TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | migraines | Dis-association, depression, suicidal thoughts, crying, hopelessness, extreme fatigue, exhaustion, sleeping 15 hours a day, muscle aches, joint pain, bone pain, dizziness, flu like symptoms, respiratory congestion with cough, chest pain, lack of concentration | And I only took this drug for 12 days. My doctor said it was a "miracle" drug that would keep me from having another migraine. I realized he might be right because I would be dead from this stuff. Being in a new job and trying to function on this stuff was impossible. I much prefer a migraine headache as at least I can treat that with Imitrex for relief. When you're falling apart with multiple horrible side effects that you're doing to YOURSELF..how do you treat that? I am someone who wants to lose weight all the time and will generally take "anything" to be able to do that...but I am NOT willing to take Topomax even for THAT benefit. My husband and my children didn't recognize me and worse..I didn't recognize myself. Maybe I would have gotten over these initial side effects had I continued longer, but I had way too much at risk to take that chance and suicidal thoughts were becoming stronger the longer I took it. After 48 hours cold turkey off it, I began to | F | 54 | 12 days | 10/10/2007 | 4 | seizures/headaches | tingly fingers and dizzy the first few days and tired in the AM-I DO NOT have the 'I'm not hungry side effect-quite the opposite'. Do not assume this is a diet aide. | I only take 25 mg at night and this was a last ditch effort. I detest taking drugs, but it has honestly helped me. I have had 7 'normal' days for the first time in 4 months. | F | 39 | 11 days | 6/8/2006 | 4 | migraines | Since starting topamax i havent had the first migraine, the only side effects i seem to be having is soda tastes like crap, my tongue seems to be covered in small blister looking things way on the back of it. I started at 25 mg for 1 week then 50 mg on day 8, i am on day 11 now. I will continue unless the side effects start getting crazy on me. dr. wants me to work up to 100 mg a day | F | 50 | 11 days | 7/26/2007 | 2 | Migraines | Sharp tingling in heels and toes, sleepiness, decrease in sex drive (very noticable!), increase in mucous/cough, intervals of rapid heart rate, memory loss/confusion/groggyness, bruising, rapid weight loss, "phantom" headaches. | I was only on this drug for two weeks at the lowest dosage possible, 25 mg. I completely lost my appetite, became lathargic (most likely because my body was starving), lost 7 pounds in less than 2 weeks. I nearly lost my job because I couldn't keep up mentally, it's like my brain was in a constant fog. I would turn on the gas stove, forget I had done so and walk out of the kitchen! My sex drive has always been very vibrant, and this drug just killed it. The wierd thing is, though I recognized that all these sympoms were harmful, my brain was in such a gooey state that I couldn't make the right decision to take myself off of it sooner. I still got headaches on topamax, just a "different" kind of headache than I was used to. I would not reccomend this drug to anyone. It depletes your quality of life. | F | 22 | 11 days | 1/31/2007 | 1 | preventative for migraines | dizziness, nausea, extreme fatigue, hungry for high fat foods (burgers, cheese, ice cream), nerves | F | 28 | 11 days | 7/19/2005 | 1 | migraines | almost constant headache, body aches, not feeling well,ringing in ears, hard to concentrate, not talking right | my migraines have been getting worse and I dislike taking so much excedrin and imitrex so I thought I would try this (at my Dr's suggestion). I started at 25mg a day for 7 days then 2 times a day for 7 days with a plan to go to 100mg a day. Day 11 my head still hurts, my body hurts. I already had a problem with my ears ringing and it is twice as bad. I could not concentrate at work and I could not talk straight. This is not a help it is just more problems. I had already decided to wean myself off this medicine and this web site just reinforces my suspicions of the medication and my reasons for not taking it. | F | 53 | 11 days | 8/9/2009 | 4 | Migraines Tension headaches Cluster | The first night I took this I had tingling in my lips and since then the tingling, which has been mild, is diffuse and likes to roam. Last night it was all over but originated from my hips and butt! It was weird but not painful or particularly distracting. I have fibromyalgia & CFS, so I have headaches daily and my migraine triggers have increased, so I started this med because I really needed relief from the constant pain in my head, it was a quality of life thing. I have had word recall issues but I already get that with the fibro fog so it's not unfamiliar and I've learned how to deal. Ive lost about 5lbs and food does not appeal to me. I already had a lot of fatigue and haven't noticed an increase. I am sleeping better, which is really awesome. | I am feeling more level emotionally but when I get overwhelmed (which I attribute to the fibro, it's a CNS thing) I'm