TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  Migraines Urination frequency issues, abdominal pain Just started... Seems to be helping but it's really too early to tell. M 30 8 days
4/22/2006
 3  migraines tingling arms, hands, lips, blood sugar dropping, mental blocks, cannot add simple numbers, spell, complete thoughts, no appetite, 6 lb. weight loss in a week, mood swings, anxiety & crying jags, feeling really "pissed off", first 3 days slept non stop, fatigued, stomach upset, frequent nausea, dry eyes first few days were hell but after that my body seems to be adjusting; i have to eat something healthy every hour or two to keep glucose levels up or i feel faint. i take it at nightime but have weird dreams; body temp goes from hot to cold thru out 24 hr period but i stopped getting migraines everyday so it is helping. F 57 8 days
100 mg 1X day
3/26/2011
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 3  bipolar II mood stabalizer My doctor put me on this med after I gained over 100 pounds on seroquel and other meds for bipolar. He starte me with only 25 mg for the first 7 days and within the first 7 days I lost 6-7 pounds and then gained back 2 pounds by the 8th day when I got on 50 mg. I am also cutting back on the seroquel by 100 mg. I have to say the 25 mg at first week made my body temp higher than usual but it gave me energy and I was able to better focus and teach ( my job). However, when I got to the 50mg, it almost felt like it was too much for my body to handle at once becasue I felt like a zombie after I took the second 25mg pil. I am wondering if maybe I should just stick to the 25 mg and tell my doctor? After all I was losing weight and feeling pretty healthy on the 25 mg... F 29 8 days
25-50mg 1X day
9/23/2011
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 1  Severe Headaches Thoughts of self harm, in my case these were flash thoughts but kept occuring once i upped my dose to only 50mg. insomnia, could not eat, confusion, word tripping (after eighth day only) short term memory went AWOL. Bad drug nothing more needs saying, KEEP AWAY AT ALL COSTS. I know some people on here have said it has worked for them, but I personally think you are being lead into a false sense of security and eventually somewhere the walls will come tumbling down. I have read some horrific stories on here from teenagers saying they are scared and feel trapped or even being made to take Topamax against their will and pressured by their parents. My message to you is go and seek legal advice or show your parents this website and of how 80% of people taking this drug have had a bad reaction to it. My empathy goes out to everybody who has suffered from this evil drug. I am a normal male and quiet healthy, not over weight and no emotional problems, I started having chronic headaches in September 2010, its now nearly February 2011 and I have been through every drug or feels like it until my neuro prescribed Topamax. In England you get worked up to full dose I guess in America they just throw you in at the deep end. 25mg once at night for first 7 days, everything seemed ok, then it was 25mg morning and night. I then realised I could not eat, then soon found out I could not sleep either, the next day the same again, but now I was hyper and could not concentrate and was just acting oddly. That night strange things began to happen and I started to have disturbing thoughts about stabbing myself with scissors, I shook it off at first and tried to think about other things and then it crept b M 39 8 days
25mg 1X day
1/26/2011
 1  Migraine Prevention Feeling very dopey and unbalanced, at times having concentrating, frequent urination, diarrhea, slight weight loss, increased loss of appetite and lots of nausea. The medication stopped me the first day I started taking it from having anymore headaches, but the side effects are some of the worst I've experienced especially the nausea. It is do bad till I have had to be prescribed generic Zofran in order to keep taking the medication, to help with controlling the nausea so that I can start eating better and stop feeling nauseated all day long instead. The other side effects have started to lessen up somewhat, but I would only recommend taking this drug if it's your last choice, and you've gone through a ton of others beforehand they just didn't work for you when it comes to migraines. I didn't rate the medication a 1 because it doesn't work, because it does (at least for me), but the side effects, dear God are absolutely awful, and is nothing but major poison that I'm ingesting that I feel is doing more harm than good to my body overall. They need to take this medication off the market and the drug companies need to start coming up with better migraine medications with very little side effects that are completely tolerable overall. F 44 8 days
