TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
2 | Migraine | Metabolic acidosis leading to massive kidney stones that were frequent (more than 3 per year); continued migraines; weight loss; drop in blood pressure; unable to walk for over a month due to dizziness | F | 44 | 8 years 200mg BID | 11/28/2013 | 2 | Bipolar Disorder | Not sure. I didn't notice anything. But I had my first panic attack 3 years after taking it. I had never experienced one. Since the first panic attack I had multiple mild ones that I learned to keep under control. I have been off for 1 month after finally discontinuing it as I am on other drugs and Topomax is not prescribed in my country. I had an ok withdrawal for the first few weeks and now after 1 month have some mild symptoms of the panic attacks. My body throbs a bit, hard to get to sleep. | I wish I had never gone on this drug. I cannot say it is definitely related to my panic attacks. But I do hope to feel better as months go by without it. I currently take lithium (Bipolar) and paroxetine (Depression) and Clonazepam (panic attacks). After a number of years with no symptoms of the above I am going to weak off the Clonazepam this year and hopfully the Paroxetine next year and stay on the Lithium. | M | 37 | 8 years 100 mg | 1/31/2019 | 5 | Hydrosyphilis / headaches | Itchy scalp/ no appetite/ nausea/ tiredness | F | 46 | 7 years 200 Mg 2X day | 8/1/2020 | 5 | mood stabilizer | When I first started taking it I went thru the tingling legs, fingers, and lips. Hair loss, forgetful memory blurred vision but that only lasted for 2 wks at the most prob less. It's the generic topiramate that I don't like my insurance won't cover name brand and now I'm going thru all the site affects again except now I am dealing with extreme anxiety. | This medicine isn't known for psychiatric needs but I went thru so many meds that made me gain so much weight and then I started this I was just a different person. A great person and I was healthy and lost over 60lbs in 6 months thanks to this medicine. | F | 23 | 7 years 100mg 2x d | 5/15/2015 | 5 | peripheral neuropathy | mental confusion, spelling errors, etc. weight loss. I had migraines but didn't know topamax would take care of that. They're gone! And most of my side effects are too except I still struggle at times with | F | 50 | 7 years | 5/1/2005 | 5 | migraine | Weight loss; initial dizziness which subsided after a few weeks; insomnia; misuse of words and/or difficulty finding the correct word; currently experiencing severe mood swings | Mood swings may or may not be attributable to Topamax as I also take Ambien for insomnia. Topamax has drastically reduced severity and frequency of headaches. | F | 63 | 7 years | 7/21/2008 | 4 | Chronic daily headaches | Initially tingling in feet, inability to taste carbonation...currently skin problems (rash, acne), alopecia, fatigue, weight loss/filling up quickly | I have taken this drug on and off for 7 years. Currently on it along with Depakote. Neurologist says unable to diagnose origin of headaches but continue to patch (not fix) problem. None of triptans are effective. Tried antihypertensives, antidepressants, antipsychotics, over-the-counter meds, steroids, etc. and nothing is effective. Regimine will work for approximately 2 years then my body somehow becomes immune to medication and the doc asks me what I WANT TO DO NEXT?? I believe this drug is effective in preventing my headaches for a period of time but unfortunately side effects are difficult to deal with especially in combination with the depakote. Also taking wellbutrin sr. I am just tired all the time and feel I am too young to be that way. I really cannot do much because I sleep so much. | F | 32 | 7 years | 8/29/2006 | 4 | Bipolar | Weakness, feeling dumb, unmotivated, lost weight | it works ... maybe too well !!! | F | 20 | 7 years | 4/27/2006 | 4 | migraines | tingling of extremities, memory loss, and concentration problems, loss for words a big problem, if I do not stay on a low fat diet- I could gain wieight- so the wieght loss is no big deal and I am on a high dose. | I am on 325mgs b/c my migraines are a huge problem. I was on 300, and just raised about a month ago. Supposed to be temporary, we will see. I have a good Dr and I trust him. Tried all sorts of meds and nothing else worked. I have had to be hospitalized and in the ER and loss of work days ; but I got thru grad school on Topamax, just got to put yourt mind to it that you will not allow a med to get the best of you. | F | 48 | 7 years | 10/21/2007 | 4 | cyclothymia | Initially, I did not experience negative side affects. I was able to take off weight that I had gained on Depakote. However, several years later, I am now attributing insomnia and anxiety to this drug and am slowly weaning off it. | F | 50 | 7 years | 3/10/2008 | 1 | Epilepsy | I experienced two episodes of psychosis, along with paranoid thoughts, weight loss and had to be hospitalized for psychosis. I thought my husband was trying to poison me. I also experienced or so I thought was spirits around me. | F | 54 | 7 years 25 MG | 11/24/2015 | 1 | Migraines | Extreme fatigue, hair loss, blurry vision & loss of some vision I believe, lack of enthusiasm for anything, insomnia, | I have taken many medications , but this is the WORST medication I have ever taken in my life. I have tried & tried to wean off of it without success. I have been able to get off every opiate I've ever taken for my severe nerve damage without too much trouble and also every antidepressant. Topamax is HELL, I have tried for up to 9 weeks and the side effects haven't gotten any better at all. I have followed dr instructions. The headaches, nausea and muscle cramps I can handle , but the 24 hour a day