor started me at 50 mg to stop my binge eating/ to help with sleep, but my body revved up again and she wouldn't return my calls, hence my panic-stricken visit to the F 24 2 weeks
10/26/2008
 5  migranes tingling in hands and feet, and i get very tired, though i still get random times of where i cant see, its great my migranes have gotten a lot betetr and dont come as freequently. F 15 2 weeks
3/11/2007
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 4  migraines mild thought interruptions, a little more tired than usual midday, when upping my dose each week -I notice a day or 2 of of body adjustment with slower thought processes, but then fine. Sometimes, less ability to multi-task more than 2 things at a time. once in awhile mild tingling in hands. After 2 weeks, 25mg to 50mg, I've had 1 migraine each week, which is a fantastic improvement going from a constant heachache for a month straight, vomiting on a constant basis with dizziness & pounding thoughout my head & neck. M 38 2 weeks
4/8/2007
 4  Migraines Never hungry, constantly tired, hard time spelling, pop taste different I looked into the symptoms before starting to take this medication so I knew what to expect. So far, I am never hungry, but I force a meals to stay healthy. But I am also VERY TIRED all the time. I can never get enough sleep, and when I am awake, all I want to do is go back to sleep, which is really starting to affect me with work and school - I'm hoping this will just wear off with time since I don't see anyone else having this side affect. Now with the spelling: I am a college student so this is a huge problem, but while I am typing, I tend to spell a lot wrong, so my advice to you - don't look at the screen while you're typing! It'll only frustrate you more! Just type your paper and then go through it afterwards and PROOF read all the errors. **If anyone else has had the sleeping problem, please email me! F 19 2 weeks
11/27/2006

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