TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Migraine prevention After 3 days of taking 25 mg of Topamax for migraine prevention, I could not handle the side effects. My head hurt all the time, my sight became blurry, my scalp felt crawly, I wanted to sleep all the time or just sit quietly and do nothing, my right eye twitched most of the time, I felt as if I had slight tremors, my head felt as if it was foggy, my husband said I had become "snippy" with people, and the worst....I was afraid to drive my children anywhere. I didn't feel capable of being aware enough to be responsible for their safety. The day after I stopped the medication, the sky looked exceptionally blue. I enjoyed talking with my kids and family. I felt alert. I felt like me. My profession is high school teacher. I began taking this during my summer break, about a month before school was to start. There is no way I could function with the side effects of this drug. I have now tried Amitriptyline and Topamax with no help, only horrible side effects. My search will continue. God bless to all who fight migraines. F 45 3 days
25 mg
7/26/2015
 1  Weight loss/ pseudo seizures EXTREME body pain (deep ache) and lethargy Tried a couple of years ago when docs thought I was having pseudo seizures and had those side effects. Then tried again bc it's part of the new weight loss drug, Qysmia. Days after I stopped taking it, I'm still having side effects. F 33 3 days
23
1/21/2015
 1  TIA due to a certain kind of migrai Dizzy, faint, magnified my normal symptoms im trying to control!! I was in and out of the ER 3 times this last weekend due to falling over and feeling faint. Coffee made me so shaky i had to lay down, pop and food in general is just gross and bland. After my last trio to the ER, we drove straight to my Neurologist and she told me to immediately stop taking it and is switching it. The withdrawals suck, but id rather deal with this..then another day of that! F 36 3 days
10/27/2015
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 1  migraine prevention Severe mood swings, agiation, mental impairment My now 20 year old daughter began taking Topamax a little over 3 years ago. She would take 50mg 2x a day- In June of this year-with her migraines coming more frequently and more painful she was put on 100mg 2x a day. Her moods became uncontrolable.She was married on July 18,2009-her husband was telling us that she would flip her switch-we blamed the stress of -college-job-newlywed-until we finally noticed how bad it had gotten and thought maybe she had some kind of mental issue-maybe a bipolar disorder-I called our insurance Health advocate-I did not know where to begin to get help-one of his first questions was what medications she was on-When I said Topamax- he said that is a mood elevator-lets start with that-me and her father were stunned-we look back and over the past 3 years and had failed to notice the gradual change in our daughter blaming many other things-highschool-boyfriends-adolesence, but were forced to when she started taking 200mg a day. Our daughter is 5'3'' and 104lbs-she was being overdosed. If we would have read the pamphlet and least one time- we would have seen the warnings right on the pamphlet/Mood Swings/Mental Impairment/Agitation/Possible Suicide..Suicide- Thank-God suicide did not happen. She is being weaned from it right now. It will be a 2 week weaning process and I don't know how long before this poision is out of her system. We look forward to seeing our daughter and her old self return. F 41 3 days
9/30/2009
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 1  chronic migraines extreme fatigue, confusion, blurred vision, watery eyes, nauesa, pain in chest and hands, disoriented Yes, I’ve only taken three doses of 25mg of this medication, but that’s enough. I started getting migraines when I was 8. I could manage them until about 8 months ago when I started getting them weekly and they started lasting several days. I finally saw a neurologist and he suggested this medication. I did all the right things – talked with the doctor about side effects and my medical history, talked with the pharmacist before leaving the drug store, and read the list of side effects. However, I had NO IDEA how severe the side effects would be. I took my first does at night then went to bed so I did not know how drowsy (not ‘dizzy’ as the labels says) I would become. I took my second does at 5:30am the next morning then went for my regular before work workout at the gym. By 7:15am, I thought I was going to pass out! I could hardly drive the 4 miles from my gym to my home! Luckily, I pass my job on the way home so I stopped by the job and sat for 4 hours u F 31 2.5 days
2/24/2007
 5  migraines Thinning of my hair. All other side effects go away after a couple weeks. only take 25mg at night. haven't had a migraine in 2 months. Sleep like a baby. No weight gain or loss. It's amazing to wake up without a headache. Started taking 6000mcg Biotin daily in hopes to stop the hair thinning. Going bald would not be an option.Dropped dose to 12mg a night, keeping my fingers crossed its enough to work and stop the hair thinning. F 43 2 days
6/11/2007
 5  Migraine Prevention for the first six months: extremities tingling, mental slowdown, feel drugged and lethargic, flat coke taste This drug saved my life. I could not function with the number of migraines I was experiencing monthly. I was prescribed Amerge and was taking 30 a month. Normal dosage should be no more than 4. I switched doctors and am grateful for Topomax. The neurologist told me if I had continued with the Amerge at that dosage I would likely have had a stroke. I can deal with the brain fog and other side effects better than the debilitating experience of a migraine. F 40 2 days
