TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  tremors, migraines, chronic pain Weight gain (20lbs in 5 weeks)hair loss, eye pressure increased, double vision, brain created myths of people and conversations, events, became agitated and beligerent, bruised and broken out skin, sinus, It's a wonder I stayed on it so long, and that I didn't kill myself while on it (closely watched by doctors, though... nasty drug. Did not help my pain one iota but did reduce vertigo, tremors and migraines! One wacko drug. F 52 5 weeks
9/19/2004
 3  headaches So far i have experienced all carbonated beverages tasting flat, numbness and tingling in my hands and feet as well as my face. Twitching and pulsating in my eyes and around my mouth. Fatigue and dizziness. I have been on many medicines for my headaches and this is the first one where i can honestly say that i have felt the extreme side effects from. F 19 4.5 weeks
9/7/2008
 5  Bipolar II Tingling in hands & feet, problems with my speech and some irritability, both of these side effects went away when I staggered my doses 3 times/day instead of all at night - Carbonated drinks taste flat, weight loss =^) In my opinion, if you're a rapid cycler bipolar patient who often self medicates like me, then topamax should be the first choice of treatment because it works great. I have tried everything from Depakote to Lamatacil, Depakote causing heath concerns (high blood pressure due to annoying uncontrollable weight gain) and Lamatacil gave me tartitive dyskenisia...so finally my pdoc prescribed me topamax, which has taken away all desire to self medicate with alcohol, etc and has stopped my rapid cycling dead in its tracks...for the first time in my life I feel "normal" and it feels great. I find that by staggering the doses 3 times a day is the best way to stabilize my moods, plus it stops the irritability that I found I got when I took it only at night - Also, a good remedy for the cognitive "stupidness" that is associate with this drug is if you take Omega 3 fish oils with DHA/EPA (found at your local health food store, make sure you get the one free of heavy metals) F 24 4 weeks
3/15/2007
 5  migraine tingling in hands and feet, small periods confusions, pop taste nasty, some foods taste nasty, I was having migraines weekly. I am up to my maximum dosage which is 50mg in the morning and 50mg in the evening. I have been on it for 4 weeks now and have not had any migraines. It have been amazing. I have been throught the most stressful time of my life when my migraines would of put me in the hospital and I have had none. Now the side effects have seemed to be a little more noticeable but that is ok with me. Becuase I can continue working and living. F 25 4 weeks
8/18/2007
 5  epilipsy, headaches short term memory loss, bad taste in food, nothing tasted right, weight loss, trouble finding words, confusion, tingling in hands Topamax has helped me tremendously. I lived with a headache every day for years, and since i've been on it, no more headaches!! What a godsend. Only problem is the memory loss gets to me. With 3 kids, memory is vital. But, not having seizures is also a very good thing!!! The good definitely outweighs the bad! F 26 4 weeks
11/1/2005
 5  Epilepsy & Migraines Weight loss, decreased appetite, soda tastes odd, slightly euphoric happiness, extremely increased vocablary, return of emotions, inspiration, and creativity. I've been on Depakote for 3 years previous to this & did not realize how sorrowfully apathetic it had made me until coming off of it. I have had a serious health condition brewing that I was not receiving care for because I simply didn't care! Further, while on Depakote, I had gained an ungodly amount of weight that I couldn't lose for anything. I had lost most of my extensive vocabulary, most of my memory, and most ambition to do anything. In just over 3 weeks on Topamax, I've lost 8 lbs, begun experiencing happiness, anger, lust, sorrow, creativity, inspiration, etc. I've taken up art again. My wit is rapier sharp & my memory had also improved amazingly. I am pretty much the person who I was before I began taking drugs for my condition - just without my condition. F 31 4 weeks
11/19/2005
 5  Cluster Headaches,Migraines To say speech problems would be putting it mild, slow thought process,restless,sore throat,soda taste bad, decreased appetite, and minor hair shedding. After talking to someone who was once on the same medication, I decided to stay on it even though I was having all of the side effects. One day after the second week, the speech problems just went away and everything else just followed. Now I am headache free and no side effects for now. I am praying that I will not get any new ones, so for now things are great. Good luck to any one who is starting and to those who are already on it. F 34 4 weeks
50 2X day
3/29/2011
 4  Bipolar II Tingling in toes and hands So far this med has been good for me. the tingling is nothing I cant deal with. I am at 125mg no real app loss and no cognitive problems. I have been off and on meds 15 years and so far (fingers crossed and tingling:) this looks to be the one. My moods are better my engry level has encreased. No one ever know until they try. F 35 4 weeks
5/17/2006
 4  MIGRAINES I only experienced slight side effects and most of them occured during the weeks I was increasing the dosage. I started at 15 mg and increased 15 mg each week until 45 mg. I am staying at 45 mg until I am on topamax 5 weeks and then we will start to increase again. I did not experience any tingling in the feet and hands. I was tired and dizzy most of the time and had no interest in food. I was also nauseated during the time I was increasing the dosage but that passede after a few days after the increase. The biggest side effect bothering me now is that I am having horrible hot flashes day and night. I am at the menopause age but take all kinds of natural supplements that have kept that problem at bay so I am thinking that topamax is affecting my female hormones. Anyone else have that problem? My migraines went from 4-5 a week to 1 a week. A huge difference! I will get through the side effects because this drug is worth taking and not having constant migraine headaches. F 52 4 weeks
