TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  Bipolar II disorder tingling in fingers/toes, shuddering, memory loss that centering on people's names, lack of interest in food (taste perversion) some spaciness, tiredness I have been on this medication, as a complement to Lithium down-titration, for about 2 weeks. I can't believe how much better I feel already. I suffer from lots of OCD type ruminations which have begun to lift. I'm really glad to be on it. F 34 16 days
12/28/2005
 4  daily headaches, nerve pain intermittent tingling in hands and feet, especially the heels; numb nose, eyebrows and around my lips about an hour after taking (that feels really weird!); slight loss of appetite; trouble sleeping at first but that went away after the first week; a little bit of trouble with forgetting words Wow! not a single headache since I started this medication, and I had gone for years with headaches every day. Topamax is awesome for headaches. The weird part, is that its prescribed also for the nerve pain in my arm, but is causing similar tingling in my other arm and feet now, but I'll take that over headaches any day. I haven't had any weight loss yet, but I hope it happens! I've definitely lost some of my appetite. That would be a nice..uh..I can't think of the word I want to write here...haha...oh well. F 31 16 days
9/30/2008
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 3  Migraines, vestibular &/or Meniere' tingling/numbness in fingertips, Have had migraines for years. Recently had sudden symptoms of either Meniere's or vestibular migraines. Doctor prescribed Topomax as result. Working up to dosage of 100 MG. I am extremely grateful to have found this site, because all my symptoms are described here! F 51 16 days
4/26/2005
 3  Migraines and daily visual auras ITCHING?! Did anyone else experience itching!! Other than that i agree with everyone else. I was on a low dose but I still felt some of the mind numbing, insomnia, and "gently upset stomach. F 25 16 days
10/3/2006
 4  migraines weight loss,tingling in the hands and feet,tiredness,loss of memory It took my migraines away. I was having them 2/3 times per week and couln't deal with life and now I can. The only ones it hasn't helped with is the hormonal ones,we need to work on that. I will not stop taking topamax. I tried once and my headaches came right back. Side effects will be a part of my life,headaches will not. If anyone reads this and can answer:When they were taking topamax did they seem to "level-off" on a dosage or need to go up continually? F 31 15 days
4/16/2006
 4  Adjunct for depression Appetite reduction The GOOD: - Didnt necessarily increase mood in a euphoric sense, but made me much more mellow. I would never get upset or aggressive at anything. - Increased lbido - Decreased headaches (I don't have migraines but I do have daily headaches and this got rid of them and enables much more sleep). The BAD: To be honest, only the appetite loss really bothered me. On 50mg, it was a bit too much for me and I found I was actually finding it harder to sleep. However, once I got down to 25 that was the sweet spot. But, since im a guy , the appetite loss wasn't wanted as I was starting to lose weight and thus finally weaned off. M 15 days
25 1X day
11/20/2012
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 4  Migraines w/Aura, Tremors Tingling in feet and finger tips, forgetfulness, drowsiness Has helped tremendously with my migraines. Not so much with my tremors. The tingling comes and goes so it is not too bad. My appetite has decreased and I have lost abt 5lbs. Hopefully I will lose more as I can stand to shed abt 20 lbs. I sleep better at night and recommend taking this at bedtime as it knocks me out cold. F 36 15 days
25 mg 2X day
9/11/2013
 3  migraines/chronic headaches dizziness, lightheadedness, spaced-out in the first few days of taking it. Lost train of thought in middle of sentence. Often sat in front of something and couldn't figure out what I was supposed to be doing. Started out at 25 mg 1st week, 50 mg 2nd week, 75 mg 3rd week. Headaches still coming but willing to give topamax a try. F 38 15 days
11/30/2006
 1  Migraines/ Chiari Malformation Dry mouth, nausea, tingling in hands and feet, confusion, personality change, depression, anger, involuntary movements in face, diarrhea *two hour digestion*, weight loss, memory loss, sleeplessness, shortness of breath, delusions, tracers, trouble reading aloud, trouble finding words, sinus infection, eye infection, back pain, euphoria, taste change. After 11 days on this medication, my entire face starting twitching. It did so for 10 hours straight. My 4 year long headaches had stopped after 5 days which put me at a state of complete euphoria. It brainwashed me into thinking that the side effects were normal and would go away. I lost 10 lbs in one week from starving. The biggest meal I had was crackers with turkey and cheese. I cried every single day for two weeks. I even cried when the doctor told me to stop taking it. I am still searching for my sanity. I don't feel like myself anymore. This drug changes you. It makes you stupid that way you don't realize how bad it is affecting you. F 22 15 days
7/30/2006
 5  Scizo-Effective Disorder Wieght Loss, Memory Loss, Loss Of Appetite, And Confused Sometimes I Have Not Really Been Taking Topamax For A While. But I Am 5'7" And I Weigh About 190 lbs. I Hear That It Also Helps You Lose Wieght. If Anyone Wants To E-Mail Me About That Subject Please Do So. M 16 14 days
6/28/2006
 5  Migraines/Chronic Headaches Tingling/Numb Feeling in Hands...not all the time though. Feet go numb, esp. in my heels and is a little painful at times. I've had bouts of fatigue. Definate periods of confusion..can't think. Don't know how to explain it. Forget what your talking about in the middle of a story. Not to the point that you can't function..not like that at all..just to the point to get on your nerves! I've noticed I'm more irritable at times..a little moody. Not all the time though. I've had some heartburn. Pop by the 3rd day tasted HORRIBLE..like lead! I drink Iced tea, lemonade or water now. I have not lost my appetite at all. My stomache does feel slighty upset at times but not bad. I'm now on 50 mg daily but each week I will go up 25my util I reach 100mg. My headaches are gone. I can't believe it. I was extremley hesistant to start Topamax after reading all of the side effects. So far, it's working for me. I suffered from headaches 4-5 days a week for years and finally decided to do something about i It has really helped me. F 35 14 days
