TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  migraine prevention tingling in feet and hands, around mouth, initially; NO APPETITE but no weight loss either. After 3 months, extreme anxiety; suicidal thoughts.Word-searching; no memory. Depression; no concentration. I take Effexor Wellbutrin and Xanax when my brilliant Dr. decided to add T-Max to the potion for my migraines. Started on 25 mg and worked up to 100 a day. As of this moment (I am seeing him tomorrow to GET OFF OF THIS IMMEDIATELY) over this 3-month period I have slowly become a zombie with horrible anxiety that the Xanax can't even touch. I have had migraines and depression since I was 19 and PLEASE all of you out there...before you put any chemicals into your body...THINK ABOUT IT! Go to www.theroadback.org and read the horror stories about going on ANY of these drugs. Especially you kids. It isn't worth it unless your migraines or seizures are REALLY controlling your life. Like that other person said, PLEASE don't use this as a weight loss drug...you will regret it for the rest of your life. This stuff is poison. F 45 90 days
8/16/2007
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 1  migraines little weight loss, tingling in hands and feet, sometimes it makes my mind start racing like crazy and my head feel like it is going to explode and I think I am going to die. I am winging myself off of this drug, it is horrible, and I would not recommend it to anyone! It gives me the worst feeling I have ever felt in my life. I would rather deal with the migraines. F 35 90 days
100 mg 1X day
6/22/2011
 1  Migrane personality change My wife was put on topamax about 3 onthes ago she completely changed in personallity selfish, mean, wanted me to support her while she runs awhile. she has cheated on me and requested a divorce. she refuse to get off medicine saying her migranes r now gone. my self, her mother and my kids hardly can see herself. i am not sure if it this drug but i would like to her to at least consider it. M 45 90 days
8/16/2009
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 4  epilepsy Very sleepy the first couple of weeks. I had no energy for almost two months then one day I just suddenly felt like I had the energy back again and I've been great with that side effect. I lost 16 lbs. after taking it for 2 months. I have some tingling in my fingers every once in awhile. I forget things alot! It's been worth taking though I can't handle more than 25mg a day or I get a little nutty. I take it with dilantin, my seizures have not completely stopped but i only have like one a month right before my menstral cycle. Does anyone have anything like this happen, I sneeze about three times before every seizure??????????? I mentioned it to the doctors they just blew it off! There was a time when I could hear my children sneeze and I would have one,strange,HUH? F 32 80 days
10/27/2006
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 1  weight loss lost 20 lbs in a month, spelling issues, word recall, dehydration, tingling limbs, depression, nausea F 21 80 days
4/10/2007
 2  Migraine Insomnia, hair loss, facial ticks, fatigue, weight loss, dry eyes My headaches actually increased in frequency, although they weren't nearly as severe. I know it had something to do with the Topamax because as the dosage went up, so did the number of headaches. When I started, I had two headaches a month that lasted 2-3 days. Now I have two a week that last only a few hours. I like the weight loss because at 44, I was gaining a few, but combined with the insomnia and hair loss, the net result is far from a healthier looking me. I am starting to look like a concentration camp survior. F 44 75 days
1/25/2005
 1  treatment resistant depression brief increase in depressive symptoms, SEVERE lethargy, loss of appetite the loss of appetite was the main reason i went on it--after being on seroquel for two years, i had gained about 30 pounds. but it really made it so i could hardly get out of bed. not depressed, just not able to really do anything/not interested in anything. F 34 75 days
10/6/2008
 2  Bi Polar II Sleeplessness, Loss of Appetite, Trouble Breathing, Increased Agitation My doctor keeps telling me this is going to make me drowsy and it seems the more I take the more awake I am. I get less and less sleep and that probably feeds into my increased agitation. I don't think it is working too well for me for my bipolar but is sure as heck got me out of depression. Maybe if the they prescribed me something to sleep the medicine might be more effective but right now only frustrating me. F 33 70 days
8/21/2008
 5  alcohol addiction slight tiredness in the first three weeks, but has gone away now. I have been on topamax for 8 weeks now. Has been a miracle - has taken away from cravings for alcohol completely. I have even given up smoking F 61 days
9/20/2005
 5  Mood Stabiliser and Alcoholism A bit tired first couple of days, tingly hands and feet but this go away if I take grapeseed extract. I also recommend you take a very good multivitamin with this as Topamax is a strong drug that can deplete your body from some nutrients. Topamax has absolutely saved my life. After 14 years of not having any help from all the different pills I tried Topamax finally lifted my depression and took away my gnawing alcohol cravings. I have more energy, I wake up with a song in my heart. I feel normal. To anyone reading this that has an alcohol problem I recommend http://www.mywayout.org where they explain how you can ask your doctor to RX Topamax to help you wean off alcohol. Also if you are like me and you are soft spectrum bipolar/treatment resistant depressive (not sure which one it is) and nothing else work, please don't let the other people's side effects scare you off Topamax. I have none of these and feel great. I thank God every day for finally giving me something that helps me feel better. F 32 60 days
