TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
|
Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | MIGRAINES | memory loss, word retrieval problems, occasional tingling in hands/feet, loss of appetite, HAIR LOSS, ACNE on face/back, HELPED WITH DEPRESSION | Topamax worked very well on decreasing my frequent migraines. No complaints about the loss of appetite or help with depression. Some of the side effects, however, were intolerable. I developed ACNE on my face and back about two months after starting Topamax. I stopped taking it when I developed severe HAIR LOSS (Hair was coming out by the handful!) After blood tests revealed everything "normal", my doctor agreed with me that it must be the Topamax. I have been off of Topamax for 2 months and the HAIR LOSS and ACNE have decreased almost entirely. | F | 37 | 10 months | 1/30/2008 | 3 | Mirgraine | foot numbness in the first few weeks, difficulty concentrating (when on higher dose of 200 mg but subsided after first month), alcohol intolerance, food taste changes (now able to drink carbonated drinks again had to wait out the one to two month time laps), weight loss (15 lbs but still dropping and not trying ), reduced sweating/frequent overheating when exercising (just discovered this is a side effect this summer when running outside as others have stated and I found this out the hard way I was not warned that this was a side effect and I almost passed out several times when exercising. TAKE NOTE BECARE OF OVER HEATING) constipation, lack of motivation, upset stomach, lethargic, and frequently tired. IF you are taking this drug only because you want to loose weight you are crazy. TOO many side effects. | I have been taking Topamax for 10 months and at the beginning I have very happy. I started off with 50 mg and had great results. It was controlling my migraines and daily “cluster” headaches. Now 10 months later I am taking 200 mg and I am having daily “cluster” headaches again and about 6-8 migraines a month. I am not sure why over the ten month time period this medicine has become less effective, however, at first it was wonderful. Now I am back to square one. Anyone else have this happen? | F | 35 | 10 months | 8/27/2007 | 2 | Migraines, chronic daily headaches | Tingling in extremities, significant weight loss (down from 140 to 115 lbs) due to chronic diarrhea -- extensive GI testing has ruled out most other causes, some hair loss, lack of mental clarity (spelling, name recognition, word recall, etc.), problems regulating body temperature | The weight loss sounded OK at first until I realized how much I would be losing and that I'd be losing that weight on the toilet (sorry to be graphic, but you should know what you're in for...). The package insert says people lose 7% of their body weight on average, which would have been fine, but now I look absolutely sickly and my friends and colleagues will not stop coming up to me to share their | F | 31 | 10 months | 5/7/2005 | 2 | migraines | I had side effects but if my migraines had been reduced, the side effects would have not have mattered. They were not bad enought to make me go off the medicine. I had high hopes of topamax being the 'migracle drug' for me but was disappointed. | F | 43 | 10 months | 10/13/2005 | 2 | binge eating | hair loss, fatigue, memory loss | helped with my binges for a while but now they are coming back worse than ever (almost every day). my hair falls out like crazy! also, i am always tired during the day and have to have lots of caffeine to stay awake. i've also found i forget things easier. | F | 19 | 10 months | 10/13/2007 | 2 | Migranes | Weight loss, tingly fingers and legs (esp when crossed), gave me KIDNEY STONES! Not good. | The prescription helped but it wasn’t worth it. Made me lose 20lbs when I was already 130lbs at 5'5 (never felt hungry which i miss... because ive gained it all back), very tingly and it ended up giving me kidney stones!!! I've been off the prescription for a year and 2 months and I am still getting them. Be careful and ask your neurologist about this. | F | 20 | 10 months | 2/13/2008 | 1 | Weight Loss | tingling in feet, hair loss, leg pain, migraines | My dr prescribed topamax to help me shed some weight gained from my antidepressant. I've not lost any weight (it has decreased my appetite, but that's not where the weight gain was coming from) and I have continued to gain weight. I'm now taking 100 mg 2x daily. I have tingling in my feet all day long (mostly in my heels) some hair loss, and I've actually