TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 2 | Silent Migraines | tingling in hands and feet to thighs, tingling in lips, dizziness, tingling in lips, and face, nausea, fogginess, headache, diarrhea | I was dx by my Neuro doc with silent migraines. I started this drug , tapering it up over a months time to 100 mgs. I have been on 100 mgs a day for 3 days now. The side effects are now nausea after eating, diarrhea, cramps sometimes. I have to eat very little then eat more hrs later, and that's IF I feel like eating. I have lost my appetite. I am nauseated if I eat at all. I DO need to lose 60 lbs so that is the only real reason I am taking this drug. The "silent" migraines don't bother me that much. I mean, I still have nausea, dizziness, brain fog anyway! I also have Sjogren's syndrome...dizziness, joint issues, brain fog, intermittent nausea...what am I giving up? Nothing! What's to lose, but the weight! I am going to stick with it for at least another month. If I see a loss in my weight, I will stay with it. After all, the side effects are the same with my migraine issue and Sjogren's anyway! (Sjogren's also causes hair thinning..now if I notice clumps..then I will taper off the Topamax for sure.) | F | 48 | 30 days 50 mgs 2X day | 7/2/2011 | 2 | migraines | Loss of words, visual problems, blurriness, extended menstrual cycle (4 weeks), swelling of ankles, leg cramps, no appetite, horribad dreams, no energy, unable to focus on everyday tasks. | These were prescribed by a neurologist when I was diagnosed with a calcified meningioma which turned out to be non-existant. I did suffer from chronic headaches, some migraines.They did stop the chronic headaches, but I'd rather live with them than deal with all of these side effects. I am due to take college exams next week and I doubt I can focus long enough to pass them. I'm going to stop taking them. | F | 50 | 30 days 25 1X day | 9/18/2010 | 2 | Post partum depression/Mood issues | I had tingling in my toes and feet, but the worst side effect was the tremendous hair loss. I also had a sunburn like feeling on my scalp. Also-soda tasted funny. | I did not find the drug to help my mood at all. I had no cognitive issues from the Topamax, but the hair loss was scary which caused me to have to stop taking it. I was looking forward to some weight loss as well, but never had a chance to see any. I was highly disappointed, and disappointed that my doc never even told me I may experience the hair loss. It is very upsetting! | F | 29 | 30 days | 9/21/2007 | 2 | seizure | Irritability, zoned out, impatient, felt sleep-deprived. Bit of weight loss. Nursed while taking it and baby was agitiated and woke up 2 hrs. earlier each day. | I did not have any seizures, but the side effects were awful. I feared I had lost my personality. Drove my wonderful husband crazy feeling nobody could do anything right. | F | 43 | 30 days | 7/13/2008 | 2 | Migraines | Tingling in hands, painful cramps in feet, fatigue | This drug did not help my migraines at all, though in fairness I have been on a low dose (25 mg) for one month only, but I cannot tolerate the constant tingling in my hands and the painful cramps in my feet which are keeping me awake at night. I am thankful for the info on this sight because I did not know these were side effects of the drug and thought I was experiencing some new neurologic disease! Instead I will get off this med. | F | 47 | 30 days | 3/9/2008 | 2 | weight loss, mood stabilizer | tingling in hands and feet, flu like symptoms, carbonation tasted horrible, some appetite loss(yahoo) extreme fatigue, weakness, forgetting words, stupomax and dopomax qualities | This is my second time taking dopomax, I mean topomax. My new doctor prescribed it to help with weight loss and to help my antidepressant work better (cymbalta). She initially started me on 100mg a day which I think is way too high and I struggled with these nasty symptoms for a few weeks thinking I had a virus until, in a brief moment of brilliance over the foggy stupidity I had been swimming in, I looked up side effects of this drug. I am now weaning off of this drug. Can't really handle the side effects. and weight loss has been minimal for me | F | 48 | 30 days | 3/18/2009 | 2 | Preventative Migraine/Headaches | No effect at all on headaches...didn't touch them even after a month of 100 mg - bad acne? Anyone else, and just same "jolts" or "tingles" as everyone else calls them. I'm sure these go away though. | Hopefully helpful; I used for preventative pain and am now on a new med treatment which works better....but I think I was misdiagnosed with migraines. Anyway, was on Lamictal, which is similiar and the side effects of this drug are far less that that if having a choice between the two for an off-label use. I.e. Bi-polar, cyclothymia, etc... | F | 27 | 30 days | 9/29/2008 | 1 | depression | HAIR LOSS AND CRYING ALL