TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  fibromyalgia High intense sugar cravings, lost 30 pads but I was already thin due to anorexia. Then I was on another med that made me binge 6 to 8 hrs per day which this was making thing worse cause it stopped working. So I stopped this drug cold turkey. F 36 3 months
200mg
12/13/2013
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 2  Migraine Prevention Soda tasted flat at first, tingling sensation(hands, feet, legs, & arms), changes in my menstrual cycle, off and on constipation, loss of appetite (Didn't mind this one. I lost about 10lbs), abdominal pain, and wierd body odor. I have been on Topamax for about 3 months. I am currently on 125 mg a day(50mg in the morning and 75mg at bedtime). I was put on this medicine as a preventive med because I have Basilar Artery Migraines which causes me to go blind. I have no warning as to when this is going to happen so I feel the need to be on a preventive med. The medicine I was on before didn't seem to be working as well so I decided to try this one. Since being on it I have had more migraines then I can remember. I have also experienced quite a few of the listed side effects as well as others that are not listed on the web site. For some people this drug might be the only option and it might have worked very well for them, but for me I am getting off of it. I have decided the side effects are to severe for me. While I do like the weight loss it is not worth the constant migraines and I am still getting the vision changes. I have decided to go back on my old medicine which actually (now looking back)worked extremely well for my migraines. The medicine was CYPROHEPTADINE. It is a very old med that many doctors don't use anymore, but worked very well for migraines. Hopefully this will help someone out. Think twice before starting this medicine. F 21 3 months
7/21/2009
 1  Bipolar 1/Weight Stability the fact that this drug did nothing for me? Topamax was prescribed to me when my other medications for my Bipolar and Gen. Anxiety disorder were making me balloon. I was told that this drug would help my medications find a happy balance as well as kill the constant eating and weight gain. For the first 3 weeks or so it worked and then I went right back to a large appetite. Even worse, I constantly asked my dr. to take me off of it since I didn't feel it was working for me, and he refused. Luckily I'm seeing a new dr. and he said the same thing I said, "Why are you STILL on topamax?". yup. F 19 3 months
1/9/2010
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 1  migraine prophylaxis Dizziness, general malaise, depleted vitamin E levels,stomach pain, nausea M 51 3 months
100 mg to
7/16/2015
 1  Pain management MY FREAKING HAIR IS GONE!!!! It fell out in a week. This is horrible. My god. You people know this is happening. Why haven't you done anything!!!! WHAT YOU HAVE DONE to people is WRONG. people that needed help. Topamax helped with headaches and pain but it took away a persons hair in exchange. That's wrong. F 46 3 months
300 MG
10/22/2015
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 1  Migraine Paranoid, anxiety, depression, diarrhea . I have never had depression and I was so bad off that I couldn't get out of bed. I was paranoid beyond reason and that started me feeling anxious about everything. I have mild IBS to begin with but Topamax made it so much worse. I had to go off it because of the side effects Nightmare drug for me and I was told that the side effects would stabilize after a few weeks. They never got better they got worse. M 43 3 months
100 2X day
4/27/2016
 1  Bipolar About half an hour after taking it (sometimes at other times) I would have a feeling like I'd been suddenly hit over the head with a baseball bat accompanied with VERY bad confusion. Terrible anxiety. Felt like I was always about to tip over (not dizziness, just an unsteady feeling). I slowly started losing my mind on this drug. Forgot my mom's phone number, would be working and all of a sudden have this bizarre blackout-but-still-awake thing happen to where I forgot where I was and what I was doing and how to do it. Almost forgot how to drive. This garbage should be outlawed, and it's the first (congratulations to you, Topamax!) drug I went off of against my doctor's recommendation. DOPE-A-MAX did not do a thing for me. Oh yes- I lost 5 pounds. Yay. F 40 3 months
7/1/2008
 1  migraines back pain, eye pain, hives for 3 months, extreme loss in appetite, confusion, mood swings, depression, limb tingling I was on this medication for 3 months, i loved it at first my migraines went away and i was very happy but then about a month ago i stopped wanting to eat and i lost 10 pounds. My eyes hurt so bad i couldn't wear contacts, my lower back has been killing me and i started getting angry at everyone then crying for no reason. I couldn't remember simple things and got confused really easy. My legs and arms fall asleep all the time. So i just stopped taking this medication. The side effects did out weight the benefits, although my migraine have come back i couldn't go another day feeling the way i did on topamax. F 24 3 months
7/31/2008
 1  Migraine Prevention I am a 25 year old female. I had been taking topamax (25mg in the morning and 25mg at night) for about three months for migraine prevention until four days ago. When I first began taking it I realized that I had a few side effects that were easy to find online. These included dizziness, tingling in the hands, feet, and face, as well as a change in the taste of coke (flat and nasty). I also noticed that the effects of drinking alcohol were exacerbated and led to a migraine each time. But besides those two migraines from drinking I did not have any other migraines, which was the only pro about taking this medication. About a month ago things got really bad for me. I began having sever pain in my upper abdomen on the left side where my stomach is. I also could not eat much since eating made the pain worse. This led to a huge decrease in weight (yay?) but also a trip to the emergency room since I knew something was wrong. The Dr. there said that it was probably not the topamax when F 25 3 months
25mg 2X day
5/8/2017
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 1  Bulimia Weight gsin, headaches (ironically), tingles, memory loss. My life has changed so much since my eating disorder came into the picture 3 years ago. I tried Topomax hoping that it would help subside my bingeing/purgeing but it hasn't. I would not recommend this drug. It's actually been causing my headaches a lot and I've expericenced severe memory loss. My performance in school has slipped because I can not remember things like I used to. F 17 3 months
