TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | migraine | memory loss, depression, ringing in my ears, lack of focus | I've been headache free but was just tested have have found that I have significant hearing loss in my right ear. The hum and ringing in my ears began about four months ago and seems to be getting worse and louder. I don't think I can live with this. I will be seeing an ENT specialist soon and see what he says, if there is no other reason for the hearing loss I may ask to reduce my Topamax or maybe try getting off of it and see what happens. Also, the memory and focus problems are becoming a problem at work... | F | 52 | 7 months | 7/1/2009 | 3 | Migraines | EXTREME weightloss, memory problems, tingling in face (especially upper lip), eye twitching | This drug treated my migraines for awhile, but it started to stop working and caused me to get anorexic... I completely lost all desire to eat, lost 20 pounds, and I felt sluggish all the time. | F | 19 | 7 months | 4/7/2008 | 3 | Bi-polar | Severe acne on face and body-- | Hair Loss | M | 27 | 7 months | 12/29/2007 | 3 | Migraine suppression | I experienced several of the listed side effects when I first started this medication, most of which seemed to pass. However, after about 4 months, I am experiencing severe itching on my scalp and neck. | I have now stopped taking Topamax after 7 months and it has been almost two weeks and the itchy scalp and neck continue. Does anyone know how long it will take for the itching to stop? It is unbearable. | F | 45 | 7 months 50 MG 2X day | 8/31/2015 | 3 | bi polar disorder | confusion, fuzzy head, fatigue, agitation | I have been taking 50mg at bedtime. I am cutting back to 25mg to see if that makes a difference. If not I will have to find a different medicine. I cannot go around confused all the time. It makes me very agitated and I take it out on my husband. It is supposed help my bi polar, but I don't think it is any good for it since it causes agatition. | F | 44 | 7 months | 11/8/2006 | 3 | Topiramate | At first the only side effect I experienced was tingling in my hands which resolved quickly. The medication was actually quite effective and my migraines decreased drastically. After being on the 150 mg dosage for about 6 months, I experienced a PANIC ATTACK. I CALLED 911 BECAUSE I GOT DIZZY AND COULD NOT BREATHE ALL OF A SUDDEN WITH SEVERE CHEST PAIN,about an hour after taking my meds one night. I had never had a panic attack before and had no history of anxiety. Wasn't even feeling nervous or upset that day... I knew something was not right. I knew the medication could cause anxiety and thought this might have been the cause of the attack. I asked my neurologist and she said no way, any problems would have been experienced within the first month. After the attacks continued every single night (an hour after taking my meds) for almost a month, I insisted I be tapered off of the medication. Within one day of being off of it the panic attacks stopped. Now I have to deal with the | I don't want to discourage anyone from taking this medication since it helped me so much with the pain. I just wish this side effect was more well known so my doctor could have identified it sooner and i wouldn't have been having multiple panic attacks every night for that whole month, losing sleep and being nervous I would wake up with one. Please be aware and if this side effect happens to you insist on getting off of the drug! | F | 26 | 7 months 150 1X day | 5/18/2010 | 2 | migaines | Lots of hair loss, mood swings, stomach problems, numbness & tingling, muscle pain, loss of energy, loss of appetite, couldn't sleep | I was very happy with topamax when i started taking it, weight loss (10 lbs) and it stopped my migraines. I was able to take motrin to stop any migraines i did start to get. But 6 months in i started lossing hair and major other problems. My doctor thought i had a gluten problem. A week into a completely gluten free diet i felt even worse. My hair loss has gotten really bad that now i have a handful after i wash and dry my hair. And i lost 3lbs in one week. My doctore just switched me to another migraine medicine so i will see how that goes. He said there are so many side effects they don't post for this medicine. | F | 28 | 7 months 25 2X day | 9/20/2010 | 2 | Severe Headaches. | Numbness in face, memory loss, loss in taste, infection in chest, nightmares, and loss in apatite. | (Note:I just recently quit taking the medicane due to the side effects becoming so strong) The only pro I personally found using TOPAMAX was the weight loss. I loss 10 pounds in the first four months, which was wonderful. However, my headaches barely subsided. My mother continued to tell me to let it take time upon me. My nightmares were so terrible that at school I had no sleep plus a huge part of my memory was GONE! I got a horrible infection in my chest because of this medicane. All around the cons outweight the pros. I would never recommend this medicane for someone under the age of 20. | F | 15 | 7 months 50MG 2X day | 9/9/2010 | 2 | Rebound headaches | Severe memory loss, weight loss, acne, hair loss, loss of vocabulary, tingling in hands and feet, moodiness, depression, lack of energy. | It took 3 mo's to become 'tolerable' to side effects. Four mo's into topamax, I tried an antidepressant to control my depression but the two combined side effects, I couldn't get out of bed I was so darned tired. 