TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | migraines | Rapid weight loss--ten pounds in one month--I liked that, no appetitie, diarrea, anxiety attacks, sadness, deep depression, mental fog, word and name loss, pessimism, anger, suicidal thoughts, insomnia, crying, loss of interest in sex and love and other things that used to be important to me. | I have never felt so lost, frightened, miserable, and so unlike myself. The weight loss is great, and I am not popping a zomig or an imitrex or an axert every day (it's also winter, and I have fewer headaches during the winter). I tried topamax a year ago at the suggestion of my neurologist, but I quit because I thought it was giving me anxiety attacks. We tried it again. I think I was terribly naive to give it another shot. I can't stop crying, and I don't feel functional. I have trouble recognizing myself. I think this medication is playing a dangerous game with my biochemistry, and that is too steep a price for migraine relief. | F | 37 | 33 days | 1/4/2005 | 4 | Migraines | Tingling, taste changes | F | 31 | 32 days | 5/23/2008 | 4 | Chronic Daily Headache | Minor tingling in feet, minor problem finding words early in dosage, constipation, 5lb weight loss in one month (not a bad thing) | I believe the key to mitigating the side effects is slow increase in dosage. My first try was 25 mg at a time and it was a disaster - new Doc and 15mg at a time for a week with a goal of 100 mg has been much more manageable. Now at 100mg, and after suffering for 4 years I am no longer having daily headache. | F | 38 | 31 days | 6/2/2007 | 1 | Seizures, Brain Mass | Started out as extreme tiredness, which I can't complain about too much seeing as I've had insomnia since I was 8. So that's not too bad but the med's have been making me extremely moody and irritable which aren't good at all. I can't be around too much talking or I get annoyed easily and just want everyone to go away. Besides that they've been giving me extreme headaches(even though the doctors said they were headache medications too). But the main thing I am focused on is the pain. For the past two weeks it hasn't been nearly as easy to breath, if I had to guess what it's like to have asthma, this would be it. I have a constant cough when I breath and If I work too hard at work my breathing turns into heaving. My muscles feel like they barely work at all. And there is a sharp shooting pain in my upper abdomen area. I'm not 100% sure if these are things that will fade out in time or not, again I've only been on the medicine for a month. Everything seems to fluctuate except the breathi | They should be nicknamed the "succubus" pills. Because they suck the life out of you.... | F | 20 | 31 days 25mg 4X day | 4/9/2016 | 5 | Migraines/ possible pressure pain | Soda taste horrible(good thing), Loss of appetite(LOVE IT!), Insomnia(had a touch of this b4 topamax so not sure if this caused it or not), Tingling in hands and feet(doesn't bother me that much) increase in blurry vision | If there is a wonder drug THIS IS IT! I have had migraines since age 12. Daily since my 2nd child at age 21, developed pseudotumor cerebri while prego and had to a lumbar shunt in Oct 2007, stopped spinal fluid from building up and pressure headaches for the most part but i still had daily headaches...been on topamax for about a month and I will swear by it....I don't think i will EVER come off of this med...i take 50mg in the morning and 50mg at night and will increase if need be...pls feel free to email me with ANY questions on migraines/headaches/pseudotumor cerebri meds i have tried....I HAVE TRIED THEM ALL | F | 23 | 30 days | 3/31/2008 | 5 | Vestibular disorders | Diarrhea Tingling feet and fingers Words loss | 57 | 30 days 100 mg | 11/20/2019 | 5 | alcoholism & migraines | A not unpleasant tingling in the feet, and difficulty comprehending simple concepts, which went away when I lowered the dosage and spread it out, and a kind of spacey feeling that also diminished when I lowered the dosage. Also some loss of sexual desire. | As far as alcohol goes I find with the topomax I have really lost all desire for it. A long time ago I cut out a clipping about a study done using it w/some alcoholics & how they either quit or cut back dramatically. This is what a boozer loves to hear because he wants nothing more than to have his cake and eat it too. Thank God that so far I haven't had any