TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Migraines Short term memory loss, tremors in right arm and leg, pain behind my eyes, confusion, slowing of small motor skills, difficulty concentrating, dryness of mouth, slurred speech and weight loss My side effects seem to increase steadliy, my doctor kept telling me that they would go away over time - so I continued to take the medication. It took me about 3 months to adjust to 75mg. Towards the end I started to develop right sided seizure like episodes. My doctor then said it was okay to stop taking it completely. 1.5 DAYS LATER I DEVELOPED FULL TONIC CLONIC SEIZURES AND SPENT 5 DAYS IN THE HOSPITAL(30+ total seizures). The final verdict was the sudden stopping of this medication. It can cause seizures in people that are not prone to them or have never had them. Now that I am off of the medication, I feel great. I feel that all the cobwebs are gone and I am back to my old self. I just now medicate my migraines as they come....much better alternative then having seizures. F 27 3 months
3/23/2006
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 1  migraines Headaches worsened. Carbonated beverages taste horrible. Blurry vision. Stop taking this medication! F 29 3 months
4/23/2007
 1  Migraines Memory loss, tingling and numbness of extremities, trembling and muscle convulsions similar to seizure, difficulty with speech, stuttering, weight loss (17lbs in a month) I would never recommend this drug. The side effects aren't worth the benefits. It took me several months to fully recover after using it. F 28 3 months
11/21/2005
 4  migraines/ neck shoulder arm pain anxiety went skyrocketing. occasional tingling/ burning in legs, feet, and fingers. confusion of date roads and whether i took medicines or not. after 2 months it's settled in and ive went from having 2 migraines a week to not really having any recently. it completely blew my anxiety to panic level i had to readjust up lexapro from 5 mg to 20mg / day. this medicine also seems to provide some relief from severe pain in my neck, shoulder, and arm that percocet or OTC pain meds did not give any relief from, so i am very pleased but considering consulting a pain clinic in future instead as a different option than this medicine. F 35 2.5 months
9/30/2008
 3  Migraine tingling fingers & toes; soda tastes terrible; zero sexual arousal; some weight loss; have an occasional loss of words I'm taking 75mg/day... it has eliminated the constant mild daily headaches I was having, but I still get the whopper monthly headache (hormone related). I have to take Zomig for those... I'm holding out hope that they'll eventually cease, too. The tingling eventually went away, I'm enjoying the weight loss, don't miss the soda (maybe that's why I'm losing weight - I was drinking an awful lot of sugar), but I sure would like to enjoy sex again. I didn't realize the loss of words could be related until I saw others report the same... it comes and goes. None of these are enough of a bother yet to stop taking the drug, I'll decide in a couple of months if the whopper headaches ever go away. F 35 2.5 months
9/22/2004
 3  Pain Associated W/Nerve Damage Tingling in Feet and Hands, Memory Loss, Lack of Appetite, Crying, Unexplained and Irrational Traffic Rage, Eye Pain, Weight Loss After reviewing many, many of the comments listed here, I must say I am somewhat relieved to see my side effects showing up over and over again. I am on quite a cocktail of prescription drugs, the side effects for which would probably include every conceivable condition known to the human body. I take 50mg of Topamax in the morning and 100mg at night and while the morning dose did at first cause drowsiness, that seems to have lessened with time. It is quite difficult, however, to know exactly which side effect is being caused by which drug and/or is being effected by each new drug added, when the cocktail keeps changing. I have dealt with spinal disease for 25 years and continue to be amazed at what I have to go through to find the best way to treat this condition from day to day, year to year. I know many of you must feel the same in your particular situation. F 55 2.5 months
10/23/2007
 2  Migraines My eyes felt like they were dipped in pool chlorine, hands and feet felt tingly, sometimes sharp pains in heel of foot, short term memory loss (very minimal), face twitching, and metallic taste in mouth when drinking carbonated drinks. For me, my eyes burning like they were on fire was the worst!!! After slowly working up to the dose, I was taking 2 25mg pills in the AM and 2 25mg (100 mg a day) in the evening and that's when I saw the bulk of the side effects. The doctor reduced it to 50 mg a day and most side effects diminished but still lingered every now and then. I went and saw the Doctor and she said the eye pain is a bad sign and so she switched me to Verapamil 80mg once a day...Hopefully this will help. F 24 2.5 months
