TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Off-label use for lower back pain Extreme paranoia (thoughts of being poisoned by co-workers), suicidal thoughts, anxiety, sleeplessness, creepy/jumpy sensations on skin. Discontinued Topamax after 4 days,side effects persisted about 2 more months. Worked great on lower back pain--but not worth the psychosis. They give this stuff to anxious teenagers? Frankly, I was borderline psychotic--and could only keep it together because I could reason it out that this was NOT MY PERSONALITY, and suicide is against my religion. I'm 55 now, but took this drug when 44 years old. F 55 4 days
?? 2X day
11/5/2015
Email
 1  Cluster headaches Depression, increased pain, anxiety, unable to eat, fixation issues, not feeling myself at all. Not at all a good med for me. Even if clusters stopped this would not be worth it. Had more success (however limited) through regular massage and oxygen. If I had not suffered these conditions earlier in life and not know what they are, the added distress would be unbearable. I have had clusters for over a year. F 33 4 days
25mg
4/30/2016
Email
 1  Headache Doctor prescribed for chronic headache. It didn't do shit for the headache. I could tolerate the tingling feelings on my hands. I had sharp stomach pain every night that I took the pills. However, the depressing thoughts were what got me to stop. I am not a depressed person and I try to have a positive perspective on life. But since the day I've been on medication I felt mellow, and then I started to think about some deep depressive thoughts consistently. Now I can understand how medication can drive a person to a suicidal thought. Other little side effects for me- drowsiness during the day, constipation, blurred vision. People - don't take this medication bc you see "weight loss" as a plus. It's a dangerous drug. The possible side effects are not worth risking your health to be thinner. F 33 4 days
25mg
5/20/2015
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 1  Migraines My 3rd attempt on this.. I can not tolerate the dizziness (feel like I am going to black out every time I stand up) nausea, fatigue, hot, then cold, general malaise and, I have had an unrelenting migraine for 2 weeks! It is not worth it to me. I'm stopping it. I will live with the migraines. The side effects, for me, even at a low dose, are unbearable. I can't function, can't work, don't take care of my family. It just isn't worth it. I won't be giving it a 4th try. F 54 4 days
25mg
5/12/2019
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 4  Chronic Migraines Anxiety/Depression, IBS, Nausea, Random torso pain, Excema, Paresthesia—all over, Overheating, Dryness, Mental and physical fatigue—General “out-of-it” feeling, Roof of mouth is "rough", Break-through bleeding, Decreased appetite, Eye/vision annoyances, Overheating, Rapid heart rate increase when exercising, Carbonated beverages taste bad Topamax has gotten rid of my migraines, but has given me a whole new set of reasons to be miserable. It's a bitter sweet relationship. I am on 100 mg (50 mg 2x per day). F 28 3 days
1/15/2008
 4  Migraines and seizures So far a little paranoia and some slight, occasional tingling in my hands and feet.... also loss of appetite (which is good for me)... So far so good.. but I am only three days in... F 26 3 days
25 mg 1X day
12/28/2011
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 4  migraines tired but take it at bedtime so not really an issue...wake up a bit tired too but it passes as I get moving. No appetite...is that a bad thing??? ha ha Diarehea but its in the morning when I wake up it seems only so hopefully that will pass as I am on meds awhile. Headaches are gone so thats all I care about!! No pressure up the back of my head or sides any longer, its been 2 years of constant pressure and never knowing...I'm happy so far!!! Keeping my fingers crossed that all continues to go well. F 42 3 days
10/25/2006
Email
 4  migraines dry mouth, not feeling like myself, weight loss At the present juncture I take 300 mg. in the am and in the pm. so that's 600mg. per day. I also take six other migraine related medications, such as Amerge twice a day. Reglan helps my nausea. I have been in 2 other drug trials.Topamax is still a relatively new drug and we need to learn more about it. Good luck everyone. F 37 3 days
7/14/2005
 3  Bi-polar, weight gain extreme tiredness, and weakness in muscles. I am hoping to lose weight on topomax because I have gained 70 lbs in 3 years and now have diabetes type 2. I am hoping to find out how long it took people to lose the weight, and how long it took to feel less tired. I have been on every kind of anti depressant available, and recently quit taking everything because of the weight gain and the diabetes. I am really disgusted. F 41 3 days
11/8/2005
 3  Bipolar My face has been tingly and numb. I have been MORE hungry than normal. I am hoping this subsides. Weirdly, beer tastes flat to me. I'm not liking this so far even though my mood is stabilized which is it's intended use I suppose....... F 26 3 days
25 Mg 2X day
4/25/2010
 3  complex migraines Severe muscle pain, kidney stones, weight loss, mood swings, taste change. Topamax does work for preventing migraines as long as you can handle the side effects. I have been tested for every kind of joint, muscle, nerve, bone and connective tissue disease and they all have been normal. (thank god) As soon as I stopped taking topamax within 2 days my pain was greatly reduced. Hopefully tomorrow will be even better. As for the kidney stones, I have had two in three years. They are extremely painful! Worst then giving birth. Tomorrow will be my third day without topamax and I'm happier with no mood swings and if a migrain returns my doctor and I are going to go down a different route. Good Luck. F 36 3 days
6/20/2008
 2  Dizziness/vestibular problems TERRIBLE heartburn after 2 days of taking it. Can't sleep from the heartburn. Food hurts to swallow. Also itching all over and depressive thoughts. Can't spell for crap!! Am calling today to ask for something different. There is no generic for Topamax (a nurse fiend told me it's known as "stupormax") so I had to pay $30 for that bottle!! F 47 3 days
2/18/2009
