TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | migraines | extreme depression, suicidal thoughts, Couldn't concentrate, couldn't recall words, soda tasted horrrible. NO weight loss for me! | Wellbutrin caused migraines to increase to daily even 3 months after stopping the drug. Topamax stopped the migraines. However, side affects- depression were too much. | F | 38 | 4 months | 3/5/2008 | 1 | Migraines | confusion, forgetting words, forgetting how to do ordinary things, outbursts of anger | I've had migraines since I was 14. At 24, it turned into a daily battle of avoiding anything that might trigger one and it caused me to lose jobs. The side effects were unreal. I almost had to learn everything over again. Simple things like doing laundry became confusing to the point I cried because I couldn't remember what to do. I'd forget how to speak, how to say words, how to put a sentence together. I was always the type of person that could pick up on any task and complete it before taking this. I stopped taking Topamax in 2002 and I still haven't recovered from it. I have slowly gotten better at things, but I still have to constantly ask for help. I still have trouble speaking and remembering things. I once had trouble finding my house which I had lived at for 21 years. While on the medication, it never eased my migraines either. I really *have* known people that this medicine worked miracles for. But for me, it's ruined my life. I don't think I'll ever be the same. Though it's | F | 31 | 4 months | 1/12/2008 | 1 | tremors caused by mini strokes | EXTREME muscle pain over entire body, muscle fatigue, EXTREME joint pain, muscle spasms all day and night, rapid weight loss, emotional wreck, crying all the time, severe insomnia, complete confusion, memory loss, repeating myself all the time, unable to grasp words from my brain to speak, in a general fog all the time. | Since being put on Topomax a few months ago as a treatment for my hand tremors that were a wonderful gift of my mini strokes, I have had an excruciating amount of pain all over my entire body. I cannot sleep, and I have no appetite at all. I have had unexplained problems with my potassium level dropping to dangerous low levels which caused my entire body to contract and bend in half. The doctors at the emergency room could not explain why my potassium levels had dropped and when I followed up with my PCP, she was clueless too. Since that event, the pain in my body is unbearable. I have been to my neurologist who has run multiple labs on me as well as a nerve conduction test which came out fine. It has to be this drug. I am contacting my doctor to be weened off of Topomax immediately. I will suffer with my tremors because the side effects of this drug are unbearable. | F | 59 | 4 months | 2/25/2009 | 1 | Migraines | HAIR LOSS! If your doctor is telling you that it is just stress, diet or age and you are taking Topamax get ready to lose your hair. | I've had migraines since age 7. Maxalt used upon the beginning of a migraine would make the headache go away and within an hour sometimes two I was feeling much better. My doctor suggested Topamax which is finally available as a generic. Amazingly the number of people who are reporting hair loss is incredible! A migraine lasts a few hours, your hair loss may last forever. Luckily I had a lot of hair, it has thinned considerably and I just hope that now that I am no longer taking the medication that this horrible side effect reverses. | F | 37 | 4 months | 7/18/2009 | 1 | Migraines | forgetfullness, dopey feeling, MAJOR joint pain. | This only dropped my migraines to once a week, I was still not able to work, so the joint pain was just not worth it alone. I was literally UNABLE to get out of bed because it hurt my joints so bad! I forgot everything - what day it was, was I supposed to be picking up the kids for carpool, etc. | F | 41 | 4 months | 7/29/2009 | 1 | alcohol and cutting cravings | CHRONIC MUSCLE WEAKNESS (as in deconditioned muscles...) Terrible skin problems!! Palpitations and irregular heartbeat causing extreme anxiety and fatigue | This pill is evil. Coming off it is like something out of a horror movie -migraine lasted for 5 days; nausea; fever; lack of energy; dizziness and passing out; high pitched buzzing in ears... It's been two weeks off the pill and I'm still in bed. Feeling alot better, and happier though. Muscle