TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  weight loss nausea F 20 14 days
4/12/2005
 3  Migraine Nausea, anxiety, exhaustion, but cant sleep! Also, everything carbonated tastes funny and some foods taste like soap. I just started the medication so I am not giving up. I have tried just abot everything for migraines and nothing has worked. I was on elavil before which i went off to try topomax. I am not sure if i am anxious because of the stopping of elavil or the starting of topamax. Elavil made me hungry all of the time. I am a small person, but I still do not want to gain weight. Now, i feel so sick all of the time on Topamax. I just want to know if it gets better. F 30 14 days
3/25/2009
 2  Headaches Slight numbness around lips, nose, cheeks. Headaches still. Awful Insomnia for the first week then it gradually got better. Very tired all day. Decided to discontinue because I'd rather have headaches than be tired when I'm not actually tired. I know it works for other people. M 31 14 days
7/10/2008
 1  Migraine / Head Pain Severe Depression / Apathy / Suicidal Tendencies / Tingling / Constipation / Lethargy / Loss of taste / Memory Loss I began Topamax 25mg once daily; after my first week to 25mg twice daily; 2nd week to increase to 50mg evening, 25mg morning -I realized my entire change in personality during the preceeding two weeks might have something to do with the new medication, Topamax. I began researching the side effects. I had never been suicidal, apathetic, lethargic, depressed, or etc. before - but I was to the point of wanting to leave my wife, close the business I had worked so hard to build, I was obsessed to either kill myself or leave town and start a new life - these feeling were constant and relentless; they would not leave my mind; all-consuming; psychotic. None of these things were rational or even remotely fit any thoughts I had ever had before taking Topamax. It altered reality for me and ruined my life in a very short time period. Luckily, I had a small window of reality in which I sought information in the confused state I was in. I wish I had known to look for these effects beforehand so tha M 38 14 days
4/9/2008
 1  Depression, Migraines Made me suicidal, pins and needles in hands, severe bruising I had to be hospitalized because Topamax made me suicidal. My boyfriend figured it out, I would take late at night, wake up feeling horrible, and get better as the day went on and the medication wore off. F 25 14 days
4/7/2008
 1  Migraines It did stop the migraine BUT constant lightheaded, extreme lethargy, non stop brain fog, nausea, unable to sleep for days and when i did - very strange dreams, pulsating "waves" in hands and feet, double vision, lack of appetite, short term memory loss from day 2, uncontrollable episodes of shaking and the end all was the start of wishing I was dead. I tried to work during the 2 weeks but had to go home. The shaking and dwelling into potential suicidal thoughts was my stopping point. Took 3 days to clear the brain fog, still have a hard time sleeping and I feel tired all day but not as bad as when I was on the medication. I am back to ibuprofen for now. Topamax works for some but beware if it doesn't work for you then its a living hell. M 52 14 days
25-mg 1X day
8/29/2020
Email
 1  Migraine Confusion, Brain fog, decreased appetite, lethargy, anxious, word retrieval. Prescribed for migraine with aura.First week was 25mg.then second week was 100mg. I have existing cognitive impairments from a stroke such as aphasia,confusion,word retrieval and brain fog but it is manageable and I have adjusted to it's limitations over the past two years...Taking Topamax for 14 days turned me into a cognitive Zombie with the side effects I listed above to the degree that I literally existed with the memory of a goldfish for 14 days in a state of confusion. On top of that my appetite disappeared completely, I had to force myself to eat one small sandwich a day and I'm a 6ft. 220lb.man. Needless to say,I have weaned myself off this drug and will caution others to be very self aware of it's effects on their body when taking it. M 53 14 days
10/9/2020
 1  bipolar tingle in hands and feet - soar throat - soda tasted funny, cannot speak clearly, severe clouded thoughts, blurred vision, eyes rolling in head, extremely tired, anxiety , heart palpitations, swollen tongue, dry mouth JUST FEEL STUPID I DO NOT RECOMMEND THIS MEDICINE TO ANYONE AT ALL AND I CANNOT WAIT TO GET BACK TO MY DOCTOR TO GET OFF OF THIS (50 MG) F 33 14 days
4/17/2007
 1  migraines had very severe side effects-memory loss, mood swings, hallucinations, heart palpitations, trouble breathing and utimately, seizures. I suffer from constant, almost daily migraines, but the side effects were worse than my migraines! I'm sure this medicine probably helps give a lot of people their life back, but it nearly took mine away. I was told this morning to stop taking this drug immediately. I had a really, really, bad reaction. Even so, I don't think I would have wanted to stay on this medication because it turned me into a zombie from day one. F 26 14 days
12/29/2005
 1  Bi Polar/Panic TERRIBLE I could not even function at all!!! Very DIZZY!!!! F 20 14 days
9/2/2005
 5  migraines tingling(feet,hands,face,scalp)dry mouth,change in taste, loss of appetite, dizzy when getting up quickly, change in menstrual cycle This is my second try with topamax, the first time the doc put me all the way up to the full dosage, and this time he is keeping me at 25mg only. I love this medicine at a low dose. It works great for migraines, i have been pretty much migraine free since i have been on it, and i was getting them every day. i have to be careful of the weightloss though, i am a very thin person to begin with and the doc said that he will take me off if i lose any weight, so i force myself to eat. F 38 13 days
5/4/2006
 4  Bipolar II, Migraines Carbonated drinks tast terrible, spacey feeling, excessive fatigue during the day, naseau when first starting, tingling in toes and fingers, dizziness, dry skin, thirsty/dry mouth, cold, at a loss for words, full feeling - not sure if I have lost weight yet- haven't been on it too long I am very pleased so far with this medicine. So far, I have been too nervous to drive and that may become a significant issue for me. I am hoping the spacey feeling and dizziness pass as I get used to the meds. They seemed to be almost under control before I upped the dosage so I am keeping my fingers crossed. I can't even name all the medications I have been on so I am hoping this works for a long while. It's worth the side effects that I seem to have if it will help manage my manic episodes. I only gave this a 4 because I have only been on it for 2 weeks and can't say to what extent it has helped me yet. Keeping my fingers crossed for that weight loss. F 36 13 days