12/4/2008
 5  Bulimia The only side effects I have experienced are spelling errors (a lot of them. I used to pride myself on my ability to spell, and now I can't worth a hill of beans.) and the whole "what's the word?" thing. Maybe a little drowsiness but nothing major. I love this. Seriously this has been a miracle for me. Binging and purging disappeared practically overnight. It's like the urge just isn't there anymore. It's amazing, it has given me some semblance of a life back. I'll take "the stupids" over the hell of bulimia anyday! F 17 2 months
12/5/2008
 5  Migraine Dry mouth, acne on body, some acne on face, tingling hands, dizziness, forgetfulness, confussion, memory loss, no taste for soda (which has been a good thing, because I was a huge soda drinker, and I am now 4 weeks off the soda and drinking more water and feeling great!)weight loss (which my doctor prescribed a small doseage of amatriptaline to counteract this side effect because I only weigh 105)and diarhea I LOVE THIS DRUG! The benefits far out weight the side effects. I suffered from severe migraine headaches and if you truly suffered from these headaches, almost ANYTHING is better than the headache! I was on Topamax once before and it was causing me to lose too much weight so a former doctor took me off of it and put me on another prevenative. Within a week I was having my headaches again. (I was 6 months w/o one (amount of time I was on it before)) I begged to be put back on it. I went to a new doctor and he agreed to put me back on Topamax and gave me Amatriptaline in a small doseage to counteract the weight loss side effect. I have been back on Topamax for 2 months now at 100 mg a day and feel great! I will deal with the side effects if I can be migraine free. F 30 2 months
2/22/2008
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 5  migrianes tingling in fingers but very bad in right foot. weight loss, about 20 pounds in first month and 1/2. appetitie supressent. i take 50gm at bedtime. i put up with the tingling in my feet and hands because the weight loss has been great for me. it has given me the boost i needed to change my diet and exercise habits which i now will also help my migrianes in the long run. only one migraine since on topamax and it is because i had to commute an hour to a meeting with no breakfast, a huge trigger for me. all in all i say try it, if it works great. if it doesnt, you try something else. F 23 2 months
2/19/2008
 5  Migraine weight loss (forgetting to eat), tingling in fingers, fatigue then mild less need for sleep Started at 25 mg once a day with severe fatigue, no real change in migraines. Upped dosage to 50 mg once a day and migraines have decreased from approximately 4 to 5 every week to 1 to 2 every month. Will take the side effects, as they are less debilitating than the migraines. As a side note, I am on the generic topiramate. F 39 2 months
7/14/2009
 5  Migraines Coughing, stomach pain, diaharea. Weight loss of 22 lbs in a month and a half. Migraines have lessened. I take 50mg 2 times a day. Love it F 37 2 months
10/8/2015
 5  Migraines/Mood Swings Some hair loss - comes and goes. Some weight loss without appetite loss, I still eat as much as I ever have. If anything, the only thing I ever want to eat is gobs of sugar and sugary foods! Meat is less appealing. My mood swings have leveled out and my depression has lifted - I feel like my eyes have been opened! Its been wonderful! I was scared of the side effects. But I very slowly worked my way from 16 mg to 25 to 37.5mg to 50. I don't have any issues with memory or brain fog, or feeling dopey - and trust me: I run a business with over 700 clients, so I need to be clear minded at all times. I take this in conjunction with 300 mg of Wellbutrin every day and its been the missing link. My social anxiety is gone, and I feel on top of the world. F 32 2 months
50 Mg 1X day
8/26/2014