6/2/2006
 5  Abscence Seizure & Memory Loss So far none other then very mild tingling of fingers. Some loss of appetite. The first day was a little strange, e.g. when riding in a car, I felt passing cars were going 150 miles per hour. This is the only distortion I experienced and it was for the first day only. I was very apprehensive about taking this drug after reading about the side effects. I had not taken any drug for seizure before. For two weeks I've noticed I have more energy during the day, have no trouble sleeping (tho I woke about every 2 hours the first 2 nights). This drug is really helping me. All the possible side effects: brain fog, memory loss, etc..were problems I had unmedicated. I think it is possible Topamax has added something to my psyche that was lacking. I do not feel as depressed and my tendency toward chronic worrying has abated. I am currently on a low dose and may not need more, according to my neurologist. F 57 14 days
10/26/2006
 5  migraines,binge eating loss of appetite, weight loss This is amazing!!! I haven't had a headache or had an eating binge since day one!! My mood is better! My family can see a difference in my attitude. I feel like a new person! I can't wait to see my Dr. and give her a big hug!!! F 38 14 days
25mg 2X day
5/1/2010
 5  chronic migraines, basilar migraine difficulty finding words, dizziness, soda tases funny--not a problem, I live in the South and drink tea instead :D I've had migraines since I was 5; over the last two years they became pretty much constant, I'd usually go blind in one eye, sometimes have stroke symptoms. I've been taking 50mg Zoloft and an aspirin a day (got rid of the auras, but still daily migraines). Since I started taking 50mg Topamax a day (in addition to the Zoloft), I haven't had a single migraine or anything. I had forgotten what it was like to be able to just go to class and walk around without worrying about getting sick. The side effects are NOTHING compared to what I was dealing with daily. (Drawing a blank << Aphasia) Hooray Topamax! F 20 14 days
5/1/2006
 5  migrain prophylaxis Electric tingling in hands and face with a trailing sensation. Great appetite controll. Soda tastes flat. Apples taste like burnt plastic. Cardamon tastes like moth balls. Went from having 5 migrains a week to having one in 14 days and I haven't finished titraiting up the dose. Started at 25 mg twice a day for 1 week, and will end up at 50 mg twice a day. Tingling dissapears after 2nd dose each time I increase dose. F 35 14 days
1/16/2009
 4  cerebellar tremor and paresthesias fatigue, aggressive and hostile behavior, loss of words, generalized malaise (just not feeling well), i am getting headaches when i wake up and in the evening, not migraine, is it related to the topamax? I started on 12.5 mg at night and the effect on the paresthesias was amazing. I had been unable to sleep at for almost two weeks because of the intense burning pain and muscle cramps in my legs from loss of nerve innervation. The first night on 12.5 mg I could sleep and the next day my tremor was significantly reduced to the point that i could perform surgery. For me it was a miracle. F 55 14 days
7/16/2009
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 4  Migraines Nightmares. The most realistic I have ever had. They stopped when I stopped taking the Topamax. F 51 14 days
9/5/2006
 4  migrains Food tastes metallic,extermely thirsty,sinus infection,floaters in eyes, blurry sight, can't read out loud { miss words, mistake words} slurred speech, increased fibromylgia symptoms I was on 25 mg 2 x per day for the last 2 years with no side effects and good contol of migrains until 3 weeks ago. My doc upped my dose. My migrains have gone away but the side effects have appeared. Unfortunatly my migrains are worse than the side effects but not by much, so I will keep on the topamax for awhile longer and see if the side effects go away or get better. I wish there was something else that worked this well for migraines but didn't have all the side effect. F 44 14 days
50mg 2X day
9/27/2011
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 3  Chronic pain/bladder disorder I've had this problem with another medication, but I've noticed that it has intensified since I've started taking 50 mg of topamax: my left leg literally loses function in the morning sometimes, it's the strangest thing. I can walk a few steps, then I have to take a break for a few minutes, then walk a few more steps. My ankle gives out and I can't walk at all. Has anyone else ever experienced anything like this? F 38 14 days
3/7/2007
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 3  nerve pain Pins and needles in feet and lips. Memory problems. Loss of appetite. Carbonated drinks disgusting. I am being weaned off of Gabapentin because of its side effects (memory loss - a friend's husband who is also on it calls it CRAFT - Can't remember a flippin' thing) and am finding that it's the same with the Topamax. As soon as somebody says something I have no idea what it just was sometimes. Pins and needles are quite bad in the feet from the Topamax so I'm really hoping that goes. The main reason, I believe, the pain clinic doc decided to switch me over was the weight gain from the Gabapentin which seemed to really bother him more than me, though I certainly was less than thrilled, but he seemed like one of those docs, and to that end I seem to have very little desire to eat anymore. Haven't weighed myself because I am somewhat in denial about what I actually weigh but I know I'm eating less. Sodapop is just foul on Topamax. I guess it's water now. F 41 14 days
10/6/2007
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