 2  Basal Ganglia Calcifications/Shakes More tremors. Dry mouth. Slurred speech. Loss of memory- which I already had- now it is worse. Short term and long term. I also get dysphasia after eating and have sharp pains in my stomach which I also had before due to a surgery and now the symptoms have spiked. I would only recommend Topamax if you have tried everything else and your doctor has great faith that this will truly help your symptoms. Feel free to e-mail me for more information or comments. M 22 3 days
7/13/2004
Email
 1  migraines tingling in hands and face, numbness and twitching in face, weight loss, depression, foods had no taste, upset stomach and nausea daily, mind fog I went from a very happy leader, life-of-the-party type person to someone who wanted to stay at home and let life pass me by. I was so depressed that I had to force myself to do just the normal everyday things like make the bed and do the laundry. My friend finally had me check deeper into the side effects and I found this to be one of them. Thank God! I honestly thought it was me. I started cutting back slowly and took my last pill two days ago. My mind is clearing up already. Bad, bad drug!! F 51 3 days
10/9/2007
 1  misdiagnosis of mental illness I felt like I had a stroke-I could not think straight, would have to practically play charades to get a simple point across. I thought I was indeed, losing my mind. Then one day an agency nurse told me the nuses have a nickname for this drug - "Dope-a-Max", specifically for the "dumb" like trance some patients find themselves in. I began to refuse all meds 48 hours in, and effects were still present weeks later. I have NEVER had side effects from any medication to such an extreme as I had to this one. It should be pulled off the market. Far, far too many bad side effects to warrant any benefits that just may be available to patients by other, safer means. Of course, when there's $$$ to be made, all caution is thrown to the wind. F 52 3 days
60 3X day
3/24/2011
 1  migrines my liver enzmes have been elevated to 1261 because of topamax. i am so swollen i look 3 months pregnent. i only took topomax for 3 weeks at 200mgs a day. i am now scared for my life and i am a mother of a 4 year old. it is not worth the side effects: good or bad. good meaning weight loss. after taking topomax i now look pregnent because of the elevated liver enzmyes. i have not even mentioned the loss of memory or the numbness that has never gone away. topamax can cause many different side effects and patients taking this medication should be informed. F 35 3 days
12/2/2006
 1  Offset SSRI weight gain Horrible dry mouth and bad taste in mouth. Had to drink water constantly - Mental fog and forgetfulness (scary!) Cannot tolerate the side effects - will stop taking. F 35 3 days
3/9/2007
 1  Temporal Lobe Seizure Where to start. One week on Topamax I lost 10lbs. For me that is alot considering I'm 5'1" and was 115lbs to begin with. All food and beverages tastedawful. I would lose my appetite for days and I have to force myself to eat. When my appetite would return I would be able to eat all day nonstop. I get tingling throughout my leg, feet and hands, twitching of the face, major hairloss. By major I mean I have lost half my hair and am still losing it by the hand fulls. No matter how much sleep I get when I finally am able to go to bed I am still tired all day long. I have mood swings daily, chest and stomach pain. I experience headaches almost daily now, hot and cold flashes, memory loss, dry skin, no sex drive and dejavu all the time. I've never been sick in my life since I've been on Topamax I've be sick quite often and had more wrong with on this drug than in my life time. I have probably forgot some of my side effects but these are the most important ones. For those of you that Topamax is working good luck. I've been on it for 3 1/2yrs and the side effects have not gone away yet, they just keep getting worse. I finally got my Nuero to start taking me off it by the end of June I should be off it completely and starting to get back to normal. For those of you taking this for wake loss its not worth it. Its pretty bad when I have my Nuero asking what side effects I am having because people are going to him with side effects that he has not heard of and he knows I have so many. I wouldn't recommend this to anyone. F 26 3 days
5/22/2006
 1  Mood Stabilizer, Headaches, Weight Worsened Anxiety, Outbursts, Agitiation, Overall Weird Feeling, Dizzy, Blurred Vision I have GAD and PTSD. My Psych Dr started these Tues and I took my last dose last night. I left a message today for him to verify that I can come off without any problems, but this medicine makes me feel WEIRD!! I have a history of not being able to tolerate SSRI's. Wellbutrin, Celexa, and Zoloft ALL worsened my anxiety and made me feel irritable and aggitated but this medicine by far, was the worst! The others, at least, took a little while longer to cause similar symptoms. I am on xanax .5mg twice a day and have been for 2 years and still barely sleep. I know I'm developing a tolerence but don't want to become more dependent and up the dosage. If you have similar experiences please respond! I feel hopeless!!! F 34 3 days
50mg 1X day
4/27/2012
Email
 1  possible seizure disorder... feeling stupid, can't find right words, stuttering, tingling, muscle twitches,dizziness, tired all the time....should i continue? My wonderful neuro stuck me on this awful drug for the first time cuz they still cant figure out why im losing feeling in both legs and in half of my body, for the first time about 3 yrs ago. I took it one day and about 3 hours later couldnt talk right was slurring my speech and couldnt even type on a keyboard after just 25mg. So about a year later, this still goin on and me just dealing with it, he decides to try me on it again, start me out on 12.5 mg and work my way up, so i did. i stopped at 50 mg becuz it was just enough to make me feel somewhat better neurologically, and just enough to make me feel stupid enough to have a job that didnt require too much of my brain, becuz after being on that drug i had such a hard time finding words for anything it was driving me insane. i was back on the pill for about 2 1/2 months. i was getting tingling in my hands and feet, but hey, just deal with it right. then i got pregnant, had to quit cold turkey. was seeing lights and shaking and going F 25 3 days
4/3/2008

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