TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
|
Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | Migraines and MS(nerve pain) | At first it gave me a bad taste in my mouth and I felt a little funny but it did help with the migraines and as with any medications theres gonna be some side effect. I have lost about 25 pounds in a total of 6 years now of being on it an kept it off it does work if you give it time to do its job. | I think maybe some people may have other health issues other then what their saying topamax did or is doing to them. 2 or 3 months isnt long enough to get the full effects of this drug. Im on 200mg 6 years later maybe one headahe a year and it helps with my MS pain. | F | 37 | 999 days 200 mg 1X day | 5/30/2012 | 4 | migraine headaches | it blocks words when you go to speak and makes you feel slightly stupid. I have lost 15 lbs in the 18 months I have been taking it and have reduced my headaches to by 2/3's and they are manageable do occur rather than raging. I take 200 milligrams each night. I was taking 300 but was getting too thin so I cut back. Some days I almost feel anorexic-no interest in food. | F | 62 | 500 days | 12/27/2004 | 1 | epilepsy | living in space., no communication and speach. | at firs we thought it was working ,but after a month fits increased .we started to decrease dose and child got better and better until we stopped all medicine . | F | 2 | 370 days | 3/11/2007 | 3 | migraines and seizures | exhaustion, weight loss, stammering over words, tingling in hands feet and face, hair loss, depression | i am currently on 100mg and it has helped control my migraines, but the side effects have been difficult to manage. I take energy pills to counter the exhaustion and function through the day, I eat lots of protein to keep my weight up since it dropped to an unhealthy level, I take Lexapro for the depression, and I use Rogaine daily and NuHair tabs to balance the hair loss. I know it sounds drastic, but I have tried a barage of treatments and thus far the topamax is the only thing that works. If you can find a way to manage your side effects, it will ease the migraines. And it will help with weight loss in anyone who's interested in that as well. | F | 26 | 365 days | 11/1/2007 | 2 | Headaches-Severe | This drug ruined my running career. I have been on it for over 300 days for sever headaches and just went off of it due to overheating, dehydration, and lack of energy. This drug will suck the life out of anyone. It is a class D pregnancy drug and just Youtube the lawsuits out there on it! It should be banned. If it is ruining fetal structures, think about what it can do to mature human bodies as well. Actually, I tried a natural supplement and have been headache free for a month now. Holistic is THE way to go. | F | 41 | 300 days 100 1X day | 8/21/2015 | 3 | Daily migraines | Diarrhea, numbness & tingling in extremities, inability to orgasm, lack of libido, heartburn, spelling difficulty, fatigue, nighttime driving visual disturbances, inability to focus at work, horrible low grade tension headaches. | This drug initially seemed to work for the first 4 weeks but when I was virtually migraine free but then they came back daily and increased doses of Topamax did not help the migraines and only made the side effects worse. I did not experience the weight loss on this drug that everyone else seems to have. I would not recommend this drug. The extreme side effects do not justify the small benefit it provides. | F | 36 | 121 days | 8/26/2005 | 4 | Migraines | Weight loss, some hair thinning, loss of appetite, night sweats | I have been on Topamax for about 4 months now. My migraines went from 3-4 a week to about 1 a month which for me is a miracle. I have lost quite a bit of weight without trying which is a little scary for me. I was trying to for years before, but now I have to eat in order to stay where I am and not lose more. My hair just started thinning so I am going to try extra vitamins for that. I had some of the brain fog in the beginning, but it seems to be gone now. I occasionally have a loss for words or type the wrong thing. My biggest concern right now is that I have been getting these unbelievable night sweats for the past 6 weeks - like after you have a baby. I should also mention that I am on Synthroid and have been for 12 years because I had my thyroid out, but my doc says my thyroid levels are normal. Has anyone else heard that Topamax can cause night sweats and do they ever go away? Getting a little tired of washing sheets every day. | F | 43 | 120 days | 8/18/2007 | 3 | migraine prevention | tingling, memory loss, shortness or breath, dry mouth; seemed to affect my mouth and fact by causing an eruption of sores internally-went away after I'd been on for a couple