TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 2 | Migraines | Felt extreme exhaustion, mood swings, soda tasted terrible, loss of appetite. Felt like I had bad case of the flu, no energy. Got three headaches within 6 days. | My body chemistry must not work well with this kind of medication, I had more headaches with it in the 10 days I took it than I normally got. Stopped taking it and felt better within 24 hours. | F | 45 | 10 days | 11/24/2006 | 2 | migraine prophylaxis | tingling; auto-immune syndrome; moderate to severe lower abdominal pain; severe skin abscesses; short-term memory loss; weight loss; moderate to severe muscle/body pain | Not only ineffective as migraine prophylaxis, auto-immune syndrome was so pronounced my doctor tested me for LUPUS! I lost 10 months of my life to Topamax, and another 6 months to recover after I stopped Topamax completely! | F | 38 | 10 days | 5/15/2004 | 2 | chronic migraines | I have been a migraine sufferer on occasion, until this terrible blow out of migraines came out of no where! That is when I began to suffer from mirgaines that come on daily and linger around for four to five days, and then another replaces it. I get my words switched around, I can't remember people's names and I lose track of what I am saying. My migraine headaches are still as severe as before I began taking Topamax. My nausea is ever constant too. I keep up the hope that that the longer I take the Topamax, and the higher the dosage it goes up will help fight off these cursed migraines. I have also had an increase in appetite. | I started 25mg in the morning and in the evening three days ago. I have noticed that the morning dose causes me to feel flu like in the early evening. | F | 31 | 10 days | 2/3/2006 | 2 | Fibromyalgia | All in ONE week: Negatives: Made me VERY emotional (depression), made my perioral dermatitis worse, made me very flighty and which is unusual for me, eyesight got worse. Positives: weight loss, calmed my anxiety, felt like helped somewhat with pain & tension from fibro. (maybe from having a deeper sleep?) | I was only on this one week - the side effects we too much. As much as I liked losing the weight, the depression isn't worth it. I have cried nearly every day since I've taken this, have had STRANGE dreams, and have felt near crazy at times. My husband is feeling like he's on a roller coaster ride with me. It's not worth it to me to put myself in a depressed state just to see if this helps with my fibro symptoms (& added weight loss bonus). Now my husband was on very small doses years ago for his migraines and didn't have any problems that he could remember - but the doses were under 25mg a day. I was taking just 50mg a day, which doesn't seem like much either. I think it depends on the person. | F | 35 | 10 days | 10/23/2007 | 2 | Bipolar | Other than the typical ones like decrease in appetite (no complaints) and making foods taste funny, it made me ITCH! the itching got worse when i went outside on a 90 degree day or horribly worse when i would get angry or upset (which would happen alot seeing as how it made me VERY moody). I developed bumps or hives i guess they were where ever i would itch and i itched EVERYWHERE, my arms, back of my legs, small of my back, my chest, my neck, my head! I consulted a pharmacist to see if i was having any kind of allergic reaction she just said itching was a side effect (yes, i read that on the pamphlet but i wouldn't be calling you if i wasn't concerned that the itching is accompanied by hives!) and i could take benedryl ..oh yay! I stopped taking the drug because the itching became so bad (got Dr.'s permission first). It also gave me a pain/ache in my hips that i never had until i started this drug. The ache/pain is still there as well as the itching even though i have been off of the | Didn't like feeling like a doped out zombie...if i wanted to feel like that i could've done some real drugs. I had the same problems with spelling and finding the right words like most have on this drug. Sometimes i made up my own words. Some people feel this is their miricle drug, well good for you i'm glad it worked. I have my own choice words for this drug! | F | 25 | 10 days | 8/19/2006 | 2 | Neuropathy | Heart arrhythmia (atrial fib) which has never gone away; hallucinations that were horrible, mostly about suffocation! | I was given this drug after spinal cord surgery (although none of my doctors in the hospital would admit to prescribing it later) and finally the heart issue became so apparent and bad I was taken off it abruptly after about 10 days. Hallucinations were quite upsetting. I also had trouble breathing shortly after each dose. | F | 64 | 10 days 50 mg 1X day | 4/4/2012 | 2 | Migraine/SUNCT | I'm unlucky enough to suffer 'classic' headache migraines and SUNCT or Cluster Headaches together. The SUNCT has been in abeyance for 18 months since being treated with Lamotrigine but this drug left me with daily headache migraines for which my doc prescribed topiramate. Within 2 days of starting upload period of 25mg at night, the SUNCT was back with full blown symptoms - tearing eye, swollen eyelid, streaming nose, stabbing pains in sinus, all on right side of the face this time. I thought it was just incredibly bad luck till I read of one other person experiencing the same thing on this website. Thank goodness I did. I'm stopping the topiramate right now, before the SUNCT gets any worse. | F | 56 | 10 days 50mg 1X day | 1/8/2013 | 2 | Migraines, cyclothymia | Tingling in my hands. Numbness in hands and arms. Facial twitches. Depressed mood. Sleepiness. Lack of motivation. | I had high hopes for this drug, but it just was not for me. In a very short period of time, I began to experience the severe side effects. I don't think it is a bad drug. I just believe it was wrong for my particular body chemistry. | F | 43 | 10 days 25 2X day | 11/9/2010 | 1 | migraines | loss of appetite is an understatement, more like complete disconnect with food. I've lost 8lbs, it takes every ounce of energy that I can muster to attempt to consume something. Intense tingling of the hands and feet; loss of memory; confusion; feeling like I'm listing to one side; dizziness; feelings of impending doom, despair, depression | I've had a headache for 24 days straight and migraines for 12 years. I'm not sure if the