TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Migraines Weight loss 20lbs in first 6 months then stabilized, tingly hands/feet for first 3 months, memory problems. Good: 15 year hx migraines tapered from daily to weekly to once a month then stopped completely. I stopped topamax and they have not reoccurred in 3 months. Regained 5-10lbs F 30 2 years
50mg
4/27/2014
 5  Fibromyalga Weight Loss (30 lbs in 2 months) - Hair falling out (mine is very thick so I am good on that one) - Unable to focus on specific tasks I started out with a low dose of Topamax 2 years ago and now take 100 mg in the AM and 100 at night. I feel much better. The weight loss is great, although the loss of appetite can be dangerous because I forget to eat all day long sometimes. I am currently taking Klopnopin at night for sleep/ RLS , but my Dr just changed me to Amitriptyline which I decided I am not going to take after reading the stuff on here. I am starting my masters this month so i will probably get something to help with the focus issues if it continues. F 23 2 years
8/3/2009
 5  Migraines right now not many Here is my WARNING! I have been on Topamax for 2 years when I first started I had the normal tingles but i had those before soem memory lose but I had those with the Migraines, blurry vision had that to with the headaches BUT! in 2/09 I filled my script and when I got it home my pills looked wrong I called the pharmacy and was told that they filled it with a genric, which never told them to but it was cheaper I was told same formula big deal... the doctor had changed my dosage so when I started to have issue's I thought it was because of that. it was not everytime I took this generic drug I was in fact making myself sick. I had intense pain,stomach spasms, severe blurry vision, migraines got worse,my heart would race to the point I thought it was going to jump out of my chest, my hands started to swell, the last straw came when i passed out and had to have 6 stitches in my knee. I talked to my doctor again and this time I told him I was not taking topamax anymore unless he wrote me another prescrition and made sure that it was not filled with generic.. I happened to be in that small percentage of people that can not take generic drugs. Generic drugs are not all the same. so please before you give up on Topamax look at it and make sure it is not generic. F 42 2 years
9/23/2009
 5  anxiety I've been taken off of topomax by my neurologist and having terrible withdrawals. F 56 2 years
400 mg
4/20/2016
 5  migraines At the beginning I did the most of the side effects except no v&d, I had a hard time concentrating and my hands did tingle some, didn't want to eat but that went away after a few weeks once my body for use to it. Helps my migraine and I could afford to lose a few pounds do I was happy. All medication has side effects mine subsided after a few short weeks and very well worth it. F 46 2 years
50mg
3/31/2015
Email
 5  OCD slight tingling in feet/hands that disappeared over time. I might get it on occassion but I don't think its often enough for me to notice it bothering me It has helped me VERY much. I originally took it for migraines, but I noticed that I didn't have the OCD issues anymore. At first it took away my appetite, but I quickly adjusted and that wasn't a side effect,unfortunately. I think its been wonderful for me. Recently my RX plan had me switch to generic and I had to switch back even though it cost me more because I was not getting the proper effects from the generic drug. M 53 2 years
4/22/2009
 5  Migraine Headaches Initial metallic/flat tasting of my dr. pepper. Had to switch to coca-cola. No change in taste of the light colors of sodas like Mt. Dew. Either I got used to it or it did not change the taste of Coke. Coke tastes great to me now! No other side effects. It's ashame to read all the other negative feedbacks. I realize all our bodies metabolize drugs differently, but this drug has been a life-saver for me. I was having daily headaches with about 4-5 migraines a month. Dr was frustrated with me killing my liver with mega dosage of acetaminaphen and other over the counter medicines I was using, so she tried me on Topamaxx. WOW what a difference. Even after 2 years, If I forget a refill and go a couple days without it, the headaches creep back in and remind me why I take this drug everyday. I take 100mg at bedtime. F 34 2 years
9/23/2008
 5  valium withdrawal absolutely none-maybe a bit of tingling in my hands, but that also could have been from the valium withdrawal i was tapering off of valium and having a terrible time. my dr. prescribed topamax 25mg 3x a day. i began with 25mg 2x a day, and felt immediate relief the first day. i went up to 75mg on the third day. this drug has been a lifesaver for me. i have been at this dose for about 2 years now, and i am about to increase my dose. after reading some of the negative reports on here, i am now going to do it more cautiously. i have been off the valium for 18 months, but have a seizure disorder, and the topamax dose isn't high enough. however, i am very glad i have this medication. F 45 2 years
2/18/2009
 5  Bipolar Tingling, hard time finding words, speaking gibberish and trouble spelling would not stop taking this medication for anything I was put on for Bipolar disorder but it has also stopped the majority of my migraines. Even though the side effects can be bothersome at times and spell check has become my new best friend, I am very grateful for this med. F 51 2 years
7/7/2008
 5  MIGRAINES tingling at first, brain fog, mixed up words, weight loss, nausea with increased dose, carbonated beverages tasted bad in beginning I started off with 25mg about 2 years ago and gradually increased to 50 and Im now up to 100mg in the morning and 200mg at night. It has been a wonder drug for me! I occassionally have a migraine about once or twice every month or two...usually due too something beyond my control (weather). Topamax has been my lifesaver. Yes, it has a few side effects at first but they subside. I do have my moments where I feel like I cant get out what Im trying to say, but thats pretty much it. I only lost like 7 or 8 lbs. Went from 135 to 128. It has helped me SO MUCH! I went from having a migraine everyday of my life to once or twice a month. It has helped me have a "normal" life. I thought at one time I was gonna have to quit my job bc of my migraines and topamax has helped me to get through my everyday life!!! F 28 2 years