10/20/2007
 5  Chronic/ Daily Migraines Weight loss, Decreased appitite, pop tastes funny but like others i have switched to drinking water, hard time coming up with words sometimes I have had migraines since i was two years old. I have been on what seems like every drug on the planet earth and so far this is the only one that has brought me any sort of relief without horrible side effects. Depakote was the only other drug that helped but the side effects were so bad i couldn't stay on it. I love topamax and hope it keeps working for me. F 2 days
2/2/2006
 5  Bipolar/Migraine So far Ive only took 2 pills. I haven't had a single side effect. Little nervous. F 38 2 days
50 MG 1X day
10/17/2020
 4  migranes Very new medication and Ive only noticed an insane thirst in the middle of the night and takes awhile for me to wake up. F 34 2 days
25
7/18/2014
 4  migraines gas and being bloated So far I have not had a migraine or auras, but I still have mini headaches almost everyday. I did not know this was used for alcoholism. I binge drink on occasion and have cravings for alcohol. I have not wanted to drink since being on this medication. I am also on Lexapro for depression which supposed to do the same thing. I found it very interesting. I have not had any of the other side effects so far mentioned on this website. F 42 2 days
4/1/2008
 4  partial seizures a little sleepiness in first few weeks but went away I have a brain tumour which was the cause of seizures and was put on steroids to reduce swelling in brain which caused huge weight gain. Tegretol & Dilantin were unsuccessful then my neurologist put me on TOPAMAX and within a few days I noticed settling in my symptoms also my moods had stabilised which was another affect of where my tumour is and the best thing - in 10 days I had lost 14KGs of weight!!! F 38 2 days
6/21/2008
 4  migrane hairloss!!! has is anyone trying the generic form of topamax? topiramite?? I have noticed an increased in appetite? am I the exception to the rule here? everyone is talking about losing weight F 36 2 days
5/14/2009
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 3  Migraines You know, today is only the second day I have taken it and I took a two day break before the second pill. My doctor prescribed my first dose at 100 mg and I thought I was going to end up in the hospital. I had no idea what was happening to me. My face was numb, I didnt know where i was, I ended up leaving work for a brief time and driving to the store and not even knowing it. I was really scared. So I took a break for the weekend and doctor told me to take only 50mg. Not so bad today. Still confused a little, numb and tingly in my face. Soda taste really really bad. I know it is still a little too early to submit a rating but find it interesting how I am feeling alot of what everyone else is. F 34 2 days
5/6/2008
Email
 3  migraine headaches Took it before bed couldn't sleep well I. Think it's because I was worried about the side effects. Woke up dizzy foggy then mood was good one minute. Next I was angry so angry. Don't know what to do wait it out or stop use any answers. looking forward to weight loss if it's true because I really have slow metabolism due to thyroid, but kinda ify, F 44 2 days
25
10/3/2015
Email
 3  Gained too much Weight 50mg at night/25mg day Taking Topomax because I gained over 30pound due to taking Zyprexa. only my 2nd day taking Topomax. felt fine yesterday(day 1) feel a little hungover today. fuzzy, carbonated drinks taste flat, dry mouth. no pins and needles though. Will Soldier through though and see how long the effects last F 35 2 days
75mg 1X day
7/13/2016
 3  Migraine Memory, dizziness, inability to focus, some blurry and double vision. I had pain level 10 headaches, right side weakness like stroke. After 6 months of scans and dr visits determined I had migraines. Topomax allowed me to start functioning better almost immediately but it does have lots of nuisance side effects for patients to consider M 55 2 days
100 mg
10/10/2019
Email
 3  Migraines Tingling in hands and feet, ringing in ears-not sure if this is normal or not.loss of words, difficulty in concentrating. Haven't experienced weight loss. Maybe because my doss is not high enough. Has anyone else had the ringing in the ears??? It's beginning to drive me crazy. This would be the one reason I go off this drug. Other than that it seems to be working. F 34 2 days
2/7/2007
Email
 2  Cyclothymia (Mood Disorder) I've only been taking this medication for 2 days so of course it isn't long enough to kick in completely. However, The past two days I've been experiencing extreme exhaustion. I take the pill around 2pm and by 6:30pm I'm fighting to stay awake. Going to give it a while longer but I am unsure of whether this one is going to work for me. F 26 2 days
50mg 2X day
2/19/2012
 2  migraine I have only taken two 25mg.so far. I already feel awful, I can't think, I feel sick to my stomach and dizzy. I spent yesterday in tears and today I cannot seem to put a thought together. I am a very active happy person. I have suffered with migraines and cluster headaches all my life. I have never taken anything like topamax before. Reading the side effects is one thing and experiencing them is quite another. I am scared of the long term effects and I'm not sure if I should continue this drug! F 45 2 days
6/28/2007

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