TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  weight loss Sore throat, mucas in throat, very dizzy, tired all the time, cough, felt like i had the flu. My doctor prescribe me to take this medicine to jump start my weight loss. He told me to take 1 25mg tablet the first week then increase 1 tablet each week until your at 4 tablets or 100mg. I got 3 tablets and i felt like crap and called him up and told him to get me on something else. I felt like was in la la land everyday, could not function with my family, and even though i was tired i slept terrible. So hopefully he has something better for me. And in the three weeks i didnt lose any weight but didnt gain any, didn't see any difference in eating either. M 35 21 days
25mg 1X day
6/22/2012
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 1  Migraine Severe itching, fever upset stomach, hair loss, mood changes, sleepiness It did however work great on getting rid of my migraines. F 40 21 days
1/15/2006
 1  migraines greatly increased migraines (from 3-4x a week to every day and very intense), nausea, tingling, anxiety, depression, dizziness and I lost 13 pounds in 3 weeks I could take all the side effects except the increased migraines-- it was so intense, I couldn't function at all. The dizziness got better once I got above 25 mgs. The migraines got worse with every increase in the dosage. F 28 21 days
9/21/2006
 1  Neuropathy Memory Loss,extreme twitching,bad spelling,what i describe as electrical jolts thru my body,loss of appetite,hairloss,it feels like I am borderline bipolar,depressed,in horrible pain....it has made my pain worse than it already was. This medication is horrible. I am going to my doctor tomorrow morning to get off of it. I have not been on it long but I have noticed that it has made me feel horrible. I do not enjoy my children and husband anymore but atleast I am still sane enough to notice these things. I have failed neurontin,lyrica and just about everything else and I am currently waiting to have a neurostynulator put into my back to help with my pain. F 31 21 days
200 2X day
5/5/2010
Email
 1  Mood Stablizer Dizzy, Seizures, Loopy/drunk feeling, blurred vision, soda tasted flat, loss in interest in eating, weight loss, suicidal/obsessive thoughts. This drug was HORRIBLE! After taking it I became convinced that I was going insane and that god and other voices were talking to me. It made me feel so stupid I couldn't even concentrate on watching t.v. much less read a book. Almost immediately after I stopped taking it I felt a world of difference, like a weight had been lifted off my shoulders. Use Caution when taking this drug! There is a reason its called "dopamax". F 21 21 days
5/22/2007
 1  Weight loss RAT POISON PROBABLY BETTER!!! THIS STUFF STARTS OUT WELL ENOUGH. I LOST 6 LB WHICH IS OKAY BUT IT CERTAINLY RUNS AFOUL QUICKLY.. SIDE EFFECTS ARE EXPLOSIVE DIARRHEA, MOOD SWINGS, ANGER FOR NO GOOD REASON, INSOMNIA, PARANOIA, NEED I GO ON... No way no how would I ever use this again! F 57 21 days
100
9/10/2020
 1  Migraine This drug TOPIRAMATE is horrible I only took it for 3 weeks 25 MG once a day to prevent migraine, The side effects are horrible I thought I was going crazy. once I lost the coordination of my legs. He had no strength at all. short breath, blurred vision, blank mind speech problems I still have problems and muddle the words this this is horrible. now I switch to propranolol 20Mg once a day and I'm better, although these pills make my eyesight blurry. I plan to take only half. PLEASE STAY AWAY FROM TOPIRAMATE Worst medication ever M 36 21 days
25 MG 1X day
11/22/2020
 5  Daily Persistant Migraine Some Hair Loss, Eye Fatigue, Mild lip Tinging I have suffered migraines for more than 20 years, and most abortives and preventives made me feel drunk, gave me heart palpitations, made my limbs shake and shreded my stomach and bowel linings. For the last 10 years I have felt tired, lost for words, confused and depressed, and when my migraines started coming daily 6 months ago I felt like my life wasn't worth living. I have been on Topamax for 3 weeks. It has changed my life. The pain is gone. I feel like I am back again, after many years. Look for the right drug for you! This one has saved me. F 39 20 days
5/24/2008
