TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | migraines | tingling in extremities, trouble finding right words to use, slurring of speech, excitable, questionable if it caused some insomnia, 20 pound weight loss, diahrea, food has lost all taste and even consistency is weird | I also take 1 mg of Klonopin daily for anxiety. I found that if I split that up into .5 mg twice a day, early in the morning and evening, it helped with the speech and language stuff and the excitablitity, I would take any and all these side effects compared to the migraines I had, got rid of them almost completely and I had them 90% of the time | F | 30 | 2 months | 11/6/2004 | 5 | migraines | fatigue, weight loss, mild confusion, ZERO APPETITE, tingling in fingers | topamax saved my life. for over 8 months, i would start each beautiful morning with a headache and end my evenings with a headache. i was about ready to jump off a cliff head first. within the first few weeks after taking the topamax, the headaches stopped. the only downfall (for me personally) is the extreme weight loss (for most americans though thats not a problem) but for small/petite girls, losing 15 pounds can make you look borderline anorexic. so if you're a tiny person to begin with, be careful! | F | 19 | 2 months | 1/10/2007 | 5 | transformed migraines, daily headac | Mild tingle in hands and feet, thirst, mild loss of words | Will be taking 200mg soon. No major weight loss yet. No horrible side effects like people say. Have seen more + than - for my headaches. This drug has helped! | F | 26 | 2 months | 4/18/2007 | 5 | Migraine | Sodas taste horrible. Weight loss. Tingling in my hands. Loss of words. | The first few days were horrible. I didn't think I was going to make it.... but honestly after day 5 I feel like my world has finally opened up and for once in my life I'm going to start living migraine free. It's been wonderful and I'm so happy to be on this drug. It's not for everyone, but it is for me. | F | 33 | 2 months | 1/16/2007 | 5 | severe & chronic migraines | tingling in feet & hands, loss of some vocabulary, incredible increase in clarity and focus (though sometimes difficulty in finding expressing the clear ideas), voracious increase in sexual desire, occasional fluttering and tingling in eyelids, sometimes fatigue -- though nothing compared to fatigue caused by the migraines, weigh loss. The side effects have been so wonderful. I'm a violinist so the tingling has been the only really negative side effect, and even that isn't so bad. | I am writing here because I want to put down the comments about the sexual desire, because I have read almost nothing about it, and it has been crazy for me. Since starting Topamax, I now have multiple orgasms like crazy, and my sensations during sex seem to be similar to having sex after taking LSD -- my good friend used to take LSD and said my experiences sound similar to his (though of course, to a much lesser extent). I could find almost nothing noted about this, and I think it's important for anybody else who is experiencing this to know they are not perverted, and they are not alone. (I felt a little bit the pervert when this first happened. As a lady, well, I had never experienced anything like this!) It has completely opened my mind, too. I am a voracious reader, and I thinking in such an unclouded way, as if some door in my mind has opened. I used to write, as a teenager. I'm 27 now, and have only had migraines daily for a year and a half. It's been 8 years since I've written, | F | 27 | 2 months | 1/12/2006 | 5 | EDNOS/backpain/mood stabilizer | carbonated drinks all taste like alka seltzer, appetite is lowered and have lost weight (welcome side effect), gas (but could be unrelated to topamax), thirstier than normal, need to sleep with a humidifier on at night in order to avoid dehydrated feeling, slight "ebb and flow" to sexual desire, tingling in feet if i sit for too long, brain foggy BUT ONLY FOR FIRST THREE DAYS OF TAKING DRUG AND UPPING DOSAGE, did not mix well with antibiotic treatment (i got an ear infection and the antibiotics i usually take made me VERY sick to my stomach this time which NEVER happened before) | first thing to regulate my weird appetite and insatiable obsession with food. my sciatica is almost gone-i'd say it is 90% better after 3 years of EXCRUCIATING pain. no headaches for 2 months, except for one headache one day after 7 hours on the computer. quit smoking cold turkey after 3 days on meds and did not want another cigarette after that. (had smoked for almost 12 years). mood is better, not perfect; working with doctor on dosage. did not experience any "dopiness" after first few days; in fact, brain felt clearer and anxiety subsided, allowing me to think and react in a "normal" way. even noticed that i pass up impulse purchases at the store and am motivated to do things like clean the apartment and catch up on things that pile up when i get depressed. i miss diet sodas but honestly, feeling better is worth it. drink LOTS of water to avoid feeling dehydrated. | F | 27 | 2 months | 1/2/2007 | 5 | Cervical Dystonia; Bipolar II | tingling of extremities; soda tastes "odd", but I am still drinking it out of habit; agitated; loss of appetite(hoping to magically melt off 30+ pounds, but it probably won't happen); agitation; decrease in sweating (this is a good thing for me); actual ability to concentrate more; a happier outlook on life in general; regular stools | I cannot write a full essay so will be as brief as possible. I was diagnosed with degenerative disc disease back in 2003. I started out at my Chiropractor who could not help. I