TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | migraines | hand, feet and leg tingling that can be maddening at times, been on topamax for a month now at 75 mg (titrated up from 25 slowly, on 75 mg for 2 weeks now). Tingling hasnt stopped but am used to it now, but still rather annoying. Weight loss and appetite loss. Taste issue with certain foods and/or drinks -sweets dont taste the same and certain foods dont taste the same. Brain fog - simplest things I forget even though I'm staring right at it (i.e., thats a button but I cant remember what it is) - STRANGEST SIDE EFFECT is that I get a sensation for about an hour or so every now and again (just happend yesterday again) that my head, hands, jaw etc. feel HUGE - and my mouth feels teeny tiny. Example: I was talking to my hubby on my cell phone and all of a sudden the cell phone felt like it was the size of a building in my hand against my head but my head felt that size too. I cant describe it but let me tell you if you have panic disorder, it will flip you the hell out faster than | With all that said - my headaches have been reduced by about 75% so I'm going to say its a success for me. I've had migraines all my life but these past 2 years I've had a headache every single day and then I've been getting migraines more frequently on top of a constant headache. I'm 36 years old (soon to be 37), married, mother of 2 (eh..enough to give anyone a headache right?!). I have migrainal for the migraines but luckily I havent had to use it since being on the topamax. Weight loss has been great (as a woman, we all complain about our weight) about 8 lbs so far but I find that I'm forcing myself to eat because I dont want to drop 20 or 30 lbs (as my doc said that is the norm for most and I cant afford to lose that much), so I'm eating even though I"m not hungry. The biggest thing is the forgetfulness and that very strange "something is bigger than..." sensation - its enough to drive you insane - and I'm already bipolar as it is so anything that drives you nut | F | 36 | 1 months | 10/4/2006 | 5 | Migraines | tingling in hands, arms, feet, legs, face, and mouth, but nothing that worried or bothered me too much. decreased appetite, occasional nausea, change of taste in certain foods and drinks, maybe some memory loss but nothing to affect my daily life. | Overall, topamax has helped me very much. Before taking this medication, i had migraines at least once a month and headaches on a daily basis and when you are only 18, it really affects your daily life with school and work. Topamax did have side effects but none that really changed my daily life and none that would change my decision on taking this medication. I started taking 25mgs a day, then 25mgs 2xs a day, then 25mgs in the morning and 50mgs at night and now i am at 50mgs twice daily. | F | 18 | 1 months | 7/31/2007 | 5 | migraines | speech difficulties, confusion, loss or hard to find choice of words to use, diffulty falling asleep, hair loss | I started out taking 25 mg of Topamax increasing to 50 mg. Upon reaching the 50 mg my migraines were under control with Relpax. Then it happened I thought I was having a stroke, my speech was slurred my husband couldn't understand a word I was saying, I had some an episode in the Dr's office. I was out of work for a month, when I was able to return I was stuttering. The neurologist and Family Practice doctor and several other specialist all concluded it may have been the topamax, but I had not reached the optimal dosage. I was taken off the Topamax and have had migraines, rebound migraines, headaches consistently. My life is out of control, I can not even complete activities of daily living. Needless to say, I am now reconsidering taking topamax but under closer supervision, it has been the only medication to control my migraines. My neurologist also recommended botox injection for my migraines as well. | F | 38 | 1 months | 4/20/2006 | 5 | RSD | Tingling hands feet | Have to take in morning because it keeps me awake. The only med that I have found to to take care of my severe nerve pain. I take 75mg once a day | F | 36 | 1 months | 11/7/2004 | 5 | Depression & Weight Loss | Cannot drink carbonated soft drinks. They taste awful. All I can really drink is water. Nothing else really tastes right. Dry mouth. For the first couple of weeks I felt kind of spaced out all of the time. This did