TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Migraines Minor Dizzyness and some minor speech problems (I have learned to slow down and think a few more nanoseconds before speaking)but none of the other major side-effects posted with the drug I've been taking Topamax for for 1.5 months. My average Imitrex injection rate was 12 per month. Since starting the Topamax, I have had three Imitrex injections, one when I had just started taking the medicine, one after driving for about 12 hours, and the last one after a 17 hour flight. I am feeling better now than I have felt in years. I started at 25Mg/day for 2 weeks and am up to 25Mg 3 times per day. I will stay at this rate for a while to see what happens. I am very happy with Topamax and would recommend it to anyone with migraines. Just don't ever start right in with a high doseage! M 39 45 days
7/14/2004
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 4  Seizures tingling in hands, feet and face. Slight weight loss, low sex drive, soda tastes flat. Decreased appetite at first but it has come back a little. Leg cramps, and heartburn. Trouble concentrating at times. I switched over from Tegretol and Keppra to this medication and let me tell you I would rather have heartburn and tingling in my hands and feet any day over being hungry all day long and cranky and an emotional wreck like I was when I was taking Tegretol and Keppra. I am able to actually manage my siezures and lose weight and get along with people. The side effects of this medication outweight the benefits! F 34 45 days
75 3X day
2/18/2010
 3  Bipolar/weight Loss Tingling legs/hands/nose, dry mouth, foggy brain, slow thinking, no sex drive, no motivation, insomnia, missed/late period, no appetite-starve self, drink lots of water, food looks unappealing-dry, urinate small amounts many times a day. I have lost 8 lbs so far. I'm not sure the side effects outweigh the goals to lose weight. The dry mouth has been most uncomfortable as it effects even eating one meal a day as to not faint. The brain fog has affected my job and my effectiveness to do well. But most of all my sex life with my husband. Was finally in a stable place and now has ceased to exist. Somethings are more important than the loss off 8 lbs. F 39 45 days
100MG 2X day
8/29/2020
 3  For ptsd, then for migraines blurry vision, tingling in hands and feet (sometimes goes from my shoulders through my forearms, after that through my thighs as if i have no feeling at all/) completely numb/cold to the touch) slurred speech, insomnia, trouble keeping a thought process, lower libido F 29 45 days
25 mg 1X day
9/30/2020
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 2  migraine induced vertigo dry mouth, daily headaches!! weight gain, tingling across back and in feet, confusion,at a loss for words, hot flashes, fatigue, all around feeling of unpleasantness I was given this drug to help my constant vertigo, but have been given more problems to go along with the original ones. Not only is there still the vertigo, but I had not had a headache for over a year, and I now have one constantly. F 58 45 days
2/28/2008
 1  weight loss extreme weakness, muscle pain, breast pain, nausea, headache, dizziness, always tired. this is the absolute worst medication I have ever taken. I felt like I was DYING or about to DIE. For those who it helps-great! but for me personally, I think its rat poison. And coming off of it is worse that taking it!!!!!!!!! F 49 45 days
50mg 2X day
8/11/2020
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 1  migraines SEVERE visual disturbances, SEVERE irritability, loss of self, helpless feeling, anxiety, loss of taste for soda, increased common headaches, memory lapses, insomnia I began taking 25 mg for migraines for the first week increasing up to 75 mg before finally calling it quits. No side effects were noted at the 25 mg dosage, but at 50 mg, the side effects mentioned became apparent, and at 75, they became intolerable to a point I found myself just wanting to pull my hair out. (I didn't...just felt like it.) The visuals I saw are like nothing I've read about. Sitting in meetings, people's voices wouldn't even make sense. My doctor was conveniently out of town, so I kept trying to deal with it. I asked a pharmacist who said "all medicine has side effects". Finally, I just quit taking Topamax (2 weeks ago) and I felt the best I've felt in a couple months in spite of having migraines. I'd rather have migraines and sanity than take Topamax that only just took my migraines to frequent common-like headaches and made me feel like I was out of my mind....Well, I was out of my mind. F 33 45 days
75 1X day
2/10/2010
