TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  Migraines This seems to be a rare side effect, but occurs 24 hours a day without reprieve with the lowest dosage of 25 mg. It goes beyond dry mouth or a bad taste, as stated in the literature. It feels as if my teeth are coated with fungus or a horrible cottonball-type sensation. I can brush my teeth 20 times a day and use mouthwash and the feeling does not subside. This has affected my life negatively and my neurologist does not believe me. I am taking no other medications so this problem can only be attributed to Topamax. Has anyone else experienced this? F 49 2 months
3/25/2008
 3  headaches minor tingling in feet after waking up, MEMORY LOSS i was in love with this med for a while. I was only on 25mg daily too, and after about two months, i began to feel like i was losing short term memory abilities, specifically the inability to retrieve memories, names, things i needed to remember for SCHOOL, etc. the drug worked for about a month; i had no headaches for a month (before i had about 4 a week); i didn't have the memory loss. then boom, it started happening. i felt stupid and frustrated. I'm not saying this drug is bad...everyone has different experiences, on different dosages. it worked, for me, and you should try it if suggested by your doctor, because it may just work. 19 2 months
3/25/2008
 3  Headaches Difficulty concentrating,numbness tingling sensation in hands and feet,loss of appetite,fatigue,memory loss,stomach problems worse than before, I've been on this due to Headaches that would never go away. I like the appetite loss and the taste buds changing all the other symptoms need to go I don't have headaches like I did I may not be a Dr and I see that symptoms do run the same really depends on what you were prescribed it for. F 29 2 months
2/9/2017
 3  Mood stabilizer /weight loss Started Topamax after significant weight gain from seraquil. After one does soda tasted flat, appiteite is a lot less, the worst side effect is shortness of breath and pins and needles in my hands and feet have gotten progressively worse with the increase of the dose. It's almost enough to stop the medication it's hard to walk and write when it feels like your hands are asleep all the time.. F 45 2 months
100 mg
7/25/2016
 3  Daily Migraines Memory loss, mild weight loss, loss of concentration, loss of focus/drive (depression?), tingling in hands/feet, alteration in taste perception (sodas and certain fatty foods taste horrible), loss of appetite I have been on 25mg dosage along with 120 mg of Inderal. I have had more relief from my daily headaches than when I was on Inderal alone. My doctor wants to get me off the Inderal entirely however my last attempt to reduce the dosage left me with increased headaches and reduced quality of life again. I'm nervous to increase the topamax because of the side effects. I worry that I might have been a serious danger on the road before I stabilized. My job also requires me to think on my feet and the fogginess and memory loss is a severe hinderance. I had forgotten how debilitating my headaches were though. I'm really between a rock and a hard place. F 28 2 months
5/1/2007
 3  NERVE PAIN pOP TASTED LIKE SHIT F 54 2 months
4/11/2005
 3  migraine Extreme thirst, drowsy, thought blocking, decreased alertness/response, much hair loss, breakthrough bleeding (post-menopausal), N/V, inflammed sclera/eye irritation, tingling feet/legs, lip twisting, depressed, apathetic. Migraine decreased, calmer, no change in wt. On tapamax 50 mg daily F 55 2 months
3/27/2007
 3  migraines foggy thoughts, tingling in fingers, lack of concentration, dry mouth, mood swings, dizzy, soda taste strange, can't find my words, weight loss, feel over medicated, slurred speech, zero sex drive (also take other meds) I have been suffering with migraines for many years but lately they have become much worse. However, I am also being treated for severe depression and anxiety (Effexor & Valium plus Ambien for sleep}. Can anyone tell me how long the side effects might last because they are wearing me out? I am a bright professional woman who feels quite embarrassed to speak to my peers when I am unable to find the right word or my speech becomes slurred. I am hoping someone will be willing to talk to me about this challenge. F 41 2 months
4/22/2006
 3  Unexplained Non-Migrainous Headache Tingling, Shaking, Lethargy, Flu-like Symptoms, which increased with dosage and led to keeping the dosage at only 25mg. per day. Exaggerated allergy symptoms, body aches, chills, sleepiness, lack of energy, backache, depression, indigestion, taste changes (flat carbonated drink thing, hot one minute, chills the next, no appetite even when stomach's growling. I have had some relief from horrible headaches, but at what price? I seem bed-ridden at times and all I want to do is sleep. I feel like I'm dying. I don't want to get out of bed. All this on 25mg. at bedtime! F 42 2 months
9/7/2005
 3  Migraines I have been on Topamax for about 10 weeks now. Doctor just doubled dose from 100mg to 200mg 2 weeks ago. Side effects intensified then. Confusion, Lack of concentration,can't find words, constant ringing in ears, can't think clearly, nervous, irritable, no appetite whatsoever (entire time though), aversion to any carbonated beverages, struggling in school, tingling in hands, feet, face, pressure in ears, temples, headaches, feel like constant noise in head. Overall weird feeling. This past weekend, my eyes started bothering me. It's hard to explain, just general discomfort. I'm seeing my eye doctor tomorrow to make sure my eyes have not been damaged because this medicine can cause glaucoma and blindness. I am starting to taper off medication tonight. I have lost 23 pounds since starting in September but it's muscle loss not fat so that not beneficial. Doctors sugar coat this side effects. My doctor only told me about the word find problem. He wasn't concerned at all when I told him my eyes were bothering me. I have only had 1 migraine since on the medication and my daily headaches have diminished quite a bit. I want the benefit of some pain free days but I don't want all these side effects. F 45 2 months