Topamax is working or helping with that but the side effects have caused me to be unable to work so I'm discontinuing use. | F | 31 | 10 days 50mg 1X day | 1/16/2011 | 1 | essential tremor | no side effect | didn't help at all | M | 55 | 10 days | 6/15/2006 | 1 | migraines / cluster headaches | tingling feet, extreme sleepyness, confusion, unable to drive, extreme increase in intensity of headaches (scary stuff)(migraines are bad enough), pressure in ears and head like an airplane landing really quickly, generally felt like crap. | i held out 10 days hoping for the best, but the side effects got the best of me. the drug was just too much. i couldn't work or drive. my headaches worsened. within the 10 days other than daily headaches, 4 of them were full blown migraines lasting more than 8 hours and were really intense. my normal migraines i can grab before they blow and stop them, these i could not. very out of control. my normal migraines and clusters are about 10-15 per month and of the migraines about 3 of them are full blown. i will take my noraml headache patterns over topamax anyday. at least i have control! and less pain!! | F | 41 | 10 days | 6/16/2005 | 1 | migraines | Tingling in hands and feet, blurred vision | I took Topamax for 1 week @ 25 mg prescrived by my PCP. Increased the dosage to 50 mg the next week, and after 2 days on 50 mg I had blurred vision. Immediately stopped taking the Topamax, and was put on IV steroids. This is the scariest thing I have ever experienced. I was headache free for 2 days over a period of 10 days. Not worth it. I am under the care of a nurologist and will look into other therapies. Not a migraine medicine in my opinion. | F | 33 | 10 days | 3/18/2007 | 1 | chronic migraines | severe nausea, throwing up, severe weight loss | F | 18 | 10 days | 3/31/2005 | 1 | seizure/ Migraine/due to pit-tumor | Major memory loss, no need for eating, communication ,school work,family, church, or ability to study for up coming LSAT. Major pain on right-side of throat. GROWN CRY BABY, IN A MATTER OF DAYS...... | Topamax may be good for some, but as far as I am concerned, it will not reach my mouth again. I am in school, and last night had the thoughts of taking my life !!!! THATS TOOO FAR FOR ME.. I was fine until 30 mins or so after the med got into syst.have not been asleep as of yet!! 32 hours and counting. Did not go to class today-out of fear of not understanding... Will stick with the Imtrix-shots-pills. | F | 34 | 10 days | 2/10/2005 | 1 | Bipolar II | I had tingling in fingers and feet and face, decreased taste and lost my ability to type. All of this was tolerable however it made my moods worse. | I went straight into a mianic episode, and crashed into a depression. Even though I had been more depressed before in my life, Topamax caused me to have suicidal ideation and action and my P-doc told me to stop taking it. The thoughts were still there after stopping the drug so I ended up spending a week in the psych ward of the local hospital so that I could be monitored on a new medication. I also have to continue with partial hospitalization for 5 to 10 days. This drug did not work for me. Don't put up with severe side effects like this, they could be deadly. Talk to your doctor. There are many other drugs out there that can be just as effective. I am so far doing much better on my new medication. | F | 35 | 10 days | 7/1/2009 | 1 | Migraine Headaches | . After two or three days I started having bizarre effects. I appeared to lose all of my higher reasoning skills. I was very "spacy". I would sit down and then look up ten minutes later having no idea where the time went. I was also extremely crabby. | When I spoke to my doctor he did not seem upset or surprised. He said topamax was known to make people "stupid". | F | 41 | 10 days | 2/27/2009 | 1 | Weight loss | Topamax caused interstitial cystitis and severe urgency to void. I actually took the drug a 2nd time thinking the symptoms were coincidental but the symptoms were even worse the 2nd time. I have been off of the medicine for 3- 4 weeks and still have symptoms. I hope the symptoms pass in time. | 53 | 10 days 25- 50mg | 2/20/2017 | 1 | Nerve pain for Ms | This is the devil drug. Two days after taking it I developed Bell's palsy. The entire right side of my face, tongue and throat. Dry mouth so bad it hurt, urine retention it hurt. Flashes in eyes. Color changes in eyes like giant orange spots everywhere. No energy, suicudal, depressed, anxious, horrible memory. Major hair loss, acne, not sure what hapened to my eyelashes and nails.I just wanted to escape the nightmare, it was so bad and coming off only on fir that short time was its own hell. It helped my nerve pain but once it came back it was worse. I got stabbing electric pain. | Don't do it, it should be illegal this drug. Not only did it almost turn me into a toad but I'm not sure I'll ever be the same again :( life changing experience and not a good one | F | 34 | 10 days 100 mg | 2/7/2017 | 1 | Mood Stabilizer | Headaches, depression, severe flu-like symptoms, constant fatigue, no appetite, nausea, dizziness, muscles aching, confusion, shortness of breath, difficulty communicating. | I was hospitalized with severe depression and didn't know this made it worse. I cried more when I got home. I communicated all this with my PCP but they never said a word about it perhaps being Topamax. I have a condition that can cause some of this and put it off on that, but realized that it was so much worse. Today I just stopped taking it. After only 10 days, it can't hurt me as much as it can taking it. Still, I took a deep-sleep three-hour nap, but I was able to get a little bit of work done. I won't touch this stuff again. I wish doctors had to experience what their patients do, I caught one mistake they made already. I think I'd be better off on my own if I could write scripts for the anti-depressants that do work for me. | F | 47 | 10 days 50 3X day | 6/6/2015 | 1 | Migraines | Excruciating neck pain and stiffness. My shoulder is also killing me. My upper spine is literally freezing up. I've never had a drug have this severe kind of effect on me. I have a metallic taste in my mouth. I can't turn my head without yelping in pain. I stopped taking it. I think it is a very dangerous drug for off-label use. | F | 49 | 10 days 25 MG | 10/6/2014 |