TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  Epilepsy Dizziness, tingle sensation, dehydration, weight loss. I took this drug two years ago for 4-5 months and lost nearly 80 pounds. The immense loss was NOT welcome. F 24 2 months
9/22/2007
 2  Occasional Complex Migraine Until I started taking Topamax I had been a relatively "normal" person except that I got several complex migraines per year (aura, scotoma, etc but no pain). Neurologist put me on Topamax with promises it was a wonder drug. Since then I've been "foggy", twitchy, anxious, sort of dulled personality. Some forgetfulness. Feelings of hopelessness but no thoughts of suicide or anything like that. No joy in anything. Somewhat forgetful now, but sometimes my head floods with memories that I didn't actively attempt to recall. Noticed muscle aches which may be from tension - wife noted that I was sitting very rigidly in chair. GP did blood tests the other day, creatinine levels elevated since I started taking this stuff. Hope Topamax hasn't trashed my kidneys. Shame because I was managing my migraines well with simple aspirin and magnesium supplements. M 58 2 months
50mg 2X day
12/14/2014
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 2  Migraines/Weight Loss Extreme tingling of feet - constant, like they've "fallen asleep" - also feel as if something is squeezing the top of my head; imsomnia - will sleep for 1-2 hrs then wide awake for hrs to the point that benedryl doesn't even help me sleep F 38 2 months
50 mg 1X day
12/13/2013
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 2  Mood stabilizer/bulimia/binging I experienced no side effects because this medicine did nothing for me. I have been taking 100 milligrams of Topamax twice a day for 2 months now, and absolutely nothing has happened. There have been no effects, either good or bad. This drug just doesn't do anything - it must be a sugar pill. I was hoping for weight loss even if it made me dumb and made soda taste bad, but it just did nothing. Oh well. M 27 2 months
12/29/2009
 2  Migraines/ Daily Headaches Anxiety attacks, nausea , still have headaches, sharp pins needles pains in feet & hands, burning in hands & feet, irritability, constant crying. I am quiting not worth all the side effects Took 100mg at night F 36 2 months
1/27/2009
 2  Migranes Mental fog, slow thought process, severly numb feet so numb it hurt. Numbness and tingling in hands for no reason. This medication was incredebly expensive, $200 for 30 50mg pills. F 22 2 months
5/25/2008
 1  Migraines Weight loss, Loss of Memory, Confusion, Insomnia for 4 days...put me in the hospital...was diagnosed bipolar because the insomnia caused Mania. I have never had a depressive episode. I believe the topamax caused mania. Since my manic episode I take seroquel for bipolar. I'm too afraid to stop taking it if I am actually really bipolar. Will never take topamax again! F 29 2 months
7/10/2008
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 1  Complex Partial Seizures Where do I begin! I was unable to leave my home for the 2 months I was on the drug. I was so confused and would forget what was saying in the middle of a sentence. I couldn't remember names or words. I got disoriented when I was driving. SOme of this could have been just needing to get the CPS's under control, but I am much clearer now that I am not taking Topomax anymore. My Neurologist prescribed it, but I couldn't get in to see him when I finally realized htat the drug was ruining my life so I went to my internist. Luckily, she had been on the drug for headaches, and when I told her about the side effects she said, "Topomax? I call that drug Dopomax!" She said that she couldn't work while she was on Topomax because she couldn't think and lost words. I felt so vindicated. When I discontinued the drug I was much better. F 56 2 months
7/4/2008
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 1  migraine prevention STUPIDITY... couldn't speak right, couldn't find the right words, couldn't remember anything. And, it didn't go away when I stopped taking it! I wouldn't take this drug again if someone paid me. I've been off of it for 3 years now and I never regained my cognitive losses. It was bad enough having frequent migraines. At least I used to be articulate and intelligent. Now I have frequent migraines and can hardly put a sentence together. F 44 2 months
8/24/2009
 1  Chronic daily migraine Extreme insomnia, lack of appetite despite intense hunger, some manic symptoms, increased sex drive. I could not wait to get off of this drug. It ruined my sleep, which was good before (while taking Depakote). I have been off it for two weeks but still need sleeping pills to sleep even 5 hours (even after switching to taking it during the day). I lost 5 lbs., but only weighed 100 to begin with. It only helped somewhat for headaches. I was up to 75 mg., went down to 50 but had same symptoms. My pharmacist said it has a five-day half-life, so give yourself time when you quit. It will still be in your system for a week or two. F 56 2 months
10/5/2009
 1  Migraine extreme fatigue, tingly hands and feet, felt sick all the time. When I weaned off, I had insomnia and heart palpitations Topamax did not help my migraines at all. I felt so sick and had no energy to take care of my kids. When I took Motrin around the same time as topamax I became very agitated, with insomnia and racing heart. F 37 2 months
50 mg 1X day
9/11/2015
