TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  Weight Loss In the start: hand and feet tingling, cold hands and feet, tired, or dizzy, and MAJOR HAIR LOSS!! I did lose weight (about 35 lbs in 4 months). The medication was a great kick start to get my life back on track for healthy living (e.g. the weight loss). However my hair is STILL falling out and I've been off the Topamax for about 3 weeks. It's so bad that I would never go on this medication again for weight loss. I'll join weight watchers next time! Anyone know when my hair will grow back? F 33 4 months
8/12/2006
 3  seizures weight loss [10 pounds in the first week], i don't eat as frequently, tingling in my feet+hands, nerves in my left hand would spasm and freeze up for a few minutes, words don't come as quickly to me in daily conversations, i forget things here and there, i smell cat pee all the time[?], i've had my menstrual cycle now three times within the past two months, and once my doctor upped my dosage my skin started to break out. we'll see what happens... F 4 months
9/21/2006
 3  Migraines Tingling in fingers with numbness Initially relieved migraines completely, then they returned and I switched to Verapamil which worked for 3 months-full relief, now migraines headaches back again. Think it's hormonal, read that Aldactone will decrease androgens which cause cystic acne, headaches, hair loss. F 4 months
50 1X day
9/12/2012
 3  adhesive arachnoiditits Lowered IQ, hard to find words(feeling really stupid at times), arm and hand tingling, hand joint pain, weight loss(loss of appetite), leg cramps, food tastes different, insomnia or trouble staying asleep, bizarre dreams, moodiness, slight hairloss, depression, feelings of going schizophrenic(seeing and hearing things), muscle jerks I know these side effects sound pretty severe but it is better than feeling like your legs and feet are on fire. I am currently taking 150 mg. of Topamax a day. 50 mg. in the morning and 100 mg. at night. Topamax hasn't taken away all the burning pain but it has helped. I may need to increase the dosage soon. F 41 4 months
2/5/2006
 3  migraines kidney stones caused me to discontinue the drug (and no one in my family has ever had them), tingling of extremities (b12 shots reduced this), nausea at first (went away), fatigue at first (went away), worse headaches at first (they improved after about two weeks of sticking with the drug), soda tastes bad my headaches were greatly reduced, I didn't lose weight although my appetite was a bit suppressed, my moods were much improved overall...I am so disappointed I developed kidney stones F 25 4 months
100mg 2X day
3/18/2010
Patient History
 3  Migraines A range of side effects- very thirsty, slight drop in appetite although no real weight loss, trouble finding words and if someone spells a word to me I can't think quickly enough to spell it down!My husband has called it my Topamax tongue as I will mix things and words around. Some depression and racing thoughts, chest pains (but that could be stress linked-hard to say, pins and needles in hand and feet, increased weakness in hands at times (something I've noticed when doing surgery) I started on 25mg Sid and worked up to 25mg am and 50mg pm, now currently weaning myself back off the drug to see if my low mood is due to it or not.I had pretty severe mirgaines around 6-10 a month before starting this drug.Having looked though my migraine diary perhaps at lower doses (25mg I dropped to 2-3 migraines a month) helped but at higher doses didn't. My rationale for that is I do a busy job requiring a high IQ input and this drug at high doses slows my thinking and ability to work as normal annoying me= stress= migraines. I plan to maintain on 25mg for a bit as it has reduced the severity of the migraines making me at least able to arrive for work. It's worth a try- just be aware of what you are trying I guess. The first week was very difficult to adjust to- I just made my bosses aware I was going on it and friends as well so they could monitor me for any extreme oddness!! good luck F 27 4 months
up to 75 1X day
1/6/2011
 3  Migraine Spaciness along with the sliding sort of feeling - like when the train stops but your brain keep going? Hungover feeling. At higher doses, over 50mg, I was suicidal. I work from home and live in the city so I never have to drive. I mention this because honestly, this drug makes me a bit dumber. I forget what I'm doing, where I'm going and where I've left things. And I stumble over words. And I have lost my attention span, hence the worry about driving. I don't know that I would feel all that safe behind the wheel. I am still getting migraines, but the other things I take after they start seem to work better with the Topamax and if I don't take the Topamax, I am miserable for at least 12-24 hours, so it's doing something. I have recently started Wellbutrin to counteract some of spaciness and help the Topamax, since I can't increase the dosage. I tried 75mg and after 3 days I was suicidal. Now I am trying 25mg Topamax and 200mg Wellbutrin. F 40 4 months
50 mg 2X day
1/24/2011
Email
 3  Migraines Word loss, confusion, anxiety, anhedonia, a few panic attacks, a few episodes of nerve pain. I have had chronic daily migraines for over six years. I have tried just about everything to heal myself from traditional to alternative medicine without success. I was reluctant to use Topamax because of its side effects and also its cost, but now that it is generic I can afford it. So far, it has not been helpful. I have had to gradually increase my dosage by 25 mg per 4-6 weeks or so because of the side effects. Although I must say, I have a very close friend who also had daily migraines after contracting viral meningitis and she was on 400 mg/day a day and had no side effects and no migraines for years. She stopped taking it thinking she didn't need it any longer. Her migraines came back, and she had a small stroke because of them. Her doctors have tried to put her back on topamax, but she can't tolerate even 25 mg a day. Everyone's body is different, and everyone's body changes over time. I hope topamax works for me eventually. F 41 4 months
