TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  Addiction In descending of if how bad they are to me: irritability/agitation, depression, mild tingling of mouth/jaw, "can't find the right word", detached feeling, cloudy/fogginess. Up to 75mg now and slow titration seems to be key for me - especially in avoiding the grouchiness. Taking at night with a sleep aid helps avoid the physical side effects. I'm starting to feel that I have a "choice" with my addiction, which is great. The "pleasure" from my addiction seems to be diminishing which I attribute to the topamax, so I don't seem to be acting out as much or with the same intensity. I'll report more later as I go further along M 41 2 weeks
11/7/2007
 4  bulimia & depression Loss of appetite, a little tingling in my feet for a few minutes a day but subsides quickly & never painful, some hair loss, can't seem to find the right words to say at times. My advice is to taper up s-l-o-w-l-y. You cannot rush up on this med or you will feel the side effects in full effect. I made that mistake. As soon as I slowed things down a tad I have started to feel a little bit better. Helps with wanting to binge for my bulimia but not much with the purging for me. My Dr. says that once I am up to 150mg for a few weeks I should see if this is the right med with my Effexor 150mg. Has anyone or does anyone use Topamax for controlling for symptoms with bulimia, bingeing and purging? F 28 2 weeks
9/26/2007
 4  Migraine Headaches So far I have experienced the following: (but please keep in mind my age) Dizziness, light headed in the mornings. Looking at the computer and BAM! Sleepy time! Cramping at times. Noticeable when sitting still, basically not doing anything. Rash of some kind. I am still adding up some details. Please feel free to contact me about other side effects I might have or I am having. [email protected] M 41 2 weeks
25mg 2X day
2/21/2012
Email
 4  migraines tingling in hands and feet if arms or legs crossed for just a few minutes. Cannot drink carbonated beverages because the fizz is increased almost like there is too much fizz in the drink. Migraines haven't reduced yet, still at least 2 per week, but now are coming back to back days rather than two to three days apart. Has helped with depression and anxiety, have not noticed weight loss yet, but appetite is decreasing. F 34 2 weeks
25mg 2X day
8/16/2013
Email
 4  Frequent Migraines short term memory loss, trouble saying what I am thinking at times, loss of appetite, light headed I am highly allergic to Imetrix and the recent removal of an adrenal gland triggered migrains that would last up to four days. I can honestly say that I have found relief due to the Topamax. I do not know how safe it is to stay on this drug as a preventative therapy, but I honestly don't want to stop taking it. I can't take another migraine. I just pray it doesn't go the way of Vioxx. F 47 2 weeks
11/11/2005
 4  Bipolar Disorder Decreased appetite, tingling in fingers and toes occasionally Calmed my hypomania down right away, better than the risperdal that I took previously. F 26 2 weeks
75 mg 2X day
5/5/2010
 4  BiPolar, Lethargy, Weight gain Tingling in feet (primarily in big left toe; wakes me while I sleep, extremely annoying!), difficulty falling asleep, slight mental fogginess, difficulty focusing on distant points while driving (i.e. intersection 400 feet away). I am a recovering alcoholic/type II bi-polar with hypo manic episodes (haven't had an episode in 3 years). I've been taking Lamictal for 3 years and recently stopped taking Wellbutrin of 1 year due to recent severe paranoia, which stopped once I ceased the use of Wellbutrin. Weight gain and lethargy have plagued me for years on top of the treated bi-polar/depression which is why I have decided to try out topamax. So far it has helped with the desire to binge eat and has increased my energy. I have already lost 2 pounds and am monitoring my progress to see if the side effects outweigh the reasons I am taking the medication. F 24 2 weeks
4/12/2008
 4  Migraine Fatigue, weight loss, irritability, inability to concentrate or find words, over emotional at times I have been on the medicine for almost 2 weeks and already lost 8 lbs. week one I was taking 50mg and now 75mg. No appetite, then when I do eat, it's like I get full really fast. That's NOT normal for me at all! Easily irritated and crying over things that are not worth crying over...quite pitiful. No urge to end my life, not so much depressed but sometimes feel a little blue. Still too early to tell but so far I'm emotional and withering away... F 25 2 weeks
75mg
3/18/2016
