TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  migrine leg cramps, anxiety, trouble sleeping at night, hair loss, weight loss, memory-brain cell loss, dry skin, eye pain, severe migraine when I do get one 6 years ago I started out with 25 mg and worked up to 100mg. The worst side effect was anxiety, it was major! I went down to 50mg. I've been on it since then and can't believe the change in my life. Just last week I went back up to 75mg, because my headaches have started to come back again. I didn't know some of my side effects were the same as what others were having. Would I still take it if I knew about all the side effects? YES-the side effects are worth the cure. Both my daughters are on it. Just go on a lesser dose when your able to. F 57 6 years
50 1X day
5/20/2010
 5  Migraines Initially lost 20 pounds (gained it back when my thyroid slowed down). Memory loss, losing a word here and there. Not as sharp as I used to be. Inability to concentrate/focus at times. Initially had the tingling and change of taste, but that mostly has gone away. Still get some tingling every now and then. Started out at 50 mg, then was upped to 100 mg last year but backed off to 75mg as 100 mg made me really sick. I had 4 to 5 migraines a week. This medicine pretty much saved my life. I've been on it for so long now, I'm starting to be concerned about long term side effects, as there are no real studies on it. F 45 6 years
75 mg 1X day
5/23/2010
 5  migranes weight loss, tingling in my hands and feet sometimes in my face, slight hair loss but nothing significant, change in appetitie, pain and neck ache, loss of menstrual cycle, sometimes fatigued to be honest, i don't know what i'd do without it. i've been on it since i was 18, and though i have some side effects, i feel that they are minor, nothing life threatening. my mirgranes went from pretty much daily to maybe once or twice a month. definately recommeded. F 23 6 years
75 mg 2X day
8/27/2010
 4  Migraines Tingling in feet and hands, which has gone away except for extreme pain in fingers when exposed to cold temperatures. Occassional insomnia. Increased sensitivity to alcohol, so I stopped drinking alcohol altogether (didn't miss it). Problems with word usage when speaking - use opposite word -- cold for hot, in for out, etc. Resolved when dose lowered from 200 mg / day to 100 mg /day Because of the word recall side effect, I discontinued Topamax, but my migraines came back. Started up again at lower dose (50 mg morning and night) and it solved the side effect. F 46 6 years
11/21/2006
 4  Migraine If for any reason I forgot to take its like a major hangover. A day of hell until I take and it gets back into system. Levels out. It has been controlling migraines so happy. What its doing to my inners with immune issues well different story. F 46 6 years
150mg
11/14/2014
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 4  Migraines Great loss of appetite while getting used to it (1st month or so). I take it as a prophylactic, which means it's to help prevent migraine attacks. It's doing it's job and I don't have any side effect I can notice, so I'm all for it! F 29 6 years
11/20/2008
 4  Migraine prevention 15-20lb weight loss, tingling/stiffness in hands and feet, difficulty recalling words or spelling, slurred speech occasionally, facial paralysis I have had chronically uncontrolled migraines since my early 20s. Topamax is a big factor in keeping them under control. Went from 5-6 a week to 1 a month. I'll take the side effects over the migraines. F 29 6 years
2/24/2009
 3  Seizures and chronic migraines Shaky nervousness, hair loss, nausea, extreme weight loss, no appetite and eventually tachycardia Don't let your doc prescribe it with depakote unless you want a mentos with coke effect in your gut!!! F 52 6 years
200-300mgs
1/15/2020
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 3  Epilepsy Drastic weight loss, tingling in my arms, fingertips, face, sharp pain in my legs, when my dosage got switched drastic weight gain, lethargic, loss of concentration, can't get enough sleep, extremely thirsty I've been on Topamax for 6 years. I started on 25mg and am now on 200mg a day. It has stopped my seizures completely but the side effects can be completely mind numbing sometimes. It's hard to make it through the day sometimes. I've complained about the side effects multiple times to my doctor, asking them to switch the dosage to a higher amount at night so I can go through the day not feeling like a zombie w/no reply. F 22 6 years
7/25/2007
 2  Migraines Initially, loss of appetite, carbonated beverages tasted weird, hard to find words, memory loss I am desperate - it seems like the longer I am on topamax the worse my memory becomes. I have tried unsuccessfully 3 times to wean myself off. I'm taking 200mg every other day now. During weaning period the return of headaches and of aura were horrible. I've got to get off this drug because I can't remember things such as events in my children's lives and have difficulty writing a simple letter because I can't remember how to spell a word. SOMEONE PLEASE HELP!!!!!!! F 46 6 years
1/15/2009
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 5  migraines Weight loss, strange taste w/soft drinks Medication has saved my life! F 40 5 years
1/8/2009