6/9/2007
 1  Weight Loss gained weight, loss of bowels, lots of BMs, yellow nails, excessive hair growth - long eye lashes Not recommended M 67 3 months
5/3/2007
 1  Nerve Pain Blurred vision, headaches, eye pain, temporary blindness. My vision started getting worse and I had to get stronger glasses. My left eye would feel like it was going to explode. Then one morning, I woke up and was totally blind out of my left eye. It lasted for 8 minutes. It happened again a few days later. My doctor told me it couldn't be from the topamax and sent me to a neurological opthomologist. He told me topamax was notorious for vision problems and that if I didn't stop taking it, I could go permanently blind. It took a good two months for my vision to get back to normal after I quit taking it. And it did nothing for the nerve pain either. F 45 3 months
7/18/2007
 1  Bipolar Disorder Topamax literally made me dumber than a box of rocks. Everyday I was on it I felt confused, disoriented, spaced out, and I couldn't concentrate on anything I put my mind to. I have been off of it, however, for 5 days, and my mind is a thousand times quicker and clearer. I don't recommend Topamax for people diagnosed with Bipolar disorder. This drug will literally make you an idiot. F 19 3 months
5/30/2005
 1  migraine Memory loss. I could not remember what day it was ever.speech slurred. difficulty finding my words. lossed interest in food F 47 3 months
6/1/2005
Email
 1  Nuralgic Migrains Extreme side effects including: unable to think clearly, unable to understand or solve simple problems, decreased mental state to the point of resembling a severe stroke victim!!!!! Would not ever recommend this medicine to anyone for any reason F 49 3 months
4/1/2003
 1  daily tension headaches extreme lethargy, decreased libido, haven't gotten it back yet! Warnings are not sufficient, I'm really mad that this medicine was recommended as a trial for getting rid of severe headaches and it is stated as being prescribed for seizures! People, inform yourselves more before allowing your doctor to prescribe ANYTHING without knowing the serious side effects. And don't think they can't happen to you! I was told it wasn't likely but I've decided I'm not going to play a damned guinea pig either! Hopefully none of the side effects are permanent! M 48 3 months
3/6/2007
 1  Epilepsy (Tonic Clonic Seizures) What side effects didn't I experience?! Weakness, tiredness, extreme confusion, difficulty concentrating, and tingling of the feet. The entire time I was on the medication I felt as if everyone was judging me because I felt like a complete idiot because I could never think of what I wanted to say. My speech has drastically changed as well as my weight. I only have lost 10 lbs. but didn't need to lose any weight in the first place. I have an irregular heartbeat thanks to Topamax, menstrual problems that I've never had before, and the most painful is the abdominal pain. My vision changes were probably the first to go that I noticed. I just thought that maybe I needed to go to the eye doctor, but it was the redness. The most annoying thing for me is the metabolic problem (hyperammonemia). I originally took Topamax to prepare my body for pregnancy because my doctor informed me that I probably wouldn't have children on that medication. So, I want to keep my options open and Topamax was my first option. Honestly, I cannot imagine a worse medication to be on because of the side effects. I even have had to take a leave from work because I'm basically no good at work. Anything that makes an individual as dumb as rocks and their doctor doesn't bother to tell them ANY of the side effects IS NOT WORTH IT! F 24 3 months
10/8/2007
Email
 1  seizures couldn't remember anything, mania, very aggressive and intrusive, lost 30 lbs in a month, eventually I was barely eating or anything..just had no appetite, carbonated drinks tasted nasty, very slowed cognitive abilities I wouldn't recommend this medication to anyone..it was hell for me... F 24 3 months
11/25/2006
 1  migraine approx 3x or more a month Constant tingling in legs, feet, arms, and hands. Lost any appetite, nothing tastes good anymore. The side effect of weight loss would have been nice, but even though I'm hardly eating I have not lost any weight. I feel nauseous when I do eat. Having chest pains, stomach pains, my neck hurts. I'm seeing things that aren't there. Dizzy, clumsy, and forgetful. I stay tired all the time, and no matter how much sleep I get I am sleepy throughout the day. I've probably missed some but actually the main thing about the topamax is that it has done nothing to help with the migraine. In fact since starting it I have still gotten migraines, the only difference is now my Zomig doesn't work to ease them like it use to. When my doctor prescribed this I listened and agreed to give it a try. I was really hoping it was going to be the answer. I've been living with migraines for 27 years! So I started taking it. After the third month I decided to look it up online and then read the paper that the pharmacy includes with it. As I'm looking these over I come to the side effects part. Going down the list I was amazed at how many I was having and didn't even realize it was because of this medicine. Needless to say I will not be continuing this medication. And to the person whose comment was to say they believe people are exaggerating the side effects. . . your ignorance is showing! EVERYONE is different, you just get to be one of the lucky ones. F 52 3 months
25 MG 1X day
8/22/2011
Email
 1  migraine prevention Very Lethargic, had to take a nap after work, trouble finding words (felt very spacy), extremely thirsty (would wake up in the middle of the nite to drink water), hair loss, depression, and irritability (got written up at work for over reacting to something), major leg cramps. I took this medicine over the summer last year and I basically slept the whole summer away. I HAD to take a nap after work and I was still able to sleep at nite. I stopped taking this medicine when my friends kept telling me I seemed sad. I lost a relationship bcuz of this med. I had no desire to do anything, let alone have a relationship with someone. I even lost my desire of working out. Had NO ENERGY!!! Basically, it caused symptoms of depression. F 34 3 months
1X day
2/27/2010

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