quicker to snap. I haven't noticed any lack of sexual desire, thank god, so many of the meds I've tried made me dead inside and that's a deal breaker. A little tingling and numbness is no biggie considering the chronic pain I'm already in, I did get a moment of pins and needles, but I was sitting funny and I repositioned and it eventually went away. The weight loss is an added perk since I gained 25lbs back in 2011 on lyrica and haven't been able to lose it, like it totally killed my metabolism. I haven't had any weird thoughts like I did with the lyrica or cymbalta, which both caused psychotic breaks and suicidial ideation. I've had one migraine on the day I got my menses and it wasn't as bad as it could've been and I've had one tension headache since beginning this med & I took the fioricet to calm it down. I am considering trirating up to 50mg daily to see if I can't get rid of the hormonal migraines altogether, but I don't want to mess up a good thing. So many people seem to have such bad reactions on this med and for once, I'm not one of them! I will update in a few months, but right now I am very happy with this med and how it's helping me function a little better | F | 39 | 10 days 25mg | 12/15/2014 | 4 | migraines | tingly hands, mostly left, and feet, diarrhea the first few days, feels a bit like a hangover when I wake up in the a.m. absolutley no appetite and when I do eat I am full very quickly, very thirsty, slight nausea, slow thought process, a bit grumpy, a bit sleepy, makes pop taste funny, like metal. | It has lessened my headaches quite a bit I am happy to report. So far the side effects, though a bit of a bother are not as bad as being confined to my bed w/ a migraine. I have been getting them for 15 years and am excited to imagine a life without worrying about missing some event or having to endure it while having a migraine! I know 2 other people who have experienced positive results from taking Topamax as well. I am titrating my dose started at 25mg/day now at 50mg working up to 100mg/daily after a month per my doc. I have had kidney stones before w/no relation to this drug and pray that I don't make that a habit! Best of luck. | F | 34 | 10 days | 7/14/2008 | 4 | Seizures and migraines | Loss of appetite, sore throat. . On 50mg daily | F | 50 | 10 days | 4/5/2017 | 4 | Bipolar 1, Mood Stablilzer | Feet/Hand tingling/Numbness, Slight Insomnia, Weight Loss/ Supressed Appetite | I have been on Topamax for almost 2 weeks, slowly working up, stopping somewhere between 100-200 mg. Will decide as we go depending on progress. At 75mg right now, 2 morning 1 night. I go up 25 mg every 4 days-ish. Have lost about 8 lbs since starting, and my appetite is suppressed, but not in the anorexic sense. (which I have been diagnosed with in the past...) I eat smaller portions, but I am not turned off by food and have no problem enjoying a meal. I get the tingling mostly in my heels. drives me insane but only lasts for about 20 minutes, mostly when i am not moving. I itch right now, but I am hoping its bc of a sunburn haha. I was prescribed a sleep aide for the nighttime restlessness. Have had no cognitive problems that I've noticed (im very verbal too, and edit and write frequently at work). A little constipation but that might be due to the Welbutrin I am also taking. Still feel depressed sometimes. but that is why we are upping dosage....So far I am content. Also have notic | F | 23 | 10 days | 3/20/2007 | 4 | alcohol control, weight loss | I have had numbing on the right side of my face. I have been prescribed the drug as part of the "my way out" program, to curb alcohol use as part of a program of topamax, nutritional supplements and hypnotherapy. The first week starts at 25 mg and the 2nd week goes to 50 mg. At the 2nd week, my right side of my face is numb and if I drink any alcohol at all (moderation is allowed) my right eye and right side of mouth droops. Other side effects include carbonated beverages taste flat and bad taste in my mouth. Hoping for weight loss as a side effect. | F | 46 | 10 days | 2/27/2007 | 4 | bipolar | So far I have had tingling in feet and hands ,,, stomach ache and taste of soft drink YUK,, Other than that I have only been on it nine days Feeling alot better ,,, mind is clear sleeping better than before was on Neurontin this drug caused me alot of negative side effects,, My only concern is I have glaucoma But I told by mu Doctor its ok to take the topamax,,, just be careful and have checkups,,, | I also take lamicital 200mg at bedtime with busprione and rivritral,,, I hope this drug works out for me as I have been on every other drug there is and all others didnot work or caused me to gain so so mcuh weight it was unreal,, I have bene taking it 10 days,, I am 46 yrs old | M | 46 | 10 days | 9/24/2005 | 3 | Mixed state bipolar disorder | Facial tingling, tingling in toes (nothing major - just felt like they fell asleep) perhaps a slight decrease in appetite and minor weight loss. It could be coincidental that I lost weight last week (4 lbs)but I was making more of an effort to watch what I was