weakness has improved, I can walk short distances without extreme pain; fever and migraine still comes and goes; still occasional dizziness with spot in front of eyes | F | 20 | 4 months | 8/20/2009 | 1 | Daily headaches and migraines | dizziness, tingling in fingers and toes, confusion, constantly thirsty, soda tastes bitter and gross | Topamax was awful! I started off taking 50 mg/day. I didn't feel a difference. The doctor upped my dosage to 100 mg/day. It made my headaches worse. It also made me constantly thirsty. I couldn't feel my fingers and toes when I would wake up in the morning. Coke, my favorite drink, tasted nasty. (I eventually gave it up, which is probably better anyway.) I just didn't feel like myself. I don't recommend this medication. | F | 25 | 4 months | 12/11/2009 | 1 | Migraines | Hair loss, loss of words, writing and typing appear dyslexic, brain fog, anxiety, loss of cognitive function at usual level. Muscle aches in back, neck and shoulders. My eye sight deteriorated rapidly from 20/20 vision. | This medication did help with my migraines, i have been off the medication for a year and i am still not how i was prior to taking the medication. I do not believe that my vision or memory, brain function will return to how i once was. | F | 42 | 4 months 50 1X day | 1/3/2016 | 1 | Migraine | Tingling of mouth, face, legs, arms and hands, catatonic, prickly skin, nightmares, severe anxiety and irritability, chest pain, complete loss of appetite, metallic taste in mouth, feeling of impending doom, severe insomnia. | My doc started me on this med in June of '14 and within a week the symptoms started. I call this drug Stupimax because that's what itdid to me.I don't recommend taking this med unless the benefits far, far, far outweighs the risks. I had a horrible time on this med and told my doc that I wouldn't do much as touch it again. | F | 36 | 4 months 100mg | 8/2/2015 | 5 | mirgraines | I have been taking it since Nov for migraines the dr worked me up to receive max dose I went from 245 in Nov to 195 in July. The only side effect I have had is the tingling toes. Every one I'd different though I wish I would have been one of the ones that would have lost more weight on it. I did experience one more side effect I hate the taste for soda pop it taste Nasty. Any kind is gross. Haven't had any since I started the meds. | F | 33 | 3 months 200 mg | 7/16/2015 | 5 | Migraines | Tingling Sensation Hands and Feet - Worse in Feet Foggy mental Clarity in the first few weeks Carbonated Drinks taste terrible Loss of sex drive Absoultely no migraines | Reading the internet will give Topamax a bad rep but the drug has absolutely changed my life. I was getting 30-40 dizzy spells a day and migraines leaving me bed bound for 3-4 days every couple of weeks. The side effects are uncomfortable at best but have made an incredible difference to my life. | F | 31 | 3 months 25MG 4X day | 6/24/2014 | 5 | Migraine Headaches | Dry mouth, so I just make sure I drink more water. Occasional tingling in feet. | I am really glad to be on Topaxmax. I take 25 mg 3x a day. I had tried practically every prescription drug out there for migraines and nothing helped and I was getting them more frequently (3-4 a month)and missing a lot of work. When I get migraines, they start with blind spots, in one eye (TERRIBLE pain), then my head feels like it is ready to explode, then comes nausea, etc. At my insistence, I had an MRI which revealed that I had six small white spots on my brain (equivalent to small mini strokes)which was a big surprise to both me & my doctor. Fortunately there has been no previous/permanent damage done to my brain. Doctor said that I will be on Topaxma for the rest of my life. That is fine with me. A friend of mine became permanently blind in one eye after she had a migraine. Of course, I would not want to take that chance of becoming permanently blind, since I do get the blind spots and the intense pain with my migraines and also the possibility that one more migraine could h | F | 52 | 3 months | 12/30/2007 | 5 | Sexual Addiction | tingling, mild confusion (but not too bad), mixed-up words, some paranoia, bad tasting carbonated beverages, weight loss. | Really helped control the addictive cravings. Ramp up very, very slowly. I did 25mg week for 2 wks, then increased by 25mg per week stopping staying at the same level for an additional