of weeks | I wonder if anyone can please tell me if they have had a similar experience with this drug; for the first time in my life, it actually appeared I might have something that was going to work with migraine prevention. But it only lasted about three weeks. Then the daily headaches started coming back. The doctor has increased the dose, (I'm up now to 125 mg) and I can't handle the side effects. Not only the memory, word loss, etc., but whenever I go on increased amounts, I experience increased body temperature, shortness of breath, and it feels as though my head--mouth,face, teeth,gums, all have an infection as a result of too much of this stuff. I can't get in to the dr until next week, but have already started titrating off. Please, anyone else with similar experience? | F | 51 | 110 days | 9/5/2007 | 4 | Migraine Prevention | During the first month only: word recall, severe short term memory loss, major | Need to increase dosage - its helped, but its not working 100% yet. The first month was VERY difficult to adjust, but the side effects subsided quickly. | F | 29 | 100 days | 4/30/2004 | 3 | Migraine | Extreme fatigue, cognitive problems, slowed-down mental processes, falling asleep while driving | I started Topamax in March and the effect was dramatic -- my daily headaches and migraines quickly vanished. My first side effects seemed benign -- we could all laugh when I said the wrong word, and losing 2-3 pounds was actually nice. But after 3 months ... my headaches are creeping back. And now I am almost comatose and sleepwalking through my days. I wake up tired and crawl to work and then crawl home. I feel like a zombie. For a while I thought maybe I had cancer or my heart was failing .... but now I suspect the tiredness may just be the Topamax. I am seeing the doctor next week and hopefully we'll sort it all out. In a way, I hope it IS the Topamax and not something more serious. | F | 56 | 100 days | 7/31/2008 | 3 | Mood disorder | Great to get my mood stable but then once stable I was aware of my body changes..lethargic ..could not get up from bed ...motivated in my mind but not body.. SEVERE hyperpigmentation and acne( never in my life) which is causing me to have self esteem issues . I am going the holistic route ..I found the gorilla glue number four strain medicinal marijuana or honey for tea works wonders . Happy that medicinal cannabis is legal .i have had more side effects and spent more money and time on so many other medications ..the worst side effect with finding the right cannabis was sleep and eating ..where ass with medications like topamax I experienced nausea acne sleep no motivation . Depakote made me suicidal .respeirdal gave me severe nightmares and made me feel drugged out .nausea . Strayers made me lose 15 pbs no appetite .lets end the stigma and educate on medical cannabis .if we are taught by doctors how to use it properly the stigma would end . The same way we are trust to be compliant and not abuse our meds that’s how cannabis should be treated . Thank you | F | 30 | 100 days 100mg | 1/15/2020 | 2 | Weight loss | Noticed anxiety as main symptom. I even felt the anxiety creeping the next day. After two days not taking topamax anxiety was gone. Just a restless unsettling feeling but I never have anxiety without added medications. Gave it a couple months but anxiety effect never ended until I quit it. | Anxiety and discomfort no weight loss. | F | 30 | 100 days 2X a day | 1/9/2020 | 2 | Chronic Sinusitus | depression, loss of motivation, fatigue, | Around three years ago i was diagnosed with Sinusitus by my local GP. I was told that a dose of antibiotics would fix all my problems. 8 courses of antibiotics and surgery later i still had symptoms that (based on descriptions) are akin to a migrane in intensity, but i'm in pain 24-7. I;ve tried several drugs to try and help witht this, including Endep, which was absolutely horrible and brought me to the verge of suicide. after that i tried periactin, which did absolutely nothing, which brings me to Topamax: At first it seemed to help the pain a little, and i didn't feel any side effects except some mild pins and needles here and there, but it never really helped that much. Then my Neorologist, true to his philosophy of "If it's not working you simply aren't habing enough of it" put me up to 100mg, which seemed to help the pain a little more and i didn't question tings. However over the last few weeks i've noticed the side effects creeping in, the familiar numbness that i felt from the endep returning. a couple of times recently i've been so zoned out in the morning that i've forgotten to take a tablet, and i've felt much happier and energetic on those days. I think thast even my memories of those times without topamax is better, and the pain