sweat pouring down my face and body is unbearable. It makes it impossible to go out in public without being embarrassed and the laundry piles up all day long. It is soooo horrible. This drug should not be manufactured it is poison!! DO NOT TAKE IT PLEASE! | F | 53 | 7 years 100 2X day | 3/7/2017 | 1 | Migraines | Extreme fatigue, hair loss, blurry vision & loss of some vision I believe, lack of enthusiasm for anything, insomnia, | I have taken many medications , but this is the WORST medication I have ever taken in my life. I have tried & tried to wean off of it without success. I have been able to get off every opiate I've ever taken for my severe nerve damage without too much trouble and also every antidepressant. Topamax is HELL, I have tried for up to 9 weeks and the side effects haven't gotten any better at all. I have followed dr instructions. The headaches, nausea and muscle cramps I can handle , but the 24 hour a day sweat pouring down my face and body is unbearable. It makes it impossible to go out in public without being embarrassed and the laundry piles up all day long. It is soooo horrible. This drug should not be manufactured it is poison!! DO NOT TAKE IT PLEASE! | F | 53 | 7 years 100 2X day | 3/7/2017 | 1 | Sight loss. Depression. Confusion. Anxiety. Constipation. Clumsiness. Irritability. Itching. | Topamax is highly addictive and dangerous drug as it can cause cataracts, significant sight loss and suicidal thoughts. It loses its effectiveness over time and higher doses are needed. | F | 61 | 7 years 50 MG 2X day | 4/29/2017 | 5 | Migraine | The side effects that I experience are extremely hot feet which regularly blister (standing in the shower or just a puddle is an amazingly relaxing experience) the doctor prescribed a gell but E45 seemed to do a better job. Continuing feelings or paranoia, I initially started om 150mg twice per day but this may me feel suicidal, reducing the dosage improved the outlook considerably but I dream of getting even with people before situations exist. I wish that I had the same issue with losing weight that everyone else is complaining about nut maybe it is all of the other pills that I have to take for my heart. | M | 55 | 6 years 75mg 2X day | 2/21/2016 | 5 | Reflex sympathetic dystrophy | memory loss, hair loss, weight loss, attention span loss I seem to slur @ a high dosage, not be able to find what I want to say or be able to find the right word. | This medicine was not a cured but does manage my pain during the winter months. The highest dosage I've ever been on was 1600mg and I weighed in @ 150 lbs and droped to 98lbs. I use it during the fall, winter and spring and come off it during about the end of April and go back on it @ a low dosage starting in September and go up to 200 mg twice a day. If I have a flair up the dosage increases! I come off of it because my mind needs a rest and my hair seems to get week. | F | 22 | 6 years | 10/4/2009 | 5 | Rapid-cycling Bipolar--NO HCTZ!!!!! | HUGE CAUTIONARY WARNING NEEDS TO GO TO ALL USERS ASAP NO HCTZ!!I WAS PRESCRIBED HYDROCHLOROTHIAZIDE FOR MY BLOOD PRESSURE MED.CAUSED CHRONIC VERTIGO! 4 DR.'S 2 ENR SPECIALISTS LATER,ICONSULTED A PHARMACIST) REGARDING MY CONCERN THAT THE SERIOUS VERTIGO SITUATION WAS BEING CAUSED BY A CHANGE IN MY BP MEDS.(THAT WAS AN UNBELIEVABLE 7 MONTH NIGHTMARE EXPERIENCE).I'VE BEEN REFERRED TO NEUROTOLOGY FOR FURTHER TREATMENT JAN/10?).ALL REVIEWED MY RECORDS (INCLUDING TOPAMAX (AKA TOPIMIRATE) PRESC))& SAID NOT SOURCE.I FINALLY DEMANDED NEW BP MED 76 HRS AGO FROM GP;WHAT A DIFFERENCE! DO NOT TAKE HCTZ W/TOPAMAX!!!! I AM NOT 100% BETTER...BUT I FOUND THE SOURCE (100% SURE) | NO HCTZ!! MAY CAUSE SEVERE CHRONIC VERTIGO ISSUES NOT REGOGNIZD BY HEALTH CARE PROVIDERS OR PHARMACISTS AS ISSUE. | F | 49 | 6 years | 11/27/2009 | 5 | migraines | dizziness,tired,weight loss | Topamax has for the most part made migraines disappear. I do have occasional stress headaches and use OTC migraine medication. It also stabilizes my weight which is an additional bonus. | F | 35 | 6 years | 12/31/2009 | 5 | Migraine | weight-loss | I started Topamax after being on a series of medications that caused weight gain, dry mouth, nausea, and fatigue. Topamax changed my life by eliminating the side effects that I had been dealing with and reducing the frequency of migraines. When I started on the medication I had a continual headache for over a year and weekly migraines. I now have 3-4 migraines a year. | F | 25 | 6 years | 5/6/2007 | 5 | Migraines | Brand Name (5 1/2 years) - weight loss, loss of appetite, dry mouth Generic (6 months) - anxiety, depression, exhaustion, significant hair loss, phantom smells (sulphur) | When I started taking this medication years ago, it was a miracle for me. I was getting several migraines per week and nothing worked, not even Dilaudid. The pain was so bad and so often that I could not function as a normal person. I started taking the Topamax and after about 6-8 weeks my migraines were down to about once a month and manageable with 800MG of Ibuprofen!! I switched to the generic when it first came out not thinking twice about it. I started to suffer with depression, anxiety, exhaustion, most of my hair fell out, shortness of breath, brain fog and I kept smelling something similair to sulphur. I didn't attribute it to the generic topamax for several months and went to see my Family Doctor several times and had many tests (all came back normal). It wasn't until I had a 6 month follow up with my Neurologist and he suggested that I try the brand name again for awhile and see if I feel better. Within a week I started to feel like a whole new person, like my old self again....and my hair eventually grew back too! | F | 38 | 6 years 50 MG 2X day | 2/14/2011 |