TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
|
Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | Bi-polar | Severe pins and needles in feet and hands, all my joints started hurting all the time. The only good thing was that I lost 10 lbs in 2 weeks and my mania was controlled by this med. But the benefits of the drug didn't outweigh the side effects and I still have the pins and needles in my feet and I don't know when or if it will ever go away. | F | 50 | 6 weeks 50mg 1X day | 5/6/2010 | 1 | Migraines | Severe insomnia, mood swings, crippling anxiety and agitated thinking, depression and inability to go to work due to nonstop weeping. Also sexual dysfunction, hair thinning, weight loss and tingling in limbs. | I had high hopes for this medication, but found the psychiatric side effects unbearable. At first the side effects seemed innocuous enough. I slept great, lost a few pounds and felt better. Then the tingling worsened in my limbs, hands and feet. My neurologist dropped me down to a "pediatric dose" of 50 mg per night, but things grew worse I lost interest in sex and was unable to achieve orgasm. I could not sleep due to severe anxiety and agitated circular thinking. My mood swings worsened until I was crying uncontrollably and unable to go to work. My doctor never warned me of psychiatric side effects. I immediately tapered off the dose over two weeks and the side effects disappeared. My migraines have not returned, however, I'd find them preferable to feeling so unhappy and unable to function. | F | 46 | 6 weeks 75 mg 1X day | 11/23/2010 | 5 | MIGRAINES | SODAS TASTE FLAT, CIGARETTES REALLY TASTE NASTY, HANDS AND FEET, ARE TINGLING.SOMETIMES I FEEL A LITTLE NAUSEATED.LOSS OFF APPETTITE,NUMBNESS IN MY ARMS, DIAHEREA. | I HAVE ONLY BEEN TAKING TOPAMAX FOR A LITTLE OVER A MONTH AND THIS IS THE FIRST MEDICATION I HAVE EVER TRIED FOR MIGRAINES.THE SIDE EFFECTS DO SCARE ME A BIT BUT SO FAR SO GOOD I HAVE ONLY HAD A FEW HEADACHES AND THEY ARE NOTHING LIKE WHAT I HAD BEEN HAVING. | F | 25 | 5 weeks | 8/12/2006 | 5 | Migraines | Tingling in hands,feet and lips. Loss of appetite. All carbonated beverages tastes flat. Occasional blurred vision | No more Migrianes and that's all that matters. I had a few mirgaines when I was on the 25-75mg but now that I am on the 100 mg I have not had a migraine and I feel great. | F | 27 | 5 weeks | 3/6/2007 | 5 | Cluster Headaches | Tingling in hands and feet, Weight loss, slight memory loss | Please don't let the horror stories scare you away from trying this drug if it's suggested. All meds have side effects. If it's not right for you, then you can always try something else. I have always had hormonal headaches and miagraines but this past Sep I started having almost daily on/off severe pain that could make a person crazy. This went on for 3 months. After lab work, CT scans, and a MRI I was diagnosed with cluster headaches. After starting this medication I have had 2 headaches that I was able to treat with advil. I don't know how I could have kept going without it, my life had come to a standstill. If the side effects are just bothersome try a lower dose. It's a powerful drug, but it can give you your life back. | F | 32 | 5 weeks | 1/21/2010 | 4 | Chronic Migraine | Tingling in fingers and around eye area which is a little scary. still have heacache daily though nothing like the migraines. Still get a little scattered and unbalanced every now and then. Appetite suppresant kicked in after about 3 weeks. Very easily confused. | My Neuro has only just started me on Topamax and I'm still a little wary. The tingling in my face is freaking me out but he warning me that i'd be in for a hellish 4-6 weeks weaning off all codeine that i was practically living on. I have to say even with the headaches that i'm still livng with and the occasionally unbalancing, the scatteredness etc this is so much better than living with the migraines. I'm still keeping my fingers crossed that things will get better and maybe the dosage can sort that out. Definately worth a shot. | F | 29 | 5 weeks | 1/23/2007 | 4 | migraines & back pain | a little tingling, food tasted fine, pop fine, tired at each upped dose, have to force myself to concentrate, but when I do I'm really organized, a little vision alteration, no interest in food (but eat healthy), no desire for pain killers (which I had a problem with) - I think this may be a good drug for people with addictions. I had no problem with memory or word recall - everyone reacts different I guess. | I took Topamax for 5 weeks about 2 months ago but went off cause I thought it was making me way