TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | Migraines | Memory loss, moodiness, loss of appetite, hands constantly cold, loss of libido, mood swings, sinus seems "clogged", hair loss, anxiety, depression, heart palpitations, loss of taste and smell, clumsy, | After many years of suffering of extreme migraines, I was desperate for ANY miracle cure. Come Topomax the "miracle maintenance solution to your migraine". My Doctor made it sound really appealing and desperate as I was (25 out of 30 days with headache) yes, Topomax was just for me. Day one, 25mg, I could not function. My husband had to do just about all for the day but hey, it would take time to adjust, my Dr. said. The dose increased weekly and within a month I leveled at 100mg. That was a year ago and by now I am at my wits end. The side effects have not gone away, if nothing else, they have worsened. I remember telling my husband a while back while still adjusting to the med "please bear with me, it will get better and I actually feel like I can now have a life without headaches!" HOnestly, at this point, I would rather deal with the headaches than the hell my life has become!. I just found this website and I am honestly relieved because so many of the symptons | F | 41 | 1 years | 1/13/2006 | 1 | Migrains | Topomax worked great for my migraines but it made me stupid. I would look at words that were mispelled and not be able to reason what was wrong. My memory was depleted. I could not form a coherent sentence. I could not remember names, places, etc. -things I had always known. I would misprounce words and not be able to figure out how to say a word. And it only got worse. Rages, memory loss and word re-arrangement. No tolerence to loud noises and bright colors, pitch/tone, significant cognitive impairment: , word finding difficulty, slow comprehension, difficulty concentrating. Eye pain and redness, weight loss, change in taste ,loss of appetite, garbled speech hands curling up and unable to open them, unable to comprehend others, unable to complete thoughts or sentences, sadness, drowsiness, unable to really communicate to people. Severe language disorder. Loss of words although the picture was in my mind. Confussion and loss of organization to the point of routine tasks now com | Worse medication I've ever seen. Crying, irritablity, memory loss, vision blurry, suicidal thoughts, irratic driving, I spent the majority of my time alone in my room, either sleeping or staring off into space. Crying spells, angry, then nice. Depressed, new personallity. I am unable to function. I am psychotic I cannot have a conversation with anyone, I can't remember what I have said. I can't think straight. I cannot function physically, suicidal thoughts seemd to get consecutively worse each day. Confusion, paranoia, insomnia, panic attacks, innability to complete the most simple task More words to discribe how I felt. Anxiety attacks, sadness, mental fog, word and name loss, pessimism, anger, suicidal thoughts, eye pressure increased, double vision. I became agitated and beligerent, bruised and sinus infections all the time, agitation, forgot common words and phrases, insomnia, loss of interest in sex and love and other things that used to be important to me. I couldn't stop | F | 47 | 1 years | 3/25/2006 | 1 | Chronic pelvic pain | Topamax was extremely effective in dealing with my pelvic pain, however, the side effects were so debilitating that I had no choice but to go on long term disability. It started slowly with speech problems, memory loss and slow motor skills as well as unable to finish tasks. Finally it affected my concentrations level so significantly to the point where I could not work anymore. I worked so hard to get this point in terms of education (B.S in chemical engineering and M.S in organic chemistry) as well as my career as medicinal chemist for last 15 years will be wasting away. Not only that, my family life has been changed completely for last few years. I lost all my interests, including many of my kids' activities. I can't tell you how awful I feel everyday. I know many people are thinking this would not happen to you. I don't even know how many people are awear of FDA warning about increased risk of birth defect by Topamax. I can't stress this enough " please do not take this med unless you absolutely don't have any other choices. It is not worth it. | F | 43 | 1 years 50-100mg | 5/23/2012 | 1 | Weight loss | My hands and feet constantly burn and tingle. I have diahrhea all the time. My muscles ache. Im suicidal now. Wasnt worth losing weight. Stay away from this drug!!! I also now have to be reminded to eat. I no longer have the ability to know when Im hungry. Days go by without me eating. I