TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  Migraines lack of concentration/focus/ can't grab the word i want when speaking, HAIR LOSS, decreased appetite, memory loss, tingling in feet/hands. I had to start on a VERY low dose because I have had such extreme reactions from other drugs in the past. After 2 weeks on this my hair has started to fall out (with the root attached) it looks so thinned now. I feel really really DUMB! dumb dumb dumb I have to really think about what I'm saying as I'm saying it, I pause frequently during my sentences. I have alot of trouble thinking of the right word (SO I'm so sorry if this sounds like it was written by a 5 yr old), small amount of tingling i don't mind that as much. I can't believe these are all happening to me on such a low dose after such a short amount of time!!! F 21 2 weeks
25MG 1X day
3/18/2010
 2  Dizziness, & Acephalic Migraines REALLY bad typos, loss of words, major loss of appetite, really bad restlessness, joint pains, lack of energy, soda tastes like cough syrup, kicked up my insomnia, hard to do school, stomach ache but that’s probably from not eating, bone chills, just overall lack of intelligence, over heat at night, and hard to fallow conversations. I’m so happy to see these side effects are the pills and not me. I have been taking 25mg at night for about two weeks now, I’ve been taking it for dizziness, and acephalic migraines. I think it has helped with the dizziness, BUT the side effects just aren’t worth it. My body can’t afford the weight loss, plus I love to eat and nothing sounds good anymore. It has also made thinking almost impossible. It’s so hard to concentrate, spell, or think of and use words correctly. I’m usually a really calm, laid back person but topamax makes me so restless I can’t stay still whatsoever, and when I do get to sleep I’ll wake up tapping my foot. I also get awful bone chills that make me shake for a good 10 minutes. If I sit in one spot for a short amount of time and then move my joints will hurt, which isn’t normal for me. It also causes back pain when I take a shower.I don’t sleep much anyway, but the pills have not helped my problem at F 16 2 weeks
12/28/2007
Email
 2  Seizure disorder Appetite loss and severe cognitive side effects including memory loss, inability to focus, find words, complete sentences, etc. My neurologist suggested the switch from Depakote to Topomax for its appetite side effects. (I had gained lots of weight during my years on Depakote.) Unfortunately, I couldn't wait for the pounds to drop off because the stupidity set in so fast. After a week on Topamax, I had become so ineffective at my consulting job, I had to take a week off during my transition back to Depakote. I'll take overweight and sharp-minded any day. The good Topamax news: I didn't have a seizure during my two-week switch. M 50 2 weeks
9/7/2009
 1  Migraine 1st week: 25 mg /day: tingling in fingers and lips. 2nd week: 50 mg/day: additional major concentration issues and fogginess in the mind After realizing that my loss of concentration (which was greatly affecting my job) was likely due to Topamax, I asked my doctor the best way to get off this medicine (as I read a cold stop could cause seizures). His instructions were to up my dosage and the side effects would eventually subside. I didn't relent and have now been off the medicine for 3 days. My mind has returned to normal and the other side effects have subsided. This trade -- side effects for headaches was not worth it. The dramatic shift in my life I could see coming from the side effects did not seem to warrant the benefit of less migraines. Side effects this severe are serious considerations to take into account before starting this medicine and I know my doctor did not have any discussion with me about the possibilities I experienced. I didn't even achieve the desired dose of 100mg I was yet to work up to. M 40 2 weeks
50 mg 1X day
12/14/2014
 1  migraines Wish I read more into this dirty drug before taking. Side effects are not fun....blurry vision, foggy mind, tingling in lower legs and feet, constant cold feet, neck aches, decrease in appetite (only good thing), urinating often, agitation, irritability,....there's gotta be something else out there for migraines...I would seriously only consider this med for epilepsy only!!!! F 30 2 weeks
50 mg
4/29/2014