THE TIME | I've got bald spots on my head now from this stuff. And I'm crying all day long. It did give me more energy and helped with social anxiety but the price to pay for this is too high and I don't mean $$$ | F | 61 | 30 days 25mg 1X day | 4/17/2015 | 1 | Head Tremors | Unbelievable detachment and spiciness, forgetfulness, memory and speech problems, it blocks words when you go to speak and makes you feel slightly stupid, anxiety, Mild and Intermittent headache, Sleepiness and irritability, easily overwhelmed. Made my blood pressure very high. | This drug did not do anything but make me feel like I was going half nuts!!! I was very spacy, sad and moody the whole time I was on it. | F | 38 | 30 days | 1/13/2005 | 1 | Chronic Headache | A complete Psychotic Break!!!!!! I think I know what its like to be a schizophrenic. My personality changed, blurry vision, dream like state, terrified to be outside, paranoid, sleepiness, diahrea, stomache cramps, I was dislexic and had mood swings. Decided to get some guts and go to the gym and I couldn't even leg press 25 lbs. Got on the stationary bike and I thought the bike was going to come loose and take me on a ride. I felt over medicated and I left like an unwitting participant on a really bad acid trip. I am on no other meds for anything else. For 2 days I should have been locked up. That was only on 50 mg. I would rather have the headached then lose my life | F | 34 | 30 days | 9/13/2006 | 1 | migraines | After ramping up to the 100 mg per day, I experienced complete loss of appetite, numbness/tingling in the hands, severe muscle/joint pain which would come and go throughout the day, a sense of muscular tension. My thought process was fuzzy, i.e., poured orange juice on cereal, dfropped off rental car w/o a ride home, sad, anxious and panic attacks. Other than "get off it", received very little direction on how long side effects would last. I learned more from internet research than anywhere else! I have been weaned off it for 6 days and still have no appetite, random muscle pain and tingling hands. | F | 62 | 30 days 25mg 4X day | 6/21/2011 | 1 | Complicated Migraine | Personality changes, memory loss, inability to eat, feelings of being "zoned out" most of the time, clumsiness...was running into file cabinets, etc. at work, overall sick, lethargic feelings, anxiety, depression | I began Topamax @ 25 mg for 1 week and then was adding 25 mg per week up to a max of 100 mg. Early on I thought this was a miracle cure! Headaches were gone, but side effects were starting.Tried to ignore them as no headaches! When began 75 mg dose, feeling sick to stomach all the time, could hardly eat anything,was never hungry, forced myself to eat for fear of more headaches. Headaches started coming back, thought it was becasue I wasn't eating enough. At 100 mg. was so sick, started missing work. Terrible diaherrea,anxiety attacks,migraines every day. Dropped dosage to 50 mg. Symptoms got better, but headaches did not stop. Doctor said to stop taking it cold turkey. I wouldn't recommend that. I think you should slowly withdraw. When I stopped cold turkey, had severe panic attack, bad anxiety, insomnia, crying spells.It was horrible! I would never recommend this drug to anyone. Totally screws up your mind & body! For perimenopausal women take note: CHECK WITH YOUR OB/GYN IT IS VE | F | 42 | 30 days | 1/25/2006 | 3 | TLEpilepsy | Nausea,muscle pain and fatigue,breathlessness,slow thought and speech,cold and tingling hands and feet, urgency and pain to urinate but battle to pass urine, | Started 2xweeks 25mg @night, ( 2 seizures ) next 2xweeks add 25mgs morning ( 2 seizures) 5th week 50mgs @night - | F | 52 | 28 days 25 2X day | 12/26/2016 | 2 | Epilepsy | Extreme nervousness or anxiety, physical nervous reactions, and lowered autoimmune system. | Topamax lowers the white count, which makes it difficult to use for someone talking a med like phenytoin for nocturnal epilepsy. The white blood count issue makes it less likely that higher doses can be taken. | M | 50 | 28 days 100 2X day | 12/7/2016 | 1 | severe migraines | LOST 10 pounds in 28 days, Slurred speech, couldn't spell, trouble thinking of the right words, couldn't complete a sentence, difficulty speaking, reversing words, couldn't concentrate, hands trembling, tingling sensation in fingers and face, double vision, severe ringing in the ears, VERTIGO, nausea, memory loss, very tired, dizziness, walking sideways | This drug is HORRIBLE. It does more harm than good. I was started on 50 mg 2x a day with no relief of migraines. After 3 weeks of pain, my Dr. upped my prescription to 3x a day. All these side effects started slow and steady, not realizing it was the drug, I thought I was severely ill. All MRI's and EEG's were normal, I changed Dr's and in one visit was told of these side effects. Stopped the Topomax and slowly got better. If I didnt change Dr's what