also cannot retrieve the proper words in conversation. | F | 1 years 200 mg | 8/27/2012 | 1 | Migraines | Memory Loss, Lack of concentration, weight loss, food tasted strange | While this did help my headaches & I enjoyed the quick weight loss, it was not worth it. I began having pretty bad memory loss & trouble forming my thoughts. | F | 24 | 1 years 1X day | 6/27/2012 | 1 | migraines | I developed high histamines, body aches and when I went off the medication it got WORSE. I've been off topamax for a month and my whole body hurts every day. | F | 45 | 1 years 12.5 1X day | 6/24/2012 | 1 | Migraines | Frequent 'presque vu', disturbed sleep because of pins and needles in feet, extreme weight loss, eventually debilitating paranoia | My first stint w/ Topamax lasted six months and I lost 50+lbs which fueled my eating disordered behaviors. I found myself addicted to the appetite suppressing effect of the drug and put myself back on it but it became unbearable quickly due to the intense paranoia it would cause. Symptoms were especially difficult to manage during any change in dose. I did have fewer migraines while on the drug... | F | 19 | 1 years | 1/2/2010 | 1 | Migraines | Distaste for carbonated beverages, irritability, confusion, rage. | It's actually my (ex) wife that's taking topamax for migraines. First she lost 30lbs which caused an attraction to the drug, she says there are no more migraines. After 3 mo I first asked her to stop taking it after noticing a behavior change. After that nothing I could do was right, 9 mos later I hear she wants to divorce me. We have a very successful business, nice imcome , just finished building a new house. The rage got worse I suggested at that point to separate. I'm now divorced after 16 years together, have a 9 yr old boy that we share custody, I loved my family, I hate this drug | F | 45 | 1 years 25mg 1X day | 5/21/2016 | 1 | Migraines | I believe my husband killed himself because of this drug | He couldn't remember things, had a hard time finding words, lost massive amounts of weight. Thought he was waisting away. Finger wiggling. Not him at all. I think if he had realized it might have been the drug and quit taking it he would still be here | M | 58 | 1 years 400mg a da | 2/13/2017 | 1 | migraines | Lost my hair!!!memory loss!! | No migraines. | F | 44 | 1 years 100 | 2/3/2015 | 1 | Migraines | Memory problems, hair loss, Raynaud's | Even if Topamax had completely eradicated my migraines, I still would quit taking it. It's not worth it. | F | 30 | 1 years 75mg 1X day | 1/23/2015 Patient History | 1 | epilepsy | I was so dizzy I would fall down, vomiting, slurred speech, nauseated. I couldn't function foggy. Fall out of my bed. I had to be taken care of by friends. They had to do everything for me. Called peri medics constantly.Couldn't find out what was wrong until I was tested after a year of hell. I was toxic. DO NOT TAKE THIS MEDICINE. I DON'T RECOMMEND IT. IT WAS A YEAR I WON'T FORGET. I WOULDN'T EVEN LET MY WORST ENEMY TAKE IT. DON'T DO IT. | F | 50 | 1 years | 10/6/2015 | 1 | Migraines, Bulimia | Worsened migraines, weight GAIN, tingles | I started taking Topamax to help my migraines and control my bingeing...2 birds with one stone. Not so much. I've never experienced more frequent, painful migraines than on this drug. Plus it did not help the bulimia at all. If anything, it got worse and I gained a lot of weight from this. I also got the tingles and some nights I couldn't sleep. Occassionally, I would get a panic attack. I also felt as though Topamax dulled me out a lot. I wasn't able to think as sharply. Hated this drug!!! | F | 19 | 1 years | 7/21/2008 | 1 | Chronic headaches/migraines | memory loss, lack of concentration/focus, loss of words, 'confusion' | I am a female in my mid-to-late 30's. I was on Topamax for about a year. The memory, vocabulary, concentration, focus, loss of words and 'confusion' got so bad it became a real problem at work and the rest of my life. When I started forgetting how to get home, the neuro doc took me off of it. Those problems decreased a bit, but never entirely disappeared. After weening off the medicine, the full-blown headaches/migraines returned (Topamax only moderately relieved pain). So now in addition to the pain in my head, I have the lingering sides-effects to deal with. It cost me my job. I've been off Topamax for over a year and still have not regained control of my own thought processes. Among other things, it's embarrassing because I feel stupid. I no longer understand about half of what I read, have trouble following (and remembering) conversations, habitually forget what I'm supposed to do/have done/am doing. Forget being able to follow a series of directions. I