TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | Bipolar/ADHD | Stupidity, weight loss taken with amphetamine drug | Made me ADD w/o the H 200 mg. day .... 150 okay less stupified... take at night and take 90 mg. of Dexedrine per day no side effects anymore | M | 1.5 years | 3/26/2006 | 3 | weight gain due to bipolar meds | Not much weight loss, however I never gained weight while taking it. BUT - after slowly tapering off to zero - not long after my short term memory could be compared to that of a goldfish. | Is it the Topamax - or lack of it - that is causing this memory loss and frustration? | F | 41 | 1.5 years two 25 MG 2X day | 5/7/2012 | 3 | mood stabilizer | hair loss, flat moods | I took this for quite a while as a mood stabilizer. It didn't give me any side effects that were noticable on a day today basis, but over time I did see my hair thinning and my husband noticed that my personality was almost robotic. On the other hand, it absolutely did a great job "stabilizing". | F | 30 | 1.5 years 50 2X day | 8/17/2011 | 2 | migraine/one seizure | tingling in hands, feet, face; confusion; memory loss; irritabilty, weight loss; inability to form words, change in taste (soda tasted awful for the first 6 months), racing thoughts, nightmares, suicidal thoughts, and I now wear glasses. I also experienced an unquenchable thirst. The water is good for you to help prevent kidney stones, but I couldn't get enough water. I felt like I had cottonballs stuffed in my cheeks. | I have had migraine with aura for over 20 years. I get all of the neurological fun with them as well which include visual auras, increased hearing sensitivity, partial paralysis, inability to speak or comprehend, and many others. On 2/14/10 I had a migraine which led to a grand mal seizure. The neurologist really advocated this topamax and following the seizure I was still a bit confused, thinking the medication was necessary. I took it for a year and a half then I was done. Once intelligent, I was no longer able to form words, couldn't remember why I was in a room only a few seconds after going in to get something. Once after putting the pill in my mouth and taking a drink of water to swallow it down, I instantly spit it into my hand, thinking my tooth fell out. (I forgot I had just put the pill in my mouth). As a social worker who must prepare court summaries to submit to judges, and whose job it is to ensure the safety of children....I could no longer take the side effects of this medication. I tried both topamax and topiramate. My migraines did lessen, but the auras changed to the point where it was difficult to determine the onset of the migraines because I had the same auras for over 20 years. Now that I have been off of it for about 6 months (took myself off of it), I have serious mood swings. These started after taking it, but never left. They have gotten worse. I am depressed or angry most of the time. My family misses me I'm sure. My husband did not w | F | 35 | 1.5 years 25mg 2X day | 1/2/2012 | 1 | migraines | word loss, foggy mind, memory loss, hair loss, weight loss | DO NOT take this drug! It affects the language and recall areas of the brain! I took this medication for migraines and at first liked that while on it I lost weight and my anxieties went away. It did not, however, reduce my migraine frequency or intensity which is the reason I was on it in the first place. After a few months on it, I started to notice that I couldn't remember the right words and would frequently say the wrong word or say words in the wrong order. I also felt as though I was in a fog or a stupor most of the time. I would be in the middle of a sentence and completely forget what I was saying or what the conversation was even about! I also started to have recall problems in general. I lost so many memories due to this drug! I finally weaned myself off this drug about three years ago. I started working on improving my memory and language skills and have gotten a little better, but I STILL suffer from the effects of this drug. I still have memory, recall and word problems, and I still have migraines! This drug is very SCARY and it has ruined the quality of my life. Again, DO NOT TAKE THIS DRUG!!!!!!!!!!!!!!!! | F | 35 | 1.5 years 15mg 1X day | 8/27/2011 | 1 | mood stabilizer | Dyslexia, inability to find a word, changed cadence to speech, tingling in fingers and toes, absolute loss of appetite (resulting in a major eating disorder and loss of 20 lbs in 2 weeks), change in the way things tasted (chocolate and soda especially became bitter and awful), sleeping all the time, stopped my birth control from working which shot my hormones all over the place and made me manic depressive. Memory loss and talking too much about my life to strangers. Weird need for acceptance and validation. | I stopped taking this medication finally because I ran