TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  migraines Weight loss,fatigue, low energy levels and depression. I am just now going off Topamax and am already feeling much better. This drug can trigger depression-watch your mood closely.Definitely helped to make headaches more manageable, but NOT WORTH THE SIDE EFFECTS! My doc tells me that even when I go off Topamax, depression can still sustain. Lost too much weight. Terrible fatigue. Overall deterioration of my health. F 46 8 months
2/28/2007
Email
 3  trigeminal neuralgia and depression severe freezing episodes - chills; severe depression helped me lose weight and did affect the taste of what I ate and drank F 47 8 months
5/5/2005
 3  migranes and siezure disorder back pain, buttock pain, crying for no reason, anxiety, severe leg cramps to the point I'm unable to walk, irritable, loss of train of thought, spelling words wrong, can't think of the right words, diahrrea, abdominal pain, sleepiness, staying cold all the time, thirsty all the time, milk now tastes funky....some of these aren't listed as side effects or suppose to be side effects I was put on Topamax to control my migranes and seizures. To date, my family and I haven't noticed any change. My neurologist uped the dosage to 100mg last week for two weeks. If that doesn't work, I'm to increase it another 50mg in two more weeks. If anybody has had any of the unusual side effects I stated please e-mail me. F 34 8 months
2/8/2007
Email
 2  Migraine I have had all the nasty side effects mentioned I felt like I was going crazy, sleep apnia as well as racing thoughts, brain fog, feeling detached from my body feeling like I'm not even lying next to my partner, sex drive gone!!! Dizziness! Food didn't want to eat it, drinking fizzy drinks was nasty... Pins an needles the racing brain is not fun at all it's like the speed of them is nothing I've ever felt before, I gave it a go after nothing else worked an I can't take it anymore, oh and memory loss can't spell... It's a joke, the dopamax did effect me! I see wierd things at night felt like I'm going crazy I'm lowering off now with even talking to dr or anyone as I don't get any support nor does any of my family take this medication seriously. It's been so hard to deal with on my own an I wouldn't even recommend it, I just hole my head goes back to normal, however I must say it did reduce my migraines but this does not out way the side effects for me they were just too much I have to find something else I'm like a dumb zombie on it with no emotions an I can't speak either I feel like I'm a prisoner in my own body not to mention the racing sleepless nights F 29 8 months
100 daily
11/23/2011
Email
 1  chronic headaches My Dr. Prescribed me Topamax due to my long lasting headaches. When I began this med. I was on 25mg for 2 week & after it was 100mg. At first I felt ok & the headaches became mild...but they never stopped completely. About a month or so the headaches began to be intense. However I believed my dr so I continued to take the meds. During this time in addition to the topamax, I was giving injection shots into the back of my head a number of times & put on Frova. None of these worked. Of course I had the tingling in my hands & feet but when I drank at least 100oz of water it went away! I had a ct scan...it was normal. I got tired of going back & forth to the dr. & wasting money. I decided to stop taking the topamax...Guess what immediately the headaches went away...I have been headache free for a few months! F 30 8 months
100 1X day
3/18/2011
Email
 1  severe constant head pain Breast tenderness, sexual dysfunction, rampant cavities, hair loss that continued for a year after I stopped the drug, sluggish thinking, slurred speach, bone loss...and all side affects were SEVERE. With osteoporosis practically an epidemic, I am astonished at how often drs Rx this med which has caused rapid bone loss in virtually millions of women. IT is an especially dangerous med because the side effects often do not show up for many months, and if you have stopped the drug, you may blame something else for causing these things. My hair loss began very slowly, but after 8 mo, I had lost 60 per cent of my hair. F 48 8 months
2/4/2007
 1  seizures Extreme weight loss, facial bell's palsy, extreme hair loss, anorexia, kidney stones This drug was evil. Doctors told me that my side effects were not from the med. but 72 hours after switching to Keppra, I felt hunger again, the palsy left and hair loss stopped. Thank goodness I got the kidney stones, which prompted the switch! F 32 8 months
12/16/2002
 1  depression, wiehgt loss SEVERE HAIR LOSS AND HORRIBLE CHANGE OF HAIR TEXTURE!!! Everything tasted bad. Depression increased, got irritated and impatient at the smallest things. HORRIBLE, HORRIBLE DRUG!!! STOPPED IT 2 MONTHS AGO AND MY HAIR IS STILL FALLING OUT! THIS IS NOT MENTIONED ANYWHERE ON THE PI SHEET. Doctors need to STOP prescribing it to anyone who asks for it because they heard it is a weight loss drug, I only lost 4 pounds, and a LOT of hair, and believe me, it was NOT worth it!!! F 50 8 months
8/26/2007
 1  Cluster Headaches & Nerve pain I lost95% of my hair,skin bruiseing and cuts on forearms,Acne like condition on my arms neck and chest,Hypethermia - I was so cold at times I would have to soak in a tub of hot water.Found blockage in my carotid arteries after use.Lack of libido. And it didnt even help with my headaches. This drug is very dangerous. I had vision problems and it dumbs you down so much that you dont even notice the problems till its to late. F 56 8 months
11/15/2006
Email
 5  migraines Sodas and any carbonated beverages taste bad, some foods don't taste as good to me as they used to, loss of appetite, weight loss as a result, tingling in hands & feet at first now just feet, loss of sensitivity in genitals during sex - it is hard for me to reach climax - this didn't show up until recently when my dosage increased to 150mg per day. Started slow, at 50mg a day and then went up to 100mg a day, and just in the last 2 months have increased to 150mg per day. Migranes have been limited to only once or twice during my periods, and they aren't very bad compared to the ones I have had in the past. The weight loss has been a major plus and actually I like topamax more for the weightloss than the migranes now. I have lost 50 pounds in 7 months, but that is in part to excercise as well. When I realized that this would be helping me lose weight I figured I might as well use this as an excuse to get "fit" and I am now in the best shape of my life. I am worried about the new sexual side effect. I have never had to struggle to orgasm before, and sex doesn't even feel that great to me anymore, there is hardly any feeling down there at all!! I don't know if that relates to the numbness and tingling in my hands and feet, could be. I have not shared that news with my husband, and I plan to just fake it until F 34 7 months