 1  Migraines Terrible all the way around. I started at the 25 mg dose. I took it at night. In the day I was so sick I didn't even think of food. My head felt full and strange. When I increased the dose to 50mg, oh my!!! I had panic attacks. I would wake up at night and my head, the inside would feel ice cold. Sometimes, my whole body felt that same coldness. Felt unnaturally afraid about everything. I felt like my husband stopped loving me. All sorts of thoughts with no basis.I Was even more sick at the 50 mg. I felt drugged and was rendered unable to function. Worst drug EVER!!!!I F 42 2 weeks
50 MG
9/27/2015
Email
 1  Chronic migraines Was hopeful at the start to get rid of my migraine. Side effects started almost immediately: aggression, brain fog, 24/7 tiredness, tingling in hands, nausea and loss of taste. The second week I was severe depressed, could not stop crying and was suicidal So I weaned myself off that drug. And guess what? No more problems. I am the happy myself again-, with migraine but still better than the two weeks of hell. F 45 2 weeks
25 mg bd
11/7/2016
Email
 1  Chronic migraines Was hopeful at the start to get rid of my migraine. Side effects started almost immediately: aggression, brain fog, 24/7 tiredness, tingling in hands, nausea and loss of taste. The second week I was severe depressed, could not stop crying and was suicidal So I weaned myself off that drug. And guess what? No more problems. I am the happy myself again-, with migraine but still better than the two weeks of hell. F 45 2 weeks
25 mg bd
11/7/2016
Email
 1  Migraine Headaches RAGE, ANGER and IRRITABILITY I cannot believe how angry I got on this drug. I really, really wanted to take it long enough to see if it would help prevent my migraines, but I was only on it for 2 weeks before I HAD to get off. The normal everyday things in life that make you mad were making me SEVERELY AGNRY. I was lashing out at myself, at my husband, and at my poor 3 year old twins. I HATED everyone. I HATED everything. I became anti-social and dreaded everything in life that normally makes me happy (and this included being around my kids!). Not cool. I went cold turkey off this stuff (and I was only on 25mg a day!). I am on day 4 of no Topamax and I feel SO much better! I wish I could have seen if this worked, but there was no way I was going to continue on this medication. My Neurologist said that everyone is different, so if you're about to start taking Topamax, you may not experience what I did. However, if you find yourself more angry than usual or full of rage as the days go on, get off this stuff! I had no other side effects. F 39 2 weeks
25 mg 1X day
1/6/2015
Email
 1  migraines Foggy Clinical type of deep depression Tingling extremities sharp pains in the back of my head extreme agitation, wanting to cry all the time, very anxious.it made my migraines associated vertigo even worse. I just got off and I still don't feel right May work 4 you, but it was very scary for me. I have suffered from migraines for 20 years. This medicine gave me the glimpse of how it may feel for someone to be clinically depressed everyday I feel so sorry for them F 30 2 weeks
25
4/29/2015
Email
 1  Borderline Personality disorder Loss of cognitive function Migraines Insomnia Tingling/numbness in hands Double/blurred Vision Extreme suicidal ideation I started the first week at 50 mg and the second week went up to 100mg, the third week I was supposed to go up to 300mg but on the first day of that week with the first dose I had a complete break. The weeks leading up I had increased anxiety, dramatically increased depression, my mood swings became more irrational and erratic than ever. Around the second week I started to hear voices in my head telling me to kill myself. I did not want this. By the end of week 2 the voices were screaming at me to kill myself. The last day, (first day of week 3) I was admitted to the hospital, taken off the drug and after my first hours of drug induced sleep, so roughly 12 hours later, my symptoms dissipated by 75% then without taking the medicine for 24 hours disappeared completely. I am in total disbelief that this drug is prescribed for people with mental health issues... it seems very dangerous. F 39 2 weeks
100 mg 2X day
10/23/2020
Email
 1  migraines (preventative) Straight up stupid. I'm glad I'm not the only one who experienced a drop in intelligence while taking this drug. It not only made me slower at performing normal tasks like spelling but also made it difficult to do things that are second nature, like telling time. They were so effective in making me "slow" that my husband scratched out the topimate and wrote "Brandy's Stupid Pills" above them. STOP taking them for an IQ boost. F 31 2 weeks
