TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Near daily headaches I just started this med one week ago. Doc prescribed for the headaches, I began taking one 10 mg pill at night last Friday, woke up Saturday without a headache, haven't had a headache since. I used to wake up with them and go to bed with them. The side effects are Pepsi tastes horrible, my hands/fingers are tingly/numb and I feel a little foggy, like I cannot find the words to say what I need to say... I am supposed to start taking two pills at bedtime, starting tonight... we'll see, but so far, I am very pleased with this med... :) F 41 1 weeks
10-20 1X day
1/15/2011
 5  Uncontrolled migraines I have increased my taper from 25 to 50 and noticed sleepiness the first day, but not the second. Some indigestion, but not intolerable. My goal is 50 mg BID, so I am hopeful it continues to go smoothly. The huge thing NO HEADACHES. This is the first time in YEARS I have gone without severe headaches. It is life changing. F 39 1 weeks
50 mg
5/1/2016
 5  Bipolar II tingling in nose and lips, loss of appitite, weight loss, diarreah, stomach cramps, shortened menstrual period, trouble spelling i've only been on topamax a little over a week, but have noticed that i am no longer a "human garbage disposal," and only eat when i am truely hungry. i've lost nearly five pounds already. my mood swings are fairly stable, with a tendency towards light mania if they swing at all. the diarreah is annoying, and i now fear passing gas in public in case of an accident. the stomach cramps are lighter than asscociatiated with normal diarreah. i have had only one period so far on the topamax, but it was very light and lasted only 3 days. usually it is heavy and lasts 7. it was also five days late, causeing a lot of concern and two negitive pregnancy tests before showing up. [by the way, topamax does cause the pill to be less effective, consider other or additional forms of birth control.] the tingling was quite annoying at first, but i hardly notice it any more. my spelling was poor to begin with, but now it is terrible. F 24 1 weeks
1/20/2010
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 5  Severe Migraine Aura (No Pain) I've had some increased anxiety and slight tingling in my head. Not many problems at all. I had daily migraine auras (silent migraines) for about 10 years. They got so severe they were debilitating. After 3 days on Topamax the migraines went away. With Topamax, I could feel the pre-aura come but would end abruptly and the aura would never develop. This is the first and only drug that ever worked on my auras. My aura blindness went away, I'm losing a little weight, no more attacks and I have some increased energy. With my increased energy comes a little anxiety though. So far I'm happy. M 44 1 weeks
1/28/2008
 4  Migraine None at 12.5 I've only been on this for a week and a very low dosage. Will increase by a half pill every week until I get up to 50 mg's per day. It's too soon to tell if it's going to help with my 10 migraines plus per month and head/nerve pain but I will repost later. I did want to let people know who have that prescription sitting in front of the and are afraid to take it that I did not feel a thing after finally taking it after so much fear. Granted it's low, but from what my neurologist says, this is the best way to avoid side effects - by starting at 12.5 week one, then going to 25 mgs week 2, then 1 and a half pills week 3, then by week 4 up to 50 mgs. F 43 1 weeks
4/8/2008
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 4  cyclothymia i was taking it along with paxil to treat my anxiety and hypomania,topamax helped me but after a week there is too much drowsiness,dizzines and sleepy M 19 1 weeks
25mg half
4/11/2012
Email
 3  migraines Numbness/tingling that starts in my left pinky and ring finger and then moves to my middle finger, then to right hand then to left foot. Have been numb in all 3 at once. Temporary loss of train of thought, sleepiness and suppressed appetite. M 33 1 weeks
25mg 2x/d
2/27/2012
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 3  Severe Tension Headaches I didn't have severe side effects like some people said they did, and that could be because I was on a low dosage. At first I experienced being a little light headed, dizzy, tired, and REALLY REALLY thirsty. Soda, slurpees, energy drinks, and even beer tasted really strange. They tasted flat and SPICY, like they were burning my tongue. After a 2 days I started experiencing really bad joint pain in my knees, elbows, hips, and shoulders. Then I started having trouble concentrating and was unable to read a sentence without having to look it over a few more times to understand. I had a little loss of memory. All these side effects were not severe. I mostly stopped taking Topamax because of the really bad joint pain (my knees were really sore & I couldn't even crouch down or ride a bike). I also became concerned with the lack of concentration because I'm a full time college student that works, I didn't want to be a zombie. I feel really bummed that I didn't give Topamax a chance to take effect. It could have possibly prevented my headaches, but the joint pain & lack of concentration was stressing me out. I might give it a chance again some day. I've started taking fish oil & vitamin b12, plus I do some neck exercises when I get my tension headaches now. F 23 1 weeks
25 MG 2X day
8/31/2011
Email
 3  Bipolar II So far I don't really mind it. I was so scared to start it. I have increased sex drive, increased appitite, can't sleep much, and am a little anxious. It helps me sit still. I forget words and spell things wrong sometimes. I kind of feel stoned or something. I also feel nauseous. I am still sort of scared of this medication. I don't really want to lose any weight. And I don't want it to make me an air head either. 1 weeks