 4  Borderline Personality Disorder Loss of all destructive impulsive desires (good), loss of suicidal thoughts (good), severe loss of appetite and weight (depends on how you look at it), pop tastes flat and poisonous (bad), worsens depression and weeping (bad), (maybe) heightens anxiety, makes finding talking, writing and remembering the right words difficult (and I'm a professional writer), drains away all sense of joy (very very bad). This works great as an off-label impulse control medication for personality disorders. It helps me stave off alcohol cravings and keeps me from acting out by cutting, over-spending, or engaging in any other kinds of reckless behavior when I'm trying to soothe anxiety. However, it also completely knocks out all feelings of joy altogether, which worsens depression. I'm looking for something to couple this with, or else I might have to ditch it altogether. F 28 2 weeks
100mg 1X day
11/17/2014
Email
 3  Concussion Headaches First night taking it was bad. Very, very, bad. Became randomly very suicidal all night until I fell asleep. Split personality the first night. Was out of it. Not good. The next night, and following nights have been fine. No more split person or bad thinking. Numbness and tingling often. Dry mouth, loss of appetite. This has not made me sleepy after the first night, which makes me sad because I have difficulty falling asleep now since taking it. But, I can think!!!! Before taking this I could not even think and now I can actually look up the medication I am taking!!!!! The only reason I am not satisfied is because of the first night and constant forgetfulness, difficulty with speech and most of the other side effects. Overall I am very glad for this drug and to write this review that no one cares about, lol. I just want to say to anyone looking up this drug or reading this, I fully encourage you to take it by all means- but make sure you have a person with you the first night. Not a F 17 2 weeks
40mg 1X day
10/16/2013
Email
 3  Bulimia/weight loss/mood stabilizer In contrast to most views of Topomax on here, I have had little to no side effects. I take 100 mgs twice a day. It makes me drowsy, but that effect is wearing off. From what I've read, the main reason I don't have side effects such as tingling sensations, numbness, hair loss, and mental difficulties is that I happen to take vitamin supplements already that Topamax seems to deplete or require more of in the body. These supplements are: Multivitamin, Vitamin-B Complex, Vitamin-D3, and Flax-seed Oil capsules (Omega-3's). For some reason some or all of these supplements prevent most of the unpleasant side effects associated with Topamax. I am pretty excited about Topamax, especially because it just went generic as topirimate so now it's really cheap. I am really, really hoping this drug will give me some relief from my binge eating disorder which makes my life kind of stressful. Losing a significant amount of weight would definitely be nice, but it would be even nicer if Topamax could ease the struggle about binging/purging in my MIND. I'm hoping this won't just be a band-aid, but will be a multifaceted component to my emotional recovery. M 27 2 weeks
12/1/2009
Email
 3  Classic migraines Tingling in feet, hands and this week my face. Memory loss. Fatigue. Feeling like I'm someone else for brief periods of time. I have been on this medication for 2 and a half weeks now. So far no migraines :) The side effects are weird, but so far worth it cause the pain is gone. I started at 25mg and now I'm at 50mg. I'll start 75mg on Friday.... F 25 2 weeks
4/22/2008
Email
 3  bipolar soda taste flat, no others that I am aware of have not had weight loss that I have noticed but i am taking seroquel as well. I take 25 mg of Topamax in the am and 25 mg in the pm. I don't know if it is working or not. I think I need a higher dosage. F 37 2 weeks
11/23/2008
 3  severe migraines/TTH since age 10 i have not really experienced any side effects yet, i dont think... i just seem to be a little more tired than usual i have only been takin this for two weeks and took only 25 mg at bedtime for 1 week now i take 25 mg at bedtime and also in the morning. i dont think i have experienced anything from this medication yet, good or bad... i am a big time diet coke and coffee drinker and they both still taste fine to me. i do have a little tingling in my nose every now and again that lasts for maybe a few seconds and goes away, and i have sent a few text messages that made no sense on any planet. but after having suffered from migraines and tension type headaches for the last 20 years and just constantly feeling like i would like to slam my head into a brick wall, i am going to stick with this for a couple months and see what happens. a couple of my girlfriends had taken this in the past for migraines and had great results as far as the migraines tapering... i did watch them suffer through some memory problems and too much weight loss for their already tiny frames, but we shall see what happens.... F 30 2 weeks