saw an Upper Back Specialist and we began physical therapy. He referred me to a Pain & Spinal Diagnostics Doctor who did trigger injections, nerve blocks, epidurals and radiofrequeny. I then went to a Neurologist who suggested the Botox. We have beeen doing this every 3 months. I take 8 Norco 10/325 tabs daily. I also am taking 2 40mg Oxycotin per day. This all to control my neck pain. My Neurologist suggested Topamax almost two months ago and I am just reaching a dose of 200mg where he plans to keep me at. This has been a blessing for me in so many ways. I've been in constant pain for the past 3 years and it has effected all aspects of my life. I am now 90% pain free and do not dread getting out of bed in the mornings. I basically had a constant pressure of pain in the back of my head that nev | F | 37 | 2 months | 10/31/2006 | 5 | Severe migraines | Minor tingling in fingers and toes, diet Coke tastes bad now, some fatigue | This is starting to be a wonder drug for me - I've only had 6 migraine attacks in the 2 months I've been taking Topamax (that's a huge improvement for me!), and only 2 migraines since my dose was increased to 100 mg per day. I take Imitrex 100 mg tabs for the big headaches, which didn't used to really work before I started taking Topamax, but now it does work! It's so nice to finally get some relief from these massive headaches that I don't mind the minor side effects from Topamax (diet Coke tastes gross now, and my fingers and toes are a bit tingly, but that's OK!!!). I lost about 5 pounds after starting Topamax (I weigh 120 pounds) and my doctor cautioned me that I have to keep eating (that's another thing - I'm never really hungry any more) so I have to remind myself sometimes to eat 3 times a day... | F | 40 | 2 months | 1/27/2007 | 5 | Chronic/ Daily Migraines | Weight loss, Decreased appitite, pop tastes funny but like others i have switched to drinking water, hard time coming up with words sometimes | I have had migraines since i was two years old. I have been on what seems like every drug on the planet earth and so far this is the only one that has brought me any sort of relief without horrible side effects. Depakote was the only other drug that helped but the side effects were so bad i couldn't stay on it. I love topamax and hope it keeps working for me. | F | 2 months | 2/2/2006 | 5 | Migraines | Tingling in arms, hands,fingers,legs,&toes. Memory loss. Weight loss. Taste change. It has helped with my migraines. Had to give it a couple weeks for it to work. Give it a try don't give up it works. I had a migraine every day. Was in hospital for a week, then they prescribed me topamax. I was ready to give up on medicine, then decided to give it another week or two glad I did! :-) | F | 39 | 2 months 100mg | 7/28/2012 | 5 | Migraines (1-3 a month) | I have only had the tingling in my hands and feet periodically but nothing horrible and my diet DP tasting bad. I have also had an awful sore throat for the last 2 weeks but not sure if its related. I have lost about 10 lbs but I'm not complaining there!!!!! I haven't had a migraine since starting Topamax! For me, it's been a life saver! | F | 32 | 2 months 100mg | 4/18/2013 | 5 | cluster headache | Worst is drastic loss of appetite (I'm already skinny), and many things taste metallic... chocolate cake tastes like rusty nails!... always this metallic taste in my mouth after eating anything. Not on high dose but feel a bit 'dazed', usually need a nap during the day. | Seasonal (summer) severe cluster headache bouts for many years, previously tried Sandomigran, Tegretol etc. Topamax is brilliant and actually works. Still have to go for the oxygen occasionally but so much better than ever before. Not game to up the dose or I'll starve to death; at present forcing myself to eat (mainly fruit)... but would rather suffer from malnutrition than full blown CH any day. | M | 60 | 2 months 25mg 2X day | 2/27/2010 | 5 | Mood Stabilizer | weight loss, insomnia, energy, feeling positive "up" "good" out of my depression. If anything that is close to negative about Topamax is that it keeps me awake for all hours.. I can get a max of 3 hours of sleep at night, BUT when I wake up the next day I will STILL have all this energy as if I slept for 9 hours. AND not get tired all day. | I read as many reviews as I could about Topamax, and all/most of the reviews were negative. I have not yet experienced ANY of the side effects except for the weight loss. I have NOT experienced brain fog, "dopey" feeling, tingle feeling, hair loss, loss of energy/tiredness. | F | 35 | 2 months 50 mg 2X day | 7/23/2011 | 4 | Alcohol Dependence | Tingling in hands and feet. Loss of sexual desire. Forgetting owrds and a general spacey feeling. | This was an amazing drug for me. It helped me to quit drinking were before it was impossible. I would recommend this drug. Highly. Had to go off of it because of the sexual side effects that husband did not like. Other than that, GREAT! | F | 36 | 2 months 50 mg 2X day | 8/6/2011 | 4 | migraines | slight dizziness, tingling in hands and feet, loss of appetite, slight stomach problems, trouble finding the right word, trouble memorizing (college student), | I usually don't have problems with medicine, so what I'm experiencing is the worst that's ever happened to me. However, it has helped me with my migraines. I'm functional in the afternoons (which is when I had my headaches), and that's a step in the right direction. I've lost a little bit of weight, but I've also been exercising more as well, so I'm not sure what is the cause. This medicine will make you lose your appetite, however. Food isn't