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 5  Daily Migraine Word loss, tingling feet, cough, blurred vision, constipation, mental fog, slight breathing difficulty Migraines completely gone within 3 days. Have had migraines for over 30-years and have taken Excedrin but needed to stop due to rebound headaches. At this point the side effects are worth it because I am 98% headache free but I worry about the long term issues. I had word loss prior to taking medication where as I knew what the word at least began with - now I usually don't know what the word begins with. I am thin and have lost 7 pounds so the doctor is keeping an eye on that. I am a bit moody so trying to be aware of it and not let it control me. But honestly when you have daily life controlling headaches - so far I'm not willing to give this up unless I find out it is harming me in a way that will take or reduce my life. F 50 2 months
25 2X day
3/28/2017
 5  Migraines Weight loss, intermittent tingling and numbness in toes, change in taste of carbonated beverages, mild occasional eye twitch. My neurologist is my new best friend--I went from 2-3 migraines a week to 1-2 a month. Also love the weight loss; I've lost 20 pounds so far, and still losing, on 200 mg. Seems to affect my perception of fullness, hunger, and cravings, which is great--eliminates most need for willpower. F 30 2 months
11/6/2007
 5  migraines/seizures little tingling in fingers and toes lost five pounds in a month so far. No headaches, no seizures, and greatly reduced pms. I love this drug. 50 mgs at night. A little tired during the afternoon, but I just have a cafe latte if I need it around lunch time. I've taken topomax before, higher doses (100mg or more) caused a rash and hair loss for me.Reduced the dose to 75, then to 50, then stopped for several months. Started again at 25, very slowly, over several weeks moved to 50 mgs every night for about eight weeks now. No side effects, other than some fatigue and tingling, which I feel is helped with additional B-complex vitamins. Topamax is a great drug for me. No headaches, and no more "deja-vu/seizures". The smaller dose seems to work very well to control headaches/seizures, without all the side effects. Have tried all the others - neurontin, gab, teg, zon, everything - was having six seizures a day (dej-vu's) 2-3 headaches a week, especially near period, Topamax was the ONLY thing that worked, but those sid F 46 2 months
11/3/2007
 5  Pseudotumor Cerebri Tingling in hands and feet, weight loss. Took away my pain, pressure and is helping me to lose my excess weight. 100mg/day. F 23 2 months
8/29/2002
 5  migraines tingling in feet, legs, hands. "soap-box" effect, tiredness that went away after I got used to the medicine, dry-mouth, soda tastes funny. my migraines have almost completely disappeared. and just about right away. I've had one since I started taking the medicine. I started with 25mg and have worked up to 100mg once a day at bed time. I sleep great. the tingling does not bother me at all. at first, I was on a "soap-box" as my husband calls it, but I've calmed down quite a bit now. I haven't lost an ounce. I have heard all these others losing weight on this drug, but I haven't lost one ounce on it and I've been on it almost 2 months and Not one ounce has left my body. I haven't lost my appetite very much at all. maybe, I have cut down on snacking and I still work out. I do get very thirsty. I guess I'm in that 1% of people that don't lose weight while they're on the drug. But the great thing is that it has relieved my migraine pain and that is why I take it in the first place. Life is great with topamax. F 46 2 months
10/2/2006
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 5  migraine headaches at first, I had a bit of confusion. I really noticed when I would be typing on the computer. It really only lasted a week or two. Also, my taste for soda, like everyone else says, but the good news is, I have switched to water. It has worked wonders for my migraines. I only take 50mg a day, and this a such a low dose. My appitite is slightly decreased, and I have dropped some wieght. but no other horrible side effects like I have read that others have had. F 37 2 months
2/20/2005
 5  Weight Loss Tingling, dropping things, couldn't grip them at all, found out thought it was because i can't mix caffene with Tmax, after it left my system it went away. Dry mouth and I'm finally losing weight! I was to the point of having weight loss surgery. I went in for a consult and my surgeon noticed I was on Zyprexa, so she sent me to a phychiatrist and he put me on Topamax to wein me off of Zyprexa, well that was On December 15th and this is Feb. 13th, I have lost 21 pounds so far and I haven't even been exercising or dieting. Plus I'm only on 100mg of Tmax. F 23 2 months
2/13/2006

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