10/19/2008
 3  migraine/bipolar (rapid) Well, I think my dr is a moron. he started me on 400mg split 200 twice a day. no ramp up at all. within 30 min both my arms and legs were pins and needles and for the first 2 days i basically felt like i was in a constant state of drunkenness. he's the professional, right? the biggest problem i had was i was experiencing extreme muscular fatigue. climbing 2 flights of stairs killed me. looked it up and realized it was metabolic acidosis (low blood pH) very dangerous. called and he lowered it to 200 a day. now i get the tingles and the only other side effect which is KILLING me is when i go outside into the heat i get the worst itching all over. feels like poison ivy or something. hope that goes away soon. oh yeah, beer and soda taste awful now. only been on a week, but haven't had a migraine since. can't really say if it helps with the bipolar yet either. M 35 1 weeks
7/18/2007
Email
 3  dizziness & migraines loss of appetite, fogginess (space-i-ness) after taking until falling asleep, I notice I consume more water (but don't necessarily feel extremely thirsty) & taste of carbonation is almost completely gone & some foods taste different, acne, loose bowel & increase frequency (but think associated with large consumption of sugar (like cupcake). I'm only taking 25mg once a day for two wks then increasing to 50mg.- I drink carbonated drinks (not your typical soda) to settle my stomach but everything taste flat, also got gourmet cupcake & I almost vomit from the taste of it. Wondering if people losing weight from not having interest in eating/drinking those things again??? I don't regularly eat them but still hoping for the weight lost selling point *cough*cough* side effect.. I am almost positive that the increased frequency & loose stool is associated with high carb or high sugar intake on this medicine (again does this factor into weight loss). Ive gained 20lbs over the last 6 mos being house bond with health complications & immobility. F 37 1 weeks
25mg 1X day
10/26/2015
Email
 2  Severe Status Migraines Feelings of "craziness", anxiety, paranoia, loss of appetite, sleeplessness, constipation, confusion, blurred vision, crying spells, fits of anger I was taking this drug 25 mg morning and night. I did not have any migraines during the week of use, but I felt so horrible by this morning that I actually felt that I'd be better off dead than on Topamax. F 25 1 weeks
7/15/2008
 2  Bipolar II Confusion, felt spaced out, anxious, disoriented Only took it for a week; side effects were too severe F 37 1 weeks
4/20/2004
 1  Depression and OCD Appetite wiped out, rarely left my bed, horrible attitude, irritable, the littlest things set me off, isolation I was also taking wellbutbrin. TOPAMAX is the worst medicine ever. F 16 1 weeks
1X day
12/5/2010
 1  tremors depression, attempted suicide, and very aggressive to the point of hurting my wife, confusion I was only on topamax for 1 week but the doctor had me increasing from 25mg a day to100mg a day in 1 week. I ended up in the hospital for 4 days and the doctors there associated my visit to topamax. My son in law had a similar reaction and had he not been there to see that I was taking topamax then I would have never known that this CRAZY medicine was the reason for my actions. After coming off the meds immediately I feel better, like my normal self. I do not recomend this med for anyone. M 72 1 weeks
6/17/2006
 1  migraines vision loss, sleeplessness, metallic taste in mouth, made sodas taste very strange, edgy After 1 week on lowest dose of 25mg per day my vision went from 20/20 to 20/200. It was probably worse on the second day I lost my vision as everything was blurred. I could not even read an eye chart in the ER and was given a shot of morphine and a CT scan. After 4 more days vision is returning but will follow up with eye doctor to ensure no perm damage. F 36 1 weeks
6/25/2008
Email
 1  epilepsy Very bad stamic pain F 17 1 weeks
50
11/8/2015
 1  Bipolar I episode Suicidal thoughts, dizziness, precipitatesd drop in mood, uncontrollable blues and feeling that my entire being had been torn away and stored into a freezer. I had racing thoughts about all sorts of things to end it. I wasn't depressed, just EMPTY. Like in your deepest hole. It's a drug too new and I don't like being a guinea pig for a drug that my doctor can't really tell me the side effects except a bunch of MAYBES. After that, I'm never trying a super new new new new drug. Without counting the other possible side effects I read about it. The worst thing ever. F 25 1 weeks
11/24/2009
 1  Migraines INCREASED MIGRAINES, constant migraine, dizziness, nausea, blurred vision, speech problems, memory problems, mood swings, weight loss, loss of appetite, twitchy limbs, ringing in ears. I have lost 10 pounds in the last week, but I have had a severe migraine since the morning after I started taking it. Seriously, straight through for 7 days, even right now. My eyes were blurry and while I was at work yesterday I just forgot how to talk. I was shaky, nauseous, almost incoherent and felt like passing out. I ended up in the ER not to much later, my neurologist told the ER to tell me to stop taking it. Before this episode yesterday I noticed I was always on edge and moody. I couldn't concentrate, it could be due to the constant migraine or this medication. Either way, as great as the weight loss is, I can not continue to take this medication. F 24 1 weeks
11/29/2009
 5  Weight loss Very dry mouth which is making me drink lots of water, sodas taste very flat with a melted butter taste and burn my mouth, burgers taste very bad, anything with sugar taste horrible not enjoyable. Overall horrible taste to stuff once enjoyed but for a good reason to loose the weight! One week in 11 pounds gone F 32 0 weeks
2X day
4/17/2021
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