TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 2 | Seizures | numbness in face, hands curling up and unable to open them, speach problems, unable to recall words, unable to comprehend others, unable to complete thoughts or sentences, major short term memory loss, sadness, drowsiness, unable to really communicate to people at all but it comes and goes. Some days are better than others, which I find very weird. I'm thirsty all the time, soda's taste weird and everything smells like cat pee. No real weight loss here but overall I feel stupid as all get out and I hate that. I also get this burning sensation in my skin. | I started on this 6 weeks ago and just got up to 100 mg a day. I was supposed to take 50mg in the a.m. nad 50 in the p.m. but I was since I wasn't doing well congitively I took it upon myself to try it all at night and it did work better for me (ie I feel less stupid during the day). I was told that these symptoms I have will go away but after reading much of what's here I'm not so sure that will happen. At my recommended dose I am not having any more seizures but at what cost? Would I rather be a living, walking vegetable for the rest of my life? After reading all of these... I feel this is the question I have come to ask myself, but at the same time I have not been on any other drug so I have nothing to compare it to. When I first began the Topamax at 25mg I never felt more alive and clear in all my life. It wasn't until the doses steadily increased that the side effects slowly started to sink in. I thought that maybe we were going too fast so I remained at one of my low doses for 2 | F | 27 | 6 weeks | 3/20/2006 | 2 | Migraines | Tingling in arms, legs and face. Memory loss. ALSO: EXTREMELY DRY SKIN..Has anyone else had dry skin problems due to Topamax? I was on drug 6 weeks, (2 weeks 25mg, 2 weeks 50mg, then 2 weeks @ 25mg). I have been off drug for 2.5 weeks, but skin still very dry. Itchy, rash appears when taking shower. | Please let me know if you have experienced dry skin as a side effect and what you found helpful to you? How long does it take skin to get back to normal? | F | 44 | 6 weeks | 7/25/2007 | 2 | Yes | Memory loss, anorexia, suicidal ideation. Diminished emotional, cognitive and memory capacity. Thoughts of impending doom. Lack of pleasure in anything and everything. Bright streaks/balls going through my corner fields of vision - randomly. Increased aggression. GI upset. WIthdrawal symptoms from hell. Massive hair loss. | Thanks to the generic version of this med, I think I may have experienced Hell. Prescribed for weight loss, but not worth losing everything good about yourself in the process. Even after stopping a week ago, I still feel like a zombie and like I have lost myself. Zero emotion (which is so unusual for me). The anxiety caused a cold sore outbreak, which I haven't had in 2 years. Complete loss of motivation. Personally, I will lose weight the good old fashioned way vs lose my mind with this horrible med. I really hope I return to my old self soon. There are ways to lose weight that make you feel good and empowered, this just makes you want to die. What a nasty med. Feel free to contact me if you are experiencing problems or know how to get yourself back to normal after taking this med. | F | 41 | 6 weeks 5mg 2X day | 9/10/2022 | 2 | Migrains | Tingling, pins and needles in my face in hands. sensitivity to temperature. Fatigue. weight loss. Mood swings. | It was too much to be put on, not worth the side effects. Did not help with the migraines much. | F | 16 | 6 weeks | 12/4/2008 | 2 | migraines | tingling/pins and needles in hands, arms, legs and feet; extreme fatigue; conjunctivitis; eye pain/soreness; spelling problems; cognitive problems; forgetfulness; upper respiratory tract infection; diarrhea. | I have been taking Topamax preventatively for migraines for six weeks: 25 mg week one, 50 mg week two, 75 week three, 100 week four and since. I experienced no side effects the first three weeks. But the last three weeks have been miserable. I feel like a poster child for Topamax side effects. I went through the pins and needles sensation in my hands/arms and feet/legs, which was nothing like I've ever felt before. Very painful. I've been experiencing extreme exhaustion. I can barely stay up past 10pm and I work/go to graduate school four times a week until 9pm, so this is very difficult. I am an excellent speller but now I have to slow down and sound out words and still spell them wrong at times. I've been forgetful and had short term memory problems. I developed a bad cough and cold. Painful, hours long diarrhea. Tired eyes that are red and with pink eye-like discharge in the morning. No weight loss so far! And I woke up yesterday morning with a killer migraine that has | F | 29 | 6 weeks | 9/27/2008 | 1 | Migraines | Confusion, fatigue, loss of direction or where I was going, constipation and spasams in GI system, no appetite, weight loss of 35 lbs in 6 weeks, abdominal pain, nausea, enlarged liver, loss of sexual desires, tingling in fingers and just feeling awful. | My main concern to others is that I stopped taking the drug after 6 weeks. The dose was increased each week by 25 to the 200mg. I stopped in June and it is now September and some severe symptoms still remain. The GI system was damaged and doctors are now addressing reversing the terrible side effects. I thought once I stopped taking the medication that all would be better. NOT TRUE. Symptoms are still continuing. I think this medication is very dangerous. I have been