TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  migraines Tired, pop made a weird fiz on my tongue,didn't quite taste the same. But I'm gonna continue taking it. F 36 1 months
25mg
8/26/2015
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 4  migraines Tired, pop made a weird fiz on my tongue,didn't quite taste the same. But I'm gonna continue taking it. F 36 1 months
25mg
8/26/2015
Email
 4  Bi-polar and weight loss (BED) Ringing in ears Tingling hands and feet Loss of appetite Topamax ended 20 years of binge eating carbs! The side effects are worth it. F 43 1 months
50 mg
8/6/2015
 4  Migraine hand and feet tingle, metallic taste, carbonated drinks taste weird It was the constant migraines that gave me an inability to think and find words and consult a neurologist in the first place, so I can't say that the Topomax has made that worse. My functionability has improved greatly because my constant head pain is mostly gone. Still working on figuring out the perfect dosage. I have an ocassional migrain sneak through, and my neuro gave me Imitrex as a "rescue" drug for that. The combo seems to work. I was told by a relative who is a pharmicist that Ambien CR may have been the cause of some of the initial "word loss," but I don't know that for sure. As a person who makes a living with words (I'm a reporter) the loss of words and concentration is frightening and decidely inconvenient, to say the least. But it actually seems to be getting better. Drinking pop is no big loss. My appetite seems to be about the same, but I was losing weight with the constant headaches. F 43 1 months
75 mg 1X day
11/7/2010
 4  Daily Headaches/Migraines Nasty taste when drinking anything carbonated. Tingling in hands, feet, face. 6-10 lb weight lose in first 3 weeks. Constant ringling in ears. Nausated feeling/loss of appetite. HORRIBLE LOSS OF MEMORY. Can't even remember to take my meds. Total loss of wording. I am constantly forgetting things and its taking a toll on me. I was first put on Inderal for my headaches but had to many side problems with that drug so doctor put me on Topamax. THIS DRUG WAS A GOD SEND. I haven't had a severe crippling headache in over a month. I actually feel normal again. The side effects have gone away and are bothersome only when I first take my meds. The memory loss is the only side effect I can't shake well and the constant ringing in my ears. I can manage better with those side effects then deal with a migraine or a headache that puts me out of work for days on end. TOPAMAX has help me out a great deal! F 32 1 months
50 1X day
12/11/2010
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 4  Chronic Daily/Menstrual Migraine Fatigue (NO interest in exercise), Complete loss of libido, almost to the point of AVERSION, as well as difficulty reaching and significant dimishment of orgasm, flakier than usual, more switching and grasping for words than usual I have only been taking 25 mg at night, and for only a month, and have felt the side effects to be very mild and tolerable, with the exception of the sexual side effects. They were immediate, and WITHOUT other explanation (to refute a dismissive comment by my neurologist regarding the "complexity" of female orgasm). I was delighted to find such a small dose almost immediately effective for interrupting the chronic migraines (where triptans were failing with alarming frequency). I was disappointed to have two menstrual migraines in the last couple of days, but they also seem less severe and more responsive to triptans than had been the case prior to starting Topomax. This is still very early, and hopefully these SEs will lessen, even if I have to (probably) up the dose. Just wanted to corroborate the negative sexual effects. What a sad day when we have to choose between welcoming intimacy with our husband and an otherwise blessedly pain-free existence. F 29 1 months
5/15/2006
 4  weight loss nausea in the first week, loss of appetite (especially for junk food like McDonald's), extreme thirst, clumsiness, tingling in fingers, toes and heels, confusion, delusions, indigestion, memory loss F 18 1 months
10/15/2006
 4  migraine prevention Tingling in hands and feet during certain times of day (mornings), hair loss, loss of concentration/forgetfulness/inability to hold attention, irritability, moodiness, can't sleep very well I started taking 25mg about a month ago for migraine prevention, and so far it hasn't done much, but it is a low dose. My doctor just upped it today to 50mg so maybe that will make a difference. I also take Maxalt when a migraine occurs, and it seems like I have been getting rebound headaches from the Maxalt ever since I started on the Topamax. When I have gotten migraines while on Topamax, there have been bad ones, but there have also been some that are a dull, lingering pain which don't seem "normal" compared to when I wasn't on it. Overall, I'm not dissatisfied, I am just hoping a higher dosage will do a better job. F 22 1 months
7/12/2006
