TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | Bipolar, Depression, Anxiety | Weight Loss,Hair Loss,Tingling hands/feet, memmory/word loss in the beginning which is now better clarity than ever! Dull sttomach ache. | This is a wonder drug for me. I gained 150 lbs while taking Depakote because I was constantly hungry. I have lost 81 lbs since taking Topomax and I feel mentally better with this drug that any other I have ever taken. I have been mentally ill for over 30 years and for the first time I feel "free" :) | F | 58 | 8 months | 5/18/2006 | 5 | bipolar disorder | slight emotional dulling, hair thinning | I was diagnosed as a mild case of bipolar several years ago and have really struggled with the "med-go-round". After horrible luck with a previous med I was really afraid to be put another anti convulsant. But in the end, this stuff is really, really good. My mind doesn't race, my anxiety is that of a normal person;) and I honestly feel like me again. I do feel a little dull at times, but a brisk walk or a red bull helps. My hair is thinning, but I'll just put in extensions and live with it. There's a lot of bad opinions floating around about this med, but you may be lucky like me! | F | 29 | 8 months 100 mgs 2X day | 6/25/2010 | 5 | epilesy | tingling like sever pins and needles in hands and feet and even in mouth at the beginning. weight loss. word loss. spaced out. insomnia. | i started out on a 100 and lost a stone and a half in a month the pins and needles were very odd but settles down after a few weeks i still get them quite badly in my feet, if i sit in the wrong position, ones i could before sometime it is almost painful. the word loss can be very frustrating mid sentence its just gone, but that to has tailed off,still get it from time to time. the side effect i dislike the most is the weird spaced out part. think someone else describe it as the something to do with a train stopping but the world still moving, it can feel a bit panicy at times and because of the epilepsy can make me feel i am about to have a fit which can lead to more panic. this to has tailed off and overall i am very happy so far with this drug as i have only had one seizure in 8 months and that is just brilliant. | F | 29 | 8 months 100 2X day | 6/15/2011 | 5 | Migraines | Tingling of extremities, went away with potassium supplements, weight loss - yay!!! | I've suffered with migraines for 30 years. Nothing could touch the pain once I got one - not Oxycontin, not Vicodin, not Demerol, nothing! Zomig was limited by my insurance plan and expensive! I'd miss days from work, days from my life . . . with Topomax, I've had maybe 2 headaches in 6 months, where I used to have one every week or 2. This is my miracle drug. It's a lifesaver. The pain of my migraines would literally have me contemplating suicide. I'm free of that now, free of worrying all the time I'm out if I'm going to get a headache, if I'll be able to drive home, etc. I love it! I'm at 200mg a day. | F | 48 | 8 months | 9/4/2007 | 5 | Occular Migraines | Decrease of sexual desire, tingling in hands and feet, numbness in hands | this stuff is god's gift. occular migraines are about as odd as you can get. for no reason i go blind for about 10 min. sounds like fun ehh??? topamax is great!! | F | 26 | 8 months | 3/6/2007 | 5 | migraines | loss of appetite, slight tingling in feet, very slight pain in eyes, thristy, loss of concentration/memory, hair loss. | i love topamax. even with the side effects, they werent bad enough compared to how much the migraines were interrupting my life. i had migraines 3 times a week, on average, now i get them once a month or less and the actual pain is much less... about a 3 versus a 10. i dont really even notice the side effects to tell you the truth, unless i have to think about them. topamax is actually improving my grades in school, bc i can go to class more often bc im not home sick with a migraine. | F | 23 | 8 months | 4/26/2007 | 4 | bipolar II disorder/ mixed episodes | weight loss (20 lbs), loss of taste of carbonated drinks, occasional slight tingling feeling in my hands and feet (especially if I've had a drink), no tolerance to alcohol | topamax has really helped control my mood changes. i think it is also a good drug for people with trouble controlling their appetite for food and alcohol. | F | 21 | 8 months | 11/27/2007 | 4 | migraines | HAIR LOSS! tingling, loss of appetite, memory problems, sleepiness, eye pain, leg pain, hot flushes, constipation, nausea, rosacea | Helps migraines except for