TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  progesterone induced depression terrible dry mouth-I already had an issue with this and the Topamax aggravated it to unmanageable levels. I had to discontinue. F 46 2 days
7/6/2003
 2  fibro pain turned into a moron. Really. Can't think straight. Can't talk right. Movement takes thought, like bringing a spoon to my mouth I have to think about first. Really REALLY tired. Basically I feel fall down drunk. I'm also getting dizzy and tinges in my face and fingers, but I can deal with that. Only taking it 2 days so far, but I'm worried I'm going to lose my job if I don't stop taking it. I can't work! It's too much with the memory and not being able to think. F 32 2 days
11/20/2009
 1  bi polar my side effects were VERY severe. MAJOR tingling all over, felt really dizzy and nausea. had no taste for any food. I LOVE asian food and I could not eat anything but fruit because I felt sick if I had carbs. Strange. I started taking because of bi polar. I ONLY took this for 2 days and i experienced major side effects. I am very active and I work out everyday. The second day I took topamax i had trouble breathing. I felt like i was going to die. Also, I stopped taking the day and having tingling sensations all over my body. It is constant and is not worth it. DO NOT take this drug if you get side effects easy!!!!! F 19 2 days
8/18/2009
 1  Migraines Started at 25mg at night. First night ringing in the ears started with a horrible migraine. Second night couldn't sleep and I already suffer from chronic insomnia. Driving home from work I almost hit a car because I was zoned out. My hands are freezing, I feel feverish, and my head is pounding....after only 2 doses. Tried to drink a Coke tonight, dumped it out. Worst thing I ever drank. I've lost 3 pounds in 2 days. Food is just "blah." Scared to take tonights dose. Don't know what to do. F 43 2 days
25mg
9/5/2014
 1  Migraines, weight loss Very tired, foggy, chills, flu like symptoms, ichy, dizziness, rapid heartbeat I only took this medication for 2 days and that is all it took. I started experiencing these side effects right after the first dose. I was just sick and unable to function. I will never take this medication again. F 32 2 days
25mg
2/5/2017
Email
 1  Severe Migraines After two doses: Drunken speech, Memory loss, Exhausted and Suicidal!!! Could not think or stay awake. That probably saved my life. I now know why people committ suicide. Had I been able to stay awake long enough to make a plan the second day on Topamax I would have killed myself. Never in my life have I experienced such a feeling. It was like being in hell with no escape. Couldn't talk, stand up or stay awake. I remembered every thing I did in my life that was wrong, when I ran out of those I started making things up that I might have done wrong. At 75 that is a very long list. NEVER EVER AGAIN would I take another Topamax. It is deadly given to the wrong person. F 75 2 days
11/24/2008
 1  Seizures I would not recommend the generic form of Topamax (Topiramate) to anyone. I started the generic form a couple of days ago and recently started feeling shaky and like I am going to have a seizure. I called my doctor and she called a prescription in to my pharmacy and indicated "Brand Necessary" F 33 2 days
5/19/2009
 1  Migraines Terrible Insomnia and shakiness. Stopped after two doses and the next day unbelievable fatigue set in. I am so fatigued two days later it wears me out to even raise my arms. I feel like my heart is working too hard, I get tachycardia from just standing up. My heart is also pounding and I'm having some irregular beats. I feel short of breath on activity of any kind, even walking across the room. This drug has been absolute poison for me. I feel so bad I feel like I should be in the hospital. I actually went into convenient care and they did blood work thinking maybe my sodium was low. All blood work came back okay. The doctor said this was most likely the result of Toperimate. I called to ask the half life and was told by the pharmacist it is 21 hours and that technically most of the drug should be out of my system by now as it it Sunday night and I took the last dose on Thursday night. I only took this drug for TWO days, a 25 mg tab on Wednesday evening and a 25 mg tab on Thursday evening at bedtime and I feel like I'm dying. I have never had such a horrendous reaction to a drug. This poison shouldn't be on the market! F 63 2 days
25mg 1X day
9/13/2020
Email
 1  Biopolar Hair Loss, Mood Swings, Anxiety Attacks, Loss of thought, Tingling in all body parts, headaches,It feels as if I am High but I know I am not it is actually unusual!! If you are on this I suggest you talk to your doctor and get a medicine that best suits your body and mind!!!! NOT TOPAMAX!!! F 15 2 days
4/5/2007
Email
 1  mood swing stabilizer tingly fingers, feet,lips. extreme fatigue. much difficulty concentrating. no taste for soda. Lots of uncontrollable crying. itchy body and eyes. strange and blurred vision at times. no motivation. felt like i was in a stupor. eyes glazed over. Felt extremely spaced for a period of time. was desperately hoping for the weight loss and there was none. F 45 2 days
10/31/2004
