TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Eating Disorder Weight loss. Increased appetite. COMPLETELY GOT RID OF THOUGHTS OF PURGING AND MAKING MYSELF THROWUP. Wonderful drug. If you have an eating disorder (bulimia) or purging this is a cure. It gets rid of the thoughts of making yourself throw up. F 18 3 months
50mg 1X day
12/11/2010
 5  Mood Stability/Weight Loss Can't taste carbonation occasional tingling in hands/feet After gaining 40# on Cymbalta, My doctor decided to try Topamax for both mood stability & weight loss. I was scared to death after reading some of the horror stories on here. I have been on it for 3 months, & it has really given my life back to me. I have lost 20# in 3 months- without even "trying" too much except adjusting portions. My mood has improved a great deal, I focus better, and just FEEL better. I am so glad I started taking this medicine. F 26 3 months
50 MG 2X day
9/17/2011
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 5  migraine prevention Hair loss Hair Loss is the down for me, 25 mg at night, I can now think (no headache. I can deal with the not sleeping and weight loss. My doctor added Pamlor and that helps with the sleeping (up to 6 hours a night) and now trying to weed out what is causing the hair loss. Both have the side effect of hair loss but it started first with the Topamax and broke off down to the scalp. Help!!! F 42 3 months
1/27/2006
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 5  Bipolar Been on Topamax since Septemeber 2004 which is 3 months,, I am now up to 200 mg per day,, I feel great,, No symptons except some tingling ,,this is rare ,, other than that I feel great, some weight loss,, 10 lbs in the first 2 months and still losing I eat well no junk food ,, I can still drink pop,, but I drink alot of water as one should with this drug for kidney stones ,,, I think this is the best drug yet ,, since I have been diagnosed Bipolar in 1990,, I have been on Lithuim, Etc,, you can e-mal me at [email protected] F 46 3 months
1/17/2006
 5  Migraines "Stupemax" -- significant problems with concentration and memory, lasted about 6 weeks and then went away; tingling/prickly pain in feet occurs sporadically, lasts a few minutes; can't drink soda anymore, it tastes flat. I was started on 50 mg, then increased to 100 mg. I used to have about 2-3 migraines a month. I had one before increasing to 100 mg and one since. The most surprising part for me has been that, not only has it stopped my migraines, I now also rarely get the tension headaches I have gotten almost daily since the age of 9. This medication has completely changed the quality of my life. I was very hesitant to try it, for a long time, because of the side effects I'd read about, but it's been an amazing treatment for me. I wish I would have tried it years ago. F 35 3 months
2/4/2007
 5  migraine prevention Hair Loss is the down for me, 25 mg at night, I can now think (no headache. I can deal with the not sleeping and weight loss. My doctor added Pamlor and that helps with the sleeping (up to 6 hours a night) and now trying to weed out what is causing the hair loss. Both have the side effect of hair loss but it started first with the Topamax and broke off down to the scalp. Help!!! F 42 3 months
1/27/2006
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 5  severe migraine weight loss, carbonation taste flat, tip of nose feels cold, burning in heels, tingling in pinky fingers, dry eyes, fatigue, temporary memory loss, and appetite loss I used to get migraines for an entire week around my menstrual cycle, and my life would have to be put on hold. The migraines were so debilitating that I would just put my head down at work and school, and then go to bed the minute I got home for an entire week. I finally went on topamax, and my entire life has changed. Not only do I not get migraines, but I don't even get minor headaches anymore. I have been HEADACHE FREE since I have been on this medication. The side effects were very obscure at first, such as the inability to recall simple words or names, the extreme fatigue, and the fact that soda looses its carbonation. The side effects have decreased significatly the longer I have been on Topamax and are almost back to normal. This medication has given me back my life, and I don't know why it took me so long to find it. F 20 3 months
1/30/2006