started to have migraines, which I never had before. In addition, I also have knee pain at night (for example, if you asked me to bend my legs at all at night, I probably wouldn't be able to do it), and most nights my legs feel like sausages that have been overstuffed (that's the best way I can think of to describe it.) They aren't swollen but they feel as if they are. I'm scheduled to see another dr to take me off this and the original antidepressant because I just can't take all these side effects any more. I wish I had researched it more before she ratcheted up my dose so high. | F | 29 | 10 months | 1/10/2010 | 1 | Migraines and occipital neuralgia | Nerve pain, stiff neck on left side, anxiety and panic attacks, occipital neuritis, tremors, hallucinations, joint and muscle pain, Electric nerve shocks and pulses, tingling in feet and hands weight loss | This drug made me crazy, suicidal in fact. I went to the emergency room 4 times thinking the worst. I would ask my neurologist if these were side effects from Topamax and was told no, there must be something else wrong. They were testing me for MS and looking for blood clots in the brain. I finally got an appointment at Boston MA General and traveled. My first appointment he told me to get off the drug, a lot of this could be a side effect. Within 4 weeks of being completely off Topamax most have gone away. I am still left with deteriorated muscle in my neck and left side, nerve pulses through the body, and muscle pain. It has been 8 months and I fear this will never go away. I receive acupuncture and massage therapy once a week with little relief. I also gained back all the weight I lost pulse an extra 15 that will not come off no matter what I do. This drug should be advertised on TV with every side effect possible so people can make their own decision. I only wish I had gone with my gut in the beginning that this could be from the drug, and got off of it much sooner. | F | 42 | 10 months 100mg 1X day | 2/21/2017 | 1 | weight loss | my doctor put me on this drug to lose weight. the side effects did not start getting bad until around month 9. but before month 9 i experienced pins and needs, brain fog, forgetfulness. i did lose 92 pounds while on the drug. i had to stop it because my legs would burn and go numb. i quit taking it cold turkey, which you are not supposed to do. i stopped it because of the intenseness of the burning and numbing. it also made my anxiety sky rocket. i have been off of it for about a week and half. and now my feet get extremely cold. i am not sure if this is a withdrawal symptom or if i have something else going on. if anyone has experience this can you please email me. | M | 22 | 10 months 100 2X day | 10/29/2020 | 1 | Migraines | Personality Disorders, Compulsive Decluttering as in throwing everything not nailed down out. Anorexia, suicidal thoughts, self hatered, PTSD triggering, inability to function emotionally healthy. Very bad with motor skills, thoughts & speech impediment. How is this stuff legal? Hair loss. Massive night sweats, brain fog, loss of intellectual ability. Loss of any beautiful thing in my life & personality. | Should have a black box warning! Extremely dangerous. | F | 50 | 10 months 75 2X day | 10/31/2021 | 1 | mood swings | Loss of taste (couldn't drink carbinated beverages, sweets), agitation, forgot common words and phrases, hair loss. KIDNEY STONES which landed me in the hospital for 10 days. | I kept putting up with the side effects because it did help my mood. However, after the hospital stays which were directly related to the drug, it is apparent that this drug is NOT WORTH IT! | F | 41 | 10 months | 6/9/2004 | 1 | Seizures | oh my Gosh, where do i start! Numbness in my feet and hands. I've changed personalities, have incredible mood swings. Although it does somewhat control my seizures, but I can't bare the side effects. I'm constantly tired, moody and extremely emotional. I've had seizures for 5 years and have always expierenced some sort of memory and speech problems due to the anti-convulsant drug I was on, but after taking Topamax I feel as though I'm going crazy. I can't even conversate with people anymore because my memory is so bad and I can never seem to get the right words out. I just went to my Neurologist today and Thank heaven I'm getting eased off Topamax. This was not a good expiernce for me but for others; well, we all work different and everyone else expierences different side effects. I've heard from some that it's an excellent drug, especially