severe side effects. I lost count of how many times I went on the wagon and wound up drinking again. Seven years ago I passed out at the top of the stairs and landed at the bottom w/out even putting my arms out to break my fall, so, yeah, I got daily migraines, & although not 100% perfectly the topomax has helped me with that too. | M | 54 | 30 days | 10/20/2004 | 5 | depression, fibromyalgia | tingling in hands and feet, weight loss , loss of appetite, which was great because the ssri drugs packed on 40 40lbs, insomnia too, but thats also my other med issues cant blame it on the topamx the fibromyalgia is a slep disorder, if anything it calms me. | i am taking 100 mg twice daily...i am thrilled so far if it changes Ill re visit this site | F | 31 | 30 days | 8/7/2005 | 4 | migraines | Feeling | I tried it before but did not give it a chance. I am taking 75mg a day and am working my way to 200mg a day. It has helped my migraines a great deal. I was taking maxalt and relpax as if they were m&m's. Have'nt needed any since starting topamax. tylenol has been helping. I think I will stick the side effects out. | F | 34 | 30 days | 11/19/2004 | 4 | Binge eating | The first couple of days I took Topamax, I didn't take the pills with food (my mistake) and I experienced blurred vision, balance issues, tingling in my hands and thighs, extremely tired, and was overall very nauseous. Once I started taking the pills with food and making sure to drink plenty of water, I have noticed the vision side effects getting better as has the tingling. The tingling is still happening, though not as bad. What has gotten worse is the nausea and persistent upper respiratory issues. I was feeling so sick with a low grade fever, my throat was sore, congested, and I had started to develop a serious gag reflex when brushing my teeth. I went to urgent care and all my tests came back negative. I went to an ENT, everything looked fine. Primary said it was potentially just the Topamax. The Topamax has been so incredibly successful in aiding my binge eating that I'm going to stick with it for now. I used to eat 3-4000 calories a day in fast food and since I've started this drug I haven't had fast food once. I have lost weight on it and feel I have found some control with eating finally. | F | 34 | 30 days 100 mg 2X day | 10/9/2020 | 4 | Migraines | Tingling fingers, decreased appetite at first, and then a strange appetite, some memory loss, irritable, drowsiness. | After about 3 years of constant and almost daily debilitating migraines and bi-weekly visits to a chiropractor, I was pointed to the direction of a neurologist. She suggested I try out Topamax and advised me to start out with 25 mg and then move up to 50 mg a day. Almost immediately, my migraines have stopped. I now get them very infrequently and I suppose the side effects are totaly worth it because it is so annoying to have a migraine every single day of your life, from the moment you wake. The first week, I wasn't hungry at all it seemed and then my appetite came back. Sometimes I feel really hungry now but sometimes I feel I cannot eat. It hasn't effected my weight, though. I am pretty slender though. It does make me drowsy soon after I take it so I take it at night. I do find that I am pretty irritable, though, like I have some minor mood swings. Anyone else? | F | 27 | 30 days | 3/3/2008 | 4 | migraines | tingling in hands and feet, awful taste if I try to drink soda, tongue feels like I burnt on hot coffee all the time, aggressive, weight loss | started at 25 mg and built up to 100mg. After 1st week headaches were gone. It was pretty amazing. Lost 13 lbs first 2 weeks. Some of the side effects are really frustrating but to go from constant, severe headaches to none for 3 weeks I can live with the side effects so far | F | 36 | 30 days | 4/30/2009 | 3 | cluster headaches | inability to concentrate, fatigue, failure to find correct words when speaking, numbness in fingers, toes, lips. | M | 43 | 30 days | 2/25/2009 | 3 | migraines | eye twitching, pins and needles/numbness in extremities, minor weight loss, weird vision things | i have been on and off of topamax for the last few years. i truly suffer from terrible migraines and am at a loss for what to do. i am giving it one more shot. in the past i've had similar side effects, but more weight loss and never the eye twitching issue before. has anyone had migraine success with topamax? has