TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | Trigeminal Neuralgia | I lost three of my longtime friends because I said something that I don't even remember. Became paranoid and thought I was becoming assertive when in actuality I was being aggressive. Horrible and changed my life forever. I got off the med and am better except I miss my friends so much and can never get that back. | F | 72 | 1 months 50mg 1X day | 4/4/2022 | 3 | Migraines | Severe stomach cramps,back pain bloody diarrhea tingling in hands stumbling upon words | Had to wean down from 125 mg daily to 75 daily bc of the severe side effects. Cannot come off of this medication completely bc I'll get migraines back ten fold and could possibly suffer from a seizure very scary | F | 31 | 0 months 75 1X W | 7/29/2021 | 4 | Migraine Prevention | tingling in fingers/toes, dry mouth, couldn't drink any beers b/c tasted funny (like others are describing pop, but I don't drink pop) | Started at 25/mg a day x 1wk, then 50mg x2wks, then 75mg x3wks and now am at 100mg. Was having migraines about 95% of the time, usually mild in severity and peaking to severe about 3x/wk. Immediately migraines decreased to only having a moderate to severe migraine 1-2x/wk with nothing lingering in between. However, for the last few weeks have had a presistent mild migraine, so am considering increasing dosage. | F | 24 | 13 weeks | 11/3/2004 | 5 | migraines | tingling extremities, soda tastes flat, headache many mornings-manageable with otc meds, word-call issues, still feel stupid often, loss of apetite, | I actually feel a little calmer and more centered now after 12 weeks. Most importantly, though, at 100mg I feel like fine. Absolutely like myself. At 150mg I was completely out of control, apathetic, depressed and suicidal, where I had never had issues with depression before. | F | 38 | 12 weeks | 2/5/2007 | 1 | Biopolar | Extremely fatigued, Candia/yeast infection went to doctor to be treated went on strict diet for 3 weeks no relief. Loss of word memory and recall of word use. Focus at work is difficult due to exhaustion. Can't work out because tried and loss of appetite and new diet that removed all sugars and carbs to get rid of the yeast growth and help body heal. Feeling dehydrated and itchy all over. Mood not stable depressed and angry. Do not recommend. Did not work for me. | F | 47 | 12 weeks 50 mg 2X day | 8/7/2020 | 1 | for migraines | extreme constipation to the point of not being able to eat more than soup, and no help with any of the migraines I had during the 9 weeks I took it. | F | 19 | 9 weeks | 10/14/2006 | 5 | bipolar II, anxiety | tingling in hands and feet, increased sex drive (love it), decreased appetite and weight loss (love it), soda tastes flat, (so I don't drink it-big deal) | This drug helped me a lot. It also curbed my desire for drinking wine every night, which was becoming a problem for me. That may also be a reason for the weight loss. I lost 10 lbs in 6 weeks. I used to binge eat, and now I have to remind myself to eat, and only get hungry maybe once a day. My moods are much more stable, and I am so much happier. I take 50 mg twice a day. I also had severe insomnia, so my psychiatrist gave me trazodone 50 mg to take at bedtime and I sleep like a baby. It is my perfect cocktail. | F | 43 | 8 weeks | 5/1/2008 | 5 | Migraines | Carbonated drinks taste like crap!! Some weight loss. Mild extremity tingles. | Worked up from 25 mg a day to 100mg a day have had no migrained since. LOVE it highly recommend it!!! Have had no depression foggy mind nothing like that at all. I suffered horribly with migraines before I found this. Plus I have lost 7lbs! | F | 34 | 8 weeks | 12/11/2008 | 4 | Intracranial Hypertension | tingling in hands and feet, slight memory loss, having trouble being in the sun, eat once a day | I take 25mg a day, they upped my dose to 50mg a day and I cut that back weird, to weird for me. I couldn't remember anything before taking the medicine now it just fits in. My headaches are almost gone, I have been on it for almost 8 weeks with 3 migrains vs everyday. I haven't lost or gained any weight, I eat once a day I don't crave food anymore, I still sweat and drink diet mountain dew like