menstrual ones. Also eliminates tension headaches. I have to keep increasing every few months, I think. All side effects are worth it! | F | 44 | 8 months | 10/13/2004 | 4 | mood stabler at first, weight loss, | I have had tingling in fingers and some numbness, even blue finger tips a few times. I don't know if this is related i take many other medications | weightloss seems to have leveled off maybe I take 75 mg daily | 54 | 8 months | 4/13/2006 | 4 | Migraines | Tingling in extremities; mood swings; irregular periods; carbonated beverages taste different; fatigue; blurry vision; light acne; changes in body chemistry/sweat; weight loss | The tingling dissipated after a month or so as did the change in taste in carbonated beverages. Fatigue is no longer a problem. The issue I am most concerned with is the mood swings which are severe. They began when I increased to 100mg. | F | 32 | 8 months | 8/2/2006 | 4 | Pseudotumor cerebri | Tingling, some language disorders, loss of 20% of my body weight | Mostly I experienced an extreme weigt loss. I started the drug at 125 lbs and fell to 100 or so in 1.5 months. It became so extreme I was diagnosed with amenorrhea, and when I discontined the drug and had some weight rebound, I had tendencies toward anorexia and bulemia, weighing only 110 lbs. For someone who's never had a body image issue, this drug caused me to feel fat although a size 0 is often too big. But the headaches were gone. | F | 20 | 8 months | 5/10/2006 | 4 | Migraines | Weight loss. Lost 20 lbs. First few weeks experienced confusion and memory loss but that went away. Low blood pressure. My blood pressure was already on the low side but now I have to be really careful as Topamax has lowered it even more so I do have pass out occasionally | Topamax has SIGNIFICANTLY helped my migraines. I was suffering from around 3 severe migraines per week and now I only get maybe max 3 per month. | M | 53 | 8 months | 1/2/2009 | 4 | migraine prophylaxis | dry mouth, appetite suppression; ;word memory deficit; changes in word and ability to process reading and writing; mood changes; deepening depression; recurrence of anxiety/panic attacks | This is my third round on Topamax with the best results on my migraines, which were becoming incapacitating: 3-5 days long, and not being able to take triptans more than 3 days a week to manage the pain. These last 2 rounds have gone much better with the side effects when I first went on the med; I can handle the tingling and crappy tasting Pepsi. But the depression, anxiety, and cognitive changes, though, are bringing me to the edge. I had no idea so many dealt with this; my neuro looked at me like I was crazy when I told him my "word bank was empty," and that I was having trouble functioning in my classes. (He needs to do some reading, I think. . ) . WARNING TO ANYONE ALREADY ON TOPAMAX-- don't wean yourself off. Talk to your doctor first and talk about alternatives. There is a trade off to all these great meds we have and anytime we mess with our brain chemicals, something is going to give. If I wasn't in school and didn't need to write, this might not make as big a dif | F | 49 | 8 months | 11/30/2008 | 3 | Epilepsy | Anorexia/some bulimia, Weight Loss (30 lbs!!! In A month and a half!!), Depression (already have depression so this was NOT good), Suicidal thoughts, made my acid reflux worse, aches and pains, severe Brain Fog, headaches, Aphasia, forgetfulness, Memory Loss, fatigue...and yet insomnia too so i had to dose myself with Benadril, ugh!, WORST MENSTRUAL PERIODS EVER!, Parasthesia (in my feet, heels, hands and...cheeks? WEIRD!), blurry vision, Inexplicable rage and annoyance at even the smallest things, inexplicable crying spells, Chest tightening, hair loss...this is ALL only on 25mg...ramped up for a while to 200 and nothing (side effect wise) really got much better except for maybe ONE day. If i missed ONE dose, i'd have to ramp back up again because my body was just so sensitive to it. Oh, and coming off of it isn't too great either. DEPRESSION. This drug is CRAZY! | I took this medication for Epilepsy and holy crap this medication is one hell of a drug..and not really in a good way. The ONLY good thing about this medication was that I lost 30 pounds...but i lost it too fast in only a month in a half (though i worked out vigorously as well). Granted, it WAS my 'genius plan' to switch my seizure meds to the one that would make me lose weight but...not at the expense of my sanity! I was SO sensitive to this medication at even 25 mg it was