go away. It has decreased my appetite. | I am currently taking 50mg of Topamax in the afternoon and 50mg at bedtime. I am also on 75mg of Effexor per day. | F | 29 | 1 months | 10/4/2004 | 5 | BiPolar II, Severe Headaches | This is te second time that I have attempted to take Topamax. I have been on it for about a month now and have been in bed constantly. My face is constantly numb and tingling, I am in a fog so bad that I can hardly concentrate, I will find out Monday how much weight I have lost but I know it ust be a great deal because I cannot eat hardly anything, I stay so nauseated. Nothing sounds good to eat and everything hurts my stomach. Carbonated drinks are OUT!!!. It has caused my heart rhythm to really act up, and worst of all, my headaches have not improved but have only gotten worse in a different way. They are hard to describe now but much worse. But, I want to stay on the medicine becuase everything else that I have taken for my BiPolar has made me gain wieght and if this will help me lose it, it will be worth it. I just can't sleep at night, but I sure do fine during the day, sleep like a baby. I am currently on 50 mg twice a day now. | F | 53 | 1 months | 9/7/2006 | 5 | Migraine- severe!!! | loss of appetite, carbonated drinks taste flat, loss of libido, lost five lbs. in less than two weeks, tingling in digits, clumsiness in hands, forgetfulness,extreme sleepiness for the first week | I have had only 1 mild migraine in the last 1 1/2 months...I'm used to having 6 severe ones in that amount of time! The side effects are irritating, but considering I was losing my mind from the migraines, it's not a bad trade-off. The migraines were ruining my life.People who don't have them do not understand! I've tried so many things, but the side effects from those were even worse! I'm going to the Dr. this week to talk about maybe lowering my dosage from 100mg/day to maybe 75/day...maybe that will help the s/e a bit! The weight loss is kind of nice...but I really don't want to lose anymore, so maybe the dose change will stop that too- & I really need to get my libido back...my husband isn't very thrilled with that either!(my comeback is- at least I don't say I have a headache!!!) | F | 33 | 1 months | 10/18/2006 | 5 | Migraines | Tingling in my fingers & hands, word loss, major appetite loss. No longer crave any sweets or chocolates. Carbonated drinks taste very flat. Drowsy after I take the dosage. | I have not had one migraine since. I used to get migraines daily. I am only on 25mg & was supposed to increase to 50 if not working. Since it has worked I have not increased it at all. With the appetite loss i think this drug just makes you eat when you are hungry instead of because it is there. I no longer crave anything at all. The best part of all is that I haven't had a migraine for almost a month. | F | 36 | 1 months | 12/18/2006 | 5 | chronic migraines | Side effects that I dislike are change in taste of some foods and drinks. Mainly pop, it burns when I drink it and if I eat candy, it just makes my mouth taste weird. Im losing weight, but thats not bad b/c I need to anyway. The first few weeks I was overly tired all the time. | I went from having 1-3 migraines a day to having 1 a week. Much better. | F | 31 | 1 months 50mg 1X day | 3/11/2012 | 5 | Schizoaffective/Schizophrenia | Loss of Appetite | I got put on this medicine for my mood and to decrease my appetite that was increased by the high dose of Seroquel I am also taking. It has worked and I have lost about 7 pounds. I feel happy everyday, and I don't have any other side effects. | F | 22 | 1 months 100 MG 2X day | 7/26/2010 | 5 | Migraines/ice pick headaches | My neurologist tapered me up on this, so perhaps that helped me. Side effects are minimal--some grogginess, definite loss of appetite, carbonated drinks taste strange. | This has been a miracle drug for me. Tapering up on it probably helped minimize the side effects. I developed ice pick headaches (aka primary stabbing headaches) very suddenly. After an MRI and MRA to check for underlying conditions, I was diagnosed with this condition--apparently it's something that can happen to people in middle age who have a history of migraines. My migraines had been very manageable--no more than a one or two a year--and very treatable. I just dealt with them. But then I began suffering from these very intense, short