anything helped the side effects? potassium supplements used to help with the tingling, so i'm hoping it helps again with the twitching. please contact me [email protected] if you have any insight. | F | 25 | 30 days | 4/2/2009 | 3 | Migraines | Nausea, stomach cramps, loss of appetite, coke and pepsi taste flat, my spelling could be better, gastrointestinal issues | I'm currently up to 100mg a day and have been on Topamax for a month now. I didn't realize that the stomach cramps and gastrointestinal issues were side effects from this medication until I came here and saw others were having the same problems. The naseau has pretty much gone away, it was really only the 1st couple of weeks, especially if I forgot to eat, which would happen because I didn't have much of an appetite. Anyhow, my husband and I just decided to try for our second baby so I'm going off of this med... which by the sound of it I probably should anyway with all these bad side effects. I certainly don't want my hair falling out. I noticed it a little so far and I don't want to lose anymore. | F | 30 | 30 days | 1/9/2009 | 3 | Migraines | I started Topamax at 25 mg a week then worked my way to 100. I did not get one headache for the entire month. I also cried everyday, I was really moody and didnt even feel like myself.I let it go because I wasnt getting the headaches and thought the feelings would go away. I then lost 6 lbs ( not that I was upset about that). I had no desire to eat. My crying and mood swings were interfering with my everyday life with my family and they were seeing a change. I am an avid runner and couldnt even walk up the stairs without a shortness of breath. I again thought this would go away. I had this really weird feeling about me, I would drive my kids to school and feel like I had been driving all day. I had to go off. | My doctor now wants to put me on Zonegran. Does anyone have any suggestions? Will I get the same side effects? I am afraid. I think I would rather have the headaches, than to be so sad all the time. | F | 34 | 30 days | 11/30/2004 | 3 | Bipolar/Alcoholism | Craving for alcohol instantly gone! Metallic tastein mouth in foods or with smells from inscense , carbonated beverages taste nasty and metallic. Poor spelling,poor speaking,poor communication. Memory loss muscle weakness | I speak stupidly even when I am explaining topics that I have a great deal of knowledge and expertise in. I can not spell, and I am loosing my edge at work. But I was loosing my edge at work from the problems that alcoholism was causing anyway. I just feel like sitting at my desk in a daze rather than moving actively through the office | F | 29 | 30 days | 2/8/2006 | 3 | Weight loss & blood pressure | Blurred vision, dry eyes, and worse of all my wife says every single day "you need a shower! " even though I just took a shower. It's the metalic aroma permeating thru my body. I work in a office and have to spray Lysol before someone comes in because I stink so bad from the Topamax, but I am loosing weight and my blood presure is under control. Peeeyooo, what a way to have to do it though!!! My skin stinks metalic. Went to an eye doctor for the blurred vision. He said eyes are ok, no Glaucoma, no Macular degeneration. Advised me to use Liquid Tears. Made no connection to Topamax! Your medical dollar$ at work!! Go figure. | I think this is a good drug. but wow, what side effects. Regular blood pressure medications didn't work very well on me, but this seems to work fine, but oh, the smell. I now have a lot of respect for the East Indians who eat curry and work in the enclosed offices. | M | 68 | 30 days | 12/8/2007 | 3 | Vertigo | Tingling fingers and toes, typically in am and pm. Trouble sleeping once built up to full-dose on drug. Trouble articulating words and speaking intelligently. It took me down a few IQ points! | Was having un-explained vertigo ... after MRI, CT Scan, COW, MRA tests, etc. Dr. suggested we start throwing different drugs at the vertigo to see what makes it stop. Pos: The Topamax did stop the vertigo/dizziness. Neg: It impacted by abiltity to speak clearly, I often reversed by sentences or couldn't remember how to even articulate or spell a word. | F | 35 | 30 days | 2/28/2005 | 3 | Headaches | Sexual Side Effects. No orgasm and PreMature | Experiancing loss of desire in sex and climax and finish premature. Feel nothing "Orgasm" | M | 38 | 30 days | 10/5/2005 |