25 Mg 3X day
8/25/2011
 3  migraine prevention Irritability, Weight loss (7 lbs), Depression, Spaciness, Eye pain, Stomach upset, Loss of Taste, These went away after a few weeks. Tingling in the feet still happens every day. F 44 4 months
7/13/2006
 3  Epilepsy Weight Loss, broken out in pimples I am happy with the weight loss but not pleased about the pimple break out as my skin was very clear prior to the increase in Topamax. F 34 4 months
4/22/2006
 3  Epilepsy Weight Loss, broken out in pimples I am happy with the weight loss but not pleased about the pimple break out as my skin was very clear prior to the increase in Topamax. F 34 4 months
4/22/2006
 3  Migraines weight loss, the loss of words when trying to speak, tingling in my fingers and bad ache I was informed that this medication decreases the effect of birth control, what are people doing when they are on this medication to prevent pregancy? Please email me to give me some advice. M 27 4 months
3/22/2007
 3  Severe Migraines Tingling in Face, Hands, Feet, Confusion, Forgetfullness, Irritability, Brain-fog, Fatique, Constant Metallic-taste, some weight loss (15 lbs, over 4 months). After titrating up, I was convinced that this was a miracle drug! I have had severe migraine headaches since age 14. The only relief has come in recent years with Imitrex, but now my Dr. says I'm using too much. I was getting 4-5 migrains a week before starting on Topamax. After the first two weeks, my migraines had almost disappeared. After a few months, though, they began to come back and so began the upping of dosages - which also increased all the side-effects. Most notably, the brain-fog and irritability. My co-workers say I'm not the same person to work with and I know that my husband and kids see the difference. After 4 months, 15 pounds less (yeah!) and back to having daily migraines, I can't face increasing the dose any higher. I'm at 200mg/day, and I can't take the side effects. There's got to be something better out there. F 38 4 months
9/20/2007
 3  migraines very negative effects on mood--made me have a short fuse; decreased frequency of headaches to about 7 per month (cut # of headaches in half) F 42 4 months
3/8/2005
 3  migraines very negative effects on mood--made me have a short fuse; decreased frequency of headaches to about 7 per month (cut # of headaches in half); made me strongly adverse to lemony smells of soaps; word retrieval problems F 42 4 months
3/8/2005
 3  migraines at 100mg:negative effects on mood--made me have a short fuse; made me strongly adverse to lemony smells of soaps; word retrieval problems; bad heartburn at 1st and needed to be put on meds for my stomach unfortunately no decrease in appetite or weight loss for me!!; did cut my # of migraines in half F 42 4 months
3/8/2005
 3  Migraines, headaches every day speech disorders, hard time thinking of words i wanted to say, forgetting names, bad confusion, tingly feelings, weight loss, difficulty contrating, loss of personality, menstrual disorders, depression i don't like the migraines but i think i'd rather have a migraine twice a week and be myself for the rest of the time. it's expensive medicine. i lost 20 pounds in the first 3 weeks of taking the drug and half of that in the first week. it has made me lose a lot of my personality, i don't act the same. i failed two classes this semester because of confusion / concentration problems - i sat there thinking i was stupid and it was my fault that i didn't understand. one month i had two periods. i would like to try changing my diet and exercising more than i do and see if that helps instead. F 20 4 months
5/18/2005
 3  migranes/weight loss tingling sensation in hands/feet, social withdrawel, ANXIETY, went from high aggitation, to feeling nothing, to crying, to feeling nothing again. strangely I always feel like I should up the dosage to see if it works better? don't know if thats a sign of maybe addiction in this drug? I'm kind of an emotional rollercoaster to begin with but the topamax seems to take it for its own set of random loops where I would normally be upset, I dont care, and when I normally wouldnt care I'm livid. Very strange. However, my appetite hasnt seemed to decrease I am 5'5 and about 130lbs but I am a distance runner and would like to lose weight (for running and myself) but my body calls for food. I havnt experienced any fatigue, except drinking wine gives me a HORRIBLE hangover. STAY AWAY FROM WINE, and be careful on birth control. it causes breakthrough bleeding/ makes it useless! F 20 4 months
12/5/2008
 3  Migrane headaches Just as everyone else here has said, the awful taste of soda now. Only a small weight loss noticed. Still have migraines occassionally. Take Imitrex when those pop up. Does anyone have any problems with blood in their stool when having a bowel movement? Curious. F 39 4 months
12/13/2008
 3  Migraines Altered my tastes (especially carbonated drinks - things now taste very "flat"). Feel a little "heavy headed" after taking it(50mg). Haven't had as strong of a migraine on it - we'll keep on it for a while to see if it's worth it. Thanks. F 35 4 months
3/23/2008

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