7 mo's later, I'm taking less aspirin, but still 1-3 tabs a day. I used to get 1 or 2 actual migrains a year, now I've gotten 5 in the past 4 months. My hair is so thin, my face broken out like a teenagers and 2 wks ago I took my wedding ring off and put it somewhere but don't remember where - I feel like crap so I'm done with this drug. Good luck to all of you. | F | 38 | 7 months | 4/21/2005 | 2 | migraines | My wife takes this. always exhausted. frequently irritable. decreased libido. Seemingly minimal benefit. | Seems as though I constantly annoy her. Has no energy. Our sex life is cold. I truly wonder if she still loves me. I don't know what is worse...living with it or divorcing. I pray the negative side effects do not continue. | F | 32 | 7 months | 9/17/2008 | 1 | Migraines seizure | Swelling of the ankles an calves, tenderness of the body, Bone ache, confusion, brain fog, insomnia, concentration, bruising, rotted teeth, eye change, shakes, forgetfulness an TMJ | Wasnt please with the drug. Did lot of damage in a short amount of time. been off it for 2 weeks swelling gone, aches almost gone. Lots of my problems have stopped. The main thing upset me most. ROTTED MY TEETH. i had healthy, white teeth. an now i have none! all teeth that are left have chips, cracks, back side missing, just bad teeth! NOT HAPPY | F | 37 | 7 months 200 2X day | 3/22/2015 | 1 | Migraines | Started off slow at 25mg to 50mg to 75mg for awhile. The MOMENT I was turned up to 100mg, severe UTI. One after the other. Every time I would try taking the topamax, another UTI. So I stopped. I no longer have signs of infection. I have developed chronic severe life ending pelvic and back pain. Had a cystoscopy done to check for IC which I don't really have. Topamax has ruined my life altogether. DO NOT TAKE IT. I would give anything to go back a year ago and have never taken that drug that ruined my existence. I now have permanent nerve damage and no quality of life. | PLEASE if anyone has had similar side effects do not hesitate to contact me. I can't be the only one to have a ruined life from this drug. It took a long time to get a doctor to admit and agree with me that it was the topamax that caused my problem. It was always within hours that the UTI would show up. I stopped the medication back in May of 2015. It is now May 2016 and I am worse than ever. | F | 34 | 7 months 100mg | 5/9/2016 | 1 | Migraines from dysautonomia | My 11-year-old daughter developed PARANOIA on Topamax. It was horrible to see her be afraid of her brother. She hid it from us for six months. We are together around the clock since she is unable to go to school. I saw her getting agitated, but did not see the paranoia until she had an emotional explosion one night. We got her off of it as quickly as possible. She was on 75mg. per day. She is thankfully recovering from the paranoia with the help of therapy. Her sweet disposition is returning, and she says her brother is nice again. | Please be EXTREMELY cautious if taking this drug. Side effects built subtly. She is a calm and good natured child. She was agitated, hypersensitive, aggressive and paranoid. I thought her illness was getting worse. It was the drug that was making her worse. She urinated constantly. Don't let this drug ruin relationships. Get off of it if you notice any changes in yourself. | F | 11 | 7 months | 1/6/2010 | 1 | pseudotumor cerebri, seizures | Blurred vision, stammering words, forgetful, fatigue, weight loss, no appetite, metallic taste with carbonated drinks, feeling of being "dumb" because of speech and memory problems, dizziness, overheating/getting hot easily, clumsy, off balance, muscle weakness, irregular menstrual, heart palpitations, increased/affected seizures | F | 30 | 7 months 250mg | 1/12/2015 | 1 | daily migraines | weight loss, memory loss, mood swings, agitation, insomnia, "moving" lights | I was put on topomax when i was a sophmore in high school and was on it only for a few months before my neurologist decided to try a different medication. during this time i lost my appetite and lost weight, and i already only weighed about 95 lbs. my memory loss was so bad that i couldnt remember the simplest things, making every day frustrating and making school nearly impossible to do well in. my mood swings and easily agitated personality caused my friendships to struggle, as they thought that i was using the medicine as an excuse to get out of things if i said that i couldnt/didnt remember about it. i had problems sleeping every night and often didnt get to sleep until 2-4am, had problems staying asleep, then had to get up at 6am to get ready