depressed. But, I was on Wellbutrin XL (300mg) too. So, I think that's something people HAVE to consider about side effects: what OTHER meds are you taking? I went off both Topamax and Wellbutrin at the same time. I went back on Topamax yesterday and am looking forward to not having any more migraines (as it totally took them away before) and having no back pain (this too was relieved before) and also very much looking forward to the lack of interest in food and pain killers. Looking back I don't think the Topamax was causing the increased depression... it was more likely my circumstances and maybe the Wellbutrin poop-out. | F | 31 | 5 weeks | 1/11/2006 | 3 | Migraines | Constant bladder infections (3rd infection in 5 weeks)! Tingling in hands and feet. Mood swings. Reduced libido. Stomach cramps. Taste change (especially soda - doesn't taste as good as it used to). Some weight loss. | Working well for my migraines, but adverse side effects are starting to outweigh the benefits. | F | 38 | 5 weeks | 9/20/2006 | 3 | MIGRAINES!!! | So far massive tingling in feet 2 or 3 times a day, sometimes in my hands, and wicked bruises appearing out of nowhere all over my legs!!! | No weight loss yet but it has helped the severity of my headaches so far. CAN ANYONE TELL ME IF THEY HAVE HAD THE OUT-OF-THE-BLUE BRUISING I'VE BEEN HAVING??? It's got me worried!!! | F | 28 | 5 weeks | 9/24/2005 | 3 | Migraines | Weird evening episodes. Like being on LSD at night. When I try to sleep, my body feels like I am on some heavy psycadelic drug. Weight loss (good thing!) Really bad tingling in hands and feet, Confussion and unable to focus, spacey and tired. | Overall I think it is helping cut the headaches back. I'm having a hard time tolerating the tingling and I swear it's making me stupid. I was told to stick it out a while longer and it should improve. I lost 5lbs in just over a week. I am not overweight but did want to lose a few pounds anyway so that part was nice. | F | 31 | 5 weeks | 12/3/2005 | 3 | Binge eating; mood stabilizer | 1st time (4mths-3 yrs ago): break-through bleeding leading to D&C; couldn't taste carbonation in sodas. 2nd time: can't taste carbonation in sodas; tingling in hands and feet; in menopause this time around. | The Topamax stopped the binge eating within one week both times. The side effect the first time was too severe. This time, I have developed this cough. It is constant and my husband has an asthma inhaler that I use with some relief. Cough medicines don't help. I am afraid it is the Topamax and I will have to stop it again. Although the stuff is a miracle drug for the binges, it is evil with the side effects. I never know where it will hit! If anyone else has experienced the coughing or asthma as a side-effect, please email. Tks. | F | 53 | 5 weeks | 1/23/2007 | 3 | Binge eating; mood stabilizer | 1st time (4mths-3 yrs ago): break-through bleeding leading to D&C; couldn't taste carbonation in sodas. 2nd time: can't taste carbonation in sodas; tingling in hands and feet; in menopause this time around. | The Topamax stopped the binge eating within one week both times. The side effect the first time was too severe. This time, I have developed this cough. It is constant and my husband has an asthma inhaler that I use with some relief. Cough medicines don't help. I am afraid it is the Topamax and I will have to stop it again. Although the stuff is a miracle drug for the binges, it is evil with the side effects. I never know where it will hit! If anyone else has experienced the coughing or asthma as a side-effect, please email. Tks. | F | 53 | 5 weeks | 1/23/2007 | 3 | Mood stabilizer | Dry mouth; some weight loss; spaciness; loss of concentration; increased anxiety; increased belligerance; possible somnolesnce; carbonated sodas taste flat. | First off, I'm still ramping up to my goal of 200 mg. I'm at 125mg, about to go up to 150mg. I'm also on two antidepressants and a stimulant (Provigil) for severe somnolesence. I was frustrated with my previous stabilizer (Abilify) because of my persistent sleepiness and weight gain (40 pounds in 6 months), so my psychiatrist put me on Topamax to help out a little with the weight (in addition to my going to the gym and watching what I ate). In the five weeks I've been on it, I've lost about 10 pounds (not a lot, but a start). But, man, I've been chewing my boyfriend up one wall and down another since I started this stuff. And *all* my diet sodas taste flat (which I guess is ok, since I need to drink water, what with the proclivity towards kidney stones this stuff'll give you). But I'm starting to get sleepy again, and it's