crazy (forced myself). I like it, it has worked wonders for my headaches but I don't like the fact that I can't be out in the sun, I am getting like heat rashes on my legs and arms, which I hope that is normal. | F | 38 | 8 weeks | 6/17/2007 | 3 | Migraines | The tingling in my hands and feet was annoying, but tolerable. I didn't mind the loss of appetite and slight weight loss. But all of a sudden my personality totally changed. It was like I became a completely different person. I'm having crazy crying spells for no reason, screaming at my fiance over the stupidest things (and we're supposed to be getting married in less than a year). I'm even considering moving out because I feel so lost, like I don't even know myself anymore. | Here's what REALLY bothers me: Up front, my neurologist warned me about the "very, very small" chance of developing kidney stones. He said to drink plenty of water to avoid getting them. At my 6-week follow-up I told him I was getting tingling in my extremities; here was his solution: Eat a banana, take 500 mg of Vitamin C and chew 1-2 Tums every day. When I began researching Topamax because of my severe mood changes, I discovered several warnings about kidney stones that said: AVOID ANTACIDS. AVOID EXCESS VITAMIN C. THESE WILL AID IN THE DEVELOPMENT OF KIDNEY STONES. I have left several messages at doc's office and - surprise, surprise - I have yet to receive a call back. I'm tapering off this crap drug ASAP! I wish I had found this website before starting the medication in the first place. | F | 27 | 8 weeks 50 2X day | 7/26/2013 | 1 | migraines | eye pain, memory loss, decresed mobility in hips, knees and ALL joints, aggitated | started at 25mg for 2 weeks, have been on ONLY 50mg for 6 weeks last week I couldnt get out of bed for 4 days straight, found out that i may have lost some bone density at the age of 27 from this med. Have had a continued nagging headache ever since being on this. Very aggitated... please be careful when going on this med.. didnt touch weight, diet pop tasted bad for a week then went back to normal, be very cautious! | F | 27 | 8 weeks | 1/9/2009 | 1 | Migraines | Weight Loss, loss of concentration, inability to function daily. HAIR LOSS!!! and horrible mood swings | At first, I thought I had found a wonder pill. No headaches, was a little forgetful. But and I increased the dose, 25mg a week, the symptoms became worse. My hair was coming out in hand fills. I was on an emotional roller coaster. One minute I was crying and 5 minutes later I was laughing. I"m a teacher and on the first day of school, I called my DR and told her this was it. I wanted off this medication as fast as possible. I just about burst into tears while I had a class full for HS teens. Taking Effexor XR and seems to be working, headaches have decreased. | F | 36 | 8 weeks | 10/19/2008 | 1 | Migraine - chronic | Experienced all side effects - especially cognitive difficulty, detachment from reality, and long-term side effects. Negative effect on job performance, felt like neanderthal version of my former self. After discussion with neurologist, I weaned off Topamax very very slowly and most side effects ended afterwards. I recently developed kidney infection - then kidney stones four months after ending Topamax. After trying multiple symptomatics (including Imitrex, Midrin, Relpax) to control migraines, started Topamax as migraine preventative and went from 25mg to 150mg slowly. All side effects AND MIGRAINES escalated as Topamax dose increased - and I was afraid to take it but too afraid to not take it. Finally weaned off and now I'm controlling migraines through lifestyle as much as possible. | Topamax was so scary that I don't want to take migraine meds again. Migraines were so bad I begged neurologist for a preventative - and he prescribed Topamax. After experiencing awful side effects with each symptomatic, then this preventative - I'm done! Even though migraines are still frequent, I try to both control what I can through lifestyle (healthy diet, mild exercise, yoga, rest) and accept the rest on a day-to-day basis. I still get 2+ migraines per week but my quality of life, both short and long term, is better without migraine meds. I thought I