 4  migraines hand, feet and leg tingling that can be maddening at times, been on topamax for a month now at 75 mg (titrated up from 25 slowly, on 75 mg for 2 weeks now). Tingling hasnt stopped but am used to it now, but still rather annoying. Weight loss and appetite loss. Taste issue with certain foods and/or drinks -sweets dont taste the same and certain foods dont taste the same. Brain fog - simplest things I forget even though I'm staring right at it (i.e., thats a button but I cant remember what it is) - STRANGEST SIDE EFFECT is that I get a sensation for about an hour or so every now and again (just happend yesterday again) that my head, hands, jaw etc. feel HUGE - and my mouth feels teeny tiny. Example: I was talking to my hubby on my cell phone and all of a sudden the cell phone felt like it was the size of a building in my hand against my head but my head felt that size too. I cant describe it but let me tell you if you have panic disorder, it will flip you the hell out faster than With all that said - my headaches have been reduced by about 75% so I'm going to say its a success for me. I've had migraines all my life but these past 2 years I've had a headache every single day and then I've been getting migraines more frequently on top of a constant headache. I'm 36 years old (soon to be 37), married, mother of 2 (eh..enough to give anyone a headache right?!). I have migrainal for the migraines but luckily I havent had to use it since being on the topamax. Weight loss has been great (as a woman, we all complain about our weight) about 8 lbs so far but I find that I'm forcing myself to eat because I dont want to drop 20 or 30 lbs (as my doc said that is the norm for most and I cant afford to lose that much), so I'm eating even though I"m not hungry. The biggest thing is the forgetfulness and that very strange "something is bigger than..." sensation - its enough to drive you insane - and I'm already bipolar as it is so anything that drives you nut F 36 1 months
10/4/2006
 4  Migraines Stomach pain and diarreah daily. Nausea in morning. Dry mouth/thirsty all the time. Slight tingling in feet. This is my 2nd time taking topamax. I had less side effects the first time but had to stop taking it when I became pregnant. It totally gets rid of the headaches, but if I miss a dose they come right back. The side effects are worth it for me though. I just wish I didn't have stomach trouble now. F 24 1 months
4/23/2007
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 4  mood stabilizer A bit of vertigo when I look in the mirror. Tingling scalp, hands, feet and sometimes lips. Spacey in regards to time and planning, a bit forgetful at times, but am able to concentrate on my job. Loss of appetite, but I must remind myself to eat and drink water or I get massive headaches. Loss of taste for soda, which is fine by me as this is leading to some weight loss. Skin sensitivity, I find that I do not like being touched softly. Change in hearing levels, I have a low ringing at all times which I guess goes along with the vertigo. I also have had a bit of change in my vision. This medicine has worked well as a mood stabilizer, my biggest problem was obsessive worrying and social anxiety. Now I am free from self imposed fear, and I am no longer obsessing and worrying about what I have said/done long after I have said or done it/abstract things... this problem was keeping me home, and thus I was prohibiting myself from making social relationships at work and at play. Basically I was a prisoner of self, I often refered to myself as a F 35 1 months
2/7/2005
 4  fainting weight loss i felt high moodiness tingling in face,arms and legs nausa it did its job i lost 20lbs in 4 weeks which isn't too healthy stopped taking it because it made me more anxious and the loss of feeling in my arms F 33 1 months
6/11/2007
 3  Weight Loss Uh.. memory loss, made a D for the first time in school, forgot which foot went on the brake pedal. Can't find words. Forget what I'm supposed to be doing. Angry and anxious and aggressive. Chewing people's head's off. Suddenly saying EVERYTHING that's on my mind if someone annoys me. Chest pains right in the center.. feels like major anxiety attacks. Weight loss. Headaches, blurred vision, nightmares. Positives are feeling of well being, weight loss, lifting of a long standing depression (I didn't even know I had) fearlessness of public speaking or social situations, more sociable, NO binge eating, can actually TURN DOWN food, even at restaurants I can watch others eat and get nothing but coffee. didn't have anxiety probs until 75 mg. I can't take it for too many days in a row or I can REALLY tell in my level of anxiety. Starts to feel like I've taken a whole sack full of Stackers. F 30 1 months
5/2/2007
Email
 3  Bipolar II; PTSD Feeling like I am stoned on pot or have had only 3 hours sleep; can't get out of bed easily in AM; some flu-like symptoms (such as feeling like I've been run over by a truck)muscle weakness and fatigue; upset stomach; tingling in left pinky toe only (strange). Beginning to lose some weight. Took the sprinkle form about 1.5 years ago and had a major allergic reaction--turns out that form has a sulfa molecule in it, and I am allergic to sulfa drugs--super big thanks to the pdoc and pharmacist for paying attetion to that! The tablet form does not have sulfa in its structure, and so far, I have had no reaction. I have built to 25 per day. I just feel stoned; the PTSD has not yet calmed down too much, but I am getting a bit steadier on my feet with the BPII after a major PTSD/BP event a month ago. So we'll see if the Topamax does help as we go down the path. I am willing to stick with it a while longer, as I am not working at the moment. If I were working, I would not be taking it it. It is, as I adjust, kind of a bummer, as I am also a long-distance runner in training for a half-marathon in July, and since being on the drug, even my shortest runs suck because I feel too weak. Does this go away? F 40 1 months