just getting worse the more Topamax I take. And I'm going to take the Provigil over the Topamax any day of the week. I also | F | 30 | 5 weeks | 12/15/2004 | 3 | migraine prevention | At 100 mg. I am experiencing diarrhea, concentration problems, word-finding problems, fatigue, lethargy, weight loss, taste alterations, numbness and tingling in fingers and toes, dry mouth, some sexual dysfunction, stomach aches, wanting to sleep long periods of time with difficulty waking. At doses lower than 100 mg. I had a frequent sense of euphoria, an overall sense of well-being, a little bit of trouble sleeping and ease of waking. | Have been taking Topamax for 5 weeks now and am now at the so-called maintenance dose of 100 mg. per day, 50 mg. in the a.m. 50 mg. in the pm. Have had 5 migraines since I started titrating dose 5 weeks ago. I generally get about 6 migraines per month. Would like to lower dose to 75 mg. per day if it will work, felt much better overall at that dose with hardly any annoying side effects. Love the weight loss. I feel like I've lost a bit of my personality at 100 mg. I feel sort of flat. Hate the fuzziness and lethargy. I do think it is working to reduce the number of migraines but am not sure yet. The jury is out. For sure I'll give it at least another month or two. The best drug for my migraines is an Imitrex injection. It works nearly every time. I also use Maxalt but it doesn't seem to be very effective any more. | F | 52 | 5 weeks | 8/11/2005 | 2 | Migraines | eliminated about 90% of my migraines, that was nice. started getting rare optical side effects: retina lights (not auras), massive myopia swings (20/800 my normal uncorrected vision, to my guess 20/1400 and back in a few hours due to increased eye pressure), mild hallucinations, and a few more that would lead to glaucoma and blindness if I had not stopped(90%...sigh). | with out my meds my migraines had become daily. I got them on top of my severe 24/7, 27 year muscle tension headache, first E.R trip last week, given shot of morphine, it only took the edge off, told it was a large dose. been recently put on propranolol for anxiety, also completely eliminating my migraines(yessssss) now on to my other headache(sleeves rolled up and grrrrrrr) | M | 50 | 5 weeks | 5/24/2007 | 2 | migrains | p.s. ANY VISION PROBLEMS... | KEEP CHECKING FOR GLAUCOMA OR STOP TOPAMAX | M | 50 | 5 weeks | 5/24/2007 | 2 | Migraine with Aura | Initially depression, followed by Blurred Vision, Polyopia, tracers and trails in vision, constant lump in throat and gagging. | Started at 25 milligrams a day, and was increased in 25 mil increments until I reached 100. The depressed subsided at 75 milligrams - but when I reach 100 I developed severe polyopia (multiple vision) which is really prominent at night and upon awakening. It is very scary. I have tracers and trails in my vision, and I am unable to go out or drive at night. I also have developed a constant lump in my throat and have started to gag almost all day long. The side effects are terrible. My doc side the Topomax shouldn't be causing this, but I know it is. I have asked her to decrease my dosage to 75, but the side effects have not decreased. I want to wean off of it all together. And by the way, I have lost only 3 pounds, but didn't have a weight issue anyway. | F | 40 | 5 weeks | 4/25/2009 | 1 | prevention of migraine headaches | severe depression outbursts, confusion, loss of focus, loss of taste, tingling sensation, STILL HAVE HEADACHES! | Terrible drug--I would never recommend to anyone. | F | 35 | 5 weeks | 8/22/2008 | 1 | Migraine | Tingling in fingers and extreme pain in my legs above my knees. I thought I would need a cane or walker just to get around! Also, pain in my left wrist even though I am right handed. | Was only taking 25mg a day. I didn't realize at first the problems I was having with my legs was due to this drug as my knees have bothered me previously, but this pain was in a different area. I stopped taking the meds this weekend and already have improvement in my legs! I'll try something else for my migraines! | F | 55 | 5 weeks | 3/5/2007 | 1 | seizures | Started switching over from Keppra to Topamax 4 weeks ago. I am unable to function. I am psychotic. I am hallucinating. I cannot have a conversation with anyone, I can't remember what I have said. I can't think straight. I cannot function physically. No sex drive what so ever. | Thank you all for posting your experience here. I am so glad to find out that I am not going insane and that I am not alone. I am calling the doctor tomorrow and getting off this drug. | F | 43 | 5 weeks | 6/28/2005 |