TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | migraines | Insomnia (need to take full dose in AM), weight loss, tingling in feet (counteract with fluids), difficulty finding correct words, constipation (DRINK AS MUCH WATER AS YOU CAN AND EAT FIBER), and apathy. | if your going to take this drug, you need to ramp up slowly. you also need to drink a LOT of water and eliminate as much caffeine as possible or the tingling will drive you insane. I am the opposite of most people, the topa keeps me from sleeping at night. if i take any of my 100 mg past 8am, i will be up all night unable to sleep. it is the same with my pain meds which wire me instead of knocking me on my butt like they do most other people. also a word of caution: never go off topa cold turkey! i had to one time because i ran out (could not afford refill) and went without for a couple months. i became seriously suicidal and had it all planned out. even had written my own obituary. obviously i got my next bottle in time, i'm still here. | F | 35 | 2 years | 9/7/2007 | 4 | Migraine | fatigue, confusion, memory loss | I have been on topamax for about two years now. I was gradually ramped up to 100 mg a day and had to take them at night b/c they made me so sleepy. I have to complain only about the memory loss and confusion. I feel like a complete air head, and it has affected my work performance in a serious way. I have been "written up" for forgetting to do basic daily tasks that are the basis of my job, and extremely important. I just space out and stare off into space. My boss says my eyes "glaze over" when he's talking to me and it makes him crazy. I've tried to explain to him that these are side effects of my medication, but, he doesn't want excuses. He wants me to do my job, and I want to be able to do my job. My self esteem is suffering a great deal, and I have gone back to some self harm behaviors and depression that were being controlled by Cymbalta. I am going back to my doctor as soon as I can to see if we can adjust dosage to get me out of my stupor, b/c the | F | 37 | 2 years | 11/28/2007 | 4 | migraines | tingling of toes and finger tips; occasional moments of "I can't remember...but it's on the tip of my tongue." I have lost weight very gradually. I cannot say I have experienced any depression. | I started on 25mg topamax nearly 2 years ago, then was increased to 50 mg. I still have the occasional migraine around period time but all in all my migraines are no where near as often as they were without the drug. And when I do feel a 'headache' coming on I generally take some ibuprofen and for the most part that is all I need to help it go away. I know that I could probably have migraines even on a lesser frequency if the dosage were upped even more, but I'm fine dealing with the minor side effects I have now. I pride myself on my vocabulary - it's hard talking to someone and not being able to spit out a word when you need it!! But...it's also nice not to have migraines too! | F | 36 | 2 years | 11/14/2007 | 4 | Severe Migraines | Tingling in Hands, and face, Soda tasted strange. Side effects dissipated after a few weeks. | Before taking topamax i would get 4 migraines a week lasting 12-18 hours even sometimes even with imitrex injections. Now during a bad month i'll get 4-6 total. I was on the lowest dose 50mg 2x a day, but i have now been moved to 100mg 2x a day. there are other drugs out there but this has been extremely effective for me. | M | 25 | 2 years | 12/12/2007 | 4 | seizure | erectile dysfunction | M | 34 | 2 years | 2/4/2005 | 4 | for bi polar mood swings | weight loss, memory loss short term, | This drug is great for this condition, I lost weight. I had tried several others but this is best, they say it might cause kidney stones so we are watching that. My mood is stable & no irrational or overreactions. | F | 54 | 2 years | 9/3/2002 | 4 | daily chronic headaches | tingling hands and fingers, loss of words, difficulty talking | I was hestiate about taking Topamax (all the bad side effects)but after trying so many other drugs, I was ready to try anything. Besides all the side effects, this is the best I have felt in 7 years. I am at least functional in the world- sometimes I can't find the words to actually say what I want to say but I am no longer laying on the coach or have my head pinned between two pillows because of all the pain. I am not painfree but I am at least among the living :) | F | 42 | 2 years | 3/12/2007 | 4 | migraines for 23 yrs | When I first started taking topamax (topirmate) at 50 mil a day I felt the tingling and the had a blurry vision with huge amount of visual disturbances night and day.