TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  Severe migraines I had to discontinue use of this medication even though it was helping my migraines significantly, because I experienced severe vaginal yeast infections. I also experienced weird taste from carbonated beverages, a sensitivity to both alcohol and caffeine, weight loss, nausea, memory loss, dizziness, muscle fatigue, and insomnia. F 31 3 weeks
50 mg
3/29/2014
 3  Mood Stabilizer Tingling in hands, feet and face. Funny taste in mouth. Fatigue. Soda tastes flat. Fast Heart rate at night. Headaches. Severe Depression which leads to anger. I can not say I am really satisfied with taking this yet I have only been on it for about 2 1/2 weeks, with all of the side effects that im experiencing its more of a project to take the topamax than anything. But im trying to give it the benefit of the doubt. My dr. says that it will really help with my moods. So far I feel it has made my mood worse. But if after a month of taking it and I do not see a change I am going to get off of it, because I won't be able to deal with the side effects anymore. My dr. has reassured me that the side effects will ease and I will see a great difference in my moods. So we'll see. F 22 3 weeks
6/8/2009
 3  Mood stabilizer / weight management Skin itching, pins/needles feeling in feet, brief periods of lack of appetite (nothing like I had hoped for) I was very nervous about taking this medicine due to the "dopamax" effect that is so commonly reported. However, I was mostly interested in in for the wight loss side effect. That being said, I am not overweight... and most people would think it was absurd for me to be taking it for that reason. I'm 5'7" 140 lbs. So far, no weight loss. Needless to say I am disappointed, but I haven't reached my therapeutic dose so there may still be hope. Anyway... I am also taking it because I am possibly showing symptoms of bipolar disorder. None of the side effects have been bad at all really. The most noticeable is the pins/needles in my feet. I suppose it should be noted that I am also taking 450 mg Wellbutrin. F 22 3 weeks
25-75mg 1X day
4/28/2012
Email
 3  Bipolar II/Anxiety Disorders I have taken Topamax in the past at a higher dose. I started at (I believe) a 30mg pill, that was not to be crushed or chewed. However, my doctor told me to cut it in half. It was SO tiny, that I tried to cut it in half with the pill cutter. I was having "rapid release" of the drug, due to cutting it in half and was having panic attacks and crying fits. Forgetfulness and thoughts of "going crazy". No weight loss like most people had. I took Topamax like that for about 2 weeks. Then I quit. I did my research once my head came back to normal and found out that there is a 15mg Capsule. It can be opened and "sprinkled on food" or swallowed whole. I have been taking the 15mg one for about 2 weeks. It is helping me better. I like the smaller dose. When I feel ready then the doctor can "up" my dose, or I can stick with this. I have to admit, that even though my dose is small, I do have difficulty remembering things. I am having trouble typing this com I am going to continue to take this in hopes that my foggyness will go away. And I hope that I can stay on a small dose, maybe going up to 30mg twice a day sometime in the future. This seems to help with my mania and bipolar mood swings--BUT IF YOU WERE A ZOMBIE, YOU WOULDN'T HAVE MOOD SWINGS EITHER. So, only time will tell. Been on this for only a very short time. We will see what happens and I will update you all. And anyone who has questions, please email me. God Bless. F 31 3 weeks
15mg 2X day
6/25/2011
Email
 3  Migraines Not sleeping well, feeling a little loopy, and I can feel myself going into a depression, although it doesn't seem to be a deep one. Once or twice I had tingling in my feet and I am tired and achy, although I don't know if the ache is due to the medication. At this point, I am satisfied, because the frequency and intensity of my migraine headaches had been increasing, making it more and more difficult for me to go to work 5 days/week. Now I go to work, and I'm tired and achy, but at least I can get to work. I can't ask much more than that at this point. F 53 3 weeks
50 MG 1X day
2/9/2010
Email