5/1/2007
 4  migraines numbness/tingling, loss of appetite, sodas taste disgusting, HEAVY menstrual bleeding and severe cramps My daughter is taking this for migraines. So far, it works! It's the only thing so far that has worked. HOWEVER, menstruation is a nightmare for her- hemorrhaging, severe painful cramps, really impairing for a high school kid. With a family clotting disorder this seriously exaccerbates it, but we will work with an OB/GYN to fight that since the topomax is helping with the headaches. F 19 4 weeks
3/7/2009
Email
 4  daily headaches/migraines tingling in hands and feet, forgetful, short term memory loss, decreased libido,feeling "dopey", dry mouth For the past three years I've had tension head aches almost everyday that I've been taking Excedrin Migrain for until 4 weeks ago when I started taking Topamax. I've been really happy with the results. Since the day that I've started I've had only about five mild headaches. I'd reccomend this drug. The tingles in the hands and feet are realllllyy annoying though, F 20 4 weeks
12/2/2008
 4  Idiopathic Intracranial Hypertensio Tingling in the hands and feet, feeling hot, feeling a little at a loss for words at times. Haven't experienced depression or moodiness and hope I don't. F 33 4 weeks
3/2/2008
Email
 4  Daily Migraine Headaches So far,not many side effects, starting out very slowly. I am up to 50mgs and have experienced tingling in feet at night. Noticed a little bit of agitation when I first increased, so I went back down for a couple more days. This helped. I think increasing slowly is key!! I have already noticed a decrease in the intensity of my headaches. It is odd, I will get that first initial stab of pain and then all of sudden it lessens when before it would be time for bed. I am holding out hope for this drug. After reading all of these poor reviews, I did not want to go on it, I fought it, but I also know after trying almost everything else, I had no choice. If your headaches are controlling your life like mine are, sometimes you have no choice. If already I am seeing a difference on 50 mgs I am hopefull I will not have to increase too much. I will post again after more time. Everyone is different. You may handle this medicine just fine and you may not. F 36 4 weeks
10/9/2009
 3  Migraines Weight loss - 15lbs in 3 weeks, memory loss - forgot my own phone number, feel constantly in a fog, nausea, blurred vision Has decreased my migraines M 52 4 weeks
6/27/2008
 3  chronic headache/neck pain appetite and weight loss, tingling and numbing in feet, forgetfulness, loss of words, loss of memory, confusion, loose bowels, meatalic taste in mouth, all food tastes different, dry skin, weakness, heart palpitations, I have had a chronic 24/7 daily headache and neck pain for one year now. Have tried lots of meds. nothing has worked. started this Topamax 1 month ago and am at 100 mg and has helped a lot. I still have a headache and neck pain 24/7 everyday, just not as intense as before. I have no appetite!!! I eat like a todler . Went from 125lb to 115lb in one month. I will have to force myself to eat this next month to prevent too much weight loss. Weird??? I will continue with this med in the hopes that it will continue to work and get even better. This last year has been horrible for me. I am too young to be living in chronic pain. Besides feeling like an anorexic, I am stupider than a box of rocks now. I know why they nicknamed this stuff "dopamax"!! I am extremely worried about what everyone says about the hair loss that can happen around 6 or 7 months?! F 32 4 weeks
8/30/2008
 3  Migraines Tingling in fingers and feet; insomnia; shortness of breath; inability to focus; low sex drive I have just finished my 3rd wk of 50mg and started my 2nd day of 100mgs. Just when I thought my side effects were starting to ease up, they restarted when the dosage increased. My headaches are not as freqeuent however, my hormonal migraines are not lessened. Using Maxalt for the breakthrough migraines. Have lost 10lbs so far, but still waiting for all of the magical weightloss that is promised. Was one of the side effects I was really looking forward to. Have been batteling my weight my entire life. How long does it take?? F 28 4 weeks
5/31/2009
Email
 3  Migraines Fatigue. I used to work out about an hour a day, and am now lucky if I can make it to 20 minutes. Insomnia. Has helped somewhat for my headaches. F 34 4 weeks
1/25/2005
 3  migraines difficulty concentrating, insomnia, funny taste Migraines seem well controlled. However I am having trouble concentrating at work. There seems to be a slight appetite suppressant effect also- which is great. F 38 4 weeks
7/16/2005
 2  absence seizures, gtc seizures tingling, itchy feelings in hands and feet, pain in legs, loss of memory, insomnia, fatigue, food tastes weird, trouble finding words, sometimes use completely wrong words this drug has done very little to help my absense seizures which is my main concern as my gtc seizures occur at a frequency of about one every three years and my absence occur daily. the side effects have made my life even more difficult than not being on the drug. F 29 4 weeks
2/13/2007
 2  Migraines Difficulty with word recall and spelling; time and distance are shifting a little; driving is becoming a little scary because I forget to turn or panic when I don't know where I am. My night vision seems worse than ever. I am still having menstrual headaches on Topamax but haven't had any other migraines in a month and am up to target dose of 100 mg. But unless the scary driving problems go away fairly soon I will not stay on Topamax. F 50 4 weeks
2/27/2007

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