 5  migraines Soda tasted flat in first year- taste returned; Thinning of hair in second year- has remained thinner; struggle with trying to find the right word. This drug changed my life because it cured me. In the past- I awoke every day with a migraine. It was a huge problem. I had problems with daylight, certain smells, excessive sound. nausea. I suffered from every type of migraine- cluster, hormonal, and the type you get while you dream.I had the aura with the bright zagged lines and also would go completely blind for about twenty minutes. All this was cured by taking Topamax 50 mgs. twice a day. I occasionally get a migraine, one every other month, no where near the severity of what I endured previously.It was impossible for me to work 5 days in a row before, now I am an excellent employee. F 52 5 years
9/19/2008
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 5  Migraine Works beautifully. Was having 12 blinding migraines months. Some leading to ER visits. I had been to all kinds of specialists and no help. I also lost 40 lbs. which was nice. I really didn't care about that. This drug have me my life back. I have an occasional break through headache once a year, but they are very full and I'm sure it is due to the Topamax! Thank you! F 54 5 years
200mg 2day
11/14/2014
 5  Hormonal Migraines Tingling (Potassium Fluctuation), "Topamax Moments" (knowing I want to say a word, but not being able to pull it out of the file of my brain), and at higher levels - trails of light periodically along with a loss of appetite. This medicine works. It's been a God-send for me in terms of controlling the length of time my body will entertain a migraine, along with the severity. I have been using it for over five years. Each person is different and each drug has side effects. What I can say, is I've been at 400 Mg and 50 Mg - back and forth - and 100Mg seems to be the perfect place for me. I can keep my appetite. When I'm having a "Topamax Moment", and muddle a word - I know why and I openly share it with whomever I'm amusing. It sure beats four days of not being able to converse at all. If you are coming here looking to see if you should give this drug a shot, I personally recommend having a heart to heart with your MD about it. The way I see it is - if you take this daily and allow yourself a good 14 weeks to let it settle in, you may be able to get on with your life in a way that's not possible when you are migraining. F 33 5 years
11/3/2009
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 5  migraines initial 2 weeks only-dizzy, nausea,...; after 5 yrs, noticing memory issues that isn't "cute" and way too young to be part of the aging process. It's been awesome! Lost weight at first, but you can't depend on it as a diet drug; no side effects and used to have 1 migraine/wk to none; but recently noticed memory problems that isn't normal and realized it has to be the topamax; not sure what to do? F 41 5 years
8/23/2009
 5  Migraines Weight Loss / Then gained it back Slight loss for words and spelling Decreased beverage taste Tiredness Dull Mood Lowered Sex Drive (Vision issues at the very beginning) I have experienced many side effects on this but they far out way the migraines. I hardly get any now from being on the Topamax for me it has been a life saver. At the beginning I did experience weird vision issues in low light. Kind of trails and light halos but I stuck it out and they went away just fine. My eye dr said my eyes were fine. In the adjustment phase my brain was sort of catching up with my eyes in a way. Most people may not have waited through this but this medicine was the only thing that helped me. I hope it helps others. I did also loose about 20 lbs which was an added bonus but after a year or two I gained it all back and I'm still on the medicine I have no idea what will happen when I go off of it. F 36 5 years
50 MG 3X day
1/12/2015
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 5  Migraines-very heavy ones None. Topamax has literally saved me. I was close to suicide because of attacks of unbearable pain and unconsciousness lasting for 3-4 days. Weekly. For years... It started helping already in a dosage of 50 mg. With going up to 450 mg I had a hope to remove an epilepsy as well. Unfortunately, there was no luck with seizures ((( But it's a GREAT medicine after all. Just start from 5 mg! I mean it. Take it slowly and give yourself a time to raise up the dosage. F 48 5 years
450 mg 1X day
11/7/2021
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 5  MIGRAINES, DEPRESSION, OVERWIEGHT NUMBNESS AND TINGLING IN HANDS,FEET AND FACE. SWEETS AND SOFT DRINKS DIDN'T TASTE RIGHT FOR A WHILE(this will go away). LEG CRAMPS. SLEEPINESS. WIEGHT LOSS. MOST ALL SIDE EFFECTS GO AWAY ONCE YOUR DOSAGE GETS LEVELED OUT AND IS WELL WORTH IT! TOPAMAX SAVED MY LIFE! I HARDLY GET ANYMORE MIGRAINES AND THE DEPRESSION IS GONE. I'VE LOST A TOTAL OF 80 POUNDS IN 5 YEARS OF BEING ON IT. THE SIDE EFFECTS ARE MINIMAL AND WELL WORTH THE OUTCOME. F 36 5 years
5/13/2005
 5  Epilepsy Memory loss. Slowing down. Drug is very good for controlling seisures. Since i started using Topamax 200 mg twice daily in combination with Tagretol my seisures got under control. Problem with topamax is memory loss; it shows when talking, reading, listening music, watching tv. Processing speed is slower its hard to keep up with world around. M 29 5 years
1/21/2005
 5  Bipolar Disorder Side effects are hell. It really affects me mentally. I had to resign from my demanding job as I couldn't think straight. I can't think of words, have memory loss, lose track of what I am thinking mid-sentence, etc. I lost weight I did not need to lose, however, I did gain it back after side effect wore off. Certain foods taste terrible. The reason I put up with the terrible side effects is the drug really helps keep me from having manic episodes. But what a price to pay. I am also taking Lamictal, and hope that once I am up to the right dosage, can stop Topamax. The side effects are that bad. F 36 5 years
11/6/2006

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