 1  Essential Tremor Anger, mood swings, headaches, pimples, memory loss, losing train of thought, can't find right words to say at times, lethargy, loss of appetite, didn't stop tremors, nutritional deficits, sleep disturbances Began with 25mg twice a day for a week then to 50 mg twice a day. That lasted for about two weeks. I couldn't handle the tiredness and it was affecting my work so went back down to 25mg twice a day. That's when anger and mood swings became really bad. Began cursing a lot. Gotta stop. M 41 45 days
50mg 2X day
7/13/2012
 1  Migraine auora DO. NOT. UNDER. ANY. CIRCUMSTANCE. EVER. TAKE. THIS. DRUG. Look at the science behind it, first. Awful side effects. I experience panic attacks for the first time and I can never go back from them even though I am not on the medication anymore. Severe anxiety, depression to the point that I was almost suicidal, I thought I was going crazy, confusion and more confusion, losing words midsentence, couldn't think of anything to do for work when previously I could write down a whole long list of tasks to get done, brain fog. I must have the worst neurologist on the planet because I specifically told her that I would not take a medication with ANY cognitive side effects. And she said the ONLY Side effect from this rug would be tingling fingers. She downplayed the side effects so much that I didn't even look them up before taking the medication only to think I was going absolutely insane a month later. After a month I looked up the side effects and realized just how extreme they are. I am considering a lawsuit. She gave me these so that I would be able to start running again without having a migraine. But the problem is that this medication takes away my ability to find enjoyment in anything. I haven't even had the desire to go running or even step foot outside because I've been so depressed, my personality is completely gone. I hate pharmaceuticals and I hate neurologists that prescribe them Please contact me if you have any concerns about this medication I am happy to talk to anyone about them F 30 44 days
25 mg 1X day
2/26/2021
 2  weight loss Hair loss none F 28 43 days
7/6/2005
 3  Migraines All the common side effects, but had to stop because of severe lower abdominal pain and bladder irritation. Sadly I had to stop this Rx because I was having such severe lower abdominal pain that sent me to 3 Drs. I had to have a lower CT scan, and I was about to have an upcoming Cystoscopy for Interstitial Cystitis when I realized that none of this was necessary because my pain was due to the Topamax. Topamax causes bladder irritation and all kinds of urinary problems that I was not aware of. My migraines were decreased by 50% so I'm not happy about this, but everyone needs to realize that not all side effects are printed on the pharmaceutical printout. Do your research and ask questions. F 39 42 days
6/12/2006
 3  Migrain/bipolar/concussions Neurologists unable to pinpoint for sure severity of factors contributing to Med. issuues. On 60 mg. ramping up to 100. I've been dumber than dumb; can't formulate sentences, remember zip code or phone #. Young child is reminding me milk goes in fridge not cupboard or microwave!!! Off work for 7 mos. now; have yet to find med that covers all the bases. Very frustrated. Taste buds altered, confusion/blurred thought process. Pills hard to swallow-light/floating sensation. Me? ;) Hell, went back to caffeine...after 7 mos. no meds were easing Mig.; I get 3-7 days OFF per Mo.! F 45 42 days
60 mg. 1X day
3/9/2011
 2  Bipolar I Initially I lost 8lbs in the first 10 days. I know a lot of people want to lose weight but I was 5'3 120. Now I'm down to 110 and I eat all the time. the first month I was prescribed 50mg but only took half; I felt nothing. I mean I emotionally was paralyzed. Nothing could effect me. This scared me so much I stopped taking the medication for a week and reality returned. I felt immediately that I was on drugs. Kinda of like being stoned. My friends said I was more mellow, which they like because I'm very high strung. Word loss, memory loss, slow recall... all that happened to. My body temperature rose to a steady 99.1 and has not come down. I have to drink lots of water and be careful at the gym because I almost fainted a few times. Don't drink alcohol. I call it the death hangover. While I drink I get a numbness in my face and ears. More like in my skull. The next day it feels like my face is paralyzed and razorblades are going through my veins. I will have hard to control racing thoughts which I have to talk myself through to calm down. I just keep repeating random phrases in my head over and over again. After 2 months of being on Topomax I find the drug has stopped working. I didn't mention before but it did stop my violent/angry mood swings and hyper mania. At least for awhile. I went from feeling nothing... to feeling level... to right back to where I started, with worse mood swings. I might have to have my dose increased. F 29 42 days