very ill over the past 4 months and through many medical tests and procedures to determine what was causing the illness. Please seek medical attention if you have severe side effects and if they do not cease after stopping the drug. I finnaly found a specialist that diagnosed me. Thank goodness for persistance and one very good doctor! | F | 39 | 6 weeks | 9/11/2008 | 1 | Nerve Pain & Migraines | Bad pins and needles in feet and hands,sickness,awful mood swings, tearful,depression,anxiety,fatigue, lethargy, unable to think straight and spell!, HAIRLOSS! | At first i started on 25mg and increased over a month to 100mg, i took topamax for neuropathic pain in my legs and also migraines. It helped considerably with the migraines only had 1 whilst on the meds although it never helped with the aches in my legs. Would not recommend this med at all, as soon as it kicked in which was a couple of days i felt very sick, dizzy, confused and generally unwell and constantly like i was having an out of body experience 24/7! I have been on this med for 6 weeks now and am dwindling of it i am now down to 50mg a day, i decided to come off it for a number of reasons but mainly because of the severe depression i have gone into, i am now on 20mg of prozac a day and feel that this med has had alot to do with my downward spiral! Also the other main reason is the constant Hairloss, its so scary...after a shower and have washed my hair, the amount of strands that fall out is unreal, after blow drying i am left with atleast 35 hairs on the bed, they are on my pillow in the morning, on my clothes through out the day and even on my plate at meal times!! This is so worrying as you can imagine, luckily i have long thick hair so its not really noticeable....YET!,but its nowhere near in the same glossy shiny condition as it was 6 weeks prior to taking Topamax. My advice would be to try other medications first before trying this, the side effects of weight loss all sounds nice in the beginning but hence to say i have only lost 3 pounds since being on it!!! | F | 30 | 6 weeks | 5/6/2009 | 1 | migraine | Continuous headache. Occasional sickness. Tingling in feet and hands. Confusion. Pressure behind my eyes | I have been told to contine taking this medication for another 12 weeks and should see positive effects, I truly hope so,I am now taking 75mg soon to be increased to 100mg. So far no positive results only more migraines which my regular medication does not work for.Really depressed | F | 47 | 6 weeks | 5/21/2008 | 1 | Bipolar | Fatigue,shortness of breath, memory loss, headache, dehydration, insomnia, confusion, irritable, blurred vision, chest pains. | I was prescribed 100mg starting at 25mg increasing to 100mg. At 100mg I experienced chest pains and shortness of breath. I felt like a crazy woman at the ER because I couldn't breathe but there was nothing to support my claims. I experienced, confusion, couldn't put sentences together, memory loss. I can't eat, sleep. I haven't been to work in days because I can't walk a few feet without getting dizzy and tired. I can't function on this medication. I haven't taken this medication in 2 days. I don't know the end result. I know I've spent money at the ER, missed time at work as a result of this medication. If you are considering this drug. DO NOT take this medication. | F | 43 | 6 weeks 100MG | 7/30/2015 | 1 | Weight loss | Felt weak, tired, back pain, dizzy, faint, mind foggy, breathing problem, | F | 62 | 6 weeks | 10/6/2015 | 1 | Migraines | Was prescribed topamax for migraines, 25 MG to start for the 1st week, then 2x day. I never started that 2nd dose & thankfully I didn't. Almost immediately, I began to lose my hair but it would be a month and a half later & 50% hair loss to make the connection. | I also remember experiencing frequent, vivid, mostly unpleasant dreams. I've since stopped taking it and noticed almost immediately the relief from the pain in my muscle, particularly where I have damage from a recent accident. | F | 41 | 6 weeks | 12/7/2016 | 1 | Severe Migraines | Extreme tiredness, change of mood, crying, anxiety,weight loss and nightmares. | Where do I start - I tired this drug a few years ago but the migranes started up again and were severe so I was desperate. I thought that I could handle this drug - I was wrong. I have lost weight - I guess that is the only plus. I have fits of anger, can't think or work out simple problems, extreme fatigue, paranoid thinking, word finding problems and the list goes on. I was hosptilized recently for dehydration - I drink 4 liters of water a day and I was dehydrated? I have had a UTI and kidney infection. I see my Neurologist next week - am asking to be taken off this drug and given something else. If anyone has an answer to this nightmare please let me know - thanks in advance... | F | 48 | 6 weeks | 6/22/2005 | 1 | mood stabilizer, binge eating | decreased hand strength & hands burning, mood swings, crying, impulsive & suicidal thoughts | discontinuing - also on wellbutrin and seroquel, this is only new element and was relatively stable previously. had aggression which was partially why this was introduced. suicidal thoughts seem to get consecutively worse each day. have had two attempts before and i feel myself fighting myself - but it is if something is pushing, and I completely believe it has to do with this medication. it is really terrifying. | F | 31 | 6 weeks | 5/6/2005 | 1 | migraine prevention | tingling of hands and feet, extreme nausea, wieght loss(10-15 lbs. in 6 wks), inrcreased headaches. | After reaching