TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | complex partial seizures | fatigue, hair loss, acne, decreased libido,chest pain,severe tingling pain in legs and hands and some in face and nose, intolerance to cold, can't drink carbonated drinks anymore, fuzzy feeling sometimes when I'm trying to talk to some one or to think about something important,can't focus sometimes when people are talking to me, constantly thirsty- drink lots of tea and water, my vision has become a little fuzzy-after corrective surgery, 30 pound weight loss(I needed), frequent urination just started. | worked for seizure control, but I'm 34 years old mother of 2 very active children and married only 2 years- the other side effects are very trying on my marriage and very active lifestyle. | F | 34 | 9 months | 6/27/2006 | 4 | complex partial seizures | fatigue, hair loss, acne, decreased libido,chest pain,severe tingling pain in legs and hands and some in face and nose, intolerance to cold, can't drink carbonated drinks anymore, fuzzy feeling sometimes when I'm trying to talk to some one or to think about something important,can't focus sometimes when people are talking to me, constantly thirsty- drink lots of tea and water, my vision has become a little fuzzy-after corrective surgery, 30 pound weight loss(Iwas 142 and now 112), frequent urination just started. | worked for seizure control, but I'm 34 years old mother of 2 very active children and married only 2 years- the other side effects are very trying on my marriage and very active lifestyle. | F | 34 | 9 months | 6/27/2006 | 4 | complex partial seizures | fatigue, hair loss, acne, decreased libido,chest pain,severe tingling pain in legs and hands and some in face and nose, intolerance to cold, can't drink carbonated drinks anymore, fuzzy feeling sometimes when I'm trying to talk to some one or to think about something important,can't focus sometimes when people are talking to me, constantly thirsty- drink lots of tea and water, my vision has become a little fuzzy-after corrective surgery, 30 pound weight loss(Iwas 142 and now 112), frequent urination just started,bruises are lasting alot longer-usually a bruise goes away in 2 weeks but now I still have them a month later and some come from nowhere. | worked for seizure control, but I'm 34 years old mother of 2 very active children and married only 2 years- the other side effects are very trying on my marriage and very active lifestyle. | F | 34 | 9 months | 6/27/2006 | 3 | seizures | fatigue, hair loss, acne, decreased libido, leg pain, chest pain | worked for seizure control, but I'm 34 years old and married only 2 years- the other side effects are very trying on my marriage. | F | 34 | 9 months | 6/27/2006 | 3 | migraines with fainting | confusion, forgettfulness, dumbness, tired grades -have went down at school | Have not fainted once since on medication --still have occasional headaches dosage at 150mg now | F | 16 | 9 months | 3/14/2007 | 3 | Weight loss | Headaches | M | 50 | 9 months | 9/8/2007 | 3 | pesudotumo cebri | weight loss, feet numb and tingle | body became imune to it | M | 41 | 9 months | 11/10/2007 | 3 | Migraines | Extreme weight loss, vision changes, eye pain and pressure, vision loss, change of taste, mood swings, aggressiveness, racing thoughts, tingling in hands and feet, forgetting of words, trouble forming sentences, hair loss, skipped periods. | I lost 100 lbs. I was always over weight as a Kid and was so excited feel beautiful for the first time. Then the weight wouldn't stop coming off. I was told I was going to be put in the hospital with a feeding tube and was being accused of being anorexic. It was the topamax. My hair was falling out in clumps. My teeth looked too big for my face. I was all bones. Finally one of my doctors believed me when I said it was the dope-a-max. Once I got off of it my periods returned and I was able to put weight on. Becareful because it comes back quick. I went back on it recently and have no weight loss. It could have been a one time thing. My first round taking topamax I kept getting pain in my eyes. They just hurt and I noticed my vision getting worse and worse. One night while driving on a road iv Been on hundreds of times I became so confused. I didn't know where I was. Then my vision just went. It was the scariest thing ever. I was alone. I turned my wheel all the way and rolled till I hit what was the curb. My vision returned probably in 45 sec. Seemed like minutes :( | F | 24 | 9 months 100 MG 1X day | 6/20/2011 | 3 | mood stabilizer | Loved the gradual effortless weightloss. Bothered by the difficulty of finding words....Horrified by the hairloss. I stopped the drug because i didn't want to lose more weight. Took me 3 years to figure out it had caused my gradual thinning/loss of 1/3 - 1/2 of hair. I believe the hair loss is a widespread side effect which is greatly under reported by patients and the drug companies. It is so gradual yet steady many do not notice it or think it is due to aging..Everybody I know and patients I know (I am a RN) who are on this drug lose a large amount of hair. I see the hair on their pillows....Though I would like to go back on it and lose 10 lbs, I will not because of the hairloss. | F | 58 | 9 months 100 1X day | 9/19/2015 | 2 | Migraines | I have been on Topamax now for nine months. Yes, it stopped the headaches, but I cannot handle the side effects. The short-term memory loss is severe. It happened gradually, but now I am realizing I have a severe problem at age 52 (I was a smart lady, retired CPA, Realtor). I literally cannot remember events as short as 30 minutes ago, this is scary and I am getting off this drug. I also have fibromyalgia and the only other medication I take is Cymbalta. | F | 52 | 9 months | 6/6/2009 | 2 | Migraines | As my dose increased from 25 to 50 then 75 then 100, the tingling sensation in my hands and feet was unbearable. Changed from capsule to tablet, 100 Mg and this improved. After a few months my wife began noticing how poor my concentration and response was to almost anything. Led to very difficult period of depression low self worth before I saw my GP and came off | Ability to focus on anything very difficult, the comments aboput this drug making you stupid are spot on, I feel permanatly drowsy and very down all the time, and this has led to some