TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  nerve pain Hair loss, soapy taste in mouth, tingly hands and feet. loss of words which I call my topamax moments. I stopped topamax before because of the hair loss so this time I am taking a multi vitamin with it since the topamax robs the body of biotin and other nutrients essential for the hair. I am hoping this works since topamax really helps with my nerve pain. Other then the hair loss I can deal with the other side effects and am really pleased with the med. F 38 1 days
9/5/2006
 3  For migraine's I have experienced the following: Tingling in my arms and legs, hot flashes, loss of appetite, loss of hair, food tastes different, frequent urination, irritated bladder, sleeplessness, fatigue, confussion, unable to form a sentence, unusual menstral cramps, imparred vission. I am trying very hard to stay with this drug. This is my second attempt to get to 100mg. I have been at 100mg now for 10 days. I go from nights without sleep to days not being able to drag myself out of bed. I am very fortunate to have a understanding boss or I would not have my job! F 49 1 days
5/23/2006
 3  unknown pain? pain in foot,knee,and back..... F 32 1 days
12/23/2004
 3  unknown pain I have seen 8 doctors within the last 8 months pain in foot,knee,and back.....sharp tingling pain, I was taking neurontin 900mg per day. I wanted to gain weight but not only in my stomach area (I told my doctor i feel as if i look like a whale).... So now I'm trying Topamax. I will provide my email address as soon as i create it. F 32 1 days
12/23/2004
 3  Migraines Loss of taste Weight Loss Hair Loss Finger Nails Falling out Has Helped Headaches a lot Loved the wieght loss but tuff way to do it everything tasted like lettuce and ok enough is enough after a year I have lost enough now and still don't have an appetite and now my hair is falling out and now my finger nails are starting to fall out and I am so depressed I don't want to do anything be set at home and cry all the time what my MS didn't do to me (and I was so proud that it didn't get me down) this dang drug is! I am thinking it's more disabling than constant migraines and MS combined! F 54 1 days
8/27/2007
 3  yes Diarrhea dry mouth tiredness F 33 1 days
200 mg
9/1/2016
Email
 3  migraines I've been researhing this medicine for the past couple of days, and I will say I'm a bit scared. I've saw comments that read there's a possibility you could lose your hair, tingle toes and fingers, and weight loss, etc. I want to take this medicine because I've been having terrible migraines, but I don't want to go blind because of this med. I'm a waitress I need my vision, and a great memory!! For those who loss their memory and had blurred vision , was it rlly bad?? Could you rate it for me? If your vision/memory started at a 10 before the med, what would you rate it now?? I prefer to start and stay at the lowest dose 25mg. Will that does still allow you to lose weight?? I meet with my doctor this coming monday july 13th, if anyone could answer any of my questions that would be a great help!! Please&&Thanks!! F 21 1 days
haven't st
7/9/2015
Email
 3  Migraines I lost 75 pounds in less than a year doing nothing but taking this medication , has not helped headaches I am scared on how long is too long to be on it?? F 49 1 days
150
5/16/2015
Email
 3  sezuires Take 125mg night find it makes my breathing a bit laboured its day 11 for me so up my dowe tonite to 125 started from 25mg to be honest apart from the breathing thing I mentioned I also feel stoned out of my head and it makes me forget to breathe F 41 1 days
125mg
6/16/2014
Email
 2  Epilepsy Squeezing head, migraine, foggy, back spasms F 32 1 days
25 mg 1X day
4/23/2014
 2  migraines and daily headaches Brain fog. Severe mood swings leading to scary rages. Acute depression. Suicidal thoughts. Food tastes weird. Paranoia. Detachment from any and all sources of joy. I took my 50mg dose as directed by my doctor at night. I've always been a very well-adjusted, even-tempered, optimistic, happy-go-lucky individual. I've never had any psychological or emotional problems, other than a little bit of depression when I lost a loved one. I get a little moody during PMS, but really, I'm very mellow in demeanor. Topamax flipped some switch in my personality overnight, and it was very scary. I couldn't stop crying. I felt that I had nothing to live for. I felt detached from everything, and I didn't know who I was. I wanted everything to stop, and I had no idea why. I wanted to die. I've never felt anything like that before. I also experienced some very scary rages, screaming at strangers, almost causing bodily harm to someone who cut me off in traffic. I'm not a very violent person. I've never been so out of control angry before. I became increasingly paranoid, worrying, and fretting over every little detail, unable to stop fixating on the dumbest of things. I F 31 1 days
11/30/2007
Email
 1  MIGRAINES Terrible hair loss. Could never find the right word I was looking for. Started on 25mg for about one year but headaches were still coming. My neurologist increased me to 100 mg gradually. Only 2 days on 100mg when my hair on the right side was pouring out. Immediately stopped all meds. Only had 2 migraines in 6 weeks. My Dr. said it would have taken him hours to tell me of all, the side effects but only me and one other person in hundreds had hair loss problems. I would bet there were more people. It was enough hair loss that I purchased a hair piece and have spect hundreds of dollars on persciption shampoos and sprays plus solumedral scalp injections. Now I am ready to start a class action law suit against the drug company. Email me if you want to be in on it! F 60 1 days
12/13/2007
Email