25mg 2X day
3/16/2010
Email
 1  Migraines Panic attacks, complete loss of appetite, excessive anxiety, tingly fingers, hands, and toes, memory loss, loss for words, manic talking, more :( I took this drug before I had my son, whom is now 10 months now, for migraines about 1 year ago for a few months and I never knew what all my symptoms were until now I started taking it again, I think now I'm a Mom and care more about myself and am more observent so I noticed my fingers, and my anxiety was just thru the roof, and driving me, and my POOR fiance and family crazy! Ive been literally FREAKING out and threatening him so much! It's been so bad! My hands have been getting SO tingly today that they HURT and I have to stop moving my hands so they dont hurt anymore, it affected me at work also. When Im at work my memory is "different" and Im lost for words, and I am the lead nurse so its weird for me to feel that way. Im a new Mom and I cant even be a Mom because my anxiety is so insane!!! All I have to say is this medicine has messed up a lot in my life!!! I am tapering off now!!! Without any Dr!! UGH! Thanks for all your tips! I didnt know it was this damaging, until I read this website!!!! F 23 2 weeks
25mg 2X day
5/31/2010
 1  intractable migraines loss of feeling in my hands, band headache, stabbing pain in my toes, chest tightening, severe abdominal pain lasting for days, slurred speech, constipation I have horrible migraines but I'll take them back and try something alternative to get off this horrible drug! I had the worst abdominal pain in my life due to severe constipation, couldnt feel either of my hands, had chest pain, leg pain and stabbing pain in my toes. What a terrible experience! F 46 2 weeks
2X day
6/4/2010
 1  Migraine Insomnia, word loss, intermittent twitching eye, mental processes slowed, mood swings, suicidal thoughts, crying spells, extreme rage, restless feeling inside F 39 2 weeks
25mg
7/4/2012
Email
 1  migraines Nauseas, tremor in the hands and feet, depression, I really fell very bad. So bad than migrains....even worse. Points and lights in my eyes when I closed it, or when I tried to sleep. Just take it away from me. I'ts a bad (hard) drug for begginers....even when you start whit a low dose : I took 25 mg dialy (in the night). F 24 2 weeks
1/10/2007
 1  for migraines Major side effects: hysteria; deep depression; dull, persistent headache. Minor side effects: inability to detect carbonation; some foods tasted 'funny' F 2 weeks
6/7/2006
Email
 1  Migraines Could not think clearly or concentrate. Felt extremely timid and completely out of it--like I was stoned all the time. I lost 5 pounds in two weeks and had absolutely no desire to eat. I was depressed and felt like crying all the time. The worst effect was the loss of cognitive abilities! I had to get off it. Helped with my migraines, but not worth it. F 35 2 weeks
11/15/2006
 1  bi polar disorder memory loss, confusion, profound loss for words, tingling sensation in the body, weight loss, muscle aches and stiffness i feel the side effects definately outweigh the benefits in this case. the memory loss and confusion drove me up a wall. the tingling sensation went away a few days after my doctor increased each dose. the weight loss was great, but the muscle aches and stiffness made it difficult to walk sometimes. this medicine did nothing to help my psychatric issues. i insisted on being taken off the medicine immediately. F 27 2 weeks
5/8/2007
 3  Migraines Tingling hands and feet, fogginess, feeling dumb, extreme extreme fatigue, feeling in my own world, dizziness, loss of appetite, all soda taste horrible, My biggest concern is the fatigue. I cannot go a day without taking a nap after work. It scares me to drive when I feel like this. I cannot concentrate and I feel "out there" and in my own little world. I do not pay attention to things like a should. The memory loss, specifically short term can be funny but at the same time I hate to feel stupid and that is exactly how this drug makes you feel. A little bit dumb and a little bit dopey. I mean the weight loss is extremely significant, you lose your appetite right away, many things taste different or you just aren't hungry AT ALL! One thing though...no migraines yet and I am used to having at least one a week. Ahhhhh...I am still trying to decide what to do. Weighing out the pros and cons... F 24 1.5 weeks
10/20/2008

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