11/12/2008
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 4  Binge eating Parathesia (tingling in feet), decreased appetite, low critical thinking, low memory, low attention. It does what it was expected. Althought it lowers your IQ severly and independent of sedation. F 21 40 days
200mg
8/9/2018
Email
 2  Binge eating, weight loss Increased appetite (i know...) and nighttime eating - quite the opposite goal and side effect here. Incresead menstrual flow. Noticeable and heavy flow. Also, every time i lightly hit my arm or leg at something a very dark bruise forms and stays for like 10 days it's embarassing and scary. I recently noticed a little hair falling out. Tiredness. When i tried 100mg i felt dizziness, like i was going to pass out. Where did all the bubbles go? After 2 weeks on 50mg i tried 100mg and felt sick. After noticing these side effects and not losing a pound or the desire to binge, this drug didn't help my problem so i'm weaning off. Knowing it works for so many people on weight loss/binge eating, at least i tried it. But the fact that it incresead my appetite and my binge episodes was too much. I had to quit. Didn't like it a bit. F 38 40 days
50mg 1X day
1/22/2015
 2  bipolar disorder extreme confusion, memory loss, sore throat, dry mouth, shivers this may or may not be the cause of the clenching of my leg and abdominal muscles as i am on two other medications currently. it could also be how it interacts with those other meds. F 30 40 days
4/10/2004
 4  Migraines, Headaches Tingling hands/feet, some weight loss and decreased appetite, ?hair loss?, forgetful at times Anyone else have Hair Loss as a side effect??? I've only been on Topamax for a little over a month now and can't believe how much better my daily headaches and migraines have gotten. Most side effects I can deal with, but this hair loss lately is concerning me, is this another side effect? I'm only taking 90mg at night. F 36 36 days
9/26/2005
Email
 5  chronic daily headache itching, tingling, out-of-body experience, weight loss, eye pain, all mild I'm a physician with a 5 year hx of daily migraines; had to stop working. Imitrex, beta blockers, calcium blockers, Neurontin, Keppra stopped working/never worked. Neurontin + Depakote worked but lowered my white cell count severely. Increasing Depakote worked but I was too tired to even walk. Less Depakote + Topomax + nortryptiline (Pamelor) has done the trick. I still get 2 migraines a week, treat with Maxalt. No more narcotics, Tylenol or aspirin. You have to stop these drugs or you'll keep rebounding. BE SURE to start slowly with Topomax and be patient. So sorry some of you have had bad luck with it. I know how you feel; it took me a long time to get the right drug combination. Now I can think about working again. My brain manages to function fairly well; Topomax dose is up to 150 mg. F 53 35 days
3/9/2006
 5  migraines The main side effect I have experienced so far is the tingling in my fingers and in the heels of my feet, mostly in the mornings. The taste of soda has changed a great deal and I have lost a lot of my appetite. I do think that I have had some more trouble concentrating and have had some memory loss however I'm not sure if it's been a tremendous amount or not. I've also experienced the word recall problem but again, I suffered from that issue prior to the medication so I can't attribute this entirely to the Topamax. Overall I am very pleased with this medication. I have suffered from migraines for many years now without much success from preventative medications. I am still getting migraines occasionally however am only on 100 mg a day and have been on it for less than 2 months so I may need to have my dosage increased. F 31 35 days
6/3/2008
 1  Migraine headache I began taking Topamax extended release for migraines. I have experienced severe weakness over all and nerve pain in my arms, shoulder blade on the left, I'm left handed. Also, have difficulty standing and it hurts to rise from seated position. I'm experiencing nerve pain and neuropathy in my legs and feet. Very fatigued and mental fog. I was taking Savella for fibromyalgia and Sjogrens but not sure why adding Topamax has been so debilitating. This drug is dangerous but was presented differently to me. F 56 35 days
50 mg
6/20/2018

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