(ALSO WHILE DRIVING SCARY!) I also have had 60 over pounds of weight loss from 210 to 140 and I'm 5'9 now that I'm up to 150 mil a day, I never feel like eating and nothing really sounds good to eat. I'm completely tired all the time and don't feel like doing anything at all. My migraines have not subsided completely I decided trying botox injections, which have helped so far. I do have the nasuea and very dizzy all the time. My hair has thinned and I have had a loss of short term memory, and will be quick to snap because my demeanor has changed...I'm not the same active friendly person I used to be. | You'll know after like 3 weeks or a month of taking this medicine whether or not it fits you...if the benefits out weigh the side effects then continue if not stop now....I've taken it for over a year and a half almost two years can't really remember lol not so funny actually...but Ya thats all folks | F | 25 | 2 years | 8/21/2007 | 4 | Depression, Weight Loss | After taking Topamax with great results for almost 2 years, the past 2 months I've been having terrible side effects: Double vision and extreme fatigue. I recently was on a vegan diet for a few months but went off that thinking it was that. It didn't seem to be the diet. I went to my primary Dr who did bloodwork on me to rule out basic problems and there were none. The only thing I could figure out was my medications. I contacted my Dr who prescribed the Topamax and he reduced my dosage from 100mg to 50 immediately. | Topamax has worked well along with my anti-depressants for over 2 years. My moods are stabilized and most of my not so harmful but annoying obsessions are in control! Weight loss is an added benefit. However, the fogginess and loss of words makes me think that I am not 44 years old but more like 74!!!! My husband has to help me remember names. This shouldn't be the way to live. I hope that by reducing this Topamax and eventually getting off I'll get rid of this double vision.....as Topamax may NOT be the cause. If it's not, then I'll have to look for answers else where. I mean, after 2 years, how could I all of a sudden have double vision? Email me if you have any ideas or help. | F | 44 | 2 years | 10/3/2008 | 4 | Migraines | Kidney stones - they were so severe that I had to be operated on (lithotripsy). Also experienced heartburn. | Decreased the number and severity of migraines. | F | 24 | 2 years | 1/19/2007 | 4 | severe migraines | I was in a bit of a "confused state of mind" the first month while aclimating to the meds but that went away when my body adjusted to the medication. Also had tingling in my feet. Had some weight loss but that didn't happen right away. | This has been a wonderful drug for me. I was experienced 10-15 migraines/month...at my worse 20. Now there are times when I have none. I also have been recently diagnosed with lupus so I'm sure the migraines are part of that disease but the migraines need to be treated separately. | F | 44 | 2 years | 2/26/2008 | 4 | BPD | Complete and total weight loss!100 lbs. Brain laps occainionally, like words will be missing from sentences. or sensless confusion. Forgetting things I learned in highschool--such as spelling.Massive hairloss-100-200 strands a day. I can eat any thing I want to but in the morning I wake up and I'm back to my 95 lbs. frame I was the morning before. | The scary thing is you never stop losing weight with this drug. Recently I've had to move from 200mgs. a day to 200mgs. every 3-5 days to avoid getting to thin at 5'1. I would only recomend it to certain candiates. | F | 26 | 2 years | 5/20/2008 | 4 | Migraine | weight loss, 30 lbs, loss of sex drive, I have zero interest in sex , fatigue at first with some confusion. Stopped the migraines mostly though after 2 years I am having to go in to get adjusted since they are coming back. | Fear I might be forcing my husband into having a purely sexual affair. He told me six months ago to either find a way to get some drive back or find a new medication so that he can feel he is loved and have the affection he needs. He's been very, very patient so you need to be aware that the lose of sex drive is zero. Talked with my doctor and he really didn't offer any advice other than it the migraines are gone, then the loss of sex drive is the cost. | F | 41 | 2 years | 7/10/2008 | 4 | severe migraines and TN | tingling of hands and feet first few weeks...some hair falling out as dosage exceeded 200 mg. (I am now on 400 mg) Problems spelling, short term memory loss (bad!) I sometimes forget my address and city, phone number but it passes. Speech is sometimes slurred..I lose my words. Despite this I am relieved of what was very extreme pain and suffering My migraines are greatly reduced..My trigiminal neuralgia is turned down from a 10 to 1-4. I am SO thankful. Topomax is not perfect but it is better than a life of hell. I was unable to eat due to the pain I was in and was losing weight so either way I am having to watch the weight loss...I try remind myself to eat. At least eating does not cause mortal pain. I do have EXTREME fatigue and get sleepy everytime I get still..I can fall asleep anytime I am sitting and I hate that. I try to keep moving..because I am so brain dead and tired I am unable to work but I am SO THANKFUL to be out of pain I just APPRECIATE this medication...I appre | After so many years of suffering...despite some side effects I am just very THANKFUL...the side effects are a small price to pay for the pain relief...THANK YOU! | F | 51 | 2 years | 6/7/2008 | 4 | migraines & sleepwalking | short term memory loss or having words "right on the tip of my tongue" but not being able to think of the word. | Topomax has been very successful for me, as it has allowed me to treat both my migraines and my sleep disorder with one drug. I have kept a mirgaine log for a few years, and I used to have 40-50 migraines a year and I only had 9 last year. The only downside is having trouble getting out the right word a lot of time. It is like my vocab is stuck. Probably not a good drug for a child or someone still in school where they would struggle, as I am always having to cover for it at work. But the benefits for me, are worth it. | F | 36 | 2 years | 8/6/2008 | 4 | Migraines / daily headaches | Initial tingling in hands and feet. More recently (after 2 years) hair loss. I have had trouble with kidney stones my whole adult life, but have not had issues while on Topamax - knock on wood! | It has helped me significantly. I still need nerve blocks to ward off the migraines as well, but far less frequently - and I can go several days without a normal headache. | F | 34 | 2 years | 8/28/2008 | 4 | migraines | Tingling, loss of appetite, thirst | I'm really bad about taking my medicine so my only wish is that this came in a monthly shot. But I went from curled up in my room not able to attend school, not able to see my friends or enjoy time with my family because I couldn't stand light or sound or smell nearly every day, to being able to function seminormally and full migraines have been reduced to a bi-monthly (on a good month) event rather than a nightly one. | F | 19 | 2 years 50 then100 | 3/27/2015 | 4 | Migraines | I started taking Topamax in Nov 2014 for Migraines.. Started out with 25mg then tapered up to now 100mg. At first I have the rapid heart beats but that went away. Then about a year ago started getting the tingling in my hands when it got cold. As soon as my hand warm up it goes away. Another plus, it has cut my migraines from avg. 15 a month to 4 a month . I did loose a lot of weight. Went from 145 to 108 in a year | F | 33 | 2 years 100mg | 8/29/2015 | 4 | Migraines AND seizures | tiredness, lethargy, drowsiness I am on 200mg a day and can't beleive anyone gets any relief from 25mg. The only thing I don't like about Topamax is that the migraines it doesn't prevent are 10x worse than migraines off, but I have 10x less frequent headaches, it's as if my head just stores up the pain. | I am blind and accidentally mixed-up my medicines overdosing on Topamax, and other than the lethargy and drowsiness this was the only time I had any side effects | F | 27 | 2 years | 11/22/2009 | 3 | Migraines | tingling,numbness in fingers, visual disturbances, bizarre spelling issues, weight loss (10 pounds) | The tingling was weird but tolerable. The visual disturbances were troublesome at night (I no longer could tolerate any glare while driving). Didn't mind the weight loss. Didn't tell doc this bizzarre thing, cause I thought she'd think I was nuts, but was always double typing/writing words in emails, or letters. In other words I would would write this! I thought I was nuts, but swear its from the med, once I stopped, it went away. It did help with my migraines though, suffered for many years with them. Was up to 100mg daily. | F | 33 | 2 years | 9/16/2009 |