25mg 1X day
8/10/2019
 5  Migraines/Lupus Related Symptoms Sometimes forgetting words, occasional tingling in hand, soda tastes like acid (not a bad thing at all!) So far I LOVE Topamax! I feel like this is my "miracle medicine". I was in a very bad place with pain, headaches, extreme fatigue, restless legs and arms, and other Lupus related symptoms for so long I thought I would never find the "old me" again. I was at my wits end having been on so many meds even my Dr. was at a loss. Finally he suggested the Topomax and after only 2 days I noticed a difference; I started feeling like ME again. It's only been a week but I feel amazing. I can't say enough about it because to some people, something as simple as being able to get up and brush your hair isn't much but to me, it's a big deal. A week ago, and for the past couple of years, I wasn't doing that, or much of anything else due to pain, but I am now and I hope I can continue to with the Topomax... F 40 7 days
50 MG
3/24/2017
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 5  Weight Loss to Counteract Seroquel Mild sleepiness,tingling in hands,foggy feeling,no appetite,taste disturbances,dry mouth F 27 7 days
25mg
3/16/2012
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 5  chronic daily headache a little tired, spacey, off balance, but those have gone away. I tolerate this medication very well I had been taking 75 mg topamax for migraine and chronic daily headache prevention for years and only minor breakthroughs - - UNTIL 5 weeks ago when I got raging daily headache.with neck and back pain, ringing and buzzing in ears. After one week of being on 100 mg topamax, there has been significant improvement: hardly any headache, some neck pain and minimal noise in ears. This dose works great for me! F 46 7 days
2X day
12/19/2011
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 5  chronic daily headaches, migraines tingling in toes and fingers. stomach pain. Small decrease in appetite.feeling spacey. I was getting really bad migraines 3 times a week, and daily headaches that were lasting up to 18 hours a day. Topamax is awesome. I've been drinking tons of water, I don't want to get a kidney stone! Pop tastes fine.Im taking 25mg for 4 days, then increasing evry 4 days till I reach a max of 100 mg.So far though all is well. I'd deal with almost any side effect not to have those nasty migraines!!! F 26 7 days
11/10/2005
 5  Seizures Extreme Nausea the first day,anxiety attactd first day, shaking first day, stupidness, vey thirsty, cant eat very much, confusion I'm taking 200 Mg a day and it works wonders! i have already lost a few pounds and have only been on it a few days. The first day i was EXTREMELY sick but now i am easily able to tolerate it! I started taking 50 Mg but had to go down to 25 but am already up to 100 each dose! Lovely Med. but makes you stupid :). F 15 7 days
12/12/2006
 4  migraines a little nauseous in the mornings but not bad. I'm only on my first week of this med at 12.5 mg per day. My Dr. is being very careful to start me off very slowly. Next week I start on 25mg per day and then go up to 37.5 the week after ... graudually up each week until I get to 100mg. At what point do most of you feel relief from your headaches? And ... the other thing I'm looking forward to is the weight loss (hopefully). When are most of you seeing that (how many mg's?) F 40 7 days
3/9/2007
Email
 4  migraines spelling problems (ckichen) forgetfulness, going grocery shopping ang coming home with 300.00 worth of everything else from walmart but food. Driving 6 blocks away to go to the Dr's office and ending up in a pet store 34 miles away. ( I rent and I cannot own a pet) I turned on 2 burners to put a kettle of water on and then put the ketlle in the fridge. I am only taking 25 mg at night and started taking another 25 mg in the morning today. I will eventullally be on 50 in the mroning and 50 mg at night. I hope the spellign thing gets better because every time I chage one word right I fix another wrong. So I iwll let you see my stupidity. I am normally a spelling genious.! spelling is awful and I can normally spell well. I can't find the right words. example: I called my best friend to complain about my neighbor. I told her that I couldn't sleep because my neighbor was watching movies at the top of her lungs all night. My friend thinks I am funny but sometimes it's embarassing. I call my sister my daughters name and my son's friend by my daughters name. I don't know if people think I am just stupid or assume I am drunk.My Mom tells me that I am now the stupid one in the family instead of her. I would rather be stupid than bed ridden with migrains so bad I can't function. I hope I can stay pain free and dumb for a long time. My mood is SO much better! I may be stupid now but I am so happy to be alive I could care less! I am serious. I think this is a miracle drug that is kind of fun to be on. (Just don't take it if you are a mother to a small infant or a surgeon or a pilot or something) F 31 7 days