 1  Migraines Soda tasted like seltzer. So tired that I had to nap every day. Complete memory loss. Sometimes I would almost feel like I had amnesia...then within 30 seconds I would realize where I was. SEVERE scalp irritation which made me become compulsive about itching and picking at my head! Drove me insane. The scalp irritation led to hair loss in patches. Migraines did not decrease what so ever. Lost over 15 pounds - which I did not have to spare so I looked like I suddenly had a severe illness. Heat exhaustion often. And I went from not having to wear deodorant to smelling like my brother did when he first went thru puberty! All in all, I went off my 100mg a day and am completely weened off now. My scalp is clearing up, I have my energy back, and I can find that word that I used to be searching blankly for in my head. Topomax wreaked havoc on my life and I will encourage my friends/family strongly against using this drug for their migraines, etc. M 39 1 days
10/19/2007
 1  migraines severe chest pains with extreme thirst and losing consciousness, heavy trembling, multiple times. Persistent chest pain for weeks with dizziness, exhaustion, slight confusion, loss for words. After two weeks, burning itching around my abdomen. There were several times when I felt I was seriously going to die during these fits that feel like a possible heart attack. The blood tests and EKG's look alright. Twice earlier in the past 10 years I was prescribed this drug with a resulting 911 call with similar symptoms. The doctors did not make the connection with the Topamax in those cases at that time. The inference is these symptoms are a nervous reaction. In each case, I have gone into similar distress within hours or days of being prescribed this drug. I will never take it again. I look forward to a full recovery. I am surprised how long the reaction is lasting. F 45 1 days
9/16/2007
 1  anxiety/seizures first night i took it, went to sleep, woke up 40 minutes later and couldn't breathe I was on wellbutrin for anxiety and had a massive seizure that landed me in the hospital. (oh what a wonderful drug it was up until that huge setback...) dr put me on topamax for the anxiety and (now) seizures and the first nigth i tried it i couldn't breathe. i read somewhere that if you take a higher dose the not-being-able-to-breathe side effect goes away. i am a little desperate for this to work (if a drug has a side effect i seem to get it) but the breathig thing is scary. F 27 1 days
6/1/2007
 1  Cluster Headaches My husband couldn't communicate. More severe headaches. planned suicides. Crying spells, angry, then nice. Depressed, new personallity. Worse medication I've ever seen. More dangerous then his headaches. Told him he had to stop taking it, because I truly believe he would have killed himself. It was a horrible time. Can't understand why everybody else says they are so happy. Same thing happened to my daughters boyfriend who has epilepzy sp? My husbands doing much better now that he's off it. This medicine was given to my husband to prevent headaches, only he had more a day then before. He was unable to do anything. I had to complete his sentences. I was so afraid of his personality changes, and I didn't know who he was. He went through hell. M 52 1 days
8/23/2005
Email
 1  bipolar/depression/eating disorder inability to think, couldn't get out of bed, tremors in hand, headache, numbness in hands and mouth, couldn't think, thought of nothing but sex (the only good thing about this s*) and was able to have a great orgasm unfortunately by myself -- it was like the whole full body tingling thing; could hear my heart beat in my ear; my eyes hurt and were sensitive to sunlight; i couldn't keep down water; and i couldn't eat. one day on this is one day too many. F 33 1 days
1/19/2006
 1  Migraine Prevention I had itchyness, mainly of the upper body, lost the taste of carbination after just 1 pill. I was really hot, like I felt like I was going to explode from being so hot, and I was in like 65 degree temp. It also made me feel very..emotional..I wanted to cry and hurt something at the same time. I have severe migraines, but I could not tolerate the drugs, probably not even if it promised to never give me another migraine EVER again. I'm going back to my nortriptyline and will deal with my migraine here and there. I was also worried about being able to drink enough water to help prevent kidney stones which it increases the risk of. F 19 1 days
5/6/2006
Email
 1  mood stabilizer pins and needles, nausea, loss of sleep I was prescribed this medication for a mood stabilizer and also to help me sleep. I took one at night before bed time, and I woke up and felt so sick to my stomach. I also felt like someone scratched me on my leg when nothing was there. It made me have weird dreams and sent my mind racing. Needless to say I got no sleep and felt really loopy. I stopped using this drug the next day. F 30 1 days
100 mg 1X day
8/10/2010
 1  Epilepsy (GrandMal) Severe side effects across the board. Euphoria with inability to control myself. Panic attacks. Speed like feelings. Strange changes to taste. On my first, and lowest possible dose, I flipped right out into a panic attack after 18 hours. The attack lasted for 6 hours and put me in the hospital. They call this one Dopamax for a reason, but despite feeling heavily doped, I also felt the other extreme... Speedy rushes and triggered flight responses. The panic attack was preceeded by my feeling urges to rush into the hallway and pace in my room despite having been trying to calm myself down and watching TV. Very unpleasant and frightening. A shame as I also have Migraines. Would have had two birds with one stone if I could have tolerated this drug. M 30 1 days
8/7/2009

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