TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  bi-polar & weight loss Carbonated drinks taste flat; some foggy-headedness, but I'm 4 months post-partum & attribute that to new-mommy brain. The doctor warned me about drowsiness but that hasn't been a problem. I purposefully didn't read about other side effects before taking the drug and honestly don't think I've experienced anything else. Unfortunately, this so far includes the weight loss. I started at 25mg 1x/day for a week and have been taking 50mg 2x/wk for the past 3 weeks. I also take 200mg of Lamictal, a drug which can interfere with weight loss. My doc prescribed Tmax when diet & exercise did nothing to budge the baby weight. I will re-rate the drug if a dosage increase has better (or worse) results. F 33 24 days
3/7/2008
 1  rsd loss of words, short term memory loss,bone pain,headaches,mood swings 24 days of hell,and to top this off,after this short time, My doctor said I had to be WEANED off this drug, I could not believe it. Next time I will read everything I can and ask every question before even taken one pill. F 48 24 days
50mg 2X day
2/24/2010
 5  Epilepsy Soda tastes funny, kan't spell This is a wonder drug for me. After trying almost every other drug out there and feeling half dead from the side effects I feel alive. Tons of energy. No seizures. The side effects are minimal compared to past AEDs. Oh, and the tingly hands stops if you take it with oj. :-) I thank the Lord for this drug. It's like a door has opened and I have my life back. F 40 23 days
1/30/2007
 4  Migraines Tingling hands, feet, cheeks. Feels like they are almost asleep. Light-headed, Dizzy - especially upon increased dosage. Feel like you are out of sorts. Have had headaches a few times a year (for the past fifteen years) that were always diagnosed as sinus. Recently was told that my headaches all along were probably migraines according to their description - all new to me. A neurologist tried a week of Frova, Reglan and steroids to try and rid me of a headache that wouldn't go away for what was then a couple of weeks. I felt better while on the meds, but as soon as I stopped the medications the headache started coming back. She then put me on Topamax. I followed a package instruction to take 25 mg for a week at night, then 25 mg AM and 25 mg PM, then a week of 25 mg AM and 50 PM, then 50 AM and 50 PM to get to my full 100 mg dosage. I have been taking the 100 mg for a few days and feel dizzy and light-headed. I no longer feel like someone has a (hate to be so graphic) knife in my temple, but I also hope I am not expected to function with this strange dizzy head. I still get headaches. I take Frova or Relpax when I start to feel the pains in my temples. I don't wait until they get out of hand. Have never had to be on a daily medication other than for allergy. The doctor seems to think I'll be on Topamax for quite some time - she mentioned 'a few years.' Hope this helps someone else with a similar situation. Things could be worse. F 41 23 days
2/19/2005
Email
 1  Migraines Aches & pains throughout body, vivid dreams, continual fatigue(nodding off driving!), body spasms-SEVERE pain in my buttocks and lower back(felt like back labor 24 hours a day), loss of concentration, depressed, low feeling, agitation,irritatation, skin sensitivity, sore breasts, flu like symptoms, decreased memory. The pain I have experienced dealing with this drug is not worth it for me. There are other alternatives out there. I was on a low dosage (50mg) and was told to go up to 200mg. I can't even begin to imagine. F 47 23 days
7/13/2005
Email
 1  nerve pain I've been taking it only for 3 weeks. I'm just now on 75 mg. I've become very nervous and shaky. I feel horrible. I feel pressure in my eyes. I can't stop shaking. With eveything that I've been reading, no one mentions the shaking. I'm stopping the medication. I don't think I can function like this. F 57 23 days
9/18/2005
Email
 1  Lose weight At first it was fine and I had no appetite which was great for losing weight. However , terrible insomnia at night and restless mind so no sleep. One day I cried all day. Made me angry also and was yelling at my kids and husband a lot. After 2.5 weeks I started feeling a bit manic and no sleep and crazy thoughts. After 3 weeks I stopped it because it was a low dose. Having some withdrawal symptoms like body aches and fatigue but feeling back to my happy self and sleeping much better off of it. Worked only for weight loss. F 54 23 days
25 mg
6/3/2020
 3  CUTTING and PTSD I have just started taking this medicating maybe a month ago (50mg 1wk and now 100mg) and my face (nose, lips, cheeks) is constantly numb, my eyes are blurry, tired, metallic taste in my mouth all the time. I can't seem to quinch my thirst at all! I think my memory is getting pretty whacked too or I am just over stressed, not sure If anyone has any suggestions let me know like on something that will help with my thirst or if you have had a lot of face numbness... I have read a lot of the memory loss and funny tastes but not the numbness, if its normal or not you can at [email protected] thanks F 36 22 days
9/16/2008
Email
 2  back problems can't stay asleep at night and i also take ambien because i already have trouble sleeping. So sluggish and tired during the day i cannot do anything. can't take a nap because my mind won't shut off. coughing during the night. tingling in right heels and fingers. very bad mood, very nervous on top of my already panic disorder and more depressed than normal. Only lost 3 lbs, that is basically the only reason why I have been struggling to stay with this medicine. Loss of Appetite to the point where I have to force my self to eat so I don't start to feel dizzy. I have high blood pressure and sleep with oxygen at night and i am overweight so the weightloss could help me out in the long run. F 31 22 days
25 mg 3X day
5/3/2011
 1  Migraines Anxiety, depression, mood swings, memory loss, loss of focus/concentration, constipation, unable to cope with any conflict, tingling hands and feet, face numbness, excessive thirst. The worst 3 weeks of my life, I had countless meltdowns. Now that I am off I am still struggling with depression and anxiety, and my migraines got worse and less treatable-could be depression and negative attitude. As a side note: it did not help prevent headaches, still had 4-5 /week. I would look into other medication before trying this for migraines. F 30 22 days