max. dose of 100 mg. a day my headaches actually increased instead of decreasing. I could barely eat due to the nausea and just had an over all sick feeling. I am stopping the topamax and will start taking depakote in a few days and hopefully will have some success with that. Topamax was a very bad experience for me. | F | 29 | 6 weeks | 2/24/2006 | 1 | peripheral neuropathy | severe headaches, joint and muscle aches, ringing in ears, swelling feet, appetite loss and weight loss, sleepiness | titration: 25mg for 4 wks then incr 25mg each 2 wk interval up to 75 mg - then ceased | M | 44 | 6 weeks | 6/28/2005 | 1 | persistent migraine r/t endo | visual hallucinations, extreme confusion, aphasia, terrible memory problems, depersonalization, sadness, eye twitching | I had surgery for endometriosis this summer, and went on lupron therapy to slow the progress of the disease, but lupron gave me constant migraines. when I stopped the lupron, the migraines stayed- and I blazed through every immitrex derivative on the market. I ended up seeing a neurologist, and he prescribed topamax. i was only taking 40 mg, but my side effects were absolutely horrid- I would be driving in the car, and forget where I was going- not once but EVERY time i drove. I'm a full time nursing student, and also work full time at a hospital, so this was extremely scary, both academically and professionally. I had no ability to remember anything- especially numbers- and I've always had a fantastic short-term memory. I started failing quizzes, and I was incapacitated when speaking- I could barely form sentences. The last straw with this drug was when I was talking to one of my instructors, and watched his eyes float right out of his head and hover in front of it. the neuro pulled me off the drug the next day. I was also taking vicodin 60 mg/day for pain, also from the endo, so perhaps I had some bad drug interactions. I'm now taking methadone 15 mg/day for the endo pain, and nortryptiline 20 mg at night for the migraines- the pain in my body is almost gone, and the headaches are starting to subside. the topamax never got my headaches down below a 5/10 on a 1-10 scale, and the minute i discontinued, the pain shot back up. Of course, my mind cleared, too, so I was happy to stop taking it. | F | 32 | 6 weeks | 11/17/2004 | 1 | migraine | Severe joint pain (knee and hip), tingling in feet, face and tongue, taste off (soda), fatigue, muscular pain and memory/language deficiencies | Although I did experience a slight decrease in my migraines during the short time I was on the medication, it certainly was not worth the side effects, particularly the joint pain which made it difficult to walk and sleep. Hopefully, the pain will diminish as I wean off of the medication. | F | 37 | 6 weeks | 1/28/2006 | 1 | weight loss | Became almost paranoid, had nightmares and "memories" of childhood abuse. Eye problems--trouble seeing and also scratchy uncomfortable eyes. (I thought my contacts had suddently stopped working.) UTI and much cramping in area between kidneys and bladder. Heavy fatigue. But the worst of all was ANGER--at everyone, over everything. I finally realized something was wrong when I was apologizing to the 4th friend/relative I had chewed out in a week. I gave up on the drug after 6 weeks, though I had lost about 20 lbs. My case may have been comlicated by the fact that I also take Wellbutrin, Prozak, and an anti-anxiety medication, but I have taken these for some years for PTSD. But I'd be very leery of prescribing it for anyone without reviewing the side effects with them. | F | 62 | 6 weeks | 10/30/2006 | 1 | weight loss | Became almost paranoid, had nightmares and "memories" of childhood abuse, felt strongly suicidal. Eye problems--trouble seeing and also scratchy uncomfortable eyes. (I thought my contacts had suddently stopped working.) UTI and much cramping in area between kidneys and bladder. Heavy fatigue, jumpiness. But the worst of all was ANGER--at everyone, over every little thing. I finally realized something was wrong when I was apologizing to the 4th friend/relative I had chewed out in a week. I gave up on the drug after 6 weeks, though I had lost about 20 lbs. My case may have been complicated by the fact that I also take Wellbutrin, Prozak, and an anti-anxiety medication, but I have taken these for some years for PTSD and never descended to the depths created by Topamax. I'd be very leery of prescribing it for anyone without reviewing the side effects with them. I wonder how many suicides have resulted from this drug? | F | 62 | 6 weeks | 10/30/2006 | 1 | weight loss | Became almost paranoid, had nightmares and "memories" of childhood abuse, felt strongly suicidal. Eye problems--trouble seeing and also scratchy uncomfortable eyes. (I thought my contacts had suddently stopped working.) UTI and much cramping in area between kidneys and bladder. Heavy fatigue, jumpiness. But the worst of all was ANGER--at everyone, over every little thing. I finally realized something was wrong when I was apologizing to the 4th friend/relative I had chewed out in a week. I gave up on the drug after 6 weeks, though I had lost about 20 lbs. My case may have been complicated by the fact that I also take Wellbutrin, Prozak, and an anti-anxiety medication, but I have taken these for some years for PTSD and never descended to the depths created by Topamax. I'd be very leery of prescribing it for anyone without reviewing the side effects with them. I wonder how many suicides have resulted from this drug? | F | 62 | 6 weeks | 10/30/2006 |