for losing weight. Although, I only lost 7lbs in 10 months after taking 150mg 2x a day, I guess I'm just one of the rare few that Topamax didn't help in the loss of weight, but to each their own | F | 24 | 10 months | 1/4/2005 | 5 | headaches | can't sleep | F | 70 | 9 months 30mg 1X day | 8/26/2011 | 5 | Migraine control | much needed weight loss, some cognitive impairment (my husband says I seem more spacey) but I count it all worth it for how well it has taken care of the headaches. | F | 36 | 9 months | 9/4/2005 | 5 | Migraine | Some weight loss, itchy feet, tingly fingertips (when first taking pills only) | This medication has changed my life! I can finally function without the worry of having migraines stopping me in my tracks constantly it's been fantastic, I haven't had any of the awful side effects thankfully only a massive reduction in migraines usually only have an odd one break through now which really is life changing for me. So thankful to these meds. | F | 31 | 9 months 100mg 2x | 9/23/2015 | 5 | Chronic Migraines | Diarrhea, initially quite severe - controlled by taking probiotics 2x daily and iron tablet daily (I'm slightly anemic); occasional tingling in my hands & feet - I just remind myself that it's better than a migraine; and inability to come up with the right word now & then. Anything carbonated tastes simply awful, so now that I've eliminated those famous triggers alcohol and caffiene, I've got water, herbal tea, and a couple juices left to drink. But migraines regularly put me to bed three and four days at a time, several times each month. I can tolerate these side effects. | My neuro. had me go on a nightly dose of melatonin to help me sleep well and a 2x daily dose of alpha lipoic acid (can't recall the specific reason). She recommended Migrelief, which I was already taking, but I had to stop because the magnesium was contributing to the diarrhea and so now I take just the feverfew & B2 separately. I take 100 mg of Topamax daily and have an extra supply of 25 mg. tablets so that I can increase my dosage during ovulation & menstruation. | F | 48 | 9 months | 9/27/2008 | 4 | Migraines | Inability to concentrate, confusion, trouble finding words, slow comprehension, memory loss, weight loss, and metallic taste in carbonated drinks for first few months. | Due to the side effects my neurologist is in the process of taking me off of Topamax, I was on 100mg, and am down to 75mg. My migraines are back already. It has been the only drug that has worked and I am thinking of sticking with it regardless of the side effects... | F | 25 | 9 months | 11/28/2005 | 4 | migraines | tingling hands/feet, weight loss | update: since my first post in september, my doc upped my dosage because the migraines came back. but finally my insomnia went away, the tingling in my hands and feet are still happening, only on occasion though. confusion also went away, lasted about 2 months for me, that was probably the hardest side effect to deal with, almost made me toss the bottle. i've had only two "breakthrough" migraines. an extra bonus is the weight loss, after weight gain from being on another migraine preventative i have lost it all plus some on the topamax. i'm satisfied with this drug so far, it's been a blessing for me, i wish everyone else could say the same and i'm glad i stuck it out through the side effects those first few months! | F | 39 | 9 months 75 mg 1X day | 5/28/2012 | 4 | Migraines | Lowered IQ is the best way I know to describe what Topamax did to me. I also experienced problem with keeping my balance and other co-ordination problems. | Topamax helped lower the frequency and the severity of the migraines. The medication worked with respect to that-- but the side effects became just too much to deal with and to function normally. | F | 54 | 9 months | 1/16/2005 | 4 | complex partial seizures | fatigue, hair loss, acne, decreased libido,chest pain,severe tingling pain in legs and hands and some in face and nose, intolerance to cold, can't drink carbonated drinks anymore, fuzzy feeling sometimes when I'm trying to talk to some one or to think about something important,can't focus sometimes when people are talking to me, constantly thirsty- drink lots of tea and water, my vision has become a little fuzzy-after corrective surgery | worked for seizure control, but I'm 34 years old mother of 2 very active children and married only 2 years- the other side effects are very trying on my marriage and very active lifestyle. | F | 34 | 9 months | 6/27/2006 |