would have happened to me. Plus my headaches improved too !! They should take TOPAMAX of the market and burn it . | F | 40 | 28 days 50mg 3X day | 2/23/2010 | 5 | migraiines and headaches | muscle spasms to begin with, sodas tasted realy bad, carbonated mineral water somewhat bad, lack of apetite and weight loss(woohoo - 6 more pounds and I'm ideal), extremely dry skin especially face (from topomax or cooking for thanksgiving - definitely not from sun or outdoors???) | I was going through imitrex and codeine #4 like candy(no nsaids - I bleed). After logging in a month with only 8 days of no headaches & 3 4-day severe migraines (+3 demerol shots that month), I went on 50 mg 2ce a day topomax. I got severe muscle pains in my lower back under my waist on either side for 1st 5 days. Then various back pains (muscle spasms? - never center - sometimes 4 in below waist one or both sides, sometimes side of back 4 in above waist, sometimes, pains in foot or leg. After 21 days on this, I took a road trip, and I drink no sodas because of osteopenia (nearly reversed from hi ca and mg naturally carbonated mineral water and lifting weights), but I bought a coke. I got through only about 1/4 of it before tossing it. The taste was indescribable (bad)! I was red and hurting and sore and now am peeling around my eyes and nose and mouth. Is this from topomax (no sun for 3 weeks)? Pains are now low to gone. One mild headache in 26 days after 3 hrs sleep cookin | F | 60 | 26 days | 11/30/2006 | 4 | Chronic Headaches / Migraines | Tingliness in nerve endings, i.e. fingertips. I felt like if I could only focus enough, I could shoot electricity out of my fingertips at times. Loss of appetite, sleepiness, some fogginess, "trails" off objects (pretty major ones, at that). Also, I haven't read through all 10 pages, but it doesn't seem that anyone has mentioned problems with Topamax affecting their menstruation at all. I believe it has affected mine. I have experienced far heavier bleeding and much more intense / severe cramping throughout the entirety of my period, which is not at ALL normal for me. I have also experienced severe nausea throughout it- another irregularity for me. I have never been so sick from my period until this. However, with the exception of the past week, my everyday headaches are pretty much gone now, and the only time I have gotten any migraines in the last 2 weeks were during my period. So about 1 week of suffering vs. suffering everyday like I was? I think I'll take it. | F | 32 | 26 days | 1/26/2009 | 3 | mood stabilizer | Negative: dry mouth, dry eyes, terrible taste in mouth, carbonated drinks taste funny, some other things taste different, nausea. Positive: some weight loss, don't have headaches as often as I used to. | I don't think this has done anything to stablize my moods. I am still anxious and can cry at the drop of a hat. I am also taking luvox and wellbutrin for ocd, depression, anxiety and I am starting to forget what med is helping with what problem and if any are helping at all, ya know? | F | 50 | 26 days | 1/1/2007 | 3 | migraine prevention | Dry mouth, feel weak all the time, always hungry, moody, depressed, tired, confusion driving, itchy after showering,decreased sensitivity during intercourse, all emotional feelings are worsened and I feel withdrawn from people. | I started with 15 mg and slowly worked up to 100 mg a day. I didn't feel too many side effects until I increased the dosage. This week I have been doing the 100 mg, I am feeling the side effects full force. On the up side my migraines aren't as agonizing as they usually are, I can actually function - unlike before. I have been on topamax about a month now and I am hoping once my body gets used to the meds I'll be more comfy using them. The other thing I found interesting is that my dreams are a lot more vivid now, I used to not even be able to remember them before! Now I'm hoping that the weight loss thing that seems to be going on for everyone else eventually kicks in for me too! | F | 31 | 25 days | 5/31/2007 | 1 | seizure disorder | Horrible gastric problems: nausea, diarrhea all the time. Total loss of motivation. | I was supposed to be ramping up to 250 mg, but never got past 100. It felt like the drug was reorganizing my intestines, and not in a good way. The diarrhea went away about 2 weeks after I took my last dose. I barely ate anything the whole time i was on it, to control the diarrhea. Also, the loss of motivation: I've never experienced anything like that. I sat on the bed for 3 weeks staring at the ceiling, and that was all I could do. I am a self-employed artist and normally I don't sit down much during the day. The motivation has come back, thank heavens, and my mood improves the longer I am off it. I was trying to replace Keppra with topomax, but nope. This was a really frightening drug for me. | F | 62 | 25 days 100 mg 1X day | 5/23/2022 |