12/15/2006
 3  Migaines Tingling in hands and feet, severe abdominal pain, diarrhea, weight loss I started taking Topamax for my migraines at 25 mg and moved up to 50 mg a week later. Right after I started taking 50 mg, I started to have diarrhea and bad stomach cramps, as well as tingling in my hands and feet. I have barely been able to keep food in my body for a week now and am still waiting for my Dr. to return my phone call. I have talked to another Dr. but was told my stomach symptoms have nothing to do with Topamax. Can anyone help me out? Please email me! M 25 13 days
5/15/2007
 3  Migaines Tingling in hands and feet, severe abdominal pain, diarrhea, weight loss I started taking Topamax for my migraines at 25 mg and moved up to 50 mg a week later. Right after I started taking 50 mg, I started to have diarrhea and bad stomach cramps, as well as tingling in my hands and feet. I have barely been able to keep food in my body for a week now and am still waiting for my Dr. to return my phone call. I have talked to another Dr. but was told my stomach symptoms have nothing to do with Topamax. Can anyone help me out? M 25 13 days
5/15/2007
 5  Bipolar II & Migraine Spacey feeling, flu like symptoms for 1 day, extremely tired, weight loss, I have read all the different comments about topamax, and I was hesitant about taking it. The first week was really rough with the side effects. But it was worth sticking it out. I started out taking 25mg for 4 days, and then 50mg, and now I am up to 75mg, and today is the first day I feel like myself! I am glad I stuck it out. One thing I figured out though, is the time I take it. I was feeling really sick about 12 hrs after I took it, so I take it around 4 or 5 in the afternoon, so it takes affect while I am sleeping, this has been a huge help. F 33 12 days
1/2/2006
 5  alcohol abuse tingling in feet and hands, very tired for first few weeks, strange taste in mouth, slight mental confusion that I noticed a few times. This was a miracle drug for me. Started at 25mg and slowly dosed up to 150mg and then back down over a 12 week period. Almost from the first day, my desire to drink (and smoke) completely disappeared. No cravings or thoughts about drinking. It just went out of my brain.... At the end of the day I wanted a cup of tea instead of a bottle of wine. The only thing better would have been weight loss...but I didn't have any. oh well. F 50 12 days
1/8/2008
 4  Migraine, chronic headaches Occasional slight tingling in fingers and toes. Thinking one word and typing or saying another word. Diarrhea starting when dose increased in week 2 from 25 mg to 50 mg. Trouble sleeping more than 6 hours a night. Soda tastes terrible. Appetite is starting to slack off, slight nausea is starting. Side effects seem to increase as dose increases. Have only been taking Topamax for 12 days. Headaches have decreased from daily episodes with migraines every 2-3 days to headaches every 2-3 days with only 1 migraine in 12 days. The side effects are hard to deal with, especially the diarrhea and insomnia. F 45 12 days
6/5/2007
Email
 2  complex migraine tingling in hands and feet, dry mouth, frequent urination, unable to focus, constant fatigue Topamax helped my migraines immediately, I felt some relief at 25mg but after increasing the dose to 50mg the foginess and drowsiness made it impossible to function and not worth it. I am debating right now whether to go back to 25 and take the less frequent migraines or just stop this drug all together. F 30 12 days
7/1/2008
Email
 1  Neuropathy, Chronic Pain Terrible taste in mouth. Crazy excessive thirst. Brain fog, weird gait, heart palpitations, tingling in fingers and heels, fatigue, but can't sleep, bronchitis, wheezing, blurry vision, dopey feeling, irritated sinuses. I was put on 25mg a day at night time almost two weeks ago, to add 25mg per day each week until I got to 200mg/day. I called the pain management pharmacist and told her about the thirst and she said she had never heard of that before. The more severe symptoms I have just gotten the last couple of days since increasing to 50 mgs/day. They are hot to get me off of the opiate painkillers I have been taking that do not cause side effects and do manage my pain and seem not to care about these side effects. So it has been helpful reading everyone's input here. I took only one tonight and am calling her on Monday with the entire list of symptoms and asking if they really want me to continue this. IF so, I will say I don't. I believe they have Celexa in mind next if this one doesn't work - or rather if I refuse to allow it, which I won't. Horrible experience! F 48 12 days
12/6/2008
 1  Mood Stabilzer/Possible Weight Loss The first three days I took only one pill a day at 25 mgs. It was ok. I felt a little "flat" but not in a bad way. The fourth day I went up to two pills a day as recommended by the shrink. It was alright although I began to feel brain dead at work. Speaking my own language was a challenge at times, food was tasting weird, I could barely keep my eyes open at my desk. This past Saturday I slept about 18 hours straight. Today, two days later, my skull feels like a metal helmet, I had waves of nausea all day long but couldn't eat anything all day to throw up. I considered going to the Emergency room but I didn't think they could do anything for me.The shrink told me to cut back by one pill but I just want to go cold turkey. I want this stuff out of my body. What a mistake! The Prozac was fine. If it ain't broke, don't fix it!!! I have been on Prozac for 20 years. I wanted to discuss possibly reducing my prescription but the psychiatrist thought to supplement with Topamax? I will admit the possibility of losing weight did lure me in even though I would be more medicated. I would rather be my chubby funny self than a nauseous zombie. Stay away from this crap. F 61 12 days
50mgs 2X day
2/1/2016

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