TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  chronic migraines Tingling in hands and feet, foggy mind, tired a lot at first, memory loss, weight loss. I have been on an off of this medicine for several years. I am a writer and have to go off of it for periods to clear my mind. I feel like a veil is lifted and I see the world so clearly when I stop taking it, yet it is the only medicine that fully relieves my chronic migraines -- a bittersweet pill to be sure. The tingling in hands and feet feel strange at first but I can adjust quickly; however, the tingling becomes painful if my feet fall asleep! Also, the generic does not work for me (and my neurologist said it is made in another country and isn't surprised) so I pay the huge difference in copay. Love the weight loss side effect (which NEVER occurred with the generic for me). Good luck to all. F 50 60 days
50 mg 4X day
10/23/2011
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 4  migranes depression, nausea, dizziness, fatigue, trouble concentrating, appetite loss, and wieght loss. it works to relieve my migranes, but there's alot of side effects that come along with it. F 17 60 days
50 MG 2X day
4/20/2010
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 3  Migraine Prevention Mental confusion, inability to recall facts, can't remember words in the middle of a sentence, mental fogginess, cannot spell anymore!/ carbonated drinks taste nasty, extreme thirst and dry mouth Extremely helpful with migraine prevention, definitely fewer! Can someone email me and let me know if any of of these side effects lessen after awhile? I am currently on 100 mgs...50 mgs in the morning and 50 mgs at night. Thanks1 F 34 60 days
4/6/2006
 3  Migraines Just started, nothing to report yet M 28 60 days
7/28/2009
 3  Migraines Brain fog,difficulty finding words,basically just feel dumb,and somewhat like i dont trust myself to do things because the brain fog is so bad. As a whole it dulls the migraines and maybe cuts them in half but not sure if its worth feeling really mentally foggy all the time.... F 28 60 days
50 1X day
7/5/2021
 2  Occular Migraines At first I experienced a brief change in personality but that subsided. Dark thoughts that too subsided by about week two. Tingling in fingertips, feet and lips. Dry burning eyes. Occasionally sharp stabbing pain on the bottoms of my feet. Can no longer spell words. Feeling of "dumbing down" Decrease in food cravings. Wine no longer tastes good. :-( Less moody. No more occular migraines which were causing daily dizzy spells. Rare side effect terrible bladder burning and urinary bleeding. My neurologist perscibed topamax for occular migraines which were making me terribly dizzy every day. I would have multiple attacks. He said there were no side effects other than dry eyes and mouth. What a bunch of crap! This medicine, though effective, is loaded with side effects. And if my post has spelling errors well there you go...The worst problem for most people is this drugs' "dumbing" effect. You just can't function like you used to. I am disheartened because for all these irratating problems at least I felt as if I had my life back. I could get out and drive my husband and I could plan trips again knowing I wasn't going to get another dizzy spell. But now I'm having this rare side effect with my urinary tract. The pain is agonizing. What's worse is neither the neurologist or my regular Dr even know about it. They tried to tell me my condition wasn't related to the drug. Not according to the Mayo Clinic, apparently it's rare but it's serious. I had to look it up myself to find out! Makes you wonder about the people perscribing these pills doesnt it? Know the facts before you get on this drug; and if you have a lot of pain anywhere you never had before it's the drug. Believe me. F 44 60 days
100 mg 1X day
2/24/2011
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 1  migraines Constant period Two weeks into taking Topomax (generic) I started a menstrual cycle, after not having one for 7 months. I was starting menopause. My cycle lasted 6 weeks. I saw my GYN, after ruling out any other issues, (had to have a D&C) the culprit in all of tis was the Topomax. I stopped taking them and the cycle stopped. F 50 60 days
25 1X day
3/9/2011
 1  migraines The worst of the side effects had to be the facial tic. I didn't think it was from the topamax to begin with but it was. It started on one side then eventually both sides of my face would tic constantly. I was taking 100mg twice a day and when I decided to take my self off the med I got the worst headache I have ever had. I have had migraines for nearly 15 years and never been to the ER with one until coming off the Topamax. I got up at 2 in the morning and took myself to the ER. The next day I called the doc and he said it was likely from the withdrawl and that I would need to start back on a lower dose. I did fer a few weeks but the tic continued until I stopped completely. Other side effects included tingling/pins and needles/numbness, foggy, difficulty thinking remembering things. exhaustion, attention. And very limited help with the migraines. Still had headaches. do not abruptly stop taking this drug, especially if you are on a higher dose. Drop your dose first, that was honest to God the worst headache ever. M 32 60 days
100 2X day
1/27/2011
 1  migraines ringing in my ears, insomnia, fuzzy mind. DO NOT TAKE THIS DRUG. The ringing in the ears is a permanent affect of this drug. I will be plagued by this for the rest of my life. F 54 60 days
1X day
9/5/2011
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 1  Chronic Migraines loss of appetite, nausea, extreme anxiety, suicidal thoughts. Topamax worked to stop my chronic, daily head pain but it nearly killed me due to the suicidal thoughts I developed while taking it. Not worth it for me. F 26 60 days
50 mg 2X day
8/26/2011