insane. Rage, annoyance, crying spells, depression...i was a MESS. The last straw was when I last had my Period and i had HORRIBLE shooting pains through my Uterus and up to my breast and chest tightening with left arm pains...i thought i was going to have a heart attack or something. Don't take this med just for weight loss and if you do drink LOTS of Cranberry Juice and water! | F | 20 | 8 months | 12/19/2007 | 3 | Depression | I started with 50MG 2x per day and at first I loved it. It balanced or perhaps numbed my moods, I was losing weight and the other side effects were tolerable at first. I had very thick long hair but noticed I was shedding a bit more. Then over time, my body had gotten used to the drug and my dosage had been increased. I became ridiculously paranoid, irritable and then my hair was falling out in clumps. My weight was rapidly dropping. 8 months later, I had to go off of it. My hair was so thin, you could see my scalp which resulted me to chop it all off. I quickly gained all the weight back when I went off the meds. Not worth it. | F | 36 | 8 months 50MG 2X day | 12/13/2013 | 3 | occipital neuralgia;periperal neuro | Extreme weight loss. | After trying Gralise which caused horrible abdominal distress, I went on topirimate. It was magic for getting rid of migraines. I am very petite and have lost 13 lbs and continue to do so. I feel and look like a skeleton. Neurologist is going to try me on something else. I hate side effects. Going for my med. marijuana card cause I know that helps (at least at night). The pain from the occipital neuralgia and the peripheral neuropathy is hard to explain to anyone, but what do you do when a med works on the symptoms, but causes worse side effects? | M | 64 | 8 months 25 1X day | 1/29/2015 | 3 | Chronic Migraines | Slight weight loss, hair loss, loss of vision in one eye, memory loss | Absolutely worked with prevention of my daily migraines, as I am now off it and getting them everyday again. But I would routinely lose vision in my left eye (scary!), and lost about 1/3 of my hair. I also ended up with kidney stones for the first time in my life. Side effects were too much for me, so I deal with my headaches by taking Imitrex. Gained 10 lbs back. | F | 38 | 8 months | 12/3/2014 | 3 | Migraine prevention | Nausea, memory problems, some tingling in feet (subsided after 4-6 months), lack of appetite, weight loss, anxiety, persistent low grade fever, hyperthermia, anhidrosis, dry mouth, kidney infection. Horrendous watery diarrhoea and sometimes stomach pain that felt like someone was stabbing me with glass from the inside. | I really tried to persevere with topamax as it almost stopped all my migraines and headaches. However the persistent fever went on for nearly 5 months and the drs didn't know what it was. I had lots of tests and they gave up. I decided to take matters in to my own hands and slowly taper off. I'd researched Topamax and persistent fever as a side effect. It was causing me to be off work constantly because I felt so unwell plus a kidney infection which kept me off of work for almost 2 months. My IBS was well controlled with diet but I developed severe watery diarrhoea and have been living on imodium. The weight is falling off very quickly. I am now day 4 of being off of Topamax completely. I am having some insomnia and high anxiety on the mornings. Otherwise I have not had a problem tapering. I can't wait to have this drug out of my system mainly due to the awful side effects. I think before taking it you have to decide whether the benefits outweigh the risks. | F | 8 months 75mg 1X day | 7/16/2023 | 3 | Mirgarine | Horrible taste in my mouth, like metal or blood all the time! I have been so tired for months it is a nightmare. I lost 15 lbs, cant eat everything tastes so bad. Yes it worked on my headaches but i have to come off of this drug. Cant, eat, think clearly, work well etc. | F | 45 | 8 months 100mg 1X day | 6/1/2010 | 3 | Migraines | SEVERE WEIGHT LOSS(not good for me!) Hair loss too& all the other listed effects | I would not recommend this drug to anyone THIN! I was at a beautiful, perfect(to me) size, and after 6 months I am down to a weight of 108 at 5'6". I hate my body now and I am doing evry protein shake possible to help me gain the weight back, but it's not working! I eat tons of carbs, too. I also hate the hair loss that has occured, I already have fine hair. I hate this drug, even if it helps my migraines! Do not take this unless you can deal with these side effects; I can't!!!!! | F | 29 | 8 months | 3/27/2007 |