for school all over again. i stopped opening my eyes at night due to the swirling lights that i saw whenever i looked at a window that had a light on inside, a stop light, a street light, a reflection of some sort of light on something... they lights felt like i was hallucinating and they caused dizziness. i am now a freshman in college and i'm still having memory problems, from what i believe is a long term side effect of the topamax. in addition to all of this, the topamax only slightly helped my migraines. | F | 18 | 7 months | 11/4/2009 | 1 | Daily Migeaines | confussion, sore throat, depression,dizzy, vision,dry mouth, cough | F | 59 | 7 months | 1/15/2008 | 1 | Simple Seizures due to a hetertopia | Tingling and slurred speech. I couldnt think of the last word of sentences for a month. My doctor told me to take more ( 400 mg a day) and the side effects would go away. Sounds dumb right? It was, i shouldnt have listened. | Worst drug ever. I now take carbamazepine which is generic Tegretol. Costs me 2$ a month, where as my topamax I think was around 50$. Depakote isnt bad but Carbamazepine is cheaper. | 24 | 7 months | 10/2/2007 | 1 | migraines due to herniated disc | tingling hands and feet....forget what i was saying or difficult trying to find the right words.....weight loss....MOST MAJOR WAS HAIR LOSS!!!!!!!! | I had to come of this medication because of extreme hair loss...many others I have talked with that are taking this drug are also experiencing hair loss.....many of us use the same hair stylist....I took it for 7 months 50 mg twice a day and after about 7 months my hair started coming out by the root....I saw a dermatolist and was told I have a condition triggered by medication or stress called telogen effluvium(or hair loss)...I am told that this condition means not complete hair loss but new growth is coming in pushing old hair out.....so I am getting new hair but you can see my scalp...also Im told my hair may come back thinner or curly or may be a different color all togethor.....so far I seem to have new hair that is same color but much finer......hard to tell since its only 1/2 inch long and I was told this may last 4 months......and there is nothing to stop this process. The hair loss is the worst side effect. I could deal with the tingling hands and feet and speech problems | F | 32 | 7 months | 7/5/2006 | 1 | migraine headaches | EXTREME HAIR LOSS! Words didn't come quickly to me during conversations - like I knew the word to say but I just couldn't recall it. Tingling/numbness in fingers. Carbonated drinks had a metallic taste. Depression and suicidal thoughts. | The hair loss is horrid and unfortunately it began within 2 months of starting Topamax. However I blamed the thinning and change in hair texture on my new stylist and the color she used (what a coincidence that I'd changed stylists when I started this drug). But when I noticed that my hair felt just like it did when it I started losing it when I had undergone chemotherapy, I realized it had to be the topamax. If I'd known that hair loss was a potential side effect, I would not be in the situation that I am now. I'm hoping the hair loss stops now that I've discontinued the drug. The memory loss and language problems were so bad that I didn't speak in front of a group without first "rehearsing" in my mind what I was going to say. I also realize now that I was depressed and even felt suicidal at times. This drug is dangerous and every patient should be counseled and cautioned before they are prescribed it. My advice would be USE IT ONLY AS A LAST RESORT!! | F | 50 | 7 months | 3/20/2007 | 1 | Chronic Headaches | Weight loss, change in taste, blurred vision, acne, difficulty finding the right words, depression | I was prescribed this medicine for chronic headaches. At first, it worked great! After a few weeks, though, I experienced weight loss, blurred vision, changes in taste, acne, and difficulty finding the right words. Those side effects weren't that bad......until I started to feel like I was withering away. I was literally grossed out by how I looked and felt. At my lowest, I weighed 92 pounds. (I'm only 5 feet tall, but I looked almost anorexic). I had horrible face and upper back acne. It made me really depressed after awhile. I had to quit taking it, because I was afraid I WOULD die if I kept taking it. Emotionally, I felt horrid. I never wanted to eat, because everything tasted disgusting! I couldn't drink anything with carbonation, because I would get a bizarre fizzy taste in my mouth. I would see flashes of light at odd times and I felt really out of it all the time. And the difficulty finding the words I wanted to use was ridiculous!! I would drive myself nuts because I couldn't even put a sentence together! I just felt stupid. Ultimately, it was a terrible medication for me and I've been off Topamax for awhile now. I still suffer from headaches, but at least I don't feel like I'm withering into nothing. I wouldn't recommend this medication. | F | 31 | 7 months 50 MG 1X day | 6/18/2012 |