25 mg 2X day
6/11/2010
Email
 3  Migraines Numbess and Tingling in hangs, arms, legs, and feet. Memory loss/mild blackout, complete loss of appetite, weight loss, taste change in food, becoming very tired and never being able to sleep at night, and slight depression. The sad thing is, I have been taking topamax since high school and the dosage has gone from 25mg to 150mg over the years i have never really had any problems with the side effects until now. The Topamax does help control my migraines though, so hopefully these side effects arent a long term thing F 20 2 weeks
50MG 3X day
6/13/2010
 3  Dystonia; spasmodic torticollis I have been trying to slowly build up to 75 mg a day (1 25mg in the am and 2 in the pm) and can barely tolerate 1 25 mg in the am and 1 in the pm. At first it calmed and relaxed me, but the last few days, I have been having irritable mood swings and been starting to get a little depressed. I tried to take 2 the other night and actually felt like I was going to have a panic attack! It's so up and down with this drug. Kind of like good days and bad days. I have been weaning off of sinemet (100/125 3x day) to start this medication for dystonia. I am no longer on the sinemet, and today I could only tolerate taking a 1/2 of a topamax pill! Oh, and not to mention crazy dreams and waking up in the am drenched in sweat sometimes. Is this all normal? Will these effects go away??? These mental side effects and mood swings are actually kind of scaring me and the doctors office wants me to wait until Monday when I come in to see if I feel any better. I kinda feel at times like I am goin F 41 2 weeks
75 mg 2X day
11/16/2010
Email
 3  ODD My daughter has just begun taking this medication. She has a loss of appitite (she is not overweight by any means) but this side effect was one reason she WANTED to try this medication. Her mood swings are starting to fade, she has gone to bed early many nights (we give her medicine to her at night). In the 2 weeks she has been on it, she has woken up 3 times with a stomach ache. Out of the 3 times she has missed one day of school. Talked to the doctor, and are thinking since she is eating less, she might not be getting enough fiber, thus causing sonstipation and tummy aches. Continueing the medication, upping fiber, and if any more tummy aches come, then will take her off of it. She has tried 100 mg of Risperdal, no help with that medication. Currently on 25 mg of Topamax a night. If stomach aches do not come back will up her dose. Doctor wants her on atleast 100 mg a day (staggered) Will repost at later date with changes. F 13 2 weeks
3/20/2007
 3  Migrane Confusion, hard time focusing, slow time processing, dry mouth. I don't know about the appetite yet - I'm fasting with diverticulitus presently. That will make anyone lose weight. I sleep well, even with naps because I also take Amitriptyline, another migrane prevention drug. I highly recommend it! Started T'max at 25 MG, now 50 MG. Supposed to work up to 100 MG, but I think I'll go back to 25 MG where I had no problems and no migranes. I need to think. I don't like being a vegtable. M 48 2 weeks
7/1/2006
Email
 3  weight loss taking with wellbutrin. cannot spell, aggression seems to have increased which is odd because the WB evened me out. I get angry VERY easy. I will be typing and want to write Fixed but type "Phixed" and have to correct it. Very strange. It happens VERY often! I feel more hungry at times. No appetite loss really. No weight loss at all. Possibly more bloated. no tingling or word recall issues i heard people talk about. I don't feel dumb. I have had a few moments where I have slight memory issues, but nothing out of the norm, i think it's happened before. I started at 25 mg at night for 3 days, moved up to 25 morning/25 night, now am taking about 50mg morning/50 night - I will continue until at 200 mg but refuse to go any higher than that because of hairloss and other reasons. Every once in a while there are 5 minute periods where I feel depressed...and I have even had moments at night where I have pretty dark thoughts in bed but I shut them out very easily, just don't know how or why they come. Not very like me at all. I'm a happy person with two beautiful kids and a husband. I just hope to see some results. (FYI wellbutrin has helped me with 15lb weight loss) F 27 2 weeks
10/23/2008
 2  Migranes Tingling in my hands and feet which was almost painful it was so strong. My ability to think and problem solve was slowed, plus it did nothing for my headaches. F 27 2 weeks
5/25/2004

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