TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  mood stabilizer parastesia, difficulty word finding, poor spelling, cocky attitude if that is a side effect. This stuff is a double edge sword. It destroyed inhibition. Crushed my ability to spell. My hands tingle. I lost abot 20 pounds a plus for me. Umm there is no magic pill but despite the negitives this stuff has been an absolute wonder drug for me. Im a drunk and beer absolutly tastes like shit and the euphoric effects are minimized. I have always let people walk all over me and now I have the courage to confront them and express myself in a correct way rather than letting things build then exploding in rage. I've tried many other meds and this has been the best thing i have been on. I will deal with poor grammer to continue to grow and experience new things and hobbies I wound have attempted before out of fear and poor self esteem. i GIVE IT 2 THUMBS UP. M 31 1 years
6/7/2009
 5  Chronic Migraines Initially: Weightloss, all carbonated beverages tasted flat, mental fogginess, fatigue Current: Tingling in my feet, very picky eating habits (I eat like a toddler), and beer still tastes bad I take 200mg at night. I can't take it in the morning, as I am not a morning person to begin with, and I have start teaching at 7:45 each day. If I took it in the am, I'd probably forget where my classroom was located and that I was a science teacher. So, I take it at night, and it has worked wonders for me. I can deal with the tingling in my feet, and I've only drank about 3 beers in the past year...in exchange, I've had about half the migraines. This drug is not for everyone, though. It has a number of potential side effects, and you need to be in close contact with your doctor should a problem arise. F 26 1 years
7/29/2008
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 5  Migraines brief memory lapses, tingling in lips, hands, feet, no desire to eat, all went away within 4 weeks of continuing medication. Its important to start slow and at a low doseage. Never start higher then 25mg. The side effects will be horrible. After taking it for a month the side effects should begin to taper off. But you've got deal with some of the side effects until your body gets adjusted to them. Some will some won't. You don't know until you try it. After 4 weeks the side effects went away for me, the only thing that didn't go away was that I still don't eat much. Good Luck! F 31 1 years
5/25/2008
 5  Cluster Migraines, Complex Migraine Extreme tingling in fingers and toes, soda and beer tasted flat but not for too long, fatigue, forgetting words, names, short memory, twitching of right eye 24/7 This is my miracle drug! After suffering for about 19 yrs. with debilitating cluster migraines which lasted for weeks at a time, and trying almost every drug that was prescribable during these years, also suffering horrible side effects, Topamax is the only drug that really took my headaches away. The side effects that I suffer almost daily are nothing compared to the pain of the migraines that I had. I started with 25mg twice a day and moved up to 50mg twice a day. When I start to feel really fatigued, get blurred vision or have the memory loss, I just stop for a day or two and I'm fine. But you'd better bet that I go right back on my Topamax! Once I went out of town and left my prescription at home, so I missed my pills for about 5 days, and my migraines came back in full force. I had to take Prednisone for a few weeks, and Relpax with Naproxen for a couple days until the Topamax got into my system again. I felt like crap! I do not miss my doses unless my sides effects get too heavy. F 43 1 years
5/31/2008
 5  Migraines Loss of concentration, appetite/weight loss, numbness in extremities, difficulty breathing I was getting 2-3 migraines per week prior to taking topamax, and while the side effects are difficult to deal with, I truly feel as if they are worth it. I take 25 mg twice a day, and as I do this, it tends to cut down on the numbness I was having when taking 50mg 1x per day. I was having some problems with anxiety/breathlessness, but my md helped reduce that by adding an anti-anxiety med twice a day. F 22 1 years
7/27/2008
 4  Migraines/Chronic Daily Headache Extreme weight loss about 25 pounds (am 5'8 went from approx 145 to 120), loss of appetite, tingling of feet and around mouth, I think I'm having some minor memory loss and "what's the word" but I can't tell because I can't remember, drowsiness. The topamax helped with the migraines a lot. I tried many different drugs. Before topamax I had headaches/migraines every day. Now the migraines are essentially gone. I still get headaches pretty often though. F 16 1 years