out and didn't get some for a week. The medication does not have the same affects (good or bad) if you stop taking it and start again. For me, in my altered state of mind, this was bad because my appetite came back and I couldn't control my eating habits as much as I would like with my eating disorder. So that delay in getting my prescription probably saved my life or I would be about 85lbs today and convinced that that was fine. Very powerful medication. I have been off for several years now and still have some of the side affects. It's hard to find the right word and I still can't read numbers out loud in the correct order without going very very slowly. I killed my metabolism with the eating disorder and now have 35 lbs to lose instead of gain. Oh, and my ex's family still thinks I'm nuts because they met me on this medication. Would have married that one too. I don't recommend this medication. | F | 30 | 1.5 years 100mg 2X day | 3/31/2010 | 1 | Epilepsy | This medicine controlled my seizures but caused permanent brain damage. while I was on it, I felt my mental capacity deteriorate, I had problems finding words, I would start a sentence and I would forget what I was talking about. I had this numbing sensation, double vision, saw trails, insomnia, anxiety. Simply awful. | THIS IS THE MOST HORRIBLE DRUG I HAVE EVER TAKEN! It controlled my seizures for the time I was on it but caused permanent brain damage and dumbed me down to the point that i never fully recovered. | F | 43 | 1.5 years | 12/2/2009 | 4 | Mood disorder, Headaches, Bulimia | Brittle/dry hair, loss of appetite | I've been on topamax for awhile now. I don't really have terrible side effects like other people; what I do hate is that my once super thick, shiny hair is now dry and straw-like. I've lost some of my hair, but it's not that noticeable. | F | 19 | 1.3 years 100mg 1X day | 4/25/2012 | 4 | Migraines | tingling in hands and feet, appetite loss (lost about 10 lbs and had amazing abs!), I was moody according to my coworkers, quick to anger, dehydration, lost ability to sweat (@ 300mg), memory loss (got lost on the way home in the early stages), hard to focus, "word-finding" difficulties (present throughout treatment) | Worked really well for headaches, but I think I was given too much at once. Started out @ 50mg/day using 50 mg tablets. Tons of side effects then. Eventually increased to 100mg/day, then 150mg day...up to 300mg/day---taking 100mg in the morning & 200mg at night. Was a TRAIN WRECK if I forgot a dose (not good if one of the side effects is memory loss). Did really well for (6) months and decided w/ my neuro to go off of it. Decreased doses @ 25mg/week and was an emotional basket-case. Upped them on my own to 50mg to get off them quickly and didn't experience any of the adverse side effects of increasing by 50mg/week. I've been off it for about 2 months now, and the migraines are back. I've been taking supplements (B2, Riboflavin & Co-Enzyme Q10), but they're not working. I have another appointment in a couple of weeks and will probably be back on Topamax. Elavil was terrible when I took that and nothing else has helped. I've been keeping a headache journal & am up to about 5 | F | 25 | 1.25 years | 9/5/2007 | 5 | migrines | dry mouth | it has made qu9ite a difference in my life | F | 40 | 1 years | 6/30/2007 | 5 | severe frequent migraines | weight loss, which is ok since I gained weight on other migraine preventives, soda tastes funny, but that's ok, who needs it? I don't know if I have any cognitive side effects because I already have them from hypothyroidism, so it's hard to tell if I've gotten worse. | I love this drug. I'm so glad I don't have any major side effects because so far there has been no other preventive that works for my migraines, and in some years I have had them daily. Once, on depakote I was gaining 10 lbs a month, and still getting migraines several times a week. I get menstrual migraines in addition to 'regular' migraines the rest of the month, and I'm too old to use the year round birth control pill to prevent those. So far, topamax is my best option. | F | 45 | 1 years | 11/18/2007 | 5 | migraine | helped reduce incidence and strength of migraine | F | 47 | 1 years | 8/3/2007 | 5 | Migraines | occasional tingling and cold in hands/feet; some hair loss, soda tastes gross...except fountain root beer=); 30 lb weight loss, lose my train of thought | I really am happy with this drug. Some of the side effects are quite annoying at times...medical professionals do call it "dopamax" but I have been on it for a year and my headaches keep getting better. I have lost weight (which wasn't a bad thing) gave up smoking (with almost NO withdrawl)...I just started HATING it after I started on the drug)...I think now that I have quit smoking the medicine will be able to help even more and my headaches will