 4  Epilepsy It is hard to determine if it is Topamax or Dilantin that I am weaning off of. I have always had the 50-first-date-syndrome, words don’t come to me, I am klutzy, I am trying to relieve stress from my life so a take a nonchalant approach to everything, etc. I can say that I have lost about 10 #'s in 3 weeks and weight loss is really hard for me!! Soda tastes funny so I stopped my addiction to Diet Coke. I can't eat as much as I use to or I feel like my stomach will explode, plus I am craving healthy foods. For lunch I wanted about ½ cup of garbanzo beans and ½ small avocado. Dilantin made me crave In’N’Out Double-Double with Fries, that sounds so gross!! My headaches stopped along with my seizures, 2 birds with one stone, YEAH!! I tried this drug once about 6 years ago but it was in combination with a large dose of Depakote and the 2 just didn't work well in my body so I blamed it all on Topamax. Now I am combining it with Lamictal while weaning off of the Dilantin the ER people put me on. I am happy with it so far. Only major question is does anyone have food sensitivities? I started a journal with times I take food/meds, things that might have stressed me out, when I slept, how I felt, etc. to make tied on health and I get major stomach pains after some meals. I have narrowed it down to meat, peppers, processed sugar, or all combined with lots of cold water. Help is appreciated. AND a big although this medicine is a lifesaver for me right now, everyone's bodies react differently due to our chemical makeup and drug combinations. 6 years ago I was protesting anyone that took this drug and now I am shouting praises from the roo F 30 20 days
8/20/2008
 4  migraines/headaches Tiredness, soada tastes bad, at times numbness in face maybe lasts 1 to 2 minutes in forehead and nose , tingling in feet and fingers at times only last a few minutes. I had daily head pain for 3 years. I never had a day without pain. I would get head aches that would last 2 hours then go away for an a few minutes then come right back to last another 2 several more hours. It felt like they never went away. I had a migraine at least 2 a week. I started topamax and now my pain is limited. My headaches are not yet completely gone but not every day anymore. I may get a headache that last 5 minutes and that may be the only one for a day. I have gone three weeks with out a major episode. I take 100mg daily. So far great F 29 20 days
8/23/2006
 3  Binge Eating, Bipolar II Tingling at the start of treatment. At full dosage, severe short term memory problems, word problems, cognitive ability slowing, and concentration problems. It changed my life with regards to mood swings and my social interactions. However, a year later, the cognitive effects that have occured so gradually are just not worth it. I'm now switching to Lamictin. In response to the lady with Bulimia - Topamax definitely curbs the binges (appetite), but that effect only lasted a few months at full dosage. As for purging, the only recommendation is a really great therapist. That is the emotional side of the bulimic, and cannot be dealt with through drugs. F 24 20 days
10/17/2007
 3  migraines I've had tingling and numbness in both of my hands and a few times on my heels. I cannot drink any carbonated drinks such as coke or pepsi because they have a very bland taste then followed by a sharp, painful taste. I lost about 5lbs. so far. I still have migraines but I do not experience the side effects of my migraine medicine, zomig since I have been on topomax. I am taking the smallest dosage every night. F 35 20 days
12/26/2008
 1  Migraines Anxiety Lack of enthusiasm Change in taste Dry mouth Insomnia Palpitations Panic Attacks Numbness of hands and feet This is the worst drug ever. I racked up 6000 in emergency room visits thinking I was going to die from the palpitations. I continued having panic attacks for 2 years after stopping this drug. I would NEVER recommend this drug to anyone! F 37 20 days
30 mg 2X day
7/7/2020
 1  Bipolar I get heart palpations and a persistent clearing of the throat that's so annoying I've stopped taking.it I also can't drink soda bc itales.ot.taste flat. This is the 3rd medication tried for my bipolar disorder and will be switching again F 43 20 days
50 mg 2X day
2/13/2024
Email
 1  Migraines anorexia, severe MEMORY LOSS, tremors, tingling in hands and feet, slurred speech, lethargic, complete loss of personality topamax BAD! i was only on it for about three weeks and i could not convince myself to keep taking it, it was terrible and ruining my life. so i never really found out if it would have gotten rid of my migraines but i'm glad i stopped. my common sense actually faded and i forgot my name. my NAME! and where i live, how to drive a car, and where all my classes were. oh yeah, and i went down from straight a's to straight c's after only taking it for the three weeks i was on it. i didn't really have any withdrawl pains but the worst part about taking the meds is that even after i stopped taking the medication, the side effects stayed. i stopped it over a year ago and i still have a little trouble putting sentences together and my memory isn't what it used to be. it's not dramatically different, but it's different. it took about 4 months total to get about back to where i was before i started taking it F 17 20 days