1/21/2008
 5  Cluster Headaches/Extreme Migraines Mild tingling, soda and beer taste different/poor. These symptoms diminished after first few weeks. Now they recur when taking different over the counter meds and they stop when I stop the medication. Possibly slowed mental function but mind moved so fast it is a not noticeable non issue. This medication has given me my life back. The world caused me pain on a daily basis for more than 15 years. All of the other medications and I have been prescribed meds in every category caused all of the symptoms listed by everyone on this site and only muted the pain that was caused by my headaches. Before telling anyone to NEVER take a medication one should think of how that medication could help another person. This is the only med of over 50 that has brought normalcy to my life. Other meds left me dopey, tired and stupid. In one case addicted to narcotics. M 40 2 years
3/17/2008
 5  Migraines Still a bit slow to find words, I make a lot of "double word" typos, tingling in heels, carbonated beverages taste bad, I'm tired of never feeling hungry I've been taking Topamax for 2 years for my migraines, 100 mg at night and 50 mg in the morning. It works...I only used Imitrex once in the last 3 months. The only migraines I still get are triggered by big storms moving in (low barometric pressure). I used to need Imitrex 5 times a week before I started taking Topamax. I'd rather have the side effects than the migraines. F 41 2 years
2/29/2008
 5  Bipolar disorder Loss of appetite, memory and speech problems, loss of balance, slight anxiety anyone who's lived through bipolar long enough knows: a little slurring of the speech is nothing compared to spending months in the hospital and putting yourselves and your loved ones through hell. I say, live through the bad effects, and start to realize there is a life worth living. this drug has worked for me. F 28 2 years
4/14/2004
 5  Migraine headaches & numbness spell Initially I had foggy thinking, name recall was so bad I just didn't call anyone by name for a couple months including close co-workers, daughters' coaches, etc., tingling in hands & feet, minor weight loss, fatigue. All of this went away after then first couple months other than occas. feet tingling and fatigue. I have other reasons to be tired, so overall I am pleased. Topamax has been great for me so far. It is my only regular med. I take only 25mg per night. I was initially instructed to increase gradually but my migraine headaches & episodes or "spells" (numbness, tingling, slurred speech, dizziness) completely went away and did not return! Before Topamax they had increased to 5-6 or more a month instead of 1-2 a year, likely a peri-menopause thing, I've been told. I feel lucky because this is the first regular med I've taken to prevent migraine rather than just managing symptoms like Immitrex. I've had only 2-3 migraines in the past TWO YEARS, and each time I had forgotten my Topamax. These were also more manageable spells than in the past. So, not sure what the future holds for long term use, but maybe try staying at your intro dose longer to see if it is enough to help you. It worked and is working for me. My doctor & I do joke that if 25 mg is just placebo and not what the drug companies call a "therapuetic&quo F 47 2 years
10/22/2008
 5  Mood Stablizer and Weight Loss Tingling in the hands, Some slight memory loss in the first few weeks, but it went away. Lost 45lbs in the first three months, taking 175mg/day. Was much better than Zoloft, Effexor or Paxil, Didn't have the side effects of nausia and diarea Like the other medications. M 31 2 years
10/14/2004
 5  Epilepsy Slow comprehension, memory loss, weight loss, and daily headaches I take 200 mg twice a day and that, combined with Lamictal, has controlled my seizures. I always have to write things down to remember them otherwise I'll forget the next minute. That's how slow the Topamax has made me. Otherwise, I'm not dissatisfied b/c I've lost about 50 lbs. F 20 2 years
6/23/2005
 5  depression/migraines ringing ears-but it's gone now, tingling heels very occasioanlly, can't drink any soda, but I don't miss it, weight loss-always happy about that!! I did have a 6 month period where all I could eat was granola bars because anything else caused severe tummy pain, but, I don't know if that's related and my husband says having conversations with me can be like playing charades with words and that was before the topamax. (I never can find the words I am looking for) I love topamax because it has decreased my nightmares that I have suffered from since I was a child and it helps with my depression, with the headaches, and it helps me sleep. F 27 2 years
7/11/2006
 5  migraine prophylaxis altered taste with carbonated drinks, easily lose train of thought (kind of spacy?), tingling in nose and hands when first started med and occ. now, my eye twitches sometimes this medication is wonderful. i used to have very dabilitating migraines several times a week and had tried everything. within a week of starting topamax, they went away. i have had 6-7 migraines in the last 2 1/2 years. the tingling is a little annoying, and soda is pretty gross, and i don't like feeling lost in my own mind feeling like i know what to say but i can't find it, but i'd take that over another horrible migraine any day!! F 23 2 years
9/7/2006
 5  Migraines Tingling in feet, hands, and occasionally face This drug, in combination with Atenolol and Trazodone, enormously helped my migraines. I went from having 3-4 a week to having 1-2 a month, and those are related to my menstrual cycle (I'm pursuing other treatment for those.) My whole quality of life has changed. F 31 2 years
2/28/2005
 5  migraines loss of sex drive and after two years, hair loss I have been off it for a year now and while my hair has come back fine, my migraines are back with a vengence. I have discussed this with a neurologist and they have indicated that these side effects are rare and that I was on a high dose 175mg daily. I am willingly to try it again. She has told me that I probably will not experience the same side effects. F 42 2 years
9/16/2007

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