week until stable. It is not a race. | M | 41 | 3 months | 1/3/2008 | 5 | Partial seizures | Continuous thirst. Heat intolerance. Eye strain. May need to consider changing job, but as the drug at lowest dose of 15 mg sprinkle formulation controls my seizures, I am happy to make those changes. I can still compete in road running/cross country | At lowest dose possible, I am pleased with this. Concerns if having to up the dose......would rather make other life changes than do this. | F | 50 | 3 months | 1/7/2008 | 5 | migraines | tinglining in hands/ flat taste of drinks | my headaches have went away I can deal with the tingles and can go with out sodas its way better than the head aches. I haven't noticed any major side effects besides feeling a bit dingy every now and then but cant really tell if its the meds or just me. Lost 12 pounds | F | 36 | 3 months | 1/19/2009 | 5 | Migranes | Tingling in hands and feet, slight temporary memory issues | Took about six weeks to reach full dosage, but headaches that were almost daily have completely stopped - nothing else worked! | F | 45 | 3 months 100MG | 8/31/2019 | 5 | migraines | Hate the taste of pop. Tingling of the extremities. Harder time controlling body temp (bad in Canada). Dry eyes. Meds for extra stomach acid. Lost weight and didn't need to. Skin looks bad. Can be very irritable. Complete insomnia. Haven't slept in over 1.5 months (rx drugs haven't helped) | I was suffering from daily migraines and after 1 month of upping my dose to 100mg they basically went away. I get the occassional one. The drug works wonders and I will definitely stay on it if I can get some sleep. My neurologist said he hadn't heard of insomnia as a side-effect so he suggested I take all meds in the morning. Hopefully it works. | F | 30 | 3 months | 1/10/2005 | 5 | Acute Migraines | Pins & needles in extremities and nose would be numb. Couldn't drink soda- tasted metallic. | Before Topamax, was getting Migraines 2-3x per week. Now get migraine 1-2x per month. And when I do get one- it is not as severe. The side effects of the drug do go away after about 2-3 months. I am taking 200mg twice a day. I started at 50mg 2x per day and worked my way up over 2 months. | 40 | 3 months | 5/25/2004 | 5 | chronic daily headaches, migraines | soda tasting flat, weight loss, decrease in appetite, fatigue, difficulty concentrating, tingling in hands and feet, difficulty finding words. | I rarely eat 3 meals a day and this just started when I started taking Topamax. My doctor never told me any of these side effects before I started taking Topamax, but when I started - my headaches were absolutely awful, so living with these side effects (now that I know what they are) is fine with me...I can function like a normal person. The weight loss wasn't much, but it was a nice benefit! | F | 23 | 3 months | 4/26/2006 | 5 | migraines | Tingling in hands and feet, light trails, bruising, suicidal thoughts, etc. | I loved the fact that Topamax got rid of a lot of my migraines however, the side effects were scary so I stopped taking it one night and called my Dr. To tell her the next day. Tingling in my hands and feet, all I had to do was reach over my head for a minute or two and I had pins and needles in my hands. Cross my legs to sit and one or both feet had pins and needles or would go to sleep altogether. Light trails. I would watch the light that surrounded an object that moved, move after the object had stopped moving. Breathing problems. I could no longer walk as far as before without being short of breath. I walk a lot at my job, about 6 miles a night or more. Bruising. I got bit by your average yard ant a few times on my foot and I scratched it like normal people do, they turned into bruises. Same with mosquito bites. Probably the scariest side effect I had though was at work one night. I'd had a rough day already and some problems at home. I found myself planning suacide. I caught myself and I knew something was wrong. I had never done that before and I was with it enough to realize that something was seriously wrong! That's the night I quit taking Topamax! I've been fine since then besides the fact my headaches are back. I will attempt to find another way to deal with them. I'm 32 and I've had them since I was a very small child. They won't kill me but I was scared that Topamax would! | F | 32 | 3 months 50 2X day | 7/12/2010 |