eating (on Weight Watchers)and was deliberating drinking more water. I can't give this medicine a great rating or a poor rating either way because I haven't been on it long enough to see definitive results. I'll post again when I know it's truly working. | Ironically, I was on Lamictal last month and was one of the "lucky" ones that gets the horrible flu-like symptoms and rash and had to discontinue use after only 12 days. I have become sick this week with the same type of symptoms and am waiting to see if I am going to break out into a rash since it is possible with this med, too, since this is also an anti-convulsant, or if I am legitimately sick with bad summer cold/allergies. It's too early to tell if the meds are doing anything for me. I'm still losing my temper with the drop of a hat, but I just started 50mg 2x a day yesterday (had been on 25mg 2x a day for a week). I think I might need a much, much higher therapeutic dose to really see some stabilizing effects. And I don't think monotherapy is going to cut it - but just what drug will we partner with? Rounds with Lexapro and Wellbutrin back when I was diagnosed with PPD last summer actually made me worse and made me gain 30 lbs when they had helped me lose weight i | F | 31 | 10 days | 6/21/2007 | 3 | Seizures, migraines, Epilepsy | Nausea, stomach cramping, weight loss, memory loss, agitation, emotional, tired, chills, sinus problems, always cold. Food is repulsive to me and sweets are overwhelmingly all I seem to want. But my head aches have seemed to be diminishing as my anxiety is rising. I get tremors like my handshake more now then they ever have which is just a side effect of my neurological disorder and I've been through many meds so I really don't know what the answer is. | 6 years ago I had a VNS implanted for seizures and tried to do homeopathic remedies to get off the poisons of anti epileptic poisons but that is no longer working and my seizures and head aches are back and here I sit back on meds in this twisted guinie pig game with my neurologist at my expense feeling crummier with no answers. You have to out way the good and bad they say. No seizures and headaches they say. But lots of other side effects they don't say. They just hand you a 50 page book and a bottle of pills and say hope you feel better. | F | 39 | 10 days 200 mg er | 11/20/2014 | 3 | BiPolar Disorder | tingling in hands and feet. Almost constant headache and heartburn, Also feeling quite tired yet not sleeping well. | I've just started on this med and I'm adding it to my Lamictal and Lorazapam. I feel a slight decrease in appetite and mental clarity. I'm hoping to lose the weight but not my job. I already have very thin hair due to menopause so I'm hoping my strong multivitamin will help prevent that. | F | 53 | 10 days 25 2X day | 12/5/2013 | 2 | migraines | I haven't been on it long but I feel like a different person. My memory is so poor I have been passing my street on my way home from work. I am very clumsy and super fatigued. At this point, I am still taking otc meds to control my headaches. I am hopeful it will get better. | F | 28 | 10 days 25mg 2x | 10/28/2014 | 2 | Headaches | Pain and swelling in legs and feet and shaking all over | F | 60 | 10 days | 2/11/2017 | 2 | Neck issues, Left arm spasms | Memory loss, severe mood swings, crying, tingling in feet... | I have been trying to quit drinking soda pop for about 20 years--it did make me quit that--so that was good...but I voted for neck surgery then to be on this med for one more week...good luck to everyone that HAS to take it, I wish you well. | F | 36 | 10 days | 5/12/2008 | 2 | Hand and feet tingling all the time. Instant total joint and muscle pain over entire body. I thought I was going to die. Eye twitching. | I went on Tomamax 50 mg 10 days ago for Migraine and tension headaches. Within two days, my entire body hurt with muscle and joint pain. I could barely walk. Having painted for 21 hours the weekend before, I thought it was leftover pain from painting. I finally realized it was the topamax and stopped taking it 2 nights ago. The headache got worse immediately the next morning and I am still in terrible pain but I believe it is getting better. The side effects are far worse than the migrains that are 3 times a week and the tension headache that is constant. | F | 46 | 10 days | 4/15/2009 | 2 | Constant Migraines | No energy, no appetite, severe kidney bleeding (history of stones) constipated, (cramps) memory loss, failure to focus and form words, didn't care to, slight occasional dizziness but never the tingling I'm reading about here. Headaches still come, but not as severe. Oh and constant heartburn. | 25mg twice a day. Toprol-XL 1 a day, took a steriod for a week to break the tylenol habit. Only been on the new meds 10 days, since then I have felt worse from the side effects than I did with the headaches. At least I could manages them. I can't function when my brain is asleep and my core is in pain. I have been told it only took a week for the sides effects. I'm beginning to get worried. | M | 52 | 10 days | 8/20/2007 |