was going to either go insane or become completely retarded if I continued meds. Be careful. | F | 26 | 8 weeks | 7/7/2007 | 1 | Chronic Migraines | tingly hands and feet, anything carbonated tasted flat,horrible panic attacks, mood swings, suicidal thoughts, insomnia, when i actually do sleep i have crazy dreams | I have never felt the way I have on this drug. I have had severe chronic migranes since i was 16 and i cant even function with them but i will take them any day before the side effects i am getting with this med. It is scary!!!! I didnt start haveing the panic attcks until about 3 weeks after i stared takeing the med and they have just gradualy been getting worse. In the past week the have gotten to the point im getting them 5 to 6 times a day especially at night. i cant sleep and in the last 3 to 4 days i have started to get suicidal thoughts. I talked to my neurologist today and i hope that my life will get back to normal soon.. All I can say is if you are getting any of these major side effects JUST STOP TAKEING IT!! Its not worth it.. | F | 26 | 8 weeks 25mg 1X day | 7/23/2010 | 1 | migraines | tingling extremities, stomach cramping and diarrhea, complete idiocy, word loss, unhindered yammering, wild mood swings, suicidal thoughts, uncontrollable depression and weeping, continued migraines- hell- I could have used the weight loss! | It made me truly insane. Upon reflection after hitting my head repeatedly against wall, mirror, and cabinet in a public bathroom out of desperation I realized that I was no longer in control of myself- no longer even recognizable to myself- and had to begin to get the stuff out of my system. | F | 38 | 8 weeks | 1/25/2007 | 5 | Bipolar 2 | Carbonated drinks taste flat, dry mouth, no appetite, weight loss. | I LOVE TOPAMAX! I have gradually gotten up to 100mg twice a day. I take it with Cymbalta (60mg/day, which I have been on for 2 years). I had gained about 90 pounds through depression and binge eating and have already lost about 26 pounds in about a month in a half. I DO drink a ton of water to counteract dry mouth. I am sorry some people have such a bad reaction to this drug! | F | 31 | 7 weeks | 12/3/2008 | 4 | migraines | Forgetfulness, angry outbursts, fatigue, loss of desire to get out and do anything, spelling problems, loss for words | After suffering for ten years with migraines of at least once a week and all kinds of meds to treat symptoms that didn't work, this is the first med that has given me ANY relief whatsoever, so I'm willing to try to deal with the side effects and hope I can work through them; maybe after time they'll dissapate. However, my job as administrator is suffering somewhat in two ways: I HAVE to be able to think on my feet quickly, this drug definitely hinders that ability. In addition, the out of nowhere, angry outburst can be a real problem......not very professional, so be careful and aware of this. Learn to see the signs of an onset, lest you make a complete fool of yourself in front of your coworkers like I have a couple of times. Additionally, I cussed out my best friend in front of someone else over a Tupperware dish, which really hurt our relationship (and strangely enough, I barely remember the conversation). I'm working hard to mend the damage that was done there but don't know if it's repairable yet. The first couple of weeks were the worst as far as forgetfulness is concerned........got lost for a short time on the way home for work twice, which was really scary. Don't know if I can hang on to Topomax but will try for a little longer because of relief of horrible migraines. Feel free to email me if you have questions, I'd be happy to discuss. | F | 48 | 7 weeks | 4/20/2009 | 3 | Legs and arm movment | Itchy skin dry eyes loss words | F | 47 | 7 weeks 500 mg | 7/11/2015 | 2 | migraine | need to nap, diarrhea, loss of appetite, nausea, tinnitus (have had before but now worse) | still getting headache, am always sleepy, am only on 37 mg at night and am afraid to go any higher. | F | 52 | 7 weeks | 10/7/2007 | 1 | Migrianes | Dizziness was very hard to manage and fatigue | I have vestibular migraines and rhis drug seemed to intensify the systems. | F | 45 | 7 weeks 25 1X day | 7/3/2020 |