 5  Bipolar Disorder- Rapid Cycling The tingling everyone talks about, but it went away. Food and pop taste different, loss of appetite, lost about 20 pounds in first month, some cognitive problems... Compared to everything else I have taken (risperdal and olanzapine for years upon years, lithium, depakote, and probably some others), Topamax has been amazing. So far. By that I mean I have never had such an immeadiate and positive response to a medication, with such minimal side effects. At first the tingling was kind of intense, and it really did make me stupid, but those things slowly faded away. That, or I'm just not noticing that I'm dumber than a box of rocks, haha. No seriously, every once and awhile I feel like I get stuck in a rut and I can't find the word I'm looking for, but compared to when I was zonked out on risperdal and olanzapine, this is a cake walk. Weight loss... meh... I swim alot, and the topamax dropped weight I probably didn't need to lose that much. I actually have to remind myself to eat. I'm at 300mg a day right now, 100mg three times a day. Not quite to where my moods need to be, so eventually I might go to 400mg. M 21 3 months
2/9/2006
 5  Back/Buttock Pain First month had "brain fog". Slow to react, would say wrong words, not attentive, walk out of store without of my changeetc. This went away after my system got used to the meds though. Get some tingling in my toes and face once in awhile, does not bother me though. Have lost 15 pounds in 2 months! This is without much exercise (wish I had time). Has really decrease my appetite like Dr said it would. Can't drink sodas anymore - don't miss them anymore though. I take it at bed time for my back pain and it helps a lot (also get steroid injection). Really helps me sleep better too. I have fibromyalgia so haven't got a good sleep in 7 years. F 38 3 months
9/26/2006
 4  bulimia dizzy,tingling in fingers and toes (only for the first few days when increasing the dose), decreased appetite, head feels very stuffy w/pressure around my eyes, slower thought process,some anxiety and nervousness w/palpatations(which I never had before starting topamax) I started at 25mg, up to 100mg/day. Significant decrease in binging/purging. (mostly because of the decrease in appetite)I have lost 8 lbs. The only side effect that has been bothersome to me is the anxiety & palpatations which I have never had. Most of the side effects occur when you increase the dose, then they go away. Just that "stuffy head" and pressure around my eyes is always there. I am a nurse and I've noticed especially at work, my thought process is slower. I almost always have a delayed reaction to everything. Overall topamax has been the only medicine to help my bulimia. F 24 3 months
3/27/2006
 4  Migraines "Pins & Needles" (hands & feet), fatigue, loss of memory/concentration somewhat, minor loss of appetite at first but not at all what some of the reviews state such as anorexic. It helped alot F 24 3 months
3/9/2007
 4  Weight loss It's really not that bad for me right now. I have an aversion to carbonated beverages, some tingling and cramps not bad though. The worst is bad breath and dry mouth/ sore throat which I can deal with. I've lost 40 pounds in 3 months!!! F 33 3 months
50mg
10/27/2012
 4  Bipolar Disorder Minor sleepyness, weight loss, minor confusion, memory loss. I am satisfied with this drug for the fact I wanted to be on it to help lose my weight I gained from another drugs bad side effect. The confusion is distracting but it does go away. Just have to make sure that the dose is increased slowly. Sleepyness is not a problem for me since i take it at night to help me sleep. F 25 3 months
50 1X day
10/12/2011
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 4  bulimia-bingeing 2 months of horrible taste in carbonated drinks, sitting still i felt as if i was tilting sideways sometimes, first few weeks some drowsiness, fatigued easily esp. at end of day. made me feel very full after eating a small amt, esp. after doseage being doubled, which was the goal, to stop the binges. However, as far as purging, actually made me want to more after eating even small amount b/c of the over-full feeling, but am better able to resist b/c that part of the brain is better regulated now due to the drug, and, b/c i am receiving counseling along with the drug. Am still not 100% but bulimia is a mental disorder and a drug cannot cure it alone, so this is pretty much as good as it gets, as far as the Topamax gets. I do hate taking 4 pills a day tho. Why not make an inbetween doseage instead of going from 2 pills a day to 4? Why not 2 low dose to 2 higher dose?? The price is twice as high now due to buying twice as many pills! F 27 3 months
8/12/2004