 1  headache/weightloss Effects of being zombiefied. Forgetfullness, couldn't think, comprehend, didn't feel safe to drive, anxious, did not help headaches, had to take Tylenol to help, crawly skin, muscle aches, impotence, painful hands and feet in the hips ringing tingling and numbness in the limbs and lips blurred vision in a bad way, very thirsty, loss of appetite, then I started feeling like I was starting to have problems with my sugar dropping, so I bought me a glucose monitor and started monitoring my sugar with my appetite loss and my sugar would be 140 then later it might be 82. I started out with 25mg for 2 weeks titrated to 50mg for 2 weeks then to 100 MG 2x a day and I'm still taking it. I'm currently watching my diet, because I really don't think this pill has anything to do with it, but not eating like I was maybe contributing to the factor. This drug is serious and nothing to mess with. The side effects are serious. Talk to your Dr if your experiencing unusual feelings after starting this drug. It can be wicked for some people. I been taking it since June 26,2015 and I have lost 12 pounds so far. Although light have been sensitive to my eyes and sound has been sensitive to my ears I have still managed to get my zombie itchy crawly butt off the couch and work out in the hey field. Be safe everyone. God bless all you with your pain.. F 46 2 months
100mg
8/18/2015
 1  Migraines Constantly clearing my throat due to phlegm, cough and anxiety attacks. Worked like a charm on my migraines, but it's not worth the side effects. Went to the doctor for the constant throat clearing and was given an antibiotic even though I had no other symptoms other than a cough. Went back when the antibiotics were gone and no relief. Doctor thought may be acid reflux and gave me a prescription for that. During the appointment I was asked if I had been on any new medications. I mentioned Topamax. She said that wouldn't do it. That evening, looked up the detailed list of side effects on WebMD and saw "condition in which stomach acid is pushed into the esophagus". Looked at the date I had the prescription filled then at the calendar and it was exactly how long I told the doctor I had been having the problem. Went back the next day and told my doctor to take me off of it. I also saw "anxiety" which I thought was being caused by the CONSTANT feeling of having to clear phlegm out of my throat that wouldn't move. Now I'm worried about the terrible withdrawal stories I read on another site. F 51 2 months
25 MG/ 1da
4/18/2015
 1  seizures Foggy brain, memory loss, excessive thirst, deep depression, aggression Horrible drug. Should be taken off the market. F 53 2 months
50 2X day
6/13/2015
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 1  Headaches My doctor prescribed me this for headaches. Did not work! I was constantly tired, had tingling everywhere, and lost 10 pounds because I had no appetite. Of course everyone is different. So if this works for you, great! F 21 2 months
100mg
5/20/2016
 1  weight loss bipolar Lots but most importantly the dimpling on my skin basically gave me cottage cheese legs and stomach never ever take this medicine my body is ruined F 29 2 months
100mg 2x d
7/13/2016
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 1  Migraine I was taking 100 mg for migraine for at least 8 months, no problems, but also no relief, no weight loss, also getting Botox injections.nothing really seems to work lately...doc added 50mg about 2 1/2 weeks ago, didn't put this together until I found this site, but I have been very nauseous a lot, useless, always lying down, itchy, thinking I have bugs in My house. Just missed 3 days of work, since adding the 50mg I haven't felt the same...stopping tonight F 54 2 months
150mg
10/10/2015
 1  Migraine Initially:tingling in hands and feet, nausea, insomnia, difficulty finding words, spelling and completing basic math computation, loss of appetite, change of taste and smells. Tingling and nausea eventually subsided. After approx 8 weeks: Hair loss. Though this drug was difficult to adjust to, I stuck it out. The nausea was extreme in the beginning, but did eventually subside after a few weeks. I woke up at 4:30 every morning and could not get back to sleep. It did stop my daily migraines that I was suffering from. After about a month, I felt great, despite the mental cloudiness that was difficult to manage. For example, I struggled to remember driving routes I had traveled for years. I decided it was a trade-off I was willing to make. Unfortunately, one day I noticed my hair texture had changed. My normally thick, shiny, manageable hair became dry and brittle. Then the shedding started, approximately 2 months after I began taking the medicine. I tried to stick it out, but I lost close to 50% of my hair in the 2 weeks that followed. I discontinued. I have now been off the drug for a month, and my hair is still shedding and there has been little improvement in texture. I am hopeful that my hair will grow back, but this has been very stressful. My headache specialist has prescribed Zonegran as an alternative, but I am weary of anything now, especially because a month off of the medication has resulted in little improvement on the hair loss front. F 39 2 months
50 mg qd
12/15/2015
 1  Weight Loss Weight Loss, painful tingling in hands, feet, & lips, loss of appetite, no taste in carbonation, lack of words, forgetfulness, charliehorses in the middle of the night, constant menstrul cycles, inability to partipate in school due to loss of thoughts and ideas. Definitely helped suppress my appetite to lose weight because I was on 30 mgs of Remeron for sleep and gained 60 pounds. But I was not pleased with the side effects but would have loved to stay on it if this did not occur. Just got off yesterday and now am taking Abilify. I was also taking Visterol with this 3 times a day. F 16 2 months
50 MGs
5/18/2017
Email
 1  Headaches/Migraines HORRIBLE side effects. No interest in food, quick weight loss, hip and back pain, hair loss. I developed a limp and couldn't keep up with my 60 year old boss! I also was forgetting simple tasks and facts. Oh, and the headaches didn't decrease AT ALL. I've been reading more about this medication, and there are new side effects they are finding. I'm angry that I was placed on this medication because of the long term effects it could have had. F 26 2 months
4/10/2007

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