2/20/2009
 4  Migraines Tingling in the hands and feet, memory loss, change in taste buds I've been on Topamax for over a year now and I've gone from having 5 migraines a week down to 1-2 a month. I went from 100 mg down to 75 to try and lower the side effects and I'm back to drinking Coke and it tastes fine now. I had been sleeping better than I have in years but this last week or so they came out with the generic and I wonder if it is causing strange dreams and paranoia. I have to say I feel different than I did previously. My dreams have been crazy since switching. I'll give it a few more days but if it doesn't get better, I won't be taking the generic anymore. F 38 1 years
4/11/2009
 4  migraines joint pain (knees) been on 100mg for about a year and for the last 4 months or so my right knee started with severe pain. thought maybe i hurt it at the gym or pulled something at work lifting a patient. there was no swelling or redness, it was more like under my kneecap. this has been going on for about 4 months nurses are the worst patients so i have not gone to the dr. yet, just taking aleve and using icy hot. two weeks ago my left knee started doing the same thing, so then i knew something was going on. take no other meds except imitrex as needed about 3x a month. started researching and found this site. this is the only side effect i have had. worked great for migraines went from 16 or so a month to 3. F 38 1 years
1/17/2009
 4  Complex Partial Seizures Insomia, restless legs, anxiousness, tingly hands, weight loss (not a bad thing), word finding difficulty It didn't completely control seizures, so I had to stop taking it. But it was great while it lasted. I lost 20 pounds in a year, I felt awake and energetic (but I couldn't sleep too well). After a year my thoughts became a little foggier though. F 22 1 years
1/11/2008
 4  Migraines Tingling in fingers. Hair loss so I went off the Topamax but then the chronic headaches came back. Word loss. Initial weight loss of 70 lbs due to feeling full and I used it to my advantage because I needed to lose the weight. I also lost all taste for alcohol. Haven't had any desire to drink in over 3-1/2 yrs. drank regularly all my life before Topamax. When I noticed the hair loss I stopped taking Topamax but had to go back on it because of the chronic migraines. The Topamax seems to really work for me as far as the migraines. The only other thing that works for my migraines is not legal in my stupid state. (MJ). So I will be taking the Topamax until they get smart and legalize it. Fortunately for me the loss of words isn't terrible. Tingling has pretty much subsided except when cold. I've kept the weight off but had to work at it. Hair loss doesn't seem to be so bad. The headaches are way worse than most anything because mine are the kind that don't totally dibilitate but last 2 to 3 weeks. My job is reading and reviewing files all day long. You can't do that when your head hurts and all you want to do is go home and sleep so it's Topamax for me cause they tell me there's nothing else. I can't take pain meds during the day because I fall asleep at my desk. Besides they don't really get rid of the pain - maybe for 10-20 min. F 64 1 years
200 mgs
5/28/2016
 4  Alcohol dependence and Bi-polar II Tingling in feet, word retrieval issues, fatigue, weight loss Topamax helped curb my cravings for alcohol tremendously. It was as if I hadn't ever even drank. It also helped stabilize my moods and make better decisions beyond just not drinking. Unfortunately I had to stop taking it due to a liver issue that wasn't related to topamax. (Ironic to stop drinking and have your liver go to hell!) Side effects were worth it for pay off. F 40 1 years
150 mg
10/30/2015
 4  Migraines/tension headaches tiredness, mental fog, dizziness, a bit of diarrhea I was prescribed topomax because I can't take excedrin due to a caffeine sensitivity and naproxen wasn't working. I was getting tension headaches EVERY SINGLE DAY, and they would often escalate into migraines. At first I was started with 25mg but that wasn't enough to prevent the migraines so I went to 50 mg. It prevents my migraines and tension headaches 75% of the time. Occasionally I have break through tension headaches and I ALWAYS get migraines on my period, even with the topomax. It does a pretty good job but it doesn't prevent every migraine. F 20 1 years
50 mg 1X day
12/29/2015