4/20/2006
 4  Partial Seizures Tingling of feet pain in calfs, yukky taste in mouth and soooo thirsty. Food isnt really of interest Im only on 50mg a day and going back today for review but are my symtoms normal? F 39 7 days
11/23/2006
 4  Constant Daily Headaches Lost weight.. about 20 to 25 pounds.. that I did not need to loose.. I went down to size 0 from size 4... Another side effect or maybe side effect that I want to ask women about.. First of all I stopped having periods.. So, my gyno wants to put me on birth control pills.. ( because of all the weight that I lost)... the second maybe side effect, yeast infections... did any of you notice yeast infections????? I started having yeast infections every months about two months after I started Topamax... It did help my headaches... they are gone.. after two years.. M 27 7 days
12/27/2007
 4  Bipolar II Okay everyone, let's try to remember that everyone taking this medication is taking it for different reasons :) We all have to remember this also...everyone who is taking it...is NOT going to have the EXACT same effects as everyone else. The warnings that are put on the labels are just that...warnings. My niece, who is a medical assistant, taught me that they take so many people and they test these people to see how many of them have so many side effects and how many don't (she works in a doctor's office who actually does this) and that's the warnings they put on the box. They don't take every single person in the US and Canada and put their input on these boxes. So, with that said...so and so may have severe weight loss, where Jane Doe may have none at all. John Doe may have horrible headaches where Jane may have none. For instance, right now, I'm at 100 mg/day and will be going on 200/day tomorrow. I've been on this medication last year as well. I went off of it last year bec I do feel hot flashes (could be my pre-menopause though...I'm 41 and was diagnosed last year with it). I've had a sore throat for 3 days now (could be the weather change here). But I have had severe drowsiness and I know that's from taking my XANAX and the Topamax together because my pharmacist warned me about that. And I've also had the kind of "dizziness" feeling and "banging" into walls occasionally like I'm drunk lol. And definitely the "forgetting words" business. First time that happened to me last year, I freaked. Now I just laugh about it. :) F 41 7 days
7/24/2008
Email
 3  bipolar II numbness, tingling in feet, decrease in appetite, but I'm not sure if that is going away F 22 7 days
5/24/2008
 3  Migraines Numb and Tingling fingers I've just begun taking Topamax & find that I have numb and tingly fingers, my temper seems to be raging and I have to control it, it's really strange. I did notice that I started to get a migraine, but it never became full blown today, it actually went away before it became full blown which I was thankful for. I have noticed some nausea and not a great appetite..which is fine, I have lost about 5 lbs in 7 days, which I am also not complaining about. I hope it works for my headaches, but the tingly fingers are really annoying. F 41 7 days
4/7/2009
 3  Migraines Mental stroke like symptoms; focus/concentration problems; fatigue; tiredness; speech problems It helped my migraines go away but made me not be able to talk properly. I knew what I wanted to say but the words would not come out. The focus/concentration was off if there was more than one thing going on. I was tired all the time. I did sleep better at night though. I could not work. F 28 7 days
8/17/2009
 3  Migraine Tingling in hands and feet, Sodas tasted awful as well as any sweets. Felt spacey and speech has been affected. Have loss of words and short term memory. Have lost weight and hair. Very expensive but no headaches! F 34 7 days
10/11/2004
 3   What time of day are you all taking your one dose??????morning it night??????? F 39 7 days
10/10/2012

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