100 2X day
11/8/2012
Email
 3  migraines It improved my focus and mood at first. I felt better mentally at 50-100mg. But it caused GERD at 100mg which got worse at 150mg and became volcanic at 200mg. I would throw up in my mouth after taking a sip of water. It was constant and intolerable. At 150mg I became aggressive and had daily bouts of rage in the morning and at bedtime, where I'd get in mental fights in my head with doctors and people at work. It started to come out at work and I almost quit my job. Insomnia - about an hour each night, set in at 150mg as well. I also felt the little pains of kidney stone formation each time I raised or lowered the dose. It also became difficult to breathe through my nose at night at about 150mg so that I had to use breathing strips. Overall, the bad outweighed the good. The pain prevention was slight at 50mg, and each additional 50mg was a slight improvement. I probably would have needed to get to 300mg-400mg to prevent the pain completely but I was a wreck with the side effects at 200mg, and it wasn't worth it at 50mg when the worst side effects faded. M 35 2 months
200mg 1X day
9/5/2010
 3  debilitating migraines memory loss (words,things,...) irriability,paranoia, parathesias to lt. face, arm and hands,minimal weightloss I never even had a headache until I entered perimenopause at age 43, suddenly, in Nov. of 09, I was struck with severe debilitating migraines. After a few visits to the E.R., my OBGYN prescribed Vicoprophen, which worked, and I figured problem solved, although I never exceeded my Mdd, I think I was a little too liberal with the script, hence my referral to the neurologist. I was so nieve, I thought "great", they will give me the migraine fixer pill, Topamax lets you die in increments, instead of the migraine which will make you blow your head off. In the mean time, I will keep my ears open for the frienly local drug dealer. F 44 2 months
50 7X M
3/31/2010
 3  Migraine Prevention Since being on this medication I have been dizzy, my taste for food has totally changed and I find myself feeling nauseated after eating. I am always tired feeling. I have stomache pain constantly and so far I have not lost any weight. When I was first put on this medication, my doctor started me out on 25 mg once a day for two weeks and then bumped me up to 25 mg twice a day. Aside from all of the side effects, I have not experienced a major migraine since being on this medication which is a big plus. I am going to check with my Neurologist though to see why I am experiencing so much stomache problems, (constant burning in stomache)and see if I can be dropped back down to 25mg a day. F 42 2 months
50 Mg 1X day
5/11/2010
 3  Manic Depressive At first the nausea seemed unbearable. It has somewhat passed. Numbness and tingling in left arm and fingers. Tired and feeling of weakness. I am not eating really because I have no appetite so the weight loss part is an okay side effect. weird taste in mouth. I hope to keep Topamax as part of my cocktail as it has leveled my moods out better then any other drug I have been on thus far. I never get angry anymore. That is a good thing...very dulled down. As long as side effects don't get any worse, I am all for the drug. F 34 2 months
75 mg 1X day
9/12/2011
Email
 2  Migraine Kidney Stones Drank plenty of fluids M 48 2 months
100 2X day
4/15/2010
 2  migraines cluster headache bipolar weight loss, soda tasted flat, slowly lost my taste buds (took almost three months to get any sense of taste back), memory loss, felt like a zombie, severe fatigue, eye pressure. This drug was terrible for me. I missed school frequently and my grades went down. I looked skeletal, became more depressed (and I couldn't eat to feel better because I couldn't taste anything!) When I was reading up on the drug, I realized the eye pressure was a really serious side effect and I stopped taking it. I learned my doctor was a moron. She didn't titrate me up on the med. She put me on a high dose all at once and I know this made my side effects worse. Now that I have a good doctor I am considering trying topamax again. I can't live in this much pain all time. I have chronic migraines, cluster headaches, and bipolar II. It's just not worth it. If topamax can help at all, I will force myself to tolerate the side effects! F 19 2 months
100 mg 1X day
3/6/2010
 2  migraines fatigue, tingling in hands/feet, muscle cramps (went away with potassium supplement), word loss, confusion, nausea, anxiety, depressed appetite, weight loss, back and neck pain Made my migraine nausea better, but made my headaches worse. Increased from 5 days a week to every day, and more painful. Started having a constant aura. Been off this drug for 2 weeks, feeling somewhat better, but still having headaches every day. F 21 2 months
100 mg 1X day
10/21/2012
 2  migraines tingling in face, constant head pain I've only been taking Topamax for about 2 months, but i can already see it has done nothing for me. My neurologist has had to increase my dosage THREE TIMES because it has done nothing but made my migraines WORSE. Before my migraines were a 7, but now they have escalated to a 50! My face feels tingly all the time, and i have a constant headache, not migraine, but headache, that won't go away, no mattter what i take. Oh, and i've also seen no weight loss weight so ever. 22 2 months
7/23/2008
 2  Epilepsy tiredness, lack of concentration, moodiness, cardboard taste in mouth, tingling feeling in limbs. M 20 2 months
7/30/2005
 2  Migraine prevention Severe depression, including persistent suicidal thoughts It does help with appetite. I prefer taking Imitrex, even though I end up taking it frequently. The suicidal ideation is very scary. I was unbelievably depressed and crying all the time without apparent reason. F 48 2 months
6/13/2007

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