lessen even more! So I will take the occasional dopiness..I still function as a health care professional, and the tingley toes! I take 200 mg now, but I am hoping to be able to drop that down in the future. | F | 29 | 1 years | 3/24/2007 | 5 | Migraines, cluster headaches | weight loss, hair loss, changes in tastes of foods, increased thirst (only for water, everything else doesn't taste | Topamax has changed my life. I take 200 mg twice a day, and can live fairly normally. I have gone from having headaches almost daily to 3 or fewer a month. I can live with the side effects. It has actually helped me start eating better as fruits, veggies, etc taste better than junk. | F | 37 | 1 years | 2/8/2005 | 5 | PTSD due to multiple tasing | Tingling in limbs, face. Soda and certain food tastes funny. Weight loss. | Topamax has been great for me. I was shocked five times in less than a minute with a 50,000-volt Taser by a power-hungry, abusive deputy who did not want me calling his sargeant/dispatch for help. I was traumatized severely by this and the events that followed, and was unable to cope. My psychiatrist put me on Neurontin, which made me gain weight and did nothing to help. Then he tried Topamax. For the first time in months, I could wash my dishes; I could complete a thought; I could finally watch TV; I could listen to someone talk and really hear what they were saying, even though I may not remember it later. And even better than that, I finally felt it was okay to not have to constantly be doing something with my hands, i.e., needlepoint that I inevitably messed up, or a straight stitch of yarn, or just wringing them, anything to be moving them. I remember telling my doctor that I loved the Topamax because it slowed my brain down to a pace where my thoughts were not racing back and forth. I stopped | F | 35 | 1 years | 4/21/2005 | 5 | Migraines | occasional tingling and cold in hands/feet; some hair loss, soda tastes gross...except fountain root beer=); 30 lb weight loss, lose my train of thought | I really am happy with this drug. Some of the side effects are quite annoying at times...medical professionals do call it "dopamax" but I have been on it for a year and my headaches keep getting better. I have lost weight (which wasn't a bad thing) gave up smoking (with almost NO withdrawl)...I just started HATING it after I started on the drug)...I think now that I have quit smoking the medicine will be able to help even more and my headaches will lessen even more! So I will take the occasional dopiness..I still function as a health care professional, and the tingley toes! I take 200 mg now, but I am hoping to be able to drop that down in the future. | F | 29 | 1 years | 3/24/2007 | 5 | Migrane | Tingle in hands & Brain Fog | Helped me get rid of 13 migraines in a month! I have only had 1 in 1 year since I started! | F | 34 | 1 years | 5/27/2006 | 5 | Migraines | toes tingling(sometimes painful), slight weight loss, fatigue at first | I used to get about 1 migraine a week, now I am almost migraine free. Topamax helped a great deal and the only annoying side effect is the tingling in the toes. Sometimes it does hurt but it goes away after a little bit. I had slight weight loss, but I gained most of the weight i lost back after I got my appetite back. Topamax works better than any other medicine I've tried for migraines, which is a lot. | F | 19 | 1 years | 11/3/2005 | 5 | Severe Migraines | Tingling in fingers and toes, feel really stupid, can't remember the most simple of words. | I had migraines so bad I was in the hospital about three times a month. Then I started taking 100 mg of Topamax a day and I have not been to the hospital since. Although the forgetting everything and inability to remember words is a little annoying it beats getting pumped full of narcotics three times a month. The side effects are a pain but after a couple weeks you just get used to them. | F | 19 | 1 years | 11/24/2006 | 5 | seizure control | hair loss, weight loss, sleep loss, moodiness | After losing 35 pounds (I'm 5'2, that's a lot of weight for a small girl) and thinking this was a miracle drug, my hair began falling out and I couldn't sleep through the night. If my day became overly stressful I felt insane. AND I was only on 25 mg of Topamax a day. I'm not even on this drug to keep from having seizures, I'm on it for maintanence...thus the reason for such a low dosage. Now I'm afraid if I go off it I'll gain the weight back and to be honest, I just don't know what it feels like be normal anymore. But, I keep losing weight, never have an appetite and am worried that all of my hair will fall out. I feel great other than the fact that I can't sleep half the time. I'm motivated and alert, but when I'm high, I'm really high and when I'm low, I'm so low I think there's no coming back up. | F | 25 | 1 years | 10/5/2004 |