 3  migraines weakness, depression, the shakes, such tiredness. After dealing with having a migraine everyday, I was willing to try anything that would take the pain away without destroying my liver, but this is awful. I am so weak and my hands shake constantly. I cant think straight without having to talk slow or just not talk at all. Reading, my favorite pass time, cant happen because every time I try to read for any length of time I get dizzy. I am only 21 and I have to go back to school soon, but I refuse to go back to school while on this medication. I am having dark thoughts along with anxiety. I am not a fan even it does take away the pain its not worth having the depression, the shakes or the suicidal thoughts. F 21 3 weeks
1X day
7/24/2010
Email
 3  Migraines Very itchy body on 3rd week of treatment (75mg). Doctor tells me the symptoms are temporary, Ya ok, he doesn't have to live with it. Is there anyone else out there who also experienced an itchy body symptoms? And if so did it pass? I would Love to make this drug work for me, but I cannot live scratching myself 24/7. M 38 3 weeks
3/7/2005
Email
 3  Chronic Headaches Tingling extremities, mood swings, speach problems, loss of balance. So far I have had not had to take additional medicine for headaches since taking Topamax now for 3 weeks. This is a miracle since I have had a headache every day for 10 years. I was getting a migrane about 3 times a year and had a brain aneurysm in 7/04. I was about to ask the Dr. to take me off of Topamax though because the side effects seemed to much to handle. I was crying becaue I could not find a sock. I could not spell to save my life. I would go to work and stare at the computer for 6 out of the 8 hours. I tripped and bumped into every thing. I would not fall asleep until 4:00 am and then wake up at 6:00 am. The tingling in my hands and feet has somewhat subsided but I now notice it is only when I get cold. I have not experienced the weightloss like I wanted (and secretly motivated me to go on the drug) but I am only at 100 mgs. My doctor wants me to go up to 200. I am scared though. I dont want to lose my hair. My symptoms seem to be subsiding and I just cannot imagine them getting worse. If I increase the dosage, will I go through another 3 weeks of turmoil? F 37 3 weeks
1/24/2005
 3  migraines Tingling of the fingers and feet, blurry vision occasionally, itching, carbonated beverages lost appealing taste not sure if working yet in short amount of time F 23 3 weeks
3/10/2005
Email
 3  migraines foggy-head, quivering lips (has ANYONE else had this?), weird taste in mouth (especially w/ carbonation like everyone else), cognitive/memory confusion, crying easily 25 mg. am. + pm. Didn't read up on side effects until today, in order not to anticipate them, and am stunned at similarities with what I'm experiencing re fuzzy headednss, and general low mood. Left the stove on twice yesterday. Sat and waited at a green light today. Crying at sappy commercials....going to give it a couple of more weeks to see what happens. Headaches took a while to subside, but finally have. F 47 3 weeks
5/11/2005
 3  Migraines Tingling in arms, legs, and feet. Pressure around top of eyes and forehead, nausea, dizziness, shortness of breath, fluctuations in appetite that I have never had before I tried Topamax about a month ago and was so sick I had to stop taking it. I restarted it about 2 weeks ago with a lower dose and I'm currently working up to 100mg but I doubt I make it that far. So far I'm at 25mg 1xday and it feels almost like an out of body experience. The pressure on my forehead and eyes is strange and I'm paranoid of the visual problems I keep reading about that Topamax can cause. I'm a runner and have not been able to run even a mile since taking this medicine. F 25 3 weeks
3/4/2007
 2  Mood Stabilizer Tingling in hands and feet; insomnia; memory loss; became dumb as a brick; diet sodas tasted extremely bitter; complete loss of appetite(this was a good thing though) I was very disappointed in all the side effects I experienced during the short time I was on the drug. I really wanted it to work especially for the weight loss cause I'd gained 20 lbs in a year while on Prozac. Unfortunately being in a fog and not being able to remember simple things did me in. Plus I really couldn't tell that my mood was being stabilized. The side effects were not worth continuing for the standard 4 weeks of waiting to see if it truly was going to help me. I only lost 3 lbs during the short time I was on it even though I only ate like one meal a day -- small meal at that. F 35 3 weeks