 4  Bipolor NOS (manic), bulimia Weight loss b/c of suppressed appetite and almost no carb cravings, stopped eating disorder almost cold in it's tracks. Occassional tingle in toes. No cognitive side effects at all. A little more hyper during first month. Leveled out during second. Excercise regularly now, much healthier, etc. I LOVE it. I've been on everything and this is the only thing that has ever made me feel like a normal person that can function normally at home and especially in social situations. I also take Klonopin to mantain panic attack control. F 26 3 months
2/28/2005
 4  Migraines Occasional tingling in my feet in the morning. Was VERY lethargic when I first started taking it, but have gotten used to it - still need to sleep a bit more than before, but functioning nearly normally now. Sodas and sweets tast funny, kind of metallic. I lose the desire to eat VERY fast, have lost a little weight, about 5 lbs. Haven't had problem with hair loss, but do have dry eyes, and need to wear reading glasses now that I didn't need at my eye exam one month before starting the drug. Uncertain if sexual side effects noted by another person posting to this forum (that I've also noticed) are really from this medication or from the hormones my doctor is also trying since my migraines always followed my PMS and menstrual cycle, and I seem to remember complaining about those effects on the hormones, before starting the Topamax. For about 2 years I was having 2 bouts of recurrent migraines that lasted between 3 and 7 days each, more recently they had started lasting 7 to 12 days each episode. Zomig, Relpax, Imitrex, etc. didn't touch them. Since reaching 75 mg of Topamax in last 2 months have only had 4 total episodes of migraines lasting 1-2 days each, Imitrex or Zomig helped with 3 of those episodes, but not with one of them. The doctor plans to keep me at this dose another month, then may raise it a bit. F 43 3 months
2/1/2005
 4  Migranes I have had tingling in my feet and hands. Mainly my feet. My feet tingle so bad sometimes that they actually feel like they are burning. When I first heard about Topamax, I was very hesitant to try it because I had heard of so many bad side effects. I actually postponed starting it by 2 months because I was so afraid! I wish I hadn't! My migranes got so bad it finally landed me in the ER and I thought I was dying. It was the absolute worst headache of my life. They ran a bunch of tests on me, everything came out fine, it was just a migrane. I finally decided to try the Topamax. My doctor started me at 25 mg for 1 week and went up 25mg every week untill I hit 100 mg. I was still having headaches almost on a daily basis until I hit 100 mg. Now I'm still taking it and it has been a little over a month on 100 mg and so far this month I have only had 3 days with a headache and I took an over the counter medication and it went away within an hour. For that, I will live with the tingling in my feet and hands any day of the week!! I have not experienced any of the other side effects that other people write about which I am very thankful for. I hope this medication continues to work for me. F 31 3 months
3/17/2003
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 4  Migraines Started in the beginning taking the lowest dose. Then gradually went up in the dose, but felt so strange. Didn't feel like myself. Went back down to original dose. Have headaches under control. Side effects are sore scalp, burning pain in shoulders, upper back and sometimes pain in my chest. Bitter taste when I drink soda. Have lost maybe 13 pounds since starting it. So glad the headaches are gone, wish the side effects would go away also. F 52 3 months
2/14/2005
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 4  Migrains tingling in feet and hands, food tasted blah at first, tired, extremely thirsty for water.. I'm able to cope with side effects/50 mgs a day I suffered from horrible headaches 3-5 times a week. I now go weeks without a migrain. I still feel the tingling in my hands and feet. I'm a big diet coke drinker, and it just wasn't enjoyable when I first started taking Topamax. It was almost like the tip of my tongue had no taste buds. Now, it doesn't bother me anymore. I still drink 3 Diet Cokes a day, but drink tons of water. I get exptremely thirsty. The worst side effect is the drowsiness that I experience. I get really tired when driving, unlike before Topamax. I've lost a few pounds (7), but I also exercise and watch what I eat. It has helped me a great deal. F 32 3 months
11/10/2007
 4  Migraines Tingling in hands and face. Feel "loopy" sometimes. Weight loss of 10 lbs. so far. Have not had a full-blown migraine since starting this medication. I can stand the side effects without having to worry about the next migraine. F 38 3 months
1/7/2008

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