50MG 1X day
4/27/2012
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 5  migranes and rsd loss of appetite, I forget to eat, but alot of my other med do that too. but with this medicine the only new side effect i notice is sometimes i feel like i have a sunburn all over my body from the inside out. other than that it works pretty good. my migranes have decreased some and i dont have them as often, but my rsd is still about the same. My memory is not good but i don't know if it is soley from topomax or the other meds(i'm on 13 other meds too) overall the side effects are worth the benefit. F 44 60 days
100mg 2X day
9/19/2011
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 5  MIGRAINES I have had tingling in my hands. Sometimes my hands feel as if they are numb. I also for the first two weeks got CRAZY dreams! This med has really stopped my migraines F 22 60 days
8/20/2007
 5  Migraine prevention tingling in fingers, some loss in appetite F 38 60 days
2/18/2006
 5  migraines If I fall asleep and I get woken up, I have "waking dreams" and flip out. I have to tell myself "stop wake up." This never happend until I started taking topamax. My dream is happening with my eyes open while awake. Also in the middle of the night if I wake up my mind wakes up and then my body is still paralyzed and I cant move it. I panic but I can't breathe heavier because my body is still paralyzed from sleep so I feel like i am dying. It has taken away my headaches. The only thing after 11 years. When I up the dose it makes me feel crazy and emotional for a couple of weeks though, and really scattered. It's difficult with school and ADD but i dont care because migraines are horrible. F 23 60 days
10/22/2005
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 5  Mood stabilizer/ bulimia buzzing feeling in my face and arms sometimes, not hungry- lost weight, maybe some mixing up of my words i started taking topamax (25g 2x a day) for bulimia and I didn't find it worked at all, but when I went up to (50 2x a day) I stopped purging all together, it seems like magic. It has made my parnate (anti-depressant) work MUCH better, I have been very successful with topamax and would recommend anyone try it before trying horrible LITHIUM!!! F 19 60 days
6/22/2007
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 5  Migraine prevention Occasional tingling in fingers, weight loss, irritable. The irritability may be the topamax or withdrawal of the other meds that were ineffective for migraine prevention. After being a guinea pig for migraine medications Topaamax is a miracle. I was having a migraine every day. Taking Zomig daily. They stopped after the first dose of Topamax. Nothing else worked, neurontin, cymbalta, depakote, Zonegran, pain killers, muscle relaxers, anti-anxiety, so many other anti-depressants and anti-convulsants I cannot remember them all. Topamax has the least side effects, too. I had lost all hope after 8 years, until now. M 48 60 days
3/1/2009
 4  Migraines Loss appetite, carbinated drinks taste awful, change in menstrual cycle, and insomnia Currently taking generic version of Topamax and doing a great job on relieving my migraines. I went from 9 a month to less then 1 a week. Started at 25 mg and worked up to 200 mg, once I reached 200 mg I no longer could sleep as well. Usually get about 4 hours of sleep a night. Melatonin is helping a little. Other side effects mentioned: tingling, sinus, etc went away after a few days with each increase dose. I did have to split the dose to 100 mg 2 times a day. I am thinking of changing the dose down to 150 mg and see if this still controls the migraines and allows me to sleep better. Wish me luck :) F 38 60 days
5/30/2009
 4  Migraine Decreased appetite, weight loss, tingling in feet, cognitive side effects Has anyone noticed a difference with the generic? I just started taking it and notice that it doesn't decrease my appetite as much. F 31 60 days
4/30/2009
 4  Bulimia Tingling in fingers and toes, inability to concentrate, spell simple words or articlate my thoughts. Lost 11 pounds in the first two weeks, carbonated beverages have a horrible taste, but bulimia (binging and purging) stopped completely (from once or twice a day before taking the med). I had to stop taking it because of the spaciness but will resume when there are less mental demands (Im a college student). This medication (250mg/day) worked wonders for the bulimia, although the cognitive side effects are pretty intolerable. I tried to take the dose all at night but found it was not longer effective (bulimia comes back), so I think blood levels have to stay pretty constant (it has a short half life) to be effective for appetite control. I am off of it right now...feel very bright but am binging and purging up to twice a day. As an aside, I found it helped stabilize my mood. Ive been on antidepressants which seem to deaden the emotions...this doesnt but helped with mood swings and depression. Will go back on it as soon as I can take a "mental holiday" from life, work and school. F 28 60 days
1/1/2008
 4  migraines spaciness, loss of memory, ammonia urine, sinus problems - and only on 25 mg per day! cut back because of concentration problems and although it does seem to help the migraines, am re-thinking the side-effects seems to mask the migraines - still some break-through episodes where Imitrex is the life-saver F 54 60 days
7/31/2004
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