3/1/2007
 2  Schizoaffective Disorder I literally couldn't pee while the drug was in my system. It was a nightmare. Phantom smells up in my nose such as cigar smoke and a bleach-like, chemical smell. The heartburn from this stuff broke through even the Nexium that I take for my acid reflux and Nexium is pretty much the strongest reflux med you can take. It made me feel more stupid then Seroquel. This is the worst drug I've taken for my diagnosis and I've taken 11 (not including this one). I took it so that I could get off the Seroquel and lose weight to reduce my risk of developing diabetes. Instead, however, I got the rare side effect (If you knew me you'd know I have terrible luck) of extreme difficulty peeing. I felt like I had the urinary tract of a 80 year old man!!! M 31 3 weeks
2/2/2007
 2  Daily Headaches; Migraines Daily nausea; Vomiting; Tiredness; Irritability; Still having daily head pain. I started on 25 mg. w/ side effects. Still the same at 50 mg. I just started 75 mg. 2 days ago and still no change. My doctor hopes that when I get to 100 mg. the side effects will cease and the headaches will be prevented. Hard dealing with nausea and head pain on a daily basis - starting to consider going off. When I fell asleep one night with out taking my Topamax, I awoke the next morning without any nausea or head discomfort at all. F 32 3 weeks
6/7/2005
 2  Tremors & Akithesia due to Seroquel None No effects felt at all. Titrated from 25mg up to 100mg with no response. M 25 3 weeks
9/29/2003
 2  Migraines Soft drinks taste watered down, loss of words, and weakening of eye site. Not a good drug to take when attempting a summer Calculus class. Topamax makes me feel confused and unable to comprehend. I have not felt sick in any way nor have I lost my apetite or lost weight. I went from having 3 migraines a week to only about 1. But now I have a Glaucoma scare! M 19 3 weeks
7/13/2007
 2  migraines anxiety, depression, depersonalization, "crazy" thoughts I have a history of anxiety and depression but it has been controlled for 15 years with Paxil. Until I started this medicine I was absolutely fine. 3 days after I started it I had horrible anxiety and depression, but my migraine was gone. I saw the doctor and they inceased my Paxil and put me on Klonopin. It helped for 2 weeks and then all of a sudden the symptoms were back. I waited 2 days and decided I couldn't deal with it anymore and stopped taking it. I saw my doctor again and he said I didn't have to taper since I was only on 3 weeks. I've been off 3 days and am slowly starting to feel better. I would rather deal with migraines than be in this hell! It worked great for the migraines, but I couldn't live with the side effects. I really don't want to try another drug for my migraines so I'm going to start seeking natural solutions. F 34 3 weeks
15mg 2X day
12/30/2010
Email
 2  Headaches Severe pins and needle in hands, arms face and mouth. stomach ache and growling, severe fatigue and memory loss. seeing black spots and foggy memory. I didn't like the side effects and couldn't live my daily life taking the drug. now to find something else to take. my dr didnt tell me about the horrible side effects of this medicine. very scary. F 29 3 weeks
50mg 2X day
2/3/2011
 2  weight control (bipolar meds) tingling in hands and feet, food taste off, still have cravings I am taking Zyprexa to help control a manic phase. This med causes extreme weight gain. So doc has perscirbed topamax to counter effects but it has not worked. The pounds are adding up. I would not let a doc put me on this combination thimking that weight gain can be avoided. F 44 3 weeks
3/1/2006
 2  meniere's disease anxiety, brain fogginess, tingling in fingers and toes, headaches, ringing and pinging in ears, decreased appetite I wish I had known how severe the side effects of this drug could be. My brain was in such a fog that I could hardly function and I was in a constant state of anxiety. Could barely sleep at night and was exhausted during the day. I felt as if I was losing my mind. F 34 3 weeks
4/2/2007

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