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 1  Migraines Depression, anxiety, weight loss, confusion, difficulty concentrating, loss of ability to function, extreme fatigue, weird sense of taste. I was started on Topamax at 25 mg and titrated up to 100 mg to control migraines, but I got progressively sadder and more confused as time went on. It was debilitating; I work as a freelancer and actually lost two commissions because I simply couldn't motivate myself to finish the projects and couldn't concentrate on my work. I lost any interest in my work, my family or even crawling out of bed in the morning. I felt horrible! I could tell myself intellectually that nothing was wrong, but for no reason I would be swamped by an overwhelming feeling of sadness and begin to cry for no reason. I wanted to do nothing but crawl into bed and sleep, which is what I did most days. Some days I actually forgot to eat until dinner time and I lost 15 pounds in three months, which would be fine if I was eating healthy, but I was simply forcing food down at the dinner table to survive. The last straw was when I locked myself in the bathroom and cried for two hours. My husband was frightened and called my neurologist, who immediately took me off the Topamax. I'm praying that he is right and I'll feel better within the next week. I would rather have the migraines than live like this. F 46 60 days
100 mg 1X day
5/7/2010
 1  Migraines Tingling in hands and feet; food tasted bad; had headache every day and had atypical migraines 2-3 times a week F 27 60 days
30 1X day
1/9/2012
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 1  misdiagnosed bipolar tingling hands/feet, disorientation, weight gain (10 lbs in 45 days), loss of effervesense sensation on my tongue, word substitution and inability to put together coherent thoughts, inability to problem solve effectively, lack of motivation, severe mood swings, mild psychosis, lack of physical balance, I was on 100 mg a day. Decided to ween myself off of the drug due to all of the negative side effects and the withdrawl just from tappering off feels somewhat like early pregnancy. I'll never take anything like that again. The doctor only put me on it because he didn't like the weight I gained after pregnancy and said it would stop the anxiety when I asked for something to help me sleep at night. F 29 60 days
8/20/2007
 1  Chronic Migraines Aftertaste with every food and/or drink. Severe confusion. Severe agreesiveness. Suicidal thoughts (Am not a suicidal person by nature but found it very hard to fight the thoughts.) Severe memory loss, even everyday simple tasks become impossible to conduct. I came close to committing suicide on numerous occasions. I had extremely agreessive thoughts including those of wanting to literally murder my own 8 year old son. I was arrested for not paying for items from a major chain store. I literally just forgot to pay at the checkout and walked out the door. Fortunately the chain store took my medicated state into consideration after consulting with their own pharmacy. And I almost caused the death of myself and my child when I stepped out with him infront of a car on the road because I literally forgot to look for traffic. This is when I decided enough was enough and was informed by my neurologist that discontinuing the medication would in itself cause seizures. He denied that Topamax was responsible for any of the side effects claimed above. I have since learned through research he is grossly wrong. After doing the research, I ignored his advice and weaned myself off the drug slowly to avoid any seizures. If you have a loved one whom has rec F 43 60 days
8/28/2006
 1  bulimia very bad hair loss. swollen hands. vision changes. gave a general flat feeling and this increased overeating behavior. gained lots of water weight upon stopping. F 27 60 days
12/10/2008
 4  bipolar II UPDATE: Previously reported prolonged bleeding during period; retracting this. Still experiencing word-dropping/misspellings, soda still tastes flat; no more cramps & diarrhea or dry mouth; appetite still quashed: LOST A SOLID 14 POUNDS!! Accidentally skipped one dose, moderate flu-like body aches occurred 12 hours later, but I cannot honestly attribute this to the Topamax. Couldn't be happier about the weight loss! If this trend keeps up, my 60lb weight loss goal will be realistically reached very early next year, if not a bit sooner. No longer on antidepressants due to horrifying experience with overlapping of getting off Cymbalta and getting on Wellbutrin (Cymbalta more than likely the culprit). Currently sticking with my long time love Lamictal and low dose Topamax (50mg). Keeping my fingers crossed that I do not slide into a deep depression - so I can keep losing weight! F 40 56 days
4/14/2009
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 4  Bipolar Best mood stabilizer i have ever tried! I was happy, upbeat, optimistic. I felt like my old self. Unfortunately it caused vision problems in both of my eyes. So I quit after two months of taking it. Lost my sense of taste, everything taste gross. Appetite reduced, Blurred vision. 34 55 days
50 mg 1X day
5/9/2021
 4  migraine tingly hands and feet (but this went away if I drank more water) soda tastes strange (after first 30 days it becomes less noticible though). I do not think about food like I used to (am not hungry all the time. My mood seems more stable (even though I am not taking topamax to control my moods). Effects of alcohol are definatly amplified by this drug, be careful if you drink while taking topamax. My migraines are related to my menstral cycle. Since I have started taking Topamax the intensity of my migraines has decreased significantly. The frequency has not yet, but I have read this may take a few months. I am currently taking 50 per day. I also take Maxalt MLT 10mg to treat my migraines. I feel better now on Topamax than I have felt in a very long time. F 29 50 days
5/21/2008
 1  migraine headaches+daily tension he WORST HEADACHES, tiredness, drawsiness, general malaise, muscle weakeness, flat mood, apathy, crying spells (out of character), stupidity (out of character) sore throat, confusion, dry mouth and thirst, feeling i may accideantlly urinate, rstlessness, difficulty falling asleep, some irregular heartbeat, blurred vission and pain in eye when I got on the higher dose. It feels like a 'bad joke' like someone is playing a trick on me and I am waiting for it to come to an end. The side effects got significantly worst when I got from the 40 to the 50 mg dose. I have gone off sick from work as I am feeling like a wreck. Thank god I am seeing my GP today. F 38 50 days
50mg 1X day
6/17/2013
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 1  Depression 50%+ loss of hair! Did NOTHING for my depression. This drug in my opinion should be taken OFF THE MARKET! Pure poison! F 48 48 days
40 mg 1X day
5/14/2023

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