11/29/2006
 5  mood stabilizer, depression weight loss, tingling in fingers,feet and nose. This went away after a few weeks. drinks taste flat at first. excessive thirst, hair loss and changed the texture of my hair. Sometimes I do find myself getting my words switched around. As a matter of fact my 8 year old laughs at me because of it. I think topamax is like a wonder drug. It has helped me tremendously. Plus I've lost 40 pounds. There are some side effects I have experienced that I didn't realize was due to taking this though, until I read some of the other comments. Such as the hairloss. And one other person said she felt like she was turning sideways when she was sitting still. I never realized anyone else did that. I've felt like that a few times. But all together I am stable and feel better than I ever have on anyother medicine. I also take Effexor 75mg. a day. None of my side effects are severe enough to stop taking this. They may get worse in time but I'll see. F 33 7 months
1/1/2005
 5  Migraine prevention Tingling sensation in fingers and toes; drowziness The benefit of not having migraines far outway the side effects!! I used to have 3-5 migraines PER WEEK. Since taking Topamax, I have had 3-4 migraines total. F 35 7 months
1/17/2005
 5  migraines tingling feet and hands, legs Awesome drug! I was getting 2 severe migraines a week and having to go by EMS to the hospital. My doctor finally prescribed Toridol (ER IV medicine) for me to inject myself since Imitrex injections and all other meds did nothing. This has been a life saver for me! I take 100mg at night and I sleep fine (after my leg stops) I also take 150mg of Effexor for depression/anxiety. F 39 7 months
3/11/2005
 5  Migraine Prevention Difficulty remembering and repeating some things, occasional brain fog, sinusitus is lasting 3 months now with (sorry) horribly sticky mucous that I feel may be related (anybody else have this?!), occasional tingling in the extremities and cheek. Started slow, built up to 50mg 2x a day. At first I was drowsy and had occasional dizziness adjusting to topamax. In conversations, it's frustrating to not be able to find the right word and to feel like I can't always keep up on the outside but I know in my head I'm NOT DUMB! But I know it's the drug and at worst I had 17 migraines a month, now I have maybe 3? And Imitrex does the trick. Voila. DEFINITELY worth it. Tried the whole bag of tricks before, including trials. I thought I was doomed to a life of near constant pain. F 40 7 months
8/11/2006
Email
 4  migraine prevention initially: hands/fingers tingling... after a few weeks: noticed forgetfulness, confusion, memory issues The cognitive changes were, for me, drastic. I lost the ability to punctuate sentences freely and mixed up words like there/their and here/hear... I wrote some letters backwards when I was writing fast... I forgot how to use the ATM machine. Drove up to it, thought the keypad was "missing"... drove around to the other ATM and thought the same thing of the other ATM... had to get an assistant to come help me use it.. F 32 7 months
75 1X day
4/9/2012
 4  migraine prevention I lost 27 pounds in a month. It took my appetite away.It did help with my migraines that I was having 3-4 times a week. I only have them the week of my menstaul cycle now. I have lost a total of 42 pounds while taking this medicine and I am having body image issues and the Dr. has informed me that as long as I am taking I will continue to lose weight.Some of the other side effects I had is memory loss, and slow moblity. I am now starting Depakote. Good Luck F 31 7 months
2/27/2007
Email
 4  migraines Tingling in hands and feet - worse in feet; hair loss;lost 22 pounds; significant word finding difficulties; mild agitation at times; and bleeding gums now. Carbonated beverages taste like crap. started out with 25mg daily worked up to 130mg. At top dose, I think is when I started losing my hair & now my gums are bleeding. Has significantly helped my migraines though. Went from12 migraines/month to 2/month. But, not sure if I can live with the no hair! So, the drug works but the side effects are beginning to be bothersome. F 33 7 months
7/28/2004
 4  migraines some tingling initially; hair loss (noticeable in sink only); definitely periods of depression when dose started & upped; dizziness; extreme thirst has cut migraines from 16/month to 8/month which is great but I worry about increasing dose due to the mood problems, dizziness, and hair loss side effects. Am only on 25 mg. AM and PM at this time. F 54 7 months
10/24/2008
 4  migraines i lost 25 pounds which i didn't totally mind but it happenned really fast. sometimes i have weird tingly feelings in my face and hands it helped a lot with my almost daily migraines now i usually only get one or two a month F 17 7 months
12/28/2008
 4  Mood Stabilizer/Impulse Control Hands but mostly severe feet tingling in the beginning, went away after a few weeks, even after the dosage was ^. Silly, mush brain in the beginning was worse, and still have it occasionally; like will drive pass my street, forget simple words etc. Wanted desperately for the WEIGHT LOSS s/e, but no such luck, infact, I've gained weight, but can't necessarily atttribute to Topamax. Never knew about the funny tasting diet soda, and luckily never experienced that! Never had a problem with the fatigue either, but sleep can be on and off at times. I take 200mg BID, and I feel like I function really well. Nice and even keeled. I don't have severe mania or depression..my thing is impulse control. My psych did just add Abilify which I'm not too happy about, but we'll see. I just wish I could lose some weight!! F 46 7 months
4/23/2009

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