4/12/2007
 3  migraines first week I was in heaven, thought this is the greatest, woke up feeling great better than in years, needing no caffeine at all thru the day, did had a few side effects mostly mental confusion but the good feelings out weighed all side effects. nO MIGRAINES When i increased dosage I totally lost it, my couldn't function, speak clearly, remember names, stuttered, you name it I just couldn't do it, I turned hateful even minor violent. I am still having problem with my mental capacity, I can't think, I can't remember, I can't even spell simple words anymore,I cut back on my dosage If I try and stop this drug I get a terrible migraine. I depend on this drug. I like this drug. I DON't RECOMEND IT TO ANYONE FOR MIGRAINES Don't start this drug unless you really talk it over with your doctor. F 53 1 months
4/11/2006
 3  taking paxil, topamax for headaches i am finding the topamax to make me feel really good. i am experiencing a very bad taste in my mouth though. I am not likeing that much. I have had a lot of muscle spasms going on in my neck too. Other then that i'm pretty happy so far. I take 5o in the morning and 50 at nite so far. F 36 1 months
9/30/2004
 3  Migraine Prevention I started out at 25mg and worked up to 100mg which i just started 2 days ago. Minor tingling in hands and feet. Pop tastes flat and terrible but that's not such a bad thing since this medication slightly dehydrates you so you need to drink more water. I was on prozac before this to prevent my migraines which did not work at all and it actually made me depressed, made me lose 10 lbs in 1 month (which i didn't really need to lose since i only weighed 120 @ 5'6" to start) and just totally didn't feel like myself but i felt much better when i started on this....even after reading all of these horror stories on here. I have probably stayed about the same as far as the weight. My appetite has actually come back quite a bit but i don't seem to be putting the weight back on. I seemed a little clumsier than normal and forgot my pin# one day when i first started but was that from the medicine or just one of my normal blone moments???? I haven't experienced any of the horrible "stupidn (Cont.)I will say though, that my migraines are not GONE. They do seem to be getting more under control. I can now take a normal over the counter medicing like Tylenol or Motrin to get rid of them (which NEVER would have worked before) and sometimes they even go away on there own!! Medication affects everyone differentyl. You won't know until you try. Feel free to email me if you have any questions! F 25 1 months
1/10/2007
 3  anxiety tingly feet, difficulty concentrating, insomnia, no weight loss yet but I'm hoping Wow what a relief to see other people say that pop tasted flat, I actually thought that happened because I was sick, because it started after I got better, which coincided with when I started taking the Topamax, although I'm starting to taste the carbonation again. F 25 1 months
3/5/2007
 3  migraine and weigh loss My doctor describe me this medicine but I had no idea it was such a strong pill and with so many side effects i have been searching the internet all night because i have never taken any medication for anything in my life,this is my first time,i was having a lot of headaches ,maybe anxiety ,stress went I went to the doctor,i was working and i would feel sick and almost passed out,lots of pain in my head... around my eyes, like my head was going to explode,plus i gained 35 pounds i transformed... So she said this medicine will be good for me. Now i have been feeling really weird lately i cant sleep at all for like 3 weeks, my eyes are wide open all night long i wait for my alarm every morning.i am so tired but cant fall sleep. everytime i take the med my eyes twitch its so annoying , i feel a little depressed and dont wanna do anything.After I eat i feel the food stuck in my throat.but thats good cause I need to lose weight anyways.i just wanna sleep im going to see my doc on dec 10 and i think im dont wanna take it anymore i dont feel good about taking meds anyways,its not natural,its not me, my headaches are gone and i dont feel sick anymore.... so.... its confusing... i dont know what to do.... im going crazy if i dont sleep!!!!!!!!!!!!! M 31 1 months
100 mg 1X day
11/26/2010
 3  MIGRAINES ANXIETY, DEPRESSION, FATIGUE, SOME MOOD PROBLEMS... I have had some headaches since but nothing compared to what I had before starting Topamax. Although the side effects have made me wonder.. The depression has been pretty severe at times.. I just started the full dose and I am going to give myself some more time to get used to the full dose before I decide whether to stay on it or come off bc the benefit of being on it far outweighs the side effects as of right now.. F 34 1 months
50 2X day
3/28/2011
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