11/13/2007
Email
 1  migraines soda tasted flat and all food i ate had to be highly seasoned or spicy. I lost my appetite and started losing weight. F 18 20 days
10/11/2008
 1  Migraines Stupid as a rock, mood swings galore, eye pain, throwing up 20x a day+, inability to remember words, couldn't form sentences, colder than normal, got lost driving 2 miles home from work one day, gained 25 lbs. in three weeks (went from size 2 to size 10), annoyed by everything, felt down repeatedly and hit head 6x (now concern of possible brain damage from falls - gee thanks), off balance the whole time and had to switch to flat shoes, stomach pain, eye pain and blurriness, etc. (there's more but I'm still lacking a memory and most of my brain). I make my living in court as a trial attorney. Since taking this drug for my migraines, not only did it not help the migraines, but I've become dumber than a snail with a lobotomy and have had people staring in wonder as I crash into walls from the lack of balance, and utter completely scrambled and ridiculous phrases meant to be sentences. The day I left work to go home two miles away and got lost (same route for 10 years), I finally realized that maybe it was the medication. Did I mention I lacked insight too? I had such radical side effects that the neurologist discontinued it immediately with no gradual reduction. I'm still stupid after 10 days off of it, but I can at least find my car most of the time now. Each morning I go on-line and read Google listings or something similar to see how screwed up I still am speaking out loud. I also started talking to inanimate objects, but it's okay since my cat and dog think I'm quite eloquent. Another week on this junk and I'd probably have thought the inanimate objects were answering me. I'd say I won all arguments I had with myself, but I could never remember the subject matter long enough to complete conversations even with myself. I'm avoiding large butterfly nets and men in white coats now. I hope none of this is permanent, or I'm in trouble at work! F 55 20 days
25 MG 2X day
2/25/2010
Email
 5  Migraine backpain tingling in fingers and feet(was told to increase potassium intake)so i eat a half of banana and it works. Decreased my cravings for salty foods, sweets, an appetite, all good side effects for the most part. The first week I felt like, not quite myself, in my mind, kind of hard to explain! I suffered migraines from the time I was two years old. I am 42, the frequency had increased to almost daily with the most excruciating being just before my period. Those 3 days would put me in bed! I was seeing a new Gynecologist who happens to suffer from migraines, she saw in my charts that I no longer even try to take any thing for it. She figured I would need at least 125mg a day for it to help and even then she thought it would just reduce frequency. My 1st week on 25mg was my week proceeding my period that usually puts me in bed, no headache, not one, the back pain that I wake up with from my herniated disc is gone too. I increased to 50mg the second week as I was scheduled to do, but I did not increse my dose for the 3rd week as 50mg is working like a miracle. Side benefit lost 3 lbs in two weeks F 42 17 days
10/8/2006
Email
 4  Complex Partial Seizures Heat intolerance, slight fatigue, tingling in my fingers, cannot drink any carbonated drinks, no appetite (not aware of weight loss yet), short term memory loss (not extreme), sometimes have trouble finding words, dry mouth and extreme thirst Currently at 50mg, and do not consider my side effects bad at all. They may seem like many, but are actually very insignificant as they aren't too severe (except the thirst). Have not had a seizure in 2 weeks, but am still having auras. Doctor may increase dosage in 4 weeks if my auras do not stop. Overall, I am pretty happy with this medicine :) F 21 17 days
7/28/2005
 4  MIGRAINE/WEIGHT LOSS/ BIPOLAR TINGLING IN FACE HANDS AND FEET, TASTE PERVERSION (CARBONATED BEVERAGES TASTE FLAT), LOSS OF APPEITITE, WEIGHT LOSS, IRRATATED GUMS AND BURNING SENSATION IN MY MOUTH THE ONLY SIDE EFFECT THAT BOTHERS ME IS THE BURNIG SENSATION IN MY MOUTH. HAS ANYONE HAD THIS? DOES IT EVER GO AWAY? PLEASE EMAIL ME IF YOU HAVE. THANKS. OTHER THAN THAT I CAN LIVE WITH ALL THE OTHER SIDE EFFECTS, BECAUSE I FEEL TOTALLY BETTER, MENTALLY AND NO MIGRAINE! F 32 16 days
10/8/2008

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