 4  frequent migraines / bipolar type 2 weight loss, really bad short-term memory, trouble concentrating, diarrhea, bad balance, lightheadedness, irregular heart rate, fatigue, etc. overall, it helped my headaches very well. but i found myself not being able to have a conversation without struggling for words. i went from 140 to 105 pounds. i'd forget to eat and not be able to find anythiing that appealed to me. i'd almost pass out upon standing. i don't know. it has it's pros and cons. F 18 1 years
7/22/2009
 4  Weight loss/alcohol;drug addictions Initial or after increased dosage (2 weeks): memory loss, speech disorder, confusion, minor fatigue and coordination problems: Long-term: apathy, irritability, unstable mood, decreased appetite, reduced carbs and alcohol cravings (good thing), weight loss of 90 lbs (6 pack back : ); moderate cognitive problems. These side effects are dose-related: at 50 mg/day, they are minor but at 100 mg/day they become more present. I started Topamax after gaining 70 lbs from antipsychotics medications for borderline personality disorder, because in Canada, Quebec, the psychiatrists I saw (about 8) prefered prescribing antipsychotics, but it made me a zombie, low functional fat looser with apathy but when the anger comes out, it's 10 times worst. Also, those drugs, decreased my dopamine level so much that I became a drug addict. So I did my reasearches, switch to Lamictal, Wellbutrin XL and topamax to loose the weight and treat all my problems. Now I'm a high functioning drug/alcohol free, but fitness addict because I love my new shape and want muscle mass and my carbs cravings are better, and my mood is stable with no abnormal impulsivity or agressivity. If I can keep my new healthy life this way, I will try to stop topamax only, but is symptoms come back, I will go back on it. M 1 years
25-50 mg 2X day
2/9/2019
 4  Hand Tremors Topamax and sugar are not a good combination. I have been on it for a year and it took me several months to figure out that whenever I have anything that contains sugar I will have stomach pain and if the amount of sugar is alot, i.e. ice cream, I might even get diarrhea. The only thing that will reduce pain is fresh made LIME juice, not pepto, or anything else over the counter. I lost 70lbs in 3 months. M 28 1 years
50 MG 2X day
8/3/2011
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 4  migraine weight loss F 33 1 years
50mg 2X day
1/6/2011
 4  mood stabilizer hair loss, slight dizziness now and again This drug was a tremendously effective mood stablizer. And I had none of the bad side effects that I read in so many cases. But as time goes by, I've noticed a gradual hair thinning that has become too much to deal with as a young woman. I have just finished discontinuation. But I want to encourage others to not be scared off by what you read, for me it was great except for this one little thing. F 30 1 years
50 2X day
11/29/2010
 4  Migraines Loss of appetite, itchy scalp, lower libido, dry mouth, some brain fog Took this for 2 years then took 1.5 years off, now have been back on for 1 year. I have had migraines since I was 10 and have tried every drug, this is the only one that has helped. I lost some weight--about 10 lbs. But started out slim so there wasn't much I could lose. My scalp has been very itchy and I get terrible dry mouth/bad breath. I also have noticed a lower sex drive. This has also significantly helped with my bulimia---have only binged/purged once since I went on it. To me the side effects are worth it. F 24 1 years
200 mg 1X day
8/27/2010
 4  Migraine Helped the migraine, but caused SEVERE irritability. I'm thinking seriously of stopping Topamax, but first I will talk to the pain doctor who prescribed it. I'm way too grouchy. Topamax has helped ease the migraine a bit. The drug has taken the constant migraine pain from a level 8 to a level 6 (on a 10 scale). But my 40 year long marriage is suffering. I am so crabby. This is not worth ruining my marriage. F 60 1 years
100 mg 2X day
3/25/2010
 4  Migraines I have chronic insomnia, extreme weight loss (I now weigh 104 lbs) confusion and anxiety attacks. I cry out of the blue for no reason and am also extremely tired and can't get out of bed most of the time. I don't feel like myself as I am short with people all the time now and have a very bad temper. I was never short tempered prior to taking this medication and was always very happy and full of energy. It did get rid of my migraines so It did give me back alot of my life and am scared to go off of it for fear of getting them back but am now thinking that the trade off is not worth it. It is better to have a few days with migraines and feel normal again that feel sad all the time. F 43 1 years
8/6/2006

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