lasting, unpredictable, and debilitating ice pick headaches. I couldn't work, and they began to appear 6-8 times a day, 4-5 times a week. If you suffer from these headaches, you know that you would be willing to suffer some mild grogginess in order to prevent the development of the headaches. The headaches stopped after the first dose. everyone has to make the best decision based on the information from their their doctors, but for me this drug has given me my life back. I'll take the slight dizziness over the headaches any day. | F | 49 | 1 months 50mg | 3/25/2017 | 5 | Borderline, Anxiety | Honestly it didn't make me stop drinking soda nor alcohol ,I still love them both . I was excited when I read online that it would make me lose my appetite because I've been taking topamax for a month now and I still eat like a pig day and night and I'm still as fat as ever. I am experiencing a lot of hair loss but I'm also 4 months post partrum. I'm not feeling particularly dumb but I have noticed the constant need to pass this really distinct smelling gas throughout the day ;/ I keep blaming my baby for the smell but I'm afraid the people can tell because it smells extremely bad and exactly the same no matter what I eat. | It finally made my social anxiety subside.:) | F | 21 | 1 months 25mg 2X day | 8/27/2021 | 5 | weightloss | Extreme aggression/ anger problems, frustration, nothing too bad after I added in celexa, fatigue, loss of words, forgetfulness, Twitching in the right eye at night, bloating, soda tasted flat, nasty; | At first I experienced extreme irritability & anger, me and my fiance almost broke up in a weeks time and we realized it was the medicine. But my mom was taking it too and told me to take my celexa. celexa is the cousin to lexapro. If you have either I am sure it will work! it worked a miracle for me. TAKE THIS WITH TOPAMAX IF YOU WANT ALL THE AGGRESSION SIDE EFFECTS to go away!!!! and take 25 mg for 2 weeks if you have to to let your body get used to the fatigue | F | 22 | 1 months | 7/23/2008 | 5 | bi-polar disorder/cluster headaches | numbness/ "pins & needles" feeling in extremities, weightloss, loss of appetite, diarrhea, visual disturbances, dizziness, tiredness, difficulty staying asleep. | Before I started taking Topamax I was on Lithium. It was working well until I was hospitialized for Lithium Toxicity and Seratonin Syndrome. Afterwards, I was experiencing headaches daily. They were unbearablable! I had been on Topamax years ago, but due to compatibilty issues with birth control I was advised to try other medications again first. I have been on it now for roughly a month and I believe the benefits far outweigh the side effects. My psychiatrist is still fine tuning my medications because I had to come off all my meds after my hospitalization, but so far I have been pretty even keel. YAY to no more headaches! | F | 33 | 1 months | 8/19/2008 | 4 | Migraines | weight loss, pins and needles in hands feet face, feelings of being on a roller coaster and extreme dizziness - especially when leaning forward, feeling 'high' and very disoriented, slow thinking and movement, aggression, sore throat and cold at higher dose (100 mg), no physical coordination | My current dose is 100mg. I was having daily migraines for over three months. After getting up to 75 mg of Topamax a day, they began to ebb. I've only had one this week. So far, the side effects are worth it. If the mental confusion and feelings of being high continue, I will have to go off the medication, but for now I will continue and hope that this will fade over time. The most difficult part is the inability to think quickly. This impairs my ability to work and go to school. I have been asked if I am high by a friend after taking topamax in the morning because I was so out of it. I now take it all before bed. I feel like I am on the deck of a ship - everything is moving - and cannot follow a conversation. This is extremely distracting at work. Nothing happens quickly anymore. (It took me 20 minutes to fill this out!) | F | 30 | 1 months | 9/14/2008 | 4 | Migraines | Fatigue, Memory loss, Tingling in hands and feet, flat tastes in sodas, dry mouth, upset stomach, loss of appetite | Had about 3 migraines a week and now down to about 2-3 a month. I will continue dealing with the side effects over the migraines. Started out with 25mg now currently taking 100 mg. | F | 