 1  seizures It made me VERY sick right after I took it. My stomach got really hot, I had to go to the bathroom and almost passed out. I also Got really sweaty and my ears started to ring like I was going to have a seizure. After about 10 minutes I was able to walk. I looked in the mirror and had hives all over my chest and neck. My Neuro- said it was an allergic reaction. F 37 2 days
25 mg 1X day
4/5/2011
Email
 1  Migranes disorientation, severe loss of appetite, severe diarrhea, dizzy, confused, everyone said I looked like I was lost and completely out of it, chest pain, loss of breath, nausea... should I go on worst feeling OF MY LIFE, felt hungover for a few days after I took it as well. F 28 2 days
25 2X day
1/18/2011
 1  For back pain and to lose wieght Feeling "spacey", not myself, did not feel good AT ALL!! Sodas tasted nasty! Really hard to focus! Family said I was not myself, and they didn't like who i became on it..... I got the tingling in my fingers and the burning in my heels just like everyone else is saying on here. I'm not sure if I lost any weight being on it because I was only on it for 2 1/2 days. I was going to try and wait it out the week, to see if I could get used to it, but then i had some sort of "mental breakdown thing" and I counldn't handle being on it for any longer than that; neither could my family. So those of you out there who are considering taking this medication, please think hard about it. I know that every person is different and not everyone will get the same side effects, but i'm telling you, i believe this is some dangerous stuff here. F 18 2 days
10/24/2006
 1  took for migraines/sleep had opposite effect on me than was indicated. I was wired and could not sleep. Hated it and stopped immediately. F 54 2 days
1X day
12/26/2011
Email
 5  back injury resulting in severe ner at first, unbelievable detachment and spaciness, but very shortlived, occassional forgetfulness, however the pain relief trade-off and hyper sensitivity relief I have gotten is well worth it. Yes, appetite is down but that's a good thing. weight loss did occur, but ok...cool with that too...it helped to take pressure off of the back. I was warned by my neurosurgeon to have a baseline eye examine prior to beginning topamax and I did and was not at risk ... I have 6 mo. prevention checks to assure he and myself that all is cpoasetic(?) w/ eye situation , altho I find when I am exceptionally fatigued , I do notice trailing and never did prior to taking this medicine. F 42 1 days
7/11/2004
 5  Cmplx Migraines/Migraine Prevention Excessive daytime drowsiness, loss of appetite, tingling in feet & hands, short term memory loss, clumsiness, hard time finding the right words to say when having a conversation and hard time staying focused. All decreased after a few weeks except for memory loss, finding the right words and staying focused. I was having severe migraines 3-4 times a month. The pain was so intense I had to go to the ER for injections every time I had one. After one year of dealing with dragging my 2 small children to the ER, because my husband was overseas I was finally referred to a neuro. He put me on Topamax the final dosage being 200mgs a day increasing by 25mgs per wk until I reached that dosage. I am migraine free and happier than ever! I did that for 7 months and then the short-term memory effect really started becoming a problem. I was forgetting so much that I was stressing myself out more than I care to remember. Went back to my neuro and he reduced my dose to 100mg a day and in addition to that he put me on Pamelor, 25mgs a day. I have most of my memory back and still migraine free! If the Topamax/Pamelor combination failed, I'd go back to my original 200 mgs of Topamax a day. I'd rather deal with my memory loss & stupidity then the pain from a migraine any day. Topamax was a Godsend! F 32 1 days
7/15/2006
 5  Daily Migraines Weight loss...30 pounds in 2 months. Word retrieval issues...minor trouble in conversation remembering what I was talking about...only for first couple of months. Topamax has helped me tremendously! I went from daily migraines since the age of 3...yes 3!!!....to 1 per week. I lost 30 much needed pounds...it has changed my life! I didn't like feeling like I couldn't think of a word from time to time..but big freakin' deal...beats going to the emergency all the time to be druged up for 24 hours. I also take Imitrex injections...which I was giving myself at least 4 times per week...VERY bad for YOU!!! Not everyone has the horrible side effects listed one this site...some have none...some are just minor. You have to try it to see if it's for you. F 29 1 days
10/31/2007
 5  migraine Stomach ache F 65 1 days
100mg
10/23/2015
 5  Uncontrolled Migraines None so far... I took the first dose last night before bed and I woke up today completely headache free!! I am on a taper increase dose so I will take 25 MG for one week, then increase to 50 MG for one week, then 100 MG at bedtime until reevaluated by my Headace Specialist. I hope this medication will help with my migraines. I have tried nearly everything else. If this medication works it will be worth any negative side effects. At least for me anyways! F 35 1 days
25 MG
3/23/2016
 4  WEIGHT LOSS TINGING OF FEET F 64 1 days
12/22/2006

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