4/25/2008
 1  migraines I had every bad side effect: anxiety, itching limbs, paranoia, tingling fingers and toes, tingling of the face, ... To top it off it gave me the WORST menstrual bleeds and cramps because it did NOT work well with my contraceptive (cerazette). Would E-NEVER recommend this medication to anybody. EVER. please please please verify with your doctor if there is truly nothing else you can do before deciding to take Topamax. If i had known how bad the side effects would get even on the very lowest dosage, I would have never EVER agreed to taking this. F 32 22 days
30MG 1X day
8/24/2020
Email
 5  Migraines Loss of appetite, forgetting words, saying the wrong words, confusion, getting lost in my own thoughts/sidetracked, tingling in my toes, soda tastes flat, None of these side effects matter to me because for the first time in 5 years I have been free of constant migraines. I had 3-5 migraines a week with aura and had given up hope that they would ever go away. I was just hoping that something would be able to dull the peak pain that occured a few hours after the visual aura. I hadn't even realized how bad it had become until I started on Topamax and have only had one migraine in 3 weeks. I still sometimes have the auras but no headache! It is completely worth it. F 25 21 days
7/21/2006
 4  eating disorder (NOS) Pins&Needles in hands & feet, ever pulled an all-nighter? that's what i feel like all day..totally out of it! Struggle to find words sometimes..wish I could snap out of it. Heartburn! No appetite, no desire to drink or smoke This is the 2nd time I've been on Topamax. The 1st time was a couple of years ago..I definitely remember the tingling sensation...but I really don't remember feeling this spacey! Maybe it's because I'm with a new doctor and this time I went from 50 mg to 150 in just two weeks..the last time I think the doctor spread upped the dose every month! I think i just need to ride it out...this drug can help you 'even' your mind out. The last time I really got focused..my binges (food and booze) all but stopped..I have had zero desire to binge since 100 mg. So that must be a good sign! Has anyone else experienced HEARTBURN!?!?! I never get it..until now...must be related, right? F 29 21 days
4/28/2007
 4  Cluster Headaches I'm very Thirsty all the time, Insomnia, Spaced out. So far so good. I've only gotten slight 'shadows' this episode but they seem to remain only shadows since I started the topamax. I do miss my beer though :(. M 26 21 days
6/2/2005
 4  Migraine and Tension Headaches Fatigue, tingles for the first week at 25mg, no other side effects so far. I am on week four, I am at my 1st day at 100mg. I have had little side effects so far. I am currently on Nuvaring. Has anyone ever stopped their BC while on Topamax? I am VERY nervous of hairloss. I have read so many horrid things about this. I do not think I have had much if any so far and do not want to start, but know that stopping a BC can cause hairloss as well. I do not want TWO strike against me! Please email if you have any info. I am currently takin Omega 3's, Evening Primrose Oil, B12, Biotin and GNC multi Vitamin for women to combat any of that that *may* happen. I just really hope that it will not. I'd really like to hear via email from anyone that has stopped BC and went to something non-hormonal like Paragard IUD and not had hair loss or stopped or prevented hairloss from Topamax with vitamins as stated above? Thanks! F 31 21 days
10/1/2008
Email
 3  Migraines Main problem for me is muscle twitching/fasiculations especially in arms. Goes away when topamax is stopped and starts up again when I restart med. Also carbonated beverages have a protracted zing to them. Some mild depression perhaps, hard to say for sure at this point. Bad headaches have stopped and I've been able to break my triptan habit and rebound headaches. At this point I'm having periodic mild headaches. Topamax dose still low but not sure I can tolerate higher dose. Also on propranolol which may be helping as much as topamax. M 54 21 days
1/27/2009
 3  Migraines EXTREME itchiness I am itchy randomly - arms, shoulders, stomach, legs... This itching becomes so extreme after showering or bathing, and lasts for approximately 2 hours, that I cry and just about lose my mind. I don't know what's worse... migraines or itchy freak-out sessions?! F 24 21 days
11/10/2007
 3  Frequent Migraine mood swings.memory problems.taste. lack of energy.tingling of toes and fingers. three weeks into it, the headaches seem to be reduced but its a little early to tell. F 45 21 days
6/28/2006
 2  Daily "Migraine" Headaches Where do I start? Dizziness, nausea (this is where the weight loss everyone talks about comes in), diarrhea, coughing, breathing problems, muscle spasms, arm weakness, chest pain and tightness, anxiety, depression, fatigue, sleepiness. I know this medicine works great for a lot of people but for me it did not. For the first week I didn't have a headache at all and I was only a little dizzy so I was very happy. Then about a week and a half into taking it, everything changed. My pain came back and the side effects started. I was crying all the time about things that didn't make any sense. I just felt depressed and like I couldn't function. I was constantly worried about everything. I was very sick at my stomach and didn't want to eat anything which is very unusual for me because I love food. I also developed a horrible cough with rattling in my chest. My legs would randomly jerk and move. All I wanted to do was sit around or sleep. My mom and boyfriend both said my personality had done a complete 360. All this and I was only on it for 3 weeks and only went up to 50 mgs. F 20 21 days
7/11/2006
 2  Bipolar Tingling in hands, feet, legs, and face. Loss in sex drive, loss of orgasm. Some loss of short-term memory and word retrieval. I liked how this medicine slowed my brain down, but the side-effects (especially the sexual ones) have put me back on the quest for the better meds. F 33 21 days
6/4/2007

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