doesn't seem to be any worse. Still my mum refuses to take me off them, insisting they help and that i should try a lower dosage first (and barely lower at that.) In a week or two a plan to stop taking it of my own a | M | 16 | 100 days 50mg 2X day | 9/9/2010 | 5 | migraines moods | Yes some forgetfulness, I miss my Diet Pepsi. Can't stand the taste of sodas and some foods tase funny. | It has worked well for me, I can tell when I let my precription run out and don't take it for a couple days. | F | 40 | 90 days 50MG 2X day | 7/9/2011 | 5 | Migraines and Cluster headaches | Tingling in feet, difficult finding the right word (sometimes) | Since hitting puberty i've always delt with headaches and migraines. For a period during my twenties after seeing a nurologist and going on a medication (not sure what it was) they pretty much went away or were managable. After having my second child almost 5 years ago, it's been a down hill battle. Progressing to the point where my headaches were beyond daily, they never truly left, they would take a break for a couple of hours. The severity of the headach would change from worse to uncontrollable. And due to my life, i couldn't crawl into bed. I had to be here and available for my kids because my husbad is away alot. So i was not always the nicest Mommy. Since starting Topamax on Dec. 22 2011, i've had 2 shadow headaches and 2 actual headaches which were easily taken care of with Advil and a nap. I have my life back, I have my personality back, and so does my family. You could tell my I was going to die in 15 years from taking this medication, and I would still take it. I'd rather deal with any side effect present or future, and have feel good everyday, and turly enjoy those years, then go through the daily hell I was living in before. | F | 36 | 90 days 50mg 1X day | 2/1/2012 | 4 | migraine/myoclonus | the usual: metallic mouth, dry eyes, hair loss, numbness and tingling in skin, especially extemities, some nausea and appetite loss, double vision, fog(gier thought processing) | reduced migraine immediately - by the time I was at 100 mg per day (slow upward titration to this point- started at 25 mg bid) - no headaches at all - no jerking movements, much better sleep - too bad the side effects are so profound....have settled at 150mg a day for dosage with maximum benefit with maximum tolerable side effects | F | 50 | 90 days | 12/31/2004 | 4 | Migraine | I get the tingles, brain fog my tounge goes numb and numb toes. I get diarrhea sometimes. I've lost weight which is good for me. Soda tastes nasty which is again good, for me. Less appetite. My migraines are all but gone from daily migraines. My biggest complaint is the extreme fatigue. I have found I can fight it with vitamin B12 shots. As long as I get the vitamin shots I can feel like a normal human. Better to take the topamax with the b12 shots than be exhausted from daily migraines. The other effects I have gotten used to and aren't that bad | F | 39 | 90 days 200 mg 2X day | 4/26/2021 | 4 | hemiplegic migraine | tingling in fingers, face, feet; soda tastes flat; short-term memory issues; word/name-finding issues; loss of appetite; weight loss | even with all the side effects, i'm a believer. i've been on it about three months, and i've had no headaches. before, i had horrible one-sided migraine with aura and nausea--they often put me in the ER to get on narcotic pain meds and fluids. the side effects faded dramatically after the first month, although my appetite is still very much diminished. i also now go about 40-50 days between periods, but that is probably because of the weight loss (i now only weight 115 and am 5'6"--was 125 before). | F | 27 | 90 days | 6/9/2008 | 2 | Seizures | word recall, spelling issues | not completely through the process of changing over from dilantin to topomax. Am on Depakote as well. has not been a smooth ride. this medicine is freaking me out a little bit but I can't seem to put my finger on it. I know I am having problems recalling words and stuttering at work (somewhat). Am a bit moody with my son as well. Don't like how I am acting. Not sure which direction I am going to go with this one. Any suggestions regarding seizure medications would be welcomed. | M | 40 | 90 days | 3/30/2007 | 1 | Seizures | Slowly, as dosage increased, I lost the ability to think, speak and walk. I was no longer able to care for myself, couldn't comprend what was said to me.Hairloss, tingling and numbness but nothing compared to the profoundcognitive effect. Incontinent. | I guessmy experiencewas unusual. This drug came close to killing me (Neurologist). The experience was dreadful for my family, they thought I was dying. I am not sure if my seizures were less because I was not capable of knowing. | F | 52 | 90 days | 2/2/2005 |