am afraid Topamax has caused permanent damage to my cognative brain functions and I have no idea what to do about it. Has anyone else experianced this problem? | F | 37 | 1 years | 6/15/2009 | 1 | Bipolar I | Cognitive slowness and rapid mood cycling. | It did not even cause weight loss and had no therapeutic effect on my bipolar. Some psychiatrist refer to it as "Dopamax." I used it for one year in 2002. | F | 41 | 1 years | 7/3/2009 | 1 | Seizures | Horrible anxiety attacks, confusion, brain fog, poor word recall, tingling, pop tasted bad for a while, very aggitiated, weight loss.. Now a year later I find myself highly aroused, tingling and throbbing in the clitoris that won't go away. and having multiple orgasms but still feel unsatisfied. I can't concentrate it is so bad. If it did not throb and I felt satisfied it would be welcome. | I have been putting up with the sid effects but now we ahve to do something else. I was put on this when the took me off Dilatin because of liver issues. I have always had a low libido and orgasms have been something I had to work at. Not now. The last 2 months I am aroused all the time, so much that I can't concentrate because the tingle and throbbing disrupts my life and i can't think of anything but getting relief sexually. It is making me feel like a rotten parent and all I want to do is cry. When my husband and I are together it can be fun but the rest of the day it is torture. It has to be the Topamax. The only thing we have changed is added Flax seed to my supplements so we have now cut that out too just in case that did it. | F | 38 | 1 years | 11/10/2008 | 1 | migraines | tingling,memory loss,dry mouth,tired sleepy,speech slurred, intestinal problems, ringing ears, dizzy, vision problems, eye spasms, upset stomach, weight loss, can not concentrate. | Like most,I am uncomfortable putting this medicine in daily. I suffer 15 to 20 migraines a month. Can not say it has helped other than severity. Feel horrible. Started out 25mg a day moved up to 100mg a day. Feeling worse. Just learned that I must ween my self off. Going to do so in the next week. | F | 48 | 1 years | 11/25/2008 | 5 | Migraines & nerve damage | Had tingling in my face, hands and toes if I miss a dose. Appetite goes up and down. Had an inital weight lose but that has leveled out. Libido is nil. I get disoriented and sometimes start to tip as I walk or trip over my own 2 feet. I get confused all the time! Not only do I spell backwards but I talk backwards. I also, as many others cannot find words when trying to have a conversation. | I started taking 100mg Topamax for migraines that I was having 1-2 a week and it helped. Then I had a spinal fusion and I began to get the migraines 5x a week. It was like they came back with a vengence, worse then I had gotten them before. My doctors started increasing my dosage 25 mg at a time until I was up to 300mg. The migraines finally decreased down to 2-3 a month but my brain was mush and I didn't sleep, so back down to 200 mg. I went. I've been there for about 8-9 months now and the migraines are the same at 2- 3 times a months, I just don't have as much brain mush! Although I did fall the other day, I still get a little disoriented from time to time and feel like I cannot have an intelligent conversation because I lose my train of thought. Some days I feel very clear, others, not so much. I think it definately helps with my moods/depression from my accident. I do have 1 of my doctors that wants me to come off of the Topamax because he said its not meant for long term use. I h | F | 38 | 32 months | 7/3/2006 | 5 | Migraines | Weight loss:-), paresthesia (tingling toes and fingers), carbonation used to taste bad, slight thinning of hair, odor (combat with 3 types of deodorant)- first three months, very difficult adjustment period (fuzziness, depression, weepiness)- but since then, great! | Used to get migraines 2-3x/week, headaches EVERY day- since starting Topamax 26 months ago, had only 9 total and Tylenol knocked most of them out. My migraines were caused by hormones, barometric pressure and stress. Can't get away from those triggers! It has been a life saver! I take 100 mg/day, 50 a.m. and 50 p.m. | F | 42 | 26 months | 2/9/2009 | 5 | Migraine Headaches | Initial tingling/numbness in hands and feet, forgetfulness, memory loss, overall 'ditzy' feeling | This drug REALLY works for migraines. I was having migraines nearly every day. Couldn't get out of bed, go to work, school or anything. I take 100mg twice a day. The only down side for me has been the forgetfulness. It's a bit of a problem with school/work. Considering asking my neurologist to decrease my dose for a while to see if it helps. | F | 28 | 25 months | 1/13/2009 |