34 | 1 months | 4/13/2009 | 4 | Migraines | Tingling in fingers, feet and face. Lethargic for a few days when I first increase my dosage. | I have always had tension type headaches and headaches in general and have dealt with them with OTC meds, however, I have never had migraines until about three months ago and I am 42 years old. They struck me with a vengence and were occurring every 2-3 days and incapacatating me and I am normally a very upbeat and active person. Treximet helped some when I got them, but made me look and act like I was in la-la land. I then switched to Maxalt which also helps an active one some, but does not space me out. However, I was still continuing to get them frequently and was having to leave work, miss my daughter's soccer games and was just not able to be me. My regular doc didnt have a clue, so I asked to be referred to a neurologist and he did so. I saw a PA at a local neurologist and she was awesome and spent time with me asking about triggers and etc. She is the one who started me on Topamax and I thank God for that! I have only been on it for two weeks, but in those two weeks I have not had one single migrraine. Yes, soft drinks taste a lil flat and I have some tingling in my extremities, but compared to a migraine that made me curl up in a fetal position and literall wish I was dead...does seem like much of a trade off to me! It stinks that it did not work for some people, but as for me, it was a lifesaver! | F | 42 | 1 months | 4/17/2009 | 4 | seizure | at first i was extremely tired, all i wanted to do was sleep, weightloss(9lbs), loss of appetite, foods taste mildly different, and i actually think my hair feels thicker | i'm on a switch from a large dose of depakote, which i have been on for a long time and my body just isn't responding to effectively any longer... i have been on seizure medication most of my life, i have tried topomax previously but it was at a time when they found other more "effective" drugs for me, i am very happy with the weightloss so far i hope i lose more depakote has put alot of weight on me through the yrs. currently i am only on a small dose of topomax 100mg/day i am very happy so far but i am always afraid when i switch medicine, i have read about many ppl having more energy, i say "give it to me!", as far as weightloss goes, "i can afford to lose another 60lbs.", as far as distaste for carbonated beverages, "i dont like them anyway" wanting healthier foods, "artichokes and spinach are my 2 favorite foods!" so i think if those are the problems that people have with topomax gimme the problem!, and if i have a dopey moment oh well i know how to laugh at myself! i have been on disability for my seizures for about 10yrs now, i am tired of it, i want to be able to get out and do what i want in life! and if topomax gives me the energy then i say i am glad i am switching to topomax! i still have 1 more month until i am at my dose amount of 200mg at which time i will decrease my depakote, and stay on my dilantin with my topomax. | F | 35 | 1 months | 3/26/2009 | 4 | Mood Disorder | Tingling feet, unable to process thoughts, shaky hands, weight loss, appetite loss. | Although I have been enduring many side effects, the side effects are starting to calm down now. It takes about 10-14 days being on this particular drug to get Accustomed to. I am on topomax because I was recently diagnosed with a mood disorder, similar to bipolar but not. It calms me, and keeps me stabilized to the point where I am feeling like I am not fighting a war inside my head. I would rather deal with the side effects then my mood disorder, that is for sure! | F | 24 | 1 months 100 Mg | 2/14/2016 | 4 | Chronic Migranes | Very tingly hands and feet, tiredness, but more even-keeled moods, actually. I feel less likely to get angry and moody, so that's good! I do feel a bit "high" occasionally and dopey. I take a lot of vitamins, including a B-12 to help with energy levels and Biotin to help with hair loss (if that side effect ever happens). I also am married to my water bottle...I drink between 12-16 cups a day. About a 10 pound weight loss in one month of taking Topamax, but biggest thing is the decrease of my migranes!! | Titrate up SLOWLY! Take at least a month if your end dose is to be 100...don't rush it! Drink LOTS of water as Topamax will dehydrate you. | F | 42 | 1 months 100mg 2X day | 4/6/2015 |