very difficult situations. Ability to concentrate and respond severely impaired. Havent had a migraine since I went on them though, so at first I was happy, but now wish I'd never gone on them as I am constantly worrying about everything. | M | 35 | 9 months 100 Mg 1X day | 4/4/2010 | 2 | Chronic Migraines | Tingling in the hands & feet, occassional extremely cold hands, loss of appetite - sometimes not wanting to eat anything, weight loss as a result of loss of appetite, some problems with word recall, low iron at times, fatigue. | Initially the number of migraines per month was reduced so the side effects were tolerable, but the migraines gradually became more frequent and side effects still persisted. Weight loss was an issue for me as I only needed to lose 5lbs but ended up losing 15 lbs. (Early on, I actually thought I would be able to control the weight loss , but the loss of appetite was overpowering.) My overall health suffered and I felt run-down the duration of being on this medication. I have decided to discontinue taking Topamax. | F | 30 | 9 months | 6/13/2006 | 2 | Migraines | ***Developed Kidney Stones*****Hard to concentrate and stay focused. Had lost my competive edge at work. Made me feel and act very lethargic, non emotional. Pop tasted strange. | This did help reduce my headaches but the side effects outweighed the benefits. Have you ever passed a kidney stone? Not pleasing... | M | 42 | 9 months | 2/15/2007 | 1 | seizure disorder | depression, apathy, confusion, mixing up words or parts of words, extreme forgetfulness, wild mood swings (yelling at someone and sobbing the next), weight loss, insomnia, sweating way less, body odor(gross!). I've only had a handful of seizures ever, and I had 2 on this med. | 40 pounds of depakote weight: gone! After being depressed, apathy set in. I couldn't be bothered to eat, sleep, do homework, or socialize. Then came forgetfulness. I couldn't remember when I had class, quizzes, why I was getting up at 7am, or what day it was. Then I started to smell funny. Then I was just pissed at everyone. It didn't work for me, but I know it has for other people. Good luck! | F | 21 | 9 months | 11/28/2007 | 1 | headaches | depression,joint pain ,hair loss,leg cramps,weight loss,fatigue,acne,back pain,agressivness,periods changed | I'm sure that Topamax has help a lot of people. It was just not the drug for me. I did lose 25 pounds but my headaches did'nt go away and the other side effects were very difficult. I stopped taking the drug gained the weight back and continue to live with the headaches. It just did'nt work for me. | F | 44 | 9 months | 8/27/2007 | 1 | Migraines | Lost 15 pounds and became dumb along the way. Short term memory loss is awful. Cant remember words, lose thought mid sentence and cant remember what I ate 3 hours prior. Should be called Dope-a-max! Strange taste especially when drinking a soda. Feeling completely full 3 bites into a sandwich. I literally had no desire to eat. | The Good: No Migraines for 9 months with weight loss! That part was wonderful but being dumb in exchange was not worth it! I couldn't function at work anymore. Take at night because it does make you drowsy. | F | 49 | 9 months 50mg 1X day | 3/4/2013 | 1 | Petit mals, migraine, pseudotumor | I began taking Topamax at a low dosage and titrated up to 800mg/day over the course of 2 months. Initially I felt it had some good side effects . . . like evening out my moods, but as I went up in doses, I went through ranges of side effects. At 200mg I felt really REALLY dumb. As I went up and out of 400mg and into the stratosphere with 800mg, started to feel fairly normal, as though my wits had returned. Then the fog rolled in, heavier and darker than ever before. It was forgetting what I was saying in mid-sentence, being unable to basic arithmetic, exacerbated ADD/ADHD, generally disoriented and unable to follow most conversations. . . For several months I was in this state, barely keeping my head above water, and then things began to get really really dark and it scared the crap out of me. My judgement and sense of rationale had become fragmented, I split off from who I normally was with weekly wailing spells, spiritual crises, wondering if I was having what used to be called | F | 53 | 9 months 200 4X day | 3/9/2014 | 5 | Pain | When I began taking my Topamax and Tramadol mix I felt dizzy and light headed. I felt like I was watching someone else’s life happening. Very tingly hands, feet and face. Also very thirsty. No appetite at all. | I was prescribed Topamax (100 mg) and Tramadol (50 mg) after having three epidurals in my spine for pain. I have to say that after about 6 weeks I started to relax and the combination of the two drugs had done the trick. It was a rocky start. I have lost about 40 pounds in the last 8 months. I have also stopped the Tramadol as I do not need that any longer but still take the Topamax. Still occasionally have the tingly hands, feet and face. The new generic Topiramate causes very weird dreams so I may go back to Topamax and pay the higher fee myself. Not sure yet. | F | 52 | 8 months | 5/8/2009 | 5 | Migraines & Epilepsy | Paresthesia, Weight Loss, Dizziness, Difficulty with Memory, Confusion | Completely changed my life for the better - has lessened migraine severity so much. I used to get severe migraines 3 or 4 times a week with vision loss and vomiting and paralysis and pain. Now i get them maybe once every 6 weeks like that. My seizures haven't been completely yet, but my neurologist is still increasing the dosage of my epilim and topamax, so that should be sorted out soon. Bottom line - if your migraines are severe enough, the *completely reversible* side effects are totally worth it. Also i've lost about 95lbs while taking it. It made me not hungry. | F | 34 | 8 months | 8/6/2008 | 5 | tension headaches, migraines | tingles, weight loss, some loss of train of thought in begining, fatigue in begining | Has really helped with my headaches. The weight loss was a nice side effect, but could be bad if too thin. I need to keep an eye on it. Currently at 200mgs. If you experience hair loss you need to take a GOOD multi vitamin with selenium and zinc! You can even add those onto you multi! Add omega 3's in as well! Hair loss on this drug is due to selenium and zinc deficiency. | F | 32 | 8 months | 3/28/2009 |