as appealing to me anymore, and carbonated sodas taste terrible (I didn't really drink them much to begin with, though). My stomach makes a lot of weird noises, but it doesn't really hurt. I feel slightly dizzy at times, but it is only occasionally and nothing that is really frightening. The numbness in my hands and feet, however, does get old after a while. If I cross my legs or sit on my feet, they get pins and needles in about half the amount of time they used to. I also sleep funny, so I wake up with numb hands and fingers. Being a college student is a little tricky with this as well. I can get through the word association okay because I write for fun on a daily basis, but trouble with memorizing has impacted a few of my grades. I would recommend this medicine, however. ONLY if you know you don't have strong reactions. | F | 18 | 2 months 50MG 1X day | 2/9/2011 | 4 | migraines | My headaches were worse at first--but i stuck with it and then they improved significantly; tingling in hands/face/heel that is painful at times (this has improved since my doctor recommended taking vitamin B and B12); hair loss (this still hasn't improved...); fatigue in first two weeks only (it wears off significantly); loss of words in the first month (that wears off); eyes burning and dry, especially when I am in the sun all day; reduced sex drive; I now hate the taste of soda; dry mouth; slight loss of appetite | Most of the side effects truly wear off, just be patient!!!! Also, this medicine has really evened out my moods. It makes me feel a lot better all the time. I have heard this is the opposite for some people (they feel angry on it). You may feel your headaches get worse at first. Just wait--they will improve. Take vitamin B with vitamin B12 if you have bad tingling. This helped me a lot to reduce the tingling. It isn't completely gone--but it has helped. Others recommend bananas. | F | 25 | 2 months | 2/3/2010 | 4 | migraines | decreased appetite, weight loss, initial bouts of insomnia, word finding difficulty, mood changes, mild tingling in lips, hands and feet. | All in all, Topamax has really improved the quality of my life. I went from having several debilitating migraines a week to a couple of mild migraines a month. Sure, the beginning was a little rough...especially with the insomnia and some mood changes. But, things seemed to have leveled off and I'm back to really enjoying life. The only side effect that I still notice is decreased appetite. And I'm not complaining about this...I've lost 10 pounds of "baby weight" in two months and I feel great! Food still taste good, I'm just not hungry quite as often. | F | 31 | 2 months 100 mg 1X day | 6/26/2010 | 4 | migraine | mild numb and tingling sensations, appetite suppression,dizziness, fatigue at first, taste changes | Side effects have really been pretty mild for me, and when compared to the constant pain of daily migraines, the trade off for me has been worth it. The numbness and tingling sensations have been transient, only lasting 15 minutes or so at a time, I've lost maybe 5 lbs in the 2 months I've been on it so that isn't terrible either. Soda started tasting awful once I hit 75mg, but it isn't any great loss to me not to drink it. The dizziness and fatigue happened for a couple of days each time my dosage was upped then went away. I started at 25mg at night for a week, then 25mg morning and night for a week, then 50mg at night, 25mg in the morning for a week, now I'm at 50mg morning and night. I would take the mild side effects I experience any day over the severe pain I was suffering on a daily basis. This has been a little wonder drug for me. I feel like I have a life back again. | F | 37 | 2 months 50mg 2X day | 6/27/2010 | 4 | migraines | tingling feet and hands, severe insomnia, loss of words and other memory problems, hair loss, speech problems, initial hyperactivity and a huge jolt in libido | I've had migraines since I was 12 and have tried nearly everything. Botox was working well until it caused my eyelid to droop. Started with 25mg 1x/day for 2 weeks, now at 50mg 1x/day at bedtime. 50mg has cut back migraines from 3-4 week to maybe 1 a week, except for menstrual migrianes. My problem is I've always had trouble with insomnia and take 100mg Trazadone + 10mg Cyclobenzaprine at bedtime to help with that. I'm sleeping 3hours and waking- unable to go back to sleep. Adding 0.25mg Xanax dosen't help. Can take Ambien and sleep about 6 hours, but it's not a restful sleep. Does anyone take Topamax in the AM to help with insomnia? | F | 47 | 2 months 50 mg 1X day | 6/30/2010 | 4 | Seizure/headache | It started off as tingling in my fingers and slight numbness. I can handle that. It gets really bad when I get cold. I've always had that due to low blood pressure so it's not that different. If I have ANY caffeine my lips twitch, eyelids twitch and my cheeks, neck, and jaw tingle like nobodies business. Right now I'm trying to type this message out while watching my fingers spasm. It's weird that it only happens during the middle of the day after work, it seems (the finger spasms). I can make it stop by fully flexing my fingers or fully clenching them into a fist. I have lost my appetite somewhat but I've never really had a super strong one. I've lost my sex drive completely but that might be due to the topamax and other things, however it is unusual. Not that big of a deal as I'm single at the moment. I do, however, seem to get irritated at little things a lot easier and I can't remember